Knowledge, attitudes, and practice toward epilepsy (KAPE): A survey of Chinese and Vietnamese adults in the United States

Epilepsy and Behavior

Volumn 17, Issue 2, 2010, Pages 221-227

  Chung, Kenny ^a   Ivey, Susan L ^a   Guo, Wenting ^a   Chung, Kevin ^a   Nguyen, Catherine ^a   Nguyen, Christine ^a   Chung, Corina ^a   Tseng, Winston ^a  

^a University of California Berkeley   (United States)

Author keywords

Asian American Health; Community based research; Epilepsy; Mental health; Social attitudes; Stigma; Student led; Survey cross sectional study

Indexed keywords

ADULT; AGE DISTRIBUTION; AGED; ARTICLE; ASIAN AMERICAN; ATTITUDE TO ILLNESS; AWARENESS; CHINESE; CONTROLLED STUDY; CROSS-SECTIONAL STUDY; DEMOGRAPHY; EDUCATIONAL STATUS; EPILEPSY; ETHNIC DIFFERENCE; FEMALE; HUMAN; MALE; SEIZURE; SEX DIFFERENCE; SOCIAL DISCRIMINATION; STIGMA; UNITED STATES; VIET NAM;

ADOLESCENT; ADULT; AGED; ATTITUDE TO HEALTH; CHINA; CROSS-SECTIONAL STUDIES; EPILEPSY; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; MALE; MIDDLE AGED; QUESTIONNAIRES; UNITED STATES; VIETNAM; YOUNG ADULT;

EID: 75749136389     PISSN: 15255050     EISSN: 15255069     Source Type: Journal    
DOI: 10.1016/j.yebeh.2009.11.023     Document Type: Article

References (64)

