Ten years of ENMC - From a patients' initiative to a successful European research institution: The story of the European Neuromuscular Centre

Neuromuscular Disorders

Volumn 10, Issue 1, 2000, Pages 75-82

  Rüdel, Reinhardt ^a   Nigro, Giovanni ^a   Poortman, Ysbrand ^a  

^a UNIVERSITY OF ULM   (Germany)

Author keywords

[No Author keywords available]

Indexed keywords

EUROPE; FINANCIAL MANAGEMENT; MEDICAL RESEARCH; NEUROMUSCULAR DISEASE; PRIORITY JOURNAL; SHORT SURVEY;

ACADEMIES AND INSTITUTES; CONSENSUS DEVELOPMENT CONFERENCES; EUROPE; HISTORY, 20TH CENTURY; HUMANS; NEUROMUSCULAR DISEASES; PORTRAITS;

EID: 0343049145     PISSN: 09608966     EISSN: None     Source Type: Journal    
DOI: 10.1016/S0960-8966(99)00092-9     Document Type: Article

References (12)

1. Minutes of the meeting of officials of the Association Française contre les Myopathies (AFM) and the European Alliance of Muscular Dystrophy Associations (EAMDA), Novotel near Charles de Gaulle Airport, Paris, 17 June 1988.
2. Minutes of a meeting between representatives of the Association Française contre les Myopathies (AFM) and the European Alliance of Muscular Dystrophy Associations (EAMDA), Bordeaux-Lac, 2 July 1988.
3. Minutes of the ENMC meeting, Baarn, Holland, 17-18 February 1990.
4. Emery A.E.H. Population frequencies of inherited neuromuscular diseases - a world survey. Neuromusc Discord. 19:1992;323-325.
5. Emery A.E.H. The European Neuromuscular Centre (ENMC): importance of collaborative research. Neuromusc Discord. 7:1997;135-137.
6. Constitution of the European Neuromuscular Centre, signed on 24 November 1992 before the notaris Jan Frederic Welle Donker in Utrecht by Johannes Baars and Giovanni Nigro (official English translation).
7. ENMC: Annual Report 1997. Edited by the ENMC Secretariat, Lt.Gen. van Heutzslaan 6, 3743 JN Baarn, The Netherlands.
8. Emery A.E.H., Diagnostic criteria for neuromuscular disorders. 1st:1994;104 ENMC, Baarn. Second extended edition published by the Royal Society of Medicine Press, London, 1997, p. 104.
9. Verschuren JJGM, NMZ Bulletin, University of Leiden, December 1997.
10. Emery A.E.H., Neuromuscular disorders. Clinical and molecular genetics. 1998;Wiley, Chichester. p. 563.
11. Emery AEH: Possible Future Activities of ENMC. Proposal presented to the ENMC executive committee on 1 February 1999.
12. Activity Plan 2000. Worked out by the ENMC executive committee in spring 1999.