Having a father with young onset dementia: The impact on well-being of young people

Dementia

Volumn 8, Issue 4, 2009, Pages 455-480

  Allen, Jacqui ^a   Oyebode, Jan R ^b   Allen, Joanne ^c  

^a John Parkes Unit   (United Kingdom)

^b UNIVERSITY OF BIRMINGHAM   (United Kingdom)

^c Birmingham Working Age Dementia Service   (United Kingdom)

Author keywords

Children; Coping; Dementia; Family stress; Relationships

Indexed keywords

EID: 75649121880     PISSN: 14713012     EISSN: 17412684     Source Type: Journal    
DOI: 10.1177/1471301209349106     Document Type: Article

References (43)

1. Allen, J. (2005). A review of children's perceptions of their parents' mental or physical health. Unpublished doctoral thesis, University of Birmingham,UK.
2. Barnett, B., & Parker, G. (1998). The parentified child: Early competence or childhood deprivation? Child Psychology and Psychiatry Review, 3, 146-155.
3. Beattie, A.M., Daker-White, G., Gillard, J., & Means, R. (2002). Younger people in dementia care: A review of service needs, service provision, and models of good practice. Ageing and Mental Health, 6, 205-212.
4. Bowlby, J. (1973). Separation, anxiety and anger: Attachment and loss volume 2. London: Hogarth Press.
5. Cerebra (2008). Retrieved September 14, 2009, from www.cerebra.org.uk.
6. Charmaz, K. (2000). Grounded Theory: Objectivist and Constructivist Methods. In N. Denzin and Y. Lincoln, (Eds). Handbook of Qualitative Research (2nd ed.). (pp.509-536). Los Angeles, CA: Sage Publications.
7. Christ, G.H., Siegel, K., & Sperber, D. (1994). Impact of parental terminal cancer on adolescents. American Journal of Ortopsychiatry, 64, 604-613.
8. Cox, S., & Keady, J. (Eds.) (1999). Younger people with dementia: Planning practice and development. London: Jessica Kingsley.
9. Dale, T. (2003). Services for younger people with dementia in Nottinghamshire: A Service review and commissioning Strategy. Mabon House Advisory Group. Retrieved from www.alzheimers.org.uk.
10. Davies, H.D., Clovis, C.L., Ingram, L., Priddy, J.M., & Tinkenberg, J.R. (2000). Stages of resolution: Young adult children coping with an Alzheimer's disease parent. Clinical Gerontologist, 22, 43-58.
11. Dementia Plus (2002). Early onset dementia in Worcestershire 1999/2000. West Midlands Dementia Services Development Centre. West Midlands Partnerships for Mental Health.
12. Department of Health (2001). National service framework for older people. (DH publication number 23633). London: Crown copyright.
13. Department of Health. (2005). National service framework for long-term conditions. (DH publication number 265109). London: Crown copyright.
14. Doka, K. (1989). Disenfranchised grief: Recognizing hidden sorrow. Massachusetts: Lexington.
15. Faux, S.A., Walsh, M., & Deatrick, J.A. (1988). Intensive interviewing with children and adolescents. Western Journal of Nursing Research, 10, 180-195.
16. Gates, M.F., & Lackey, N.R. (1998). Youngsters caring for adults with cancer. Journal of Nursing Scholarship, 30, 11-15.
17. Glaser, B., & Strauss, A. (1967). The discovery of grounded theory: Strategies for qualitative research. Chicago: Aldine.
18. Harvey, R.J. (1998). Young onset dementia: Epidemiology, clinical symptoms, family Burden, support and outcome. London: Imperial College.
19. Helseth, S. & Ulfsaet, N. (2003). Having a parent with cancer: Coping and quality of life of children during serious illness in the family. Cancer Nursing, 26, 355-362.
20. Henwood, K.L. (1996). Qualitative inquiry: Perspectives, methods, and psychology. In J.T. Richardson (Ed.) Handbook of qualitative research methods for psychology and the social sciences (pp 24-40). Leicester: BPS.
21. Holmes, J. (1994). The Clinical implications of attachment theory. British Journal of Psychotherapy, 11, 62-77.
22. Kelmer Pringle, M. (1986). The needs of children: A personal perspective. London: Routledge.
23. Kissane, D.W., & Bloch, S. (2002). Family focused grief therapy. Maidenhead, PA: Open University Press.
24. Linley, P.A., & Joseph, S. (2004). Positive change following trauma and adversity: a review. Journal of Traumatic Stress, 17, 11-21.
25. Luscombe, G., Brodaty, H., & Freeth, S. (1998). Younger people with dementia: Diagnostic issues, effects on carers and use of services. International Journal of Geriatric Psychiatry, 13, 323-330.
26. Mead, G.H. (1934). Mind, self and society. Chicago: University of Chicago Press.
27. Mukherjee, S., Sloper, P., & Lewin, R. (2002). The meaning of parental illness to children: The case of inflammatory bowel disease. Child Care, Health & Development, 28, 479-485.
28. Pearlin, L., Mullan, J., Semple, S., & Skaff, M. (1990). Caregiving and the stress process: An overview of concepts and their measures. Gerontologist, 30, 583-594.
29. Petrie, K., & Weinman, J. (1997). Perceptions of health and illness. Amsterdam: Harwood.
30. Pidgeon, N. (2000). Grounded theory: Theoretical background. In J.T.E. Richardson (Ed.), Handbook of qualitative research methods for psychology and the social sciences (pp. 86-101). Leicester: BPS.
31. Rabins, P.V., Mace N.L., & Lucas, M.J. (1982). The impact of dementia on the family. Journal of the American Medical Academy, 248, 333-335.
32. Reder, P., & Lucey C. (1995). Assessment of Parenting: Psychiatric and Psychological Contributions. London: Routledge.
33. Reyland, S.A., Higgins D.'Alessandro, A., & McMahon, T.J. (2002). Tell them you love them because you never know when things could change: Voices of adolescents living with HIV-positive mothers. Aids Care, 14, 285-294.
34. Riebschleger, J. (2004). Good days and bad days: The experiences of children of a parent with a psychiatric disability. Psychiatric Rehabilitation, 28, 25-31.
35. Robertson, S. (1996). Younger people with dementia: The impact on their children. Dementia Services Development Centre. University of Stirling.
36. Strauss, A.L. (1987). Qualitative analysis for social scientists. Cambridge: University of Cambridge Press.
37. Strauss, A.L., & Corbin, J. (1990). Basics of qualitative research: Techniques and procedures for developing Grounded Theory. Sage.
38. Tindall, L., & Manthorpe, J. (1997). Early onset dementia: A case of ill timing? Journal of Mental Health, 6, 237-249.
39. Valiakalayil, A., Paulson, L.A., & Tibbo, P. (2004). Burden in adolescent children of parents with schizophrenia. The Edmonton high risk project. Social Psychiatry and Epidemiolog, 39, 528-535.
40. Westman, A. (2000). The problem of parental personality. In P. Reder, M. McClure & A. Jolley (Eds). Family matters: Interfaces between child and adult mental health (pp. 155-170). London: Routledge.
41. Williams, T. (2001). From pillar to post - a study of younger people with dementia. Psychiatric Bulletin, 25, 384-387.
42. Willig, C. (2001). Introducing Qualitative Research in Psychology: Adventures in Theory and Method. Berkshire: Open University Press.
43. Woods, B. (1999). Promoting well-being and independence for people with dementia. International Journal of Geriatric Psychiatry, 14, 97-109.