Disability advocacy organizations: A descriptive framework

Disability and Rehabilitation

Volumn 25, Issue 8, 2003, Pages 380-392

  Mccoll, M A ^a   Boyce, W ^a  

^a QUEEN S UNIVERSITY   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CANADA; CONTROLLED STUDY; DISABILITY; HEALTH CARE ORGANIZATION; HEALTH CARE POLICY; HUMAN; HUMAN RIGHTS; INTERVIEW; MEDICAL RESEARCH; POLITICS; PRIORITY JOURNAL; PUBLIC HEALTH SERVICE; QUALITATIVE ANALYSIS; RESOURCE ALLOCATION; SAMPLING;

CANADA; CONSUMER PARTICIPATION; DISABLED PERSONS; HEALTH SERVICES ACCESSIBILITY; HUMANS; INTERVIEWS; ORGANIZATIONS; PATIENT ADVOCACY; QUALITATIVE RESEARCH;

EID: 0038137301     PISSN: 09638288     EISSN: None     Source Type: Journal    
DOI: 10.1080/0963828021000058521     Document Type: Article

References (54)

1. Cameron D, Valentine F. Disability and Federalism. Montreal QU: McGill-Queen's University Press, 2002.
2. Boyce W, McColl MA, Bickenbach J, Tremblay M, Crichton A, Andrews S, D'Aubin A, Gerein N. A seat at the table: Persons with Disabilities and Policy Making. Montreal, QU: McGill-Queen's Press, 2001.
3. DeJong G. Health care reform and disability: affirming our commitment to the community. Archives of Physical Medicine and Rehabilitation 1993; 74: 1017-1024.
4. Puttee A. The Social Union and Disability Policy. Montreal, QU: McGill-Queen's Press, 2002.
5. Cooper M. The Australian Disability Rights Movement lives. Disability, and Society 1999; 14: 217-226.
6. Heyl BS. Parents, politics and the public purse: Activists in the special education arena in Germany. Disability and Society 1998; 13: 683-707.
7. Segal SP, Silverman C, Temkin T. Empowerment and self-help agency practice for people with mental disabilities. Social Work 1993; 38: 705-712.
8. Krogh K, Boyce W, Boyce E. Lean and mean times: coping and resistance strategies of disability organizations, manuscript in preparation, 2002.
9. Zucker LA, Snow DA. Collective behaviour: Social movements. In: M Rosenburg, RH Turner (eds). Social Psychology: Sociological Perspectives. New York, NY: Basic Books, 1981; 447-472.
10. MacEachen SE. PUSH: The Story of a Succesful Consumer-Driven Advocacy Group. Toronto ON: PUSH, 1993.
11. Pateman C. Participation and Democratic Theory. Cambridge: University Press, 1970.
12. Valentine F. The Canadian Independent Living Movement: An Historical Overview. Ottawa, ON: CAILC, 1994.
13. Driedger D. The Last Civil Rights Movement: Disabled Peoples' International. London: Hurst & Company, 1989.
14. Crichton A, Jongbloed L. Disability and Social Policy in Canada. Toronto, ON: Captus Press, 1998.
15. Holt G, Costello H, Bouras N, Diareme S, Hillery J, Moss S, Rodrigues-Blazquez C, Salvador L, Tsiantis J, Weber G, Dimitrakaki C. BIOMED-MEROPE project: service provision for adults with intellectual disability: A European comparison. Journal of Intellectual Disability Research 2000; 44: 685-696.
16. Jongbloed L, Crichon A. A new definition of disability: implications for rehabilitation and social policy. Canadian Journal of Occupational Therapy 1990; 57: 32-38.
17. Goodley D. 'Learning difficulties', the social model of disability and impairment: Challenging epistemologies. Disability & Society 2001; 16: 207-231.
18. Dowse L. Contesting practices, challenging codes: self-advocacy, disability politics and the social model. Disability & Society 2001; 16: 123-141.
19. Goodley D. Locating self-advocacy in models of disability: Understanding disability in the support of self-advocates with learning disabilities. Disability & Society 1997; 12: 367-379.
20. World Health Organization. International Classfication of Impairments, Disabilities and Handicaps. Geneva: WHO, 1980.
21. World Health Organization. International Classification of Functioning, Disability and Health. Geneva: WHO, 2001.
22. Bickenbach J, Chatterji S, Badley EM, Ustan B. Models of disablement, universalism and the International Classification of Impairments, Disabilities & Handicaps. Social Science & Medicine 1999; 48: 1173-1187.
23. Lysack C, Kaufert J. Disabled consumer leaders' perspectives on provision of community rehabilitation services. Canadian Journal of Rehabilitation 1999; 12: 155-164.
24. Todd S, Felce D, Beyer S, Shearn J, Perry J, Kilsby M. Strategic planning and progress under the All Wales Strategy: Reflecting the perceptions of stakeholders. Journal of Intellectual Disability Research 2000; 44: 31-44.
