Information needs and information sources of individuals living with spinal cord injury

Health Information and Libraries Journal

Volumn 23, Issue 4, 2006, Pages 257-265

  Burkell, Jacquelyn A ^a   Wolfe, Dalton L ^a,b   Potter, Patrick J ^a,b   Jutai, Jeffrey W ^a  

^a UNIVERSITY OF WESTERN ONTARIO   (Canada)

^b PARKWOOD HOSPITAL   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; ATTITUDE TO HEALTH; FEMALE; HUMAN; INFORMATION DISSEMINATION; INFORMATION SERVICE; INTERNET; MALE; METHODOLOGY; MIDDLE AGED; NEEDS ASSESSMENT; PATIENT EDUCATION; PATIENT SATISFACTION; QUESTIONNAIRE; SATISFACTION; SOCIAL ADAPTATION; SPINAL CORD INJURY; UTILIZATION REVIEW;

ADULT; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; INFORMATION DISSEMINATION; INFORMATION SERVICES; INTERNET; MALE; MIDDLE AGED; NEEDS ASSESSMENT; PATIENT EDUCATION; PATIENT SATISFACTION; PERSONAL SATISFACTION; QUESTIONNAIRES; SOCIAL ADJUSTMENT; SPINAL CORD INJURIES;

EID: 34848926521     PISSN: 14711834     EISSN: 14711842     Source Type: Journal    
DOI: 10.1111/j.1471-1842.2006.00686.x     Document Type: Article

References (45)

