Understanding inconsistencies in patient-reported outcomes after spine treatment: response shift phenomena

Spine Journal

Volumn 9, Issue 12, 2009, Pages 1039-1045

  Schwartz, Carolyn E ^a,b   Finkelstein, Joel A ^c,d  

^a DeltaQuest Foundation Inc   (United States)

^b TUFTS UNIVERSITY SCHOOL OF MEDICINE   (United States)

^c SUNNYBROOK RESEARCH INSTITUTE   (Canada)

^d UNIVERSITY OF TORONTO   (Canada)

Author keywords

Clinical research; Clinical trials; Cost effectiveness; Measurement; Patient satisfaction; Quality of life; Response shift; Spine treatment

Indexed keywords

CLINICAL FEATURE; CONSERVATIVE TREATMENT; HUMAN; OUTCOME ASSESSMENT; PATIENT SATISFACTION; PRIORITY JOURNAL; QUALITY OF LIFE; REVIEW; SPINE; SPINE SURGERY;

ADAPTATION, PSYCHOLOGICAL; DISABILITY EVALUATION; DISKECTOMY; FEMALE; HUMANS; INTERVERTEBRAL DISK DISPLACEMENT; LAMINECTOMY; MEDICAL ERRORS; MIDDLE AGED; OUTCOME ASSESSMENT (HEALTH CARE); PAIN; PATIENT SATISFACTION; QUALITY OF LIFE; REPRODUCIBILITY OF RESULTS; SELF ASSESSMENT (PSYCHOLOGY); SPINAL DISEASES; TREATMENT OUTCOME;

EID: 71649093943     PISSN: 15299430     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.spinee.2009.05.010     Document Type: Review

References (64)

