The role of patient advocacy organisations in neuromuscular disease R&D - The case of the Dutch neuromuscular disease association VSN

Neuromuscular Disorders

Volumn 20, Issue 2, 2010, Pages 148-151

  Boon, Wouter ^a   Broekgaarden, Ria ^b  

^a UTRECHT UNIVERSITY   (Netherlands)

^b Dutch Neuromuscular Disease Organisation VSN   (Netherlands)

Author keywords

Orphan drugs; Patient organisations; Pharmaceutical R D

Indexed keywords

ARTICLE; BIOMEDICINE; BIOTECHNOLOGY; COMMERCIAL PHENOMENA; DRUG RESEARCH; HEALTH CARE PLANNING; HEALTH CARE POLICY; HUMAN; INTERNATIONAL COOPERATION; MANAGEMENT; MEDICAL ETHICS; MEDICAL PROFESSION; MEDICAL RESEARCH; NEUROMUSCULAR DISEASE; PATIENT ADVOCACY; PATIENT CARE; PRIORITY JOURNAL; RARE DISEASE; WORKSHOP;

CONSUMER ADVOCACY; CONSUMER ORGANIZATIONS; CONSUMER PARTICIPATION; DECISION MAKING, ORGANIZATIONAL; DRUG AND NARCOTIC CONTROL; DRUG DESIGN; DRUG EVALUATION, PRECLINICAL; DRUG INDUSTRY; FUND RAISING; HEALTH POLICY; HUMANS; MODELS, ORGANIZATIONAL; NETHERLANDS; NEUROMUSCULAR DISEASES; ORGANIZATIONAL INNOVATION; PATIENT ADVOCACY; PATIENT PARTICIPATION; PATIENT-CENTERED CARE; PHYSICIAN'S PRACTICE PATTERNS; PHYSICIAN-PATIENT RELATIONS; PROFESSIONAL-PATIENT RELATIONS; QUALITY OF HEALTH CARE; RARE DISEASES; RESEARCH; RESEARCHER-SUBJECT RELATIONS; TRANSLATIONAL RESEARCH;

EID: 75149164701     PISSN: 09608966     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.nmd.2009.10.012     Document Type: Article

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