The National Marrow Donor Program's Symposium on Patient Advocacy in Cellular Transplantation Therapy: Addressing Barriers to Hematopoietic Cell Transplantation

Biology of Blood and Marrow Transplantation

Volumn 16, Issue 2, 2010, Pages 147-156

  Murphy, Elizabeth A ^a   Ferguson, Stacy Stickney ^a   Omondi, Nancy Atieno ^a   Getzendaner, Lisa C ^b   Gajewski, James L ^c   Goldstein, Gary A ^d   Wingard, John R ^e   Rizzo, J Douglas ^f,g   Mahjail, Navneet S ^h,i  

^a NATIONAL MARROW DONOR PROGRAM   (United States)

^b Fred Hutchinson Cancer Research Center   (United States)

^c OREGON HEALTH AND SCIENCE UNIVERSITY   (United States)

^d STANFORD UNIVERSITY MEDICAL CENTER   (United States)

^e UNIVERSITY OF FLORIDA   (United States)

^f CENTER FOR INTERNATIONAL BLOOD AND MARROW TRANSPLANT RESEARCH   (United States)

^g MEDICAL COLLEGE OF WISCONSIN   (United States)

^h CENTER FOR INTERNATIONAL BLOOD AND MARROW TRANSPLANT RESEARCH   (United States)

ⁱ UNIVERSITY OF MINNESOTA   (United States)

Author keywords

Barriers to transplantation; Financial barriers; Health disparities; Hematopoietic stem cell transplantation; National Marrow Donor Program; Patient advocacy; Quality of life; Survivorship

Indexed keywords

CAREGIVER; CAREGIVER SUPPORT; FINANCIAL MANAGEMENT; HEALTH DISPARITY; HEALTH INSURANCE; HEMATOPOIETIC STEM CELL TRANSPLANTATION; HUMAN; KNOWLEDGE MANAGEMENT; MEDICAL CARE; MEDICAL SOCIETY; MEDICOLEGAL ASPECT; ORGAN DONOR; ORGANIZATIONAL DEVELOPMENT; PATIENT ADVOCACY; PATIENT EDUCATION; PATIENT INFORMATION; PATIENT REFERRAL; PSYCHOSOCIAL CARE; QUALITY OF LIFE; RESOURCE MANAGEMENT; REVIEW; SURVIVOR; SYMPOSIUM;

BONE MARROW; HEALTH SERVICES ACCESSIBILITY; HEMATOPOIETIC STEM CELL TRANSPLANTATION; HUMANS; PATIENT ADVOCACY; PRACTICE GUIDELINES AS TOPIC; REGISTRIES; TISSUE AND ORGAN PROCUREMENT; TISSUE DONORS; TREATMENT OUTCOME; UNITED STATES;

EID: 75149151795     PISSN: 10838791     EISSN: 15236536     Source Type: Journal    
DOI: 10.1016/j.bbmt.2009.08.004     Document Type: Review

References (22)

1. Ballen K.K., King R.J., Chitphakdithai P., et al. The National Marrow Donor Program: 20 years of unrelated donor hematopoietic cell transplantation. Biol Blood Marrow Transplant 14 (2008) 2-7
2. Karanes C., Nelson G.O., Chitphakdithai P., et al. Twenty years of unrelated donor hematopoietic cell transplantation for adult recipients facilitated by the National Marrow Donor Program. Biol Blood Marrow Transplant 14 (2008) 8-15
3. Lee S.J., Klein J., Haagenson M., et al. High-resolution donor-recipient HLA matching contributes to the success of unrelated donor marrow transplantation. Blood 110 (2007) 4576-4583
4. MacMillan M.L., Davies S.M., Nelson G.O., et al. Twenty years of unrelated donor bone marrow transplantation for pediatric acute leukemia facilitated by the National Marrow Donor Program. Biol Blood Marrow Transplant 14 (2008) 16-22
5. Pasquini M., and Wang Z. CIBMTR summary slides 2007 (part 2). CIBMTR Newslett 14 (2008) 5-13
6. American Society of Blood and Marrow Transplantation. Guidelines on recommended timing for transplant consultation, 2008. Available from: http://www.asbmt.org/policystat/policy.html. Accessed May 5, 2009.
7. National Marrow Donor Program. Questions to ask your doctor about treatment options. Available from: http://www.marrow.org/PATIENT/Undrstnd_Disease_Treat/Discuss_Opt_w_Dr/PDFs/questions_about_treatment_options.pdf. Accessed May 5, 2009.
8. Myaskovsky L., Switzer G.E., Dew M.A., et al. The association of donor center characteristics with attrition from the National Marrow Donor Registry. Transplantation 77 (2004) 874-880
9. Switzer G.E., Dew M.A., Goycoolea J.M., et al. Attrition of potential bone marrow donors at two key decision points leading to donation. Transplantation 77 (2004) 1529-1534
10. Switzer G.E., Myaskovsky L., Goycoolea J.M., et al. Factors associated with ambivalence about bone marrow donation among newly recruited unrelated potential donors. Transplantation 75 (2003) 1517-1523
11. Confer D.L. The National Marrow Donor Program: meeting the needs of the medically underserved. Cancer 91 (2001) 274-278
12. Kollman C., Weis T., Switzer G.E., et al. Non-HLA barriers to unrelated donor stem cell transplantation. Bone Marrow Transplant 27 (2001) 581-587
13. Frick E., Rieg-Appleson C., Tyroller M., et al. Social support, affectivity, and the quality of life of patients and their support-givers prior to stem cell transplantation. J Psychosoc Oncol 23 (2005) 15-34
14. Meehan K.R., Fitzmaurice T., Root L., et al. The financial requirements and time commitments of caregivers for autologous stem cell transplant recipients. J Support Oncol 4 (2006) 187-190
15. Caregivers' guide for bone marrow/stem cell transplant. nbmtLINK 2007. Available from: https://nbmtlink.readyhosting.com/resources_support/cg/index.htm. Accessed May 5, 2009.
16. Andrykowski M.A., Bishop M.M., Hahn E.A., et al. Long-term health-related quality of life, growth, and spiritual well-being after hematopoietic stem cell transplantation. J Clin Oncol 23 (2005) 599-608
17. Bishop M.M., Beaumont J.L., Hahn E.A., et al. Late effects of cancer and hematopoietic stem cell transplantation on spouses or partners compared with survivors and survivor-matched controls. J Clin Oncol 25 (2007) 1403-1411
18. Fife B.L., Huster G.A., Cornetta K.G., et al. Longitudinal study of adaptation to the stress of bone marrow transplantation. J Clin Oncol 18 (2000) 1539-1549
19. Mandelblatt J.S., Yabroff K.R., and Kerner J.F. Equitable access to cancer services: a review of barriers to quality care. Cancer 86 (1999) 2378-2390
20. Fiscella K., Franks P., Gold M.R., et al. Inequality in quality: addressing socioeconomic, racial, and ethnic disparities in health care. JAMA 283 (2000) 2579-2584
21. Navarro V. Race or class versus race and class: mortality differentials in the United States. Lancet 336 (1990) 1238-1240
22. Lishner D.M., Richardson M., Levine P., et al. Access to primary health care among persons with disabilities in rural areas: a summary of the literature. J Rural Health 12 (1996) 45-53