1. Epilepsy and seizure statistics. Landover, MD: Epilepsy Foundation.
2. Banerjee P.N., Filippi D., and Allen Hauser W. The descriptive epidemiology of epilepsy: a review. Epilepsy Res 85 (2009) 31-45
3. Fact Sheets: World Health Organization; 2009.
4. Bandstra N.F., Camfield C.S., and Camfield P.R. Stigma of epilepsy. Can J Neurol Sci 35 (2008) 436-440
5. Begley CE, Beghi E, Beran RG, et al. for the ILAE Commission on the Burden of Epilepsy, Subcommission on the Economic Burden of Epilepsy. Final report 1998-2001. Epilepsia 2002;43:668-73.
6. Begley C.E., and Beghi E. The economic cost of epilepsy: a review of the literature. Epilepsia 43 Suppl. 4 (2002) 3-9
7. Shafer P.O., and Begley C. The human and economic burden of epilepsy. Epilepsy Behav 1 (2000) 91-92
8. Yoon D., Frick K.D., Carr D.A., and Austin J.K. Economic impact of epilepsy in the United States. Epilepsia 50 (2009) 2186-2191
9. Blume W.T., and Derry P.A. Stigma and its neurological and psychological effects in epilepsy. Can J Neurol Sci 35 (2008) 403-404
10. De Boer H.M., Mula M., and Sander J.W. The global burden and stigma of epilepsy. Epilepsy Behav 12 (2008) 540-546
11. Fernandes P.T., Salgado P.C., Noronha A.L., Sander J.W., and Li L.M. Stigma Scale of Epilepsy: validation process. Arq Neuropsiquiatr 65 Suppl. 1 (2007) 35-42
12. Jacoby A., and Austin J.K. Social stigma for adults and children with epilepsy. Epilepsia 48 Suppl. 9 (2007) 6-9
13. Jacoby A., Wang W., Vu T.D., et al. Meanings of epilepsy in its sociocultural context and implications for stigma: findings from ethnographic studies in local communities in China and Vietnam. Epilepsy Behav 12 (2008) 286-297
14. Obeid T. Stigma: an aspect of epilepsy not to be ignored. Saudi Med J 29 (2008) 489-497
15. Troster H. Disclose or conceal? Strategies of information management in persons with epilepsy. Epilepsia 38 (1997) 1227-1237
16. Baskind R., and Birbeck G.L. Epilepsy-associated stigma in sub-Saharan Africa: the social landscape of a disease. Epilepsy Behav 7 (2005) 68-73
17. Corrigan P.W., Larson J.E., and Rusch N. Self-stigma and the "why try" effect: impact on life goals and evidence-based practices. World Psychiatry 8 (2009) 75-81
18. Inoue Y. Social aspect of epilepsy. Rinsho Shinkeigaku 47 (2007) 787-789
19. Tsuji S. Social aspects of epilepsy: marriage, pregnancy, driving, antiepileptic drug withdrawal and against social stigma. Rinsho Shinkeigaku 44 (2004) 865-867
20. Walsh E., and Ayton P. What would it be like for me and for you? Judged impact of chronic health conditions on happiness. Med Decis Making 29 (2009) 15-22
21. Snape D., Wang W., Wu J., Jacoby A., and Baker G.A. Knowledge gaps and uncertainties about epilepsy: findings from an ethnographic study in China. Epilepsy Behav 14 (2009) 172-178
22. Scambler G. Health-related stigma. Social Health Illn 31 (2009) 441-455
23. Reisinger E.L., and DiIorio C. Individual, seizure-related, and psychosocial predictors of depressive symptoms among people with epilepsy over six months. Epilepsy Behav 15 (2009) 196-201
24. Pennell P.B., and Thompson P. Gender-specific psychosocial impact of living with epilepsy. Epilepsy Behav 15 Suppl. 1 (2009) S20-S25
25. Kumari P., Ram D., Haque Nizamie S., and Goyal N. Stigma and quality of life in individuals with epilepsy: a preliminary report. Epilepsy Behav 15 (2009) 358-361
26. Kluger G., and Kudernatsch V. St. Valentine-patron saint of epilepsy: illustrating the semiology of seizures over the course of six centuries. Epilepsy Behav 14 (2009) 219-225
27. Hermann B., and Jacoby A. The psychosocial impact of epilepsy in adults. Epilepsy Behav 15 Suppl. 1 (2009) S11-S16
28. Rhodes P.J., Small N.A., Ismail H., and Wright J.P. 'What really annoys me is people take it like it's a disability', epilepsy, disability and identity among people of Pakistani origin living in the UK. Ethn Health 13 (2008) 1-21
29. Jacoby A. Epilepsy and stigma: an update and critical review. Curr Neurol Neurosci Rep 8 (2008) 339-344
30. Fernandes P.T., Noronha A.L., Sander J.W., and Li L.M. Stigma scale of epilepsy: the perception of epilepsy stigma in different cities in Brazil. Arq Neuropsiquiatr 66 3A (2008) 471-476
31. Freidl M., Spitzl S.P., Prause W., et al. The stigma of mental illness: anticipation and attitudes among patients with epileptic, dissociative or somatoform pain disorder. Int Rev Psychiatry 19 (2007) 123-129
32. Shah P. Psychosocial aspects of epilepsy. J Indian Med Assoc 100 (2002) 295-298
33. Jacoby A., Gorry J., and Baker G.A. Employers' attitudes to employment of people with epilepsy: still the same old story?. Epilepsia 46 (2005) 1978-1987
34. Beran R.G. The burden of epilepsy for the patient: the intangible costs. Epilepsia 40 Suppl. 8 (1999) 40-43
