The burden of epilepsy for the patient: The intangible costs

Epilepsia

Volumn 40, Issue SUPPL. 8, 1999, Pages 40-43

  Beran, Roy G ^a,b  

^a Epilepsy Research and Services   (Australia)

^b NONE   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

ACCOMMODATION; ADOLESCENT; ADULT; AGED; EDUCATION PROGRAM; EMPLOYMENT; EPILEPSY; FEMALE; HEALTH CARE COST; HUMAN; INFANT; MAJOR CLINICAL STUDY; MALE; PATIENT TRANSPORT; PRIORITY JOURNAL; REVIEW; SOCIAL ISOLATION;

ADOLESCENT; ADULT; AGED; AMBULATORY CARE; ATTITUDE TO HEALTH; CHILD; COST OF ILLNESS; DIRECT SERVICE COSTS; EMPLOYMENT; EPILEPSY; FEMALE; HEALTH CARE COSTS; HUMANS; MALE; MIDDLE AGED; OUTCOME ASSESSMENT (HEALTH CARE); RESIDENCE CHARACTERISTICS; SOCIAL ADJUSTMENT; SOCIAL ISOLATION;

EID: 0032717954     PISSN: 00139580     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1528-1157.1999.tb00946.x     Document Type: Review

References (36)

1. Beran RG, Pachlatko CH, eds. Cost of epilepsy: Proceedings of the 20th International Epilepsy Congress. Baden: Ciba-Geigy, 1995.
2. Trimble MR, Dodson WE, eds. Epilepsy and quality of life. New York: Raven Press, 1994.
3. Baker GA, Camfield C, Camfield P, et al. Commission on Outcome Measurement in Epilepsy, 1994-1997: final report. Epilepsia 1998;39:213-31.
4. Bagley C. Social prejudice and the adjustment of people with epilepsy. Epilepsia 1972;13:33-45.
5. Sutton C, Beran RG. Why is epilepsy regarded as a form of deviance? Aust Fam Physician 1983;12:464-5.
6. Carlton-Ford S, Miller R, Brown M, Nealeigh N, Jennings P. Epilepsy and children's social and psychological adjustment. J Health Soc Behav 1995;36:285-301.
7. Clement MJ, Wallace SJ. A survey of adolescents with epilepsy. Dev Med Child Neurol 1990;32:849-57.
8. Jacoby A. Age-related considerations. In: Engel J Jr, Pedley TA, eds. Epilepsy: a comprehensive textbook. Philadelphia: Lippincott-Raven, 1997:1121-9.
9. Jacoby A, Baker GA, Steen N, Potts P, Chadwick DW. The clinical course of epilepsy and its psychosocial correlates: findings from a U.K. community study. Epilepsia 1996;37:148-61.
10. Levin R, Banks S, Berg B. Psychosocial dimensions of epilepsy: a review of the literature. Epilepsia 1988;29:805-16.
11. Beran RG, Read T. Patient perspectives of epilepsy. Clin Exp Neurol 1981;17:59-69.
12. Scambler G. Patient perceptions of epilepsy and of doctors who manage epilepsy. Seizure 1994;3:287-93.
13. Meador KJ. Research use of the new quality-of-life in epilepsy inventory. Epilepsia 1993;34(suppl 4):S34-8.
14. Rupprecht T, Fraser RT. The range of needs and services in vocational rehabilitation. In: Epilepsy: a comprehensive textbook. Engel J Jr, Pedley TA, eds. Philadelphia: Lippincott-Raven, 1997: 2211-25.
15. Chaplin JE, Floyd M, Lasso RY. Early psychosocial adjustment and the experience of epilepsy: findings from a general practice survey. Int J Rehabil Res 1993;16:316-8.
16. Hayden M, Penna C, Buchanan N. Epilepsy: patient perceptions of their condition. Seizure 1992;1:191-7.
17. Jacoby A. Epilepsy and the quality of everyday life. Soc Sci Med 1992;34:657-66.
18. Fisher RS, Parsonage M, Beaussart M, et al. Epilepsy and driving: an international perspective: Joint Commission on Drivers' Licensing of the International Bureau for Epilepsy and the International League Against Epilepsy. Epilepsia 1994;35:675-85.
19. Henriksen O. Education and epilepsy, assessment and remediation. Epilepsia 1990;31(suppl 4):S21-5.
20. Seidenberg M, Clemmons DC. Maximising school functioning and the school-to-work transition. In: Engel J Jr, Pedley TA, eds. Epilepsy: a comprehensive textbook. Philadelphia: Lippincott-Raven, 1997:2203-9.
21. Meredith J, Beran RG. Learning difficulties responding to problem epilepsy management. Epilepsia 1997;38(suppl 3): 165.
22. Besag FMC. Epilepsy, learning and behaviour in childhood. Epilepsia 1995;36:58-63.
23. Seidenberg M, Beck N, Geisser M, et al. Academic achievement of children with epilepsy. Epilepsia 1986;27:753-9.
24. Mitchell WG, Chavez JM, Lee H, Guzman BL. Academic under-achievement in children with epilepsy. J Child Neurol 1991;6:65-72.
25. Camfield C, Camfield P, Smith B, Gordon K, Dooley J. Biologic factors as predictors of social outcome of epilepsy in intellectually normal children: a population-based study. J Pediatr 1993;122: 869-73.
26. Hicks RA, Hicks MJ. Attitudes of major employers toward the employment of people with epilepsy: a 30-year study. Epilepsia 1991;32:86-8.
27. Troxwell J. Epilepsy and employment: the Americans with Disabilities Act and its protection against employment discrimination. In: Beran RG, ed. Epilepsy and law. Tel Aviv: Yozmot, 1997:209-18.
28. Wirrell EC, Camfield PR, Camfield CS, Dooley JM, Gordon KE. Accidental injury is a serious risk in children with typical absence epilepsy. Arch Neurol 1996;53:929-32.
29. Desai KB, Ribbaus WJ, Taylor GJ. Incidence of five common fracture types in an institutional epileptic population. Injury 1996; 27:97-100.
30. Cornaggia CM, Beghi E. A multicenter case-reference study on everyday life risks in epilepsy in Europe. In: Beran RG, ed. Epilepsy and law. Tel Aviv: Yozmot, 1997:131-41.
31. Beran RG. Epidemiological studies of epilepsy in Sydney, Australia. Canberra: Dept of Health, 1983.
32. Hermann BP, Wyler AR. Depression, locus of control, and the effects of epilepsy surgery. Epilepsia 1989;30:332-8.
33. Jacoby A, Johnson A, Chadwick D. Psychosocial outcomes of anti-epileptic drug discontinuation. Epilepsia 1992;33:1123-31.
34. Aicardi J, Taylor DC. History and physical examination. In: Engel J Jr, Pedley TA, eds. Epilepsy: a comprehensive textbook. Philadelphia: Lippincott-Raven, 1997:805-10.
35. Bury M. The sociology of chronic illness: a review of research and prospects. Social Health Illness 1991;13:451-68.
36. Charmaz K. Loss of self: a fundamental form of suffering in the chronically ill. Sociol Health Illness 1983;5:168-97.