1. Lorig, K. R., Sobel, D. S., Ritter, P. L., Laurent, D. Hobbs, M. Effect of a self-management program on patients with chronic disease. Effective Clinical Practice 2001, 4, 256 62.
2. Baker, L. M. Sense making in multiple sclerosis: the information needs of people during an acute exacerbation. Qualitative Health Research 1998, 8, 106 20.
3. Loeb, S. J., Penrod, J., Falkenstern, S., Gueldner, S. H. Poon, L. W. Supporting older adults living with multiple chronic conditions. Western Journal of Nursing Research 2003, 25, 8 23.
4. Carlsson, M. Cancer patients seeking information from sources outside the health care system. Supportive Care in Cancer 2000, 8, 453 7.
5. Bowen, D. J., Ludwig. A., Bush, N., Unruh, H. K., Meischke, H., Woodridge, J. A. Robbins, R. Early experience with a web-based intervention to inform risk of breast cancer. Journal of Health Psychology 2003, 8, 175 86.
6. Davis, R. E. Flannery, D. D. Designing health information delivery systems for Puerto Rican women. Health Education and Behavior 2001, 28, 680 95.
7. O'Malley, A. S., Kerner, J. F. Johnson, L. Are we getting the message out to all? Health information sources and ethnicity. American Journal of Preventive Medicine 1999, 17, 198 202.
8. Johnson, J. D. Meischke, H. Cancer information: women's source and content preferences. Journal of Health Care Marketing 1991, 11, 37 44.
9. Tetzlaff, L. Consumer informatics in chronic illness. Journal of the American Medical Informatics Association 1997, 4, 285 300.
10. MacHaffie, S. Health promotion information: sources and significance for those with serious and persistent mental illness. Archives of Psychiatric Nursing 2002, 16, 263 74.
11. Mills, M. E. Davidson, R. Cancer patients' sources of information: use and quality issues. Psychooncology 2002, 11, 371 8.
12. Rahi, J. S., Manaras, I. Barr, K. Information sources and their use by parents of children with ophthalmic disorders. Investigative Ophthalmology and Visual Science 2003, 44, 2457 60.
13. Rokade, A., Kapoor, P. K., Rao, S., Rokade, V., Reddy, K. T. Kumar, B. N. Has the internet overtaken other traditional sources of health information? Questionnaire survey of patients attending ENT outpatient clinics. Clinical Otolaryngology and Allied Sciences 2002, 27, 526 8.
14. Luker, K. A., Beaver, K., Leinster, S. J. Owens, R. G. Information needs and sources of information for women with breast cancer: a follow-up study. Journal of Advanced Nursing 1996, 23, 487 95.
15. Okada, N. The process of mass communication: a review of studies on the two-step flow of communication hypothesis. Studies of Broadcasting 1986, 22, 57 78.
16. Biley, A., Robbe, I. Laugharne, C. Sources of health information for people with cancer. British Journal of Nursing 2001, 25, 102 6.
17. Vaidyanathan, S., Glass, C. A., Soni, B. M., Bingley, J., Singh, G., Watt, J. W. Sett, P. Doctor-patient communication: do people with spinal cord injury wish to receive written information about their medical condition from the physicians after an outpatient visit or after a readmission in the spinal unit? Spinal Cord 2001, 39, 650 3.
18. Morris, M. Ogan, C. The Internet as mass medium. Journal of Communication 1996, 46, 39 50.
19. Silk, A. J., Klein, L. R. Berndt, E. R. The emerging position of the Internet as an advertising medium. Netnomics 2001, 3, 129 48.
20. Edwards, L., Krassioukov, A. Fehlings, M. G. Importance of access to research information among individuals with spinal cord injury: results of an evidenced-based questionnaire. Spinal Cord 2002, 40, 529 35.
21. Murero, M., D'Ancona, G. Karamanoukian, H. Use of the Internet by patients before and after cardiac surgery: telephone survey. Journal of Medical Internet Research 2001, 3, E27.
22. Satterlund, M. J., McCaul, K. D. Sandgren, A. K. Information gathering over time by breast cancer patients. Journal of Medical Internet Research 2003, 5, e15.
23. Internet Health Resources. Health searches and email have become more commonplace, but there is room for improvement in searches and overall Internet access. Available from: http://www.pewinternet.org/pdfs/ PIP_Health_Report_July_2003.pdf (accessed 24 October 2005).
24. Bergman, S. B., Yarkony, G. M. Stiens, S. A. Spinal cord injury rehabilitation. 2. Medical complications. Archives of Physical Medicine and Rehabilitation 1997, 78 (Suppl. 3), S53 8.
25. Frost, F. S. Role of rehabilitation after spinal cord injury. The Urologic Clinics of North America 1993, 20, 549 59.
26. DeVivo, M. J. Discharge disposition from model spinal cord injury care system rehabilitation programs. Archives of Physical Medicine and Rehabilitation 1999, 80, 785 90.
27. Canupp, K. C., Waites, K. B., DeVivo, M. J. Richards, J. S. Predicting compliance with annual follow-up evaluations in persons with spinal cord injury. Spinal Cord 1997, 35, 314 9.
28. Dryden, D. M., Saunders, L. D., Rowe, B. H., May, L. A., Yiannakoulias, N., Svenson, L. W., Schopflocher, D. Voaklander, D. C. Utilization of health services following spinal cord injury: a 6-year follow-up study. Spinal Cord 2004, 42, 513 25.
29. McKinley, W. O., Jackson, A. B., Cardenas, D. D. DeVivo, M. J. Long-term medical complications after traumatic spinal cord injury: a regional model systems analysis. Archives of Physical Medicine and Rehabilitation 1999, 80, 1402 10.
30. Noreau, L., Proulx, P., Gagnon, L., Drolet, M. Laramee, M. T. Secondary impairments after spinal cord injury: a population-based study. American Journal of Physical Medicine and Rehabilitation 2000, 79, 526 35.
31. Walter, J. S., Sacks, J., Othman, R., Rankin, A. Z., Nemchausky, B., Chintam, R. Wheeler, J. S. A database of self-reported secondary medical problems among VA spinal cord injury patients: its role in clinical care and management. Journal of Rehabilitation Research and Development 2002, 39, 53 61.
32. Yarkony, G. M. Pressure ulcers: a review. Archives of Physical Medicine and Rehabilitation 1994, 75, 908 17.
33. Waites, K. B., Canupp, K. C. DeVivo, M. J. Epidemiology and risk factors for urinary tract infection following spinal cord injury. Archives of Physical Medicine and Rehabilitation 1993, 74, 691 5.
34. Krause, J. S. Aging after spinal cord injury: an exploratory study. Spinal Cord 2000, 38, 77 83.
35. Colodny, A. Teaching for life: integrating aging into the rehabilitation education program. SCI Nursing 2002, 19, 67 70.
36. Yavuzer, G., Gok, H., Tuncer, S., Soygur, T., Arikan, N. Arasil, T. Compliance with bladder management in spinal cord injury patients. Spinal Cord 2000, 38, 762 5.
37. Kakai, H., Maskarinec, G., Shumay, D. M., Tatsumura, Y. Tasaki, K. Ethnic differences in choices of health information by cancer patients using complementary and alternative medicine: an exploratory study with correspondence analysis. Social Science and Medicine 2003, 56, 851 62.
38. Burkell, J. A. The dilemma of survey nonresponse. Library and Information Science Research 2003, 25, 239 63.
39. Dryden, D. M., Saunders, L. D., Rowe, B. H., May, L. A., Yiannakoulias, N., Svenson, L. W., Schopflocher, D. Voaklander, D. C. The epidemiology of traumatic spinal cord injury in Alberta, Canada. Canadian Journal of Neurological Science 2003, 30, 113 21.
40. Walker, S. K. Riley D. A. Involvement of the personal social network as a factor in patient education effectiveness. Family Relations 2001, 50, 186 93.
41. Johnson, C. Neurotrauma hospitalizations in Ontario, 1998/99. 2001. Available from: secure.cihi.ca/cihiweb/en/downloads/bl_otrapr2001_e.pdf (accessed 18 November 2005).
42. Stevens, J. Applied Multivariate Statistics for the Social Scences, 3rd edn. Mahwah, NJ : Lawrence Erlbaum, 1996.
43. McKinley, W. O., Johns, J. S. Musgrove, J. J. Clinical presentations, medical complications, and functional outcomes of individuals with gunshot wound-induced spinal cord injury. American Journal of Physical Medicine and Rehabilitation 1999, 78, 102 7.
44. Hauber, R. P., Vesmarovich, S. Dufour, L. The use of computers and the Internet as a source of health information for people with disabilities. Rehabilitation Nursing 2002, 27, 142 5.
45. Bunn, M. D. Consumer perceptions of medical information sources: an application of multidimensional scaling. Health Marketing Quarterly 1993, 10, 83 104.