35. Collings J.A., and Chappell B. Correlates of employment history and employability in a British epilepsy sample. Seizure 3 (1994) 255-262
36. Villanueva Gomez F. Legal aspects of the epilepsies. Rev Neurol 34 (2002) 555-562
37. Inoue Y., Ito M., Kurihara M., and Morimoto K. Epilepsy and driving in Japan. Epilepsia 45 (2004) 1630-1635
38. Beran R.G. Professional privilege, driving and epilepsy, the doctor's responsibility. Epilepsy Res 26 (1997) 415-421
39. McLachlan R.S. Medical conditions and driving: legal requirements and approach of neurologists. Med Law 16 (1997) 269-275
40. McLin W.M., and de Boer H.M. Public perceptions about epilepsy. Epilepsia 36 (1995) 957-959
41. Parsonage M. Historical overview of the legislative aspects of epilepsy. In: Canger R., Loeber J.N., and Castellano F. (Eds). Epilepsy and society: realities and prospects (1988), Excerpta Medica, Amsterdam 227-230
42. Caveness W.F., and Gallup Jr. G.H. A survey of public attitudes toward epilepsy in 1979 with an indication of trends over the past thirty years. Epilepsia 21 (1980) 509-518
43. Chung M.Y., Chang Y.C., Lai Y.H., and Lai C.W. Survey of public awareness, understanding, and attitudes toward epilepsy in Taiwan. Epilepsia 36 (1995) 488-493
44. Fong C.Y., and Hung A. Public awareness, attitude, and understanding of epilepsy in Hong Kong Special Administrative Region, China. Epilepsia 43 (2002) 311-316
45. Kobau R., and Price P. Knowledge of epilepsy and familiarity with this disorder in the U.S. population: results from the 2002 Health Styles Survey. Epilepsia 44 (2003) 1449-1454
46. Lai C.W., Huang X.S., Lai Y.H., Zhang Z.Q., Liu G.J., and Yang M.Z. Survey of public awareness, understanding, and attitudes toward epilepsy in Henan province, China. Epilepsia 31 (1990) 182-187
47. Le Q.C., Dinh D.T., and Jallon P. Survey of public awareness, attitudes, and understanding toward epilepsy in Nhan Chinh, Hanoi, Vietnam, in 2003. Epilepsy Behav 8 (2006) 176-180
48. Tuan N.A., Cuong le Q., Allebeck P., Chuc N.T., and Tomson T. Knowledge, attitudes and practice toward epilepsy among adults in BaVi, Vietnam: first report from the population-based EPIBAVI study. Epilepsia 48 (2007) 1914-1919
49. Bagic A., Bagic D., and Zivkovic I. First population study of the general public awareness and perception of epilepsy in Croatia. Epilepsy Behav 15 (2009) 170-178
50. Awad A., and Sarkhoo F. Public knowledge and attitudes toward epilepsy in Kuwait. Epilepsia 49 (2008) 564-572
51. Sirven J.I., Lopez R.A., Vazquez B., and Van Haverbeke P. Que es la Epilepsia? Attitudes and knowledge of epilepsy by Spanish-speaking adults in the United States. Epilepsy Behav 7 (2005) 259-265
52. Choi-Kwon S., Park K.A., Lee H.J., et al. Familiarity with, knowledge of, and attitudes toward epilepsy in residents of Seoul, South Korea. Acta Neurol Scand 110 (2004) 39-45
53. Lim S.H., and Pan A. Knowledge, attitudes, and perceptions of epilepsy in Asia: toward a uniform study protocol. Epilepsia 46 Suppl. 1 (2005) 48-49
54. U.S. Census Bureau. The American Community: Asians 2004. Washington, DC: U.S. Department of Commerce; 2007.
55. Ozer E.J., Cantor J.P., Cruz G.W., Fox B., Hubbard E., and Moret L. The diffusion of youth-led participatory research in urban schools: the role of the prevention support system in implementation and sustainability. Am J Community Psychol 41 (2008) 278-289
56. Tseng W. Government dependence of Chinese and Vietnamese community organizations and fiscal politics of immigrant services. J Health Soc Policy 20 (2005) 51-74
57. Hsu L.D., DeJong W., Hsia R., Chang M., Ryou M., and Yeh E. Student leadership in public health advocacy: lessons learned from the hepatitis B initiative. Am J Public Health 93 (2003) 1250-1252
58. Avery B., and Bashir S. The road to advocacy: searching for the rainbow. Am J Public Health 93 (2003) 1207-1210
59. Abe-Kim J., Takeuchi D.T., Hong S., et al. Use of mental health-related services among immigrant and US-born Asian Americans: results from the National Latino and Asian American Study. Am J Public Health 97 (2007) 91-98
60. Gee G.C., Spencer M.S., Chen J., and Takeuchi D. A nationwide study of discrimination and chronic health conditions among Asian Americans. Am J Public Health 97 (2007) 1275-1282
61. Spencer M.S., and Chen J. Effect of discrimination on mental health service utilization among Chinese Americans. Am J Public Health 94 (2004) 809-814
62. Gary F.A. Stigma: barrier to mental health care among ethnic minorities. Issues Ment Health Nurs 26 (2005) 979-999
63. Rader K., Ritter G., and Schwibbe M.H. Epilepsy and prejudice: the dimensionality of stereotypes towards epileptics. Int J Rehabil Res 9 (1986) 325-334
64. Diiorio C.A., Kobau R., Holden E.W., et al. Developing a measure to assess attitudes toward epilepsy in the US population. Epilepsy Behav 5 (2004) 965-975