Regionally acquired intestinal failure data suggest an underestimate in national service requirements

Archives of Disease in Childhood

Volumn 94, Issue 12, 2009, Pages 938-943

  Barclay, Andrew R ^a   Paxton, C E ^a   Gillett, P ^a   Hoole, D ^a   Livingstone, J ^a   Young, D ^b   Menon, G ^c   Munro, F ^a   Wilson, D C ^d  

^a RHSC   (United Kingdom)

^b UNIVERSITY OF STRATHCLYDE   (United Kingdom)

^c RIE   (United Kingdom)

^d UNIVERSITY OF EDINBURGH   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CENTRAL VENOUS CATHETERIZATION; CHILD; CHILDHOOD MORTALITY; CLINICAL ARTICLE; DEMOGRAPHY; ENTERIC FEEDING; ENTEROCYTE DISORDER; ENTEROPATHY; HOME CARE; HOME PARENTERAL NUTRITION; HUMAN; INCIDENCE; INFANT; INTESTINAL FAILURE; INTESTINE ADAPTATION; INTESTINE TRANSPLANTATION; LIVER DISEASE; NEUROMUSCULAR DISEASE; NEWBORN PERIOD; NUTRITION SERVICE; ORGAN DONOR; OUTCOME ASSESSMENT; OVERALL SURVIVAL; PARENTERAL NUTRITION; PATIENT REFERRAL; PRESCHOOL CHILD; PREVALENCE; PRIORITY JOURNAL; RETROSPECTIVE STUDY; SCHOOL CHILD; SEPSIS; SHORT BOWEL SYNDROME; SURVIVAL RATE;

BIRTH WEIGHT; CATHETERIZATION, CENTRAL VENOUS; CHOLESTASIS, INTRAHEPATIC; GESTATIONAL AGE; GREAT BRITAIN; HUMANS; INFANT; INFANT, NEWBORN; INTESTINE, SMALL; MALABSORPTION SYNDROMES; NEEDS ASSESSMENT; PARENTERAL NUTRITION, HOME; PROGNOSIS; REFERRAL AND CONSULTATION; REGIONAL MEDICAL PROGRAMS; RETROSPECTIVE STUDIES; SHORT BOWEL SYNDROME; SURVIVAL ANALYSIS; TREATMENT OUTCOME;

EID: 73249136887     PISSN: 00039888     EISSN: 14682044     Source Type: Journal    
DOI: 10.1136/adc.2008.141978     Document Type: Article

References (38)

