An exploration of anticipatory grief: The lived experience of people during their spouses' terminal illness and in bereavement

Journal of Advanced Nursing

Volumn 28, Issue 4, 1998, Pages 829-839

  Duke, Susan ^a,b  

^a OXFORD BROOKES UNIVERSITY   (United Kingdom)

^b CHURCHILL HOSPITAL   (United Kingdom)

Author keywords

Anticipatory grief; Bereavement; Heideggerian phenomenology; Loss and change; Nursing

Indexed keywords

ARTICLE; BEREAVEMENT; GRIEF; HUMAN; NURSING; PSYCHOLOGICAL ASPECT; SPOUSE; TERMINALLY ILL PATIENT; UNITED KINGDOM;

BEREAVEMENT; GREAT BRITAIN; GRIEF; HUMANS; NURSING; SPOUSES; TERMINALLY ILL;

EID: 0032176002     PISSN: 03092402     EISSN: None     Source Type: Journal    
DOI: 10.1046/j.1365-2648.1998.00742.x     Document Type: Article

References (70)

1. Averill J.R. (1968) Grief: its nature and significance. Psychological Bulletin 70, 721-748.
2. Averill J.R. (1988) Disorders of emotion. Journal of Social and Clinical Psychology 6(3-4), 247-268.
3. Averill J.R. & Nunley E.O.P. (1988) Grief as an emotion and as a disease: a social-constructionist perspective. Journal of Social Issues 44(3), 79-95.
4. Ball J.F. (1977) Widow's grief: the impact of age and mode of death. Omega 7, 307-333.
5. Bass D.M. & Bowman K. (1990) The transition from caregiving to bereavement: the relationship of care-related strain and adjustment to death. The Gerontologist 30(1), 35-42.
6. Benner P. (1985) Quality of life: a phenomenological perspective on explanation, prediction and understanding in nursing science. Advances in Nursing Science 8(1), 1-14.
7. Benner P. (1994) The tradition and skill of interpretative phenomenology in studying health, illness and caring practices. In Interpretive Phenomenology (Benner P. ed.), Sage, London, pp. 99-129.
8. Benner P., Janson-Bjerkies S., Ferketich S. & Becker G. (1994) Moral dimensions of living with a chronic illness: autonomy, responsibility and the limits of control. In Interpretive Phenomenology (Benner P. ed.), Sage, London, pp. 225-255.
9. Binger C.M., Ablin A.R., Feuerstein R.C., Kushner J.H., Zoger S. & Mikkelsen C. (1969) Childhood leukaemia. New England Journal of Medicine 280(8), 414-417.
10. Binik Y.M., Chowanec G.D. & Devins G.M. (1990) Marital role strain, illness intrusiveness, and their impact on marital and individual adjustment in end-stage renal disease. Psychology and Medicine 4, 245-257.
11. Carey R.G. (1977) The widowed: a year later. Journal of Counselling Psychology 24(2), 125-131.
12. Carter S.L. (1989) Themes of grief. Nursing Research 38(6), 354-358.
13. Carter R.E. & Carter C.A. (1994) Marital adjustment and the effects of illness in married pairs with one or both spouses chronically ill. American Journal of Family Therapy 22(4), 315-326.
14. Chowanec G.D. & Binik Y.M. (1989) End stage renal disease and the marital dyad: an empirical investigation. Social Science and Medicine 28(9), 971-983.
15. Christopherson L.K. (1976) Cardiac transplant: preparation for dying or for living. Health and Social Work 1(1), 58-72.
16. Clayton P.J., Halikas J.A. & Maurice W.L. (1971) The bereavement of the widowed. Diseases of the Nervous System 32, 597-604.
17. Clayton P.J., Halikas J.A. & Maurice W.L. (1972) The depression of widowhood. British Journal of Psychiatry 120, 71-78.
18. Clayton J., Halikas J.A., Maurice W.L. & Robins E. (1973) Anticipatory grief and widowhood. British Journal of Psychiatry 122, 47-51.
19. Collin C., Stommel M., Wang S. & Given C.W. (1994) Caregiving transitions: changes in depression among family caregivers of relatives with dementia. Nursing Research 43(4), 220-225.
