Two new measures for assessing advocacy activities and perceived control after acquired brain injury

Disability and Rehabilitation

Volumn 32, Issue 1, 2010, Pages 33-40

  Malec, James F ^a   Brown, Allen W ^b   Moessner, Anne M ^c  

^a INDIANA UNIVERSITY   (United States)

^b Department of Physical Medicine and Rehabilitation ^*  (United States)

^c MAYO CLINIC   (United States)

Author keywords

Advocacy; Brain injury; Measurement

Indexed keywords

ADULT; BRAIN INJURIES; FEMALE; HUMANS; MALE; PATIENT ADVOCACY; PERSONAL SATISFACTION; PRINCIPAL COMPONENT ANALYSIS; PSYCHOMETRICS; QUESTIONNAIRES; SELF EFFICACY; UNITED STATES;

EID: 73349130436     PISSN: 09638288     EISSN: 14645165     Source Type: Journal    
DOI: 10.3109/09638280902980936     Document Type: Article

References (29)

1. Kleinman JC, Gold M, Makuc D. Use of ambulatory medical care by the poor: another look at equity. Med Care 1981;19:1011-1029.
2. Manton KG, Patrick CH, Johnson KW. Health differentials between blacks and whites: recent trends in mortality and morbidity. Milbank Q 1987;65(Suppl. 1):129-199.
3. Syme SL. Strategies for health promotion. Prev Med 1986;15:492-507.
4. Blazer DG. Social support and mortality in an elderly community population. Am J Epidemiol 1982;115:684-694.
5. House JS, Robbins C, Metzner HL. The association of social relationships and activities with mortality: prospective evidence from the Tecumseh community health study. Am J Epidemiol 1982;116:123-140.
6. Israel BA, Schurman SJ, House JS. Action research on occupational stress: involving workers as researchers. Int J Health Serv 1989;19:135-155.
7. Balcazar FE, Seekins T, Fawcett SB, Hopkins B. Empowering people with physical disabilities through advocacy skills training. Am J Community Psychol 1990;18:281-296.
8. Banja J. Patient advocacy at risk: ethical, legal and political dimensions of adverse reimbursement practices in brain injury rehabilitation in the US. Brain Inj 1999;13:745-758.
9. De Toqueville A. Democracy in America. Cambridge, MA: Sever and Francis; 1864.
10. McColl MA, Boyce W. Disability advocacy organizations: a descriptive framework. Disabil Rehabil 2003;25:380-392.
11. BIAA. Brain injury Association of America: Legislative Action Center. Internet. Electronic Citation. http://capwiz.com/bia/ home/. Last accessed 1 February 2007.
12. Errico KM, Rowden D. Experiences of breast cancer survivoradvocates and advocates in countries with limited resources: a shared journey in breast cancer advocacy. Breast J 2006; 12(Suppl. 1):S111-S116.
13. Hoffman B, Stovall E. Survivorship perspectives and advocacy. J Clin Oncol 2006;24:5154-5159.
14. Seekins T, Mathews RM, Fawcett SM. Enhancing leadership skills for community self-help organizations through behavioral instruction. J Community Psychol 1984;12:155-163.
15. SFN. Society for neuroscience: guide to public advocacy. 2005. http://www.sfn.org/index.cfm?pagename=guidetopublicadvocacy- main. Last accessed 1 February 2007.
16. Walsh-Burke K, Marcusen C. Self-advocacy training for cancer survivors. The cancer survival toolbox. Cancer Pract 1999;7:297-301.
17. Nachsen J, Andersen L, Jamieson J. The parent advocacy scale: Measuring advocacy in parents of children with special needs. J Dev Disabil 2001;8:93-105.
18. Schulz AJ, Israel BA, Zimmerman MA, Checkoway BN. Empowerment as a multi-level construct: perceived control at the individual, organizational and community levels. Health Educ Res Theory Pract 1995;10:309-327.
19. Bandura A. Regulation of cognitive processes through perceived self-efficacy. Dev Psychol 1989;25:729-735.
20. Whiteneck GG, Gerhart KA, Cusick CP. Identifying environmental factors that influence outcomes of people with traumatic brain injury. J Head Trauma Rehabil 2004;19:191-204.
21. Whiteneck GG, Harrison-Felix CL, Mellick DC, Brooks CA, Charlifue SB, Gerhart KA. Quantifying environmental factors: a measure of physical, attitudinal, service, productivity, and policy barriers. Arch Phys Med Rehabil 2004;85:1324-1335.
22. Ware JE, Kosinski M, Keller SD. A 12-item short-form health survey: construction of scales and preliminary tests of reliability and validity. Med Care 1996;34:220-233.
23. Gandek B, Ware JE, Aaronson NK, Apolone G, Bjorner JB, Brazier JE, Bullinger M, Kaasa S, Leplege A, Prieto L, Sullivan M. Cross-validation of item selection and scoring for the SF-12 health survey in nine countries: results from the IQOLA Project. International quality of life assessment. J Clin Epidemiol 1998;51:1171-1178.
24. Diener E, Emmons RA, Larsen RJ, Griffin S. The satisfaction with life scale. J Pers Assess 1985;49:71-75.
25. Pavot W, Diener E. Review of the satisfaction with life scale. Psychol Assess 1993;5:164-172.
26. Pavot W, Diener E, Colvin C, Sandvik E. Further validation of the satisfaction with life scale: evidence for the crossmethod convergence of well-being measures. J Pers Assess 1991;57:149-161.
27. Vitaliano P, Russo J, Young H, Becker J, Maiuro R. The screen for caregiver burden. Gerontologist 1991;31:76-83.
28. Bond TM, Fox CG. Applying the Rasch model: fundamental measurement in the human sciences. Mahwah, NJ: Lawrence Erlbaum; 2001.
29. Wright BD, Masters GN. Rating scale analysis. Chicago: Mesa Press; 1982.