1. Goulet O, Ruemmele F, Lacaille F, et al. Irreversible intestinal failure. J Pediatr Gastroenterol Nutr 2004;38:250-69.
2. Gupte GL, Beath SV, Kelly DA, et al. Current issues in the management of intestinal failure. Arch Dis Child 2006;91:259-64.
3. Nightingale JM. Management of patients with a short bowel. Nutrition 1999;15:633-7.
4. Goulet O. Intestinal failure in children. Transplant Proc 1998;30:2523-5.
5. Goulet O, Ruemmele F. Causes and management of intestinal failure in children. Gastroenterology 2006;130(2 Suppl 1):S16-28.
6. Vanderhoof JA, Young RJ, Thompson JS. New and emerging therapies for short bowel syndrome in children. Paediatr Drugs 2003;5:525- 31.
7. Rudolph CD, Hyman PE, Altschuler SM, et al. Diagnosis and treatment of chronic intestinal pseudo-obstruction in children: report of consensus workshop. J Pediatr Gastroenterol Nutr 1997;24:102-12.
8. Goulet O, Kedinger M, Brousse N, et al. Intractable diarrhea of infancy with epithelial and basement membrane abnormalities. J Pediatr 1995;127:212-9.
9. Phillips AD, Jenkins P, Raafat F, et al. Congenital microvillous atrophy: specific diagnostic features. Arch Dis Child 1985;60:135-40.
10. Goulet OJ, Revillon Y, Jan D, et al. Neonatal short bowel syndrome. J Pediatr 1991;119:18-23.
11. Kelly DA. Intestinal failure-associated liver disease: what do we know today? Gastroenterology 2006;130(2 Suppl 1):S70-7.
12. Kocoshis SA, Beath SV, Booth IW, et al. Intestinal failure and small bowel transplantation, including clinical nutrition: Working Group report of the second World Congress of Pediatric Gastroenterology, Hepatology, and Nutrition. J Pediatr Gastroenterol Nutr 2004;39(Suppl 2):S655-61.
13. Agostoni C, Axelson I, Colomb V, et al. The need for nutrition support teams in pediatric units: a commentary by the ESPGHAN committee on nutrition. J Pediatr Gastroenterol Nutr 2005;41:8-11.
14. Goulet O, Baglin-Gobet S, Talbotec C, et al. Outcome and long-term growth after extensive small bowel resection in the neonatal period: a survey of 87 children. Eur J Pediatr Surg 2005;15:95-101.
15. Gupte GL, Beath SV, Protheroe S, et al. Improved outcome of referrals for intestinal transplantation in the UK. Arch Dis Child 2007;92:147-52.
16. Touloukian RJ, Smith GJ. Normal intestinal length in preterm infants. J Pediatr Surg 1983;18:720-3.
17. Beath S, Pironi L, Gabe S, et al. Collaborative strategies to reduce mortality and morbidity in patients with chronic intestinal failure including those who are referred for small bowel transplantation. Transplantation 2008;85:1378-84.
18. Annual BANS report. Artificial nutrition support in the U.K. 2000-2005. 2005. http://www.bapen.org.uk/pdfs/bans-reports/bans-report-05.pdf (accessed Oct 2006)
19. Vantini I, Benini L, Bonfante F, et al. Survival rate and prognostic factors in patients with intestinal failure. Dig Liver Dis 2004;36:46-55.
20. Koglmeier J, Day C, Puntis JW. Clinical outcome in patients from a single region who were dependent on parenteral nutrition for 28 days or more. Arch Dis Child 2008;93:300-2.
21. Kaufman SS, Loseke CA, Lupo JV, et al. Influence of bacterial overgrowth and intestinal inflammation on duration of parenteral nutrition in children with short bowel syndrome. J Pediatr 1997;131:356-61.
22. Andorsky DJ, Lund DP, Lillehei CW, et al. Nutritional and other postoperative management of neonates with short bowel syndrome correlates with clinical outcomes. J Pediatr 2001;139:27-33.
23. Torres C, Sudan D, Vanderhoof J, et al. Role of an intestinal rehabilitation program in the treatment of advanced intestinal failure. J Pediatr Gastroenterol Nutr 2007;45:204-12.
24. Diamond IR, de Silva N, Pencharz PB, et al. Neonatal short bowel syndrome outcomes after the establishment of the first Canadian multidisciplinary intestinal rehabilitation program: preliminary experience. J Pediatr Surg 2007;42:806-11.
25. Koletzko B, Goulet O, Hunt J, et al. 1. Guidelines on paediatric parenteral nutrition of the European Society of Paediatric Gastroenterology, Hepatology and Nutrition (ESPGHAN) and the European Society for Clinical Nutrition and Metabolism (ESPEN), supported by the European Society of Paediatric Research (ESPR). J Pediatr Gastroenterol Nutr 2005;41(Suppl 2):S1-87.
26. Jansen D. The impact of a clinical nurse's role on CVC infections and bacteremia: a two year comparative, retrospective study. Aust Nurs J 1994;1:22-5.
27. Bozzetti F, Mariani L, Bertinet DB, et al. Central venous catheter complications in 447 patients on home parenteral nutrition: an analysis of over 100.000 catheter days. Clin Nutr 2002;21:475-85.
28. Colomb V, Fabeiro M, Dabbas M, et al. Central venous catheter-related infections in children on long-term home parenteral nutrition: incidence and risk factors. Clin Nutr 2000;19:355-9.
29. Forbes A. Achieving and maintaining venous access for home parenteral nutrition. Curr Opin Clin Nutr Metab Care 2005;8:285-9.
30. Bucuvalas JC, Goodrich AL, Blitzer BL, et al. Amino acids are potent inhibitors of bile acid uptake by liver plasma membrane vesicles isolated from suckling rats. Pediatr Res 1985;19:1298-304.
31. Gura KM, Duggan CP, Collier SB, et al. Reversal of parenteral nutrition-associated liver disease in two infants with short bowel syndrome using parenteral fish oil: implications for future management. Pediatrics 2006;118:e197-201.
32. Kaufman SS. Prevention of parenteral nutrition-associated liver disease in children. Pediatr Transplant 2002;6:37-42.
33. Messing B, Zarka Y, Lemann M, et al. Chronic cholestasis associated with long-term parenteral nutrition. Transplant Proc 1994;26:1438-9.
34. Colomb V, Dabbas-Tyan M, Taupin P, et al. Long-term outcome of children receiving home parenteral nutrition: a 20-year single-center experience in 302 patients. J Pediatr Gastroenterol Nutr 2007;44:347-53.
35. Sondheimer JM, Asturias E, Cadnapaphornchai M. Infection and cholestasis in neonates with intestinal resection and long-term parenteral nutrition. J Pediatr Gastroenterol Nutr 1998;27:131-7.
36. Salvia G, Guarino A, Terrin G, et al. Neonatal onset intestinal failure: an Italian Multicenter Study. J Pediatr 2008;153:674-6, 676.
37. Colomb V. Economic aspects of paediatric home parenteral nutrition. Curr Opin Clin Nutr Metab Care 2000;3:237-9.
38. Longworth L, Young T, Beath SV, et al. An economic evaluation of pediatric small bowel transplantation in the United Kingdom. Transplantation 2006;82:508-15.