20. Cook A.S. (1995) Ethical issues in bereavement research. An overview. Death Studies 19, 103-122.
21. Duran A., Turner C.W. & Lund D.A. (1989) Social support, perceived stress, and depression following the death of a spouse in later life. In Older Bereaved Spouses (Lund D.A. ed), Hemisphere, New York, pp. 69-79.
22. Fallowfield L. (1991) Breast Cancer. Routledge, London.
23. Fulton R. & Gottesman D.J. (1980) Anticipatory grief: a psychosocial concept reconsidered. British Journal of Psychiatry 137, 45-54.
24. Higginson I. & McCarthy M. (1993) Validity of the support team assessment schedule: do staff's ratings reflect those made by patients or their families? Palliative Medicine 7, 219-228.
25. Hunt M. (1991) The identification and provision of care for the terminally ill at home by 'family' members. Sociology of Health and Illness 13(3), 375-395.
26. Johnson S.K., Craft M., Titler M. et al. (1995) Perceived changes in adult family members' roles and responsibilities during critical illness. Image. Journal of Nursing Scholarship 27(3), 238-243.
27. Jones P.S. & Martinson I.M. (1992) The experience of bereavement in caregivers of family members with Alzheimers' Disease. Image. Journal of Nursing Scholarship 24(3), 172-176.
28. Koch T. (1995) A Heideggerian phenomenological perspective on the concept of the person. Advances in Nursing Science 11(4), 40-55.
29. Kubler-Ross E. (1969) On Death and Dying. Routledge, London.
30. Leonard V.W. (1989) A Heideggerian phenomenologic perspective on the concept of the person. Advances in Nursing Science 11(4), 40-55.
31. Levy L.H. (1991) Anticipatory grief: its' measurement and proposed reconceptualisation. The Hospice Journal 7(4), 1-28.
32. Levy L.H., Martinkowski K.S. & Derby J.F. (1994) Differences in patterns of adaptation in conjugal bereavement: their sources and potential significance. Omega 9(1), 71-87.
33. Lindemann E. (1944) Symptomatology and management of acute grief. American Journal of Psychiatry 101, 141-148.
34. Littlewood J. (1992) Grief in Adult Life. Routledge and Kegan Paul, London.
35. Lundin T. (1984) Morbidity following sudden and unexpected bereavement. British Journal of Psychiatry 144, 84-88.
36. Lynam J.M. (1995) Supporting one another: the nature of family work when a young adult has cancer. Journal of Advanced nursing 22, 116-125.
37. Madison G.B. (1988) The Hermeneutics of Post Modernity. Indiana University Press, Indianopolis.
38. Marris P. (1974) Loss and Change. Routledge and Kegan Paul, London.
39. Marrris P. (1958) Widows and their Families. Routledge and Kegan Paul, London.
40. Mullan J.T. (1992) The bereaved caregiver: a prospective study of changes in well-being. The Gerontologist 32(5), 673-683.
41. Natterson J.M. & Knudson A.G. (1960) Observations concerning fear of death in fatally ill children and their mothers. Psychosomatic Medicine 12(6), 456-465.
42. Norris F.N. & Murrell S.A. (1987) Older adult family stress and adaptation before and after bereavement. Journal of Gerontology 42(6), 606-612.
43. O'Bryant SL (1991) Forewarning of a husband's death: does it make a difference for older widows? Omega 22(3), 227-239.
44. Ornery A. (1983) Phenomenology: a method for nursing research. Advances in Nursing Studies 5(2), 49-63.
45. Osterweis M., Solomon F. & Green M. (1984) Bereavement Reactions, Consequences and Care. National Academy Press, Washington, District of Columbia.