25. Bickenbach J. Physical Disability and Social Policy. Toronto, ON: University of Toronto Press, 1993.
26. Beaulaurier RL, Taylor SH. Challenges and inconsistencies in providing effective advocacy for people with disabilities in today's health services environment: exploratory-descriptive findings. SCI Psychosocial Process 2000; 13: 109-122.
27. Pedlar A, Hutchison P, Arai S, Dunn P. Community services landscape in Canada: Survey of developmental disability agencies. Mental Retardation 2000; 38: 330-341.
28. Neufeld G. Advocacy: applications in the early years of childhood. In: D Mitchell, R Brown (eds) Early Intervention Studies for Young Children with Special Needs. London: Chapman Hall, 1991; 192-210.
29. Charles C, DeMaio S. Lay participation in health care decision-making: a conceptual framework. Journal of Health Politics, Policy, and Law 1991; 18: 881-902.
30. Strauss A, Corbin J. Basics of Qualitative Research. Newbury Park, CA: Sage Publ., 1990.
31. Krefting L. Rigor in qualitative research: the assessment of trustworthiness. American Journal of Occupational Therapy 1991; 45: 214-222.
32. Lincoln YS, Guba EG. Naturalistic Inquiry. Beverley Hills, CA: Sage Publ., 1981.
33. Gwyther LP. Social issues of the Alzheimer's patient and family. American Journal of Medicine 1998; 104: 17-21, 39-42.
34. Snyder DW. The American Heart Association: focus on advocacy issues. Journal of Louisiana State Medical Society 1997; 149: 161-163.
35. Heller T. Supporting adults with intellectual disabilities and their families in planning and advocacy: a literature review. Physical & Occupational Therapy in Geriatrics 2000; 18: 59-73.
36. Blackmore R. Advocacy in nursing: perceptions of learning disability nurses. Journal of Learning Disability 2001; 5: 221-234.
37. Cassidy S. The use of self-advocacy in gaining the views of clients with learning difficulties. Assignment 2000; 6: 30-38.
38. Palmer CD. Self-advocacy among people with disabilities in the transition from good will to civil rights. WORK 2000; 14: 61-65.
39. McNally S. Self advocacy skills workshop: a report. British Journal of Nursing 1996; 5: 99-103.
40. Boyce W. Participation of disability advocates in research partnerships with health professionals. Canadian Journal of Rehabilitation 1998; 12: 85-93.
41. Knoke D. Organizing for Collective Action. New York: Aldine de Gruyter, 1990.
42. Oakley P. Projects with People: The Practice of Participation in Rural Development. Geneva: ILO, 1991.
43. Wilson J. Introduction to Social Movements. New York: Basic Books, 1973.
44. Michels R. Political Parties: a Sociological Study of the Oligarchical Tendencies of Modern Democracy. New York, NY: Dover, 1959.
45. Sills D. Voluntary associations: sociological aspects. International Encyclopedia of the Social Sciences 1968; 16: 362-379.
46. Balcazar F, Mathews R, Francisco V, Fawcett S, Seekins T. The empowerment process in four advocacy organizations of people with disabilities. Rehabilitation Psychology 1994; 39: 3.
47. Shragge E. Community based practice: political alternatives or new state forms? In: L Davies, E Shragge (eds) Bureaucracy and Community. Montreal, QU: Black Rose, 1990; 137-173.
48. Butterfoss FD, Goodman RM, Wandersman A. Community coalitions for prevention and health promotion. Health Education Research 1993; 8: 315-330.
49. Van Til J. The future of public decision-making: citizen participation in the future. Policy Studies Review 1984; 3: 311-322.
50. Ng R. State funding to a community employment centre: implications for working with immigrant women. In: R Ng, G Walker, J Muller (eds) Community Organization and the Canadian State. Toronto, ON: Garamond, 1990; 165-183.
51. Loney M. A political economy of citizen participation. In: L Panitch (ed) The Canadian State: Political Economy and Political Power. Toronto, ON: University of Toronto Press, 1997; 446-472.
52. Pal D. An Even Break: The Needs of Persons with Physical Disabilities in Ontario. Toronto, ON: Ontario March of Dimes, 1993.
53. Roberts-DeGennaro M. Factors contributing to coalition maintenance. Journal of Sociology & Social Welfare 1986; 17: 248-264.
54. Hadley R, Hatch S. Social Welfare and the Failure of the State: Centralized Social Services and Participatory Alternatives. London: Allen & Unwin, 1981.