1. Schwartz C.E., and Sprangers M.A. Methodological approaches for assessing response shift in longitudinal health-related quality-of-life research. Soc Sci Med 48 (1999) 1531-1548
2. Sprangers M.A., and Schwartz C.E. Integrating response shift into health-related quality of life research: a theoretical model. Soc Sci Med 48 (1999) 1507-1515
3. Armenakis A.A., and Zmud R.W. Interpreting the measurement of change in organizational research. Personnel Psychol 32 (1979) 709-724
4. Hoogstraten J. The retrospective pretest in an educational training context. J Exp Educ 50 (1982) 200-204
5. Schwartz C.E., Andresen E., Nosek M., et al. Response shift theory: Important implications for measuring quality of life in individuals with disability. Arch Phys Med Rehabil 88 (2007) 529-536
6. Schwartz C.E., Feinberg R.G., Jilinskaia E., et al. An evaluation of a psychosocial intervention for survivors of childhood cancer: paradoxical effects of response shift over time. Psychooncology 8 (1999) 344-354
7. Schwartz C.E., and Sprangers M.A.G. Introduction to Symposium on the challenge of response shift in social science and medicine. Soc Sci Med 48 (1999) 1505-1506
8. Becker H., Stuifbergen A., Rogers S., et al. Goal attainment scaling to measure individual change in intervention studies. Nurse Res 49 (2000) 176-180
9. Evers K.J., and Karnilowicz W. Patient attitude as a function of disease state in multiple sclerosis. Soc Sci Med 43 (1996) 1245-1251
10. Paterson B.L. The koala has claws: applications of the shifting perspectives model in research of chronic illness. Qual Health Res 13 (2003) 987-994
11. Schwartz C.E., and Sendor M. Helping others helps oneself: response shift effects in peer support. Soc Sci Med 48 (1999) 1563-1575
12. Bernhard J., Hurny C., Maibach R., et al. Quality of life as subjective experience: reframing of perception in patients with colon cancer undergoing radical resection with or without adjuvant chemotherapy. Swiss Group for Clinical Cancer Research (SAKK). Ann Oncol 10 (1999) 775-782
13. Bernhard J., Lowy A., Maibach R., et al. Response shift in the perception of health for utility evaluation. An explorative investigation. Eur J Cancer 37 (2001) 1729-1735
14. Boyd N.F., Sutherland H.J., Heasman K.Z., et al. Whose utilities for decision analysis?. Med Decis Making 10 (1990) 58-67
15. Breetvelt I.S., and Van Dam F.S. Underreporting by cancer patients: the case of response-shift. Soc Sci Med 32 (1991) 981-987
16. Cella D., Hahn E.A., and Dineen K. Meaningful change in cancer-specific quality of life scores: differences between improvement and worsening. Qual Life Res 11 (2002) 207-221
17. Chapman G.B., Elstein A.S., Kuzel T.M., et al. Prostate cancer patients' utilities for health states: how it looks depends on where you stand. Med Decis Making 18 (1998) 278-286
18. Hagedoorn M., Sneeuw K.C., and Aaronson N.K. Changes in physical functioning and quality of life in patients with cancer: response shift and relative evaluation of one's condition. J Clin Epidemiol 55 (2002) 176-183
19. Jansen S.J.T., Stiggelbout A.M., Nooij M.A., et al. Response shift in quality of life measurement in early-stage breast cancer patients undergoing radiotherapy. Qual Life Res 9 (2001) 603-615
20. Kagawa-Singer M. Redefining health: living with cancer. Soc Sci Med 37 (1993) 295-304
21. Oort F.J., Visser M.R.M., and Sprangers M.A.G. An application of structural equation modeling to detect response shifts and true change in quality of life data from cancer patients undergoing invasive surgery. Qual Life Res 14 (2005) 599-609
22. Rees J., Waldron D., O'Boyle C., et al. The measurement of response shift in patients with advanced prostate cancer and their partners. Health Qual Life Outcomes 3 (2005) 1-8
23. Sprangers M.A., Van Dam F.S., Broersen J., et al. Revealing response shift in longitudinal research on fatigue-the use of the then test approach. Acta Oncol 38 (1999) 709-718
24. Tederous-Williams M. Response shift in women who have been pregnant with cancer. Qual Life Res 12 (2003) 783
25. Ahmed S. Response shift and health-related quality of life post-stroke (2004), Department of Epidemiology and Biostatistics, McGill University, Montreal pp. 1-235
26. Ahmed S., Mayo N., Wood-Dauphinee S., et al. Using the patient generated index to evaluate response shift post-stroke. Qual Life Res 14 (2005) 2247-2257
27. Ahmed S., Mayo N.E., Wood-Dauphinee S., et al. Response shift in the assessment of health-related quality of life (HRQL) post-stroke. Qual Life Res (2001) 10-204
28. Postulart D., and Adang E.M. Response shift and adaptation in chronically ill patients. Med Decis Making 20 (2000) 186-193
29. Wikby A., Stenström U., Hörnquist J.O., et al. Coping behavior and degree of discrepancy between retrospective and prospective self-ratings of change in quality of life in Type 1 diabetes mellitus. Diabet Med 10 (1993) 851-854
30. Daltroy L.H., Larson M.G., Eaton H.M., et al. Discrepancies between self-reported and observed physical function in the elderly: the influence of response shift and other factors. Soc Sci Med 48 (1999) 1549-1561
31. Heidrich S.M., and Ryff C.D. The role of social comparisons processes in the psychological adaptation of elderly adults. J Gerontol 48 (1993) 127-136
32. Rijken M., Komproe I.H., Ros W.J.G., et al. Subjective well-being of elderly women: conceptual differences between cancer patients, women suffering from chronic ailments and healthy women. Br J Clin Psychol 34 (1995) 289-300
33. Rees J., MacDonagh R., Waldron D., et al. Measuring quality of life in patients with advanced cancer. Eur J Palliat Care 11 (2004) 104-106
34. Schwartz C.E., Merriman M., Reed G., et al. Measuring patient treatment preferences in end-of-life care research: applications for advance care planning interventions and response shift research. J Palliat Med 7 (2004) 233-245
35. Schwartz C.E., Merriman M.P., Reed G., et al. Evaluation of the Missoula-VITAS Quality of Life Index-revised: research tool or clinical tool?. J Palliat Med 8 (2005) 121-135
36. Schwartz C.E., Wheeler H.B., Hammes B., et al. Early intervention in planning end-of-life care with ambulatory geriatric patients: results of a pilot trial. Arch Intern Med 162 (2002) 1611-1618
37. Ring L.H.S., Heuston F., Harris D., and O'Boyle C.A. Response shift masks the treatment impact on patient reported outcomes (PROs): the example of individual quality of life in edentulous patients. Health Qual Life Outcomes 3 (2005) 55
38. Razmjou H., Yee A., Ford M., et al. Response shift in outcome assessment in patients undergoing total knee arthroplasty. J Bone Joint Surg Am 88 (2006) 2590-2595
39. Schwartz C., Bode R., Repucci N., et al. The clinical significance of adaptation to changing health: a meta-analysis of response shift. Qual Life Res 15 (2006) 1533-1550
40. Rapkin B.D., and Schwartz C.E. Toward a theoretical model of quality-of-life appraisal: implications of findings from studies of response shift. Health Qual Life Outcomes 2 (2004) 14
41. Kernan T., and Rainville J. Observed outcomes associated with a quota-based exercise approach on measures of kinesiophobia in patients with chronic low back pain. J Orthop Sports Phys Ther 37 (2007) 679-687
42. Rainville J., Pransky G., Indahl A., et al. The physician as disability advisor for patients with musculoskeletal complaints. Spine 30 (2005) 2579-2584
43. Weinstein S.M., and Herring S.A. Lumbar epidural steroid injections. Spine J 3 (2003) 37S-44S
44. Kim D.H., Banco R., Jenis L.G., et al. Polymorphic variation of the COMT gene influences outcome in patients undergoing surgical treatment for lumbar degenerative disc disease. Spine J 8 (2008) 66S
45. Deyo R.A., Battie M., Beurskens A.J., et al. Outcome measures for low back pain research. A proposal for standardized use. Spine 23 (1998) 2003-2013
46. Ware Jr. J.E., and Sherbourne C.D. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care 30 (1992) 473-483
47. Fairbank J.C., and Pynsent P.B. The Oswestry Disability Index. Spine 25 (2000) 2940-2952
48. Nunnally J.C., and Bernstein I.H. Psychometric theory (1994), McGraw Hill, Inc., New York
49. Schwartz C.E., Bode R.K., Razmjou H., et al. Response shift in patients following lumbar spine surgery: impact on interpretation of Oswestry Disability Index. Spine J 8 (2008) 130S
50. PROMIS. Patient-reported outcomes measurement information system [PROMIS Health Organization] (2008), PROMIS
51. Schwartz CE. Cognitive appraisal