46. Paley J. (1996) How not to clarify concepts in nursing. Journal of Advanced Nursing 24, 572-578.
47. Parkes C.M. (1957) Determinants of outcome following bereavement. Omega 6, 303-323.
48. nd edn. Penguin, Harmondsworth.
49. Parkes C.M. (1995) Guidelines for conducting ethical bereavement research. Death Studies 19, 171-181.
50. Parkes C.M. & Brown R.J. (1972) Health after bereavement: a controlled study of young Boston widows and widowers. Psychosomatic Medicine 34(5), 449-461.
51. Parkes C.M. & Weiss R.S. (1983) Recovery from Bereavement. Basic Books, New York.
52. Plager K.A. (1994) Hermeneutic phenomenology: a methodology for family health and health promotion study in nursing. In Interpretive Phenomenology (Benner P. ed.), Sage, London, pp. 65-85.
53. Rando T. (1983) An investigation of grief and adaptation in parents whose children have died from cancer. Journal of Paediatric Psychology 8, 3-20.
54. Rando T. (1986) A comprehensive analysis of anticipatory grief: perspectives, processes, promises and problems. In Loss and Anticipatory Grief (Rando T. ed.), Lexington Books, Massachusetts, pp 3-37.
55. Richmond J.B. & Waisman H.A. (1955) Psychologic aspects of management of children with malignant diseases. American Journal of Diseases in Children 89, 42-47.
56. Roach M.J. & Kitson G.C. (1989) Impact of forewarning on adjustment to widowhood and divorce. In Older Bereaved Spouses (Lund D.A. ed.), Hemisphere, New York, pp. 185-199.
57. Rosenblatt P.C. (1995) Ethics of qualitative interviews with grieving families. Death Studies 19, 139-155.
58. Schuster T.L. & Butler E.W. (1989) Bereavement, social networks, social support and mental health. In Older Bereaved Souses (Lund D.A. ed.), Hemishphere, New York, pp. 55-69.
59. Seale C. (1991) Communication and awareness about death: a study of a random sample of dying people. Social Science and Medicine 32(8), 943-952.
60. Stroebe M. & Schut H. (1995) The dual process model of coping with loss. Paper presented at the international work-group on Death, Dying & Bereavement, Oxford, UK. Available from Sir Michael Sobell House, Oxford.
61. Stroebe M.S. & Stroebe W. (1989) Who participates in bereavement research? A review of an empirical study. Omega 20, 1-29.
62. Stroebe M.S. & Stroebe W. (1993) The mortality of bereavement: a review. In Handbook of Bereavement (Stroebe M., Stroebe W. & Hansson R.O. eds), Cambridge University Press, Cambridge, pp. 175-196.
63. Stylianos S.K. & Vachon M.L.S. (1993) The role of social support in bereavement. In Handbook of Bereavement (Stroebe M., Stroebe W. & Hansson R.O. eds), Cambridge University Press, Cambridge, pp. 397-411.
64. Taylor K.M. (1988) Telling bad news: physicians and their disclosure of undesirable information. Sociology of Health and Illness 10(2), 107-132.
65. Timmermans S. (1994) Dying of awareness: the theory of awareness contexts revisited. Sociology of Health and Illness 16(2), 322-339.
66. United Kingdom Central Council for Nurses Midwives and Health Visitors (1987) Code of Professional Conduct 2nd edn. UKCC, London.
67. Walter T. (1996) A new model of grief: bereavement and mortality. Mortality 1(1), 7-26.
68. Weiss R.S. (1988) Is it possible to prepare for trauma? Journal of Palliative Care 4(1), 74-76.
69. Willert M.G., Beckwith B.E., Holm J.E. & Beckwith S.K. (1995) A preliminary study of the impact of terminal illness on spouses: social support and coping strategies. Hospice Journal 10(4), 35-48.
70. Wilson J.L. (1977) Anticipatory grief in response to threatened amputation. Maternal Child Nursing Journal 6(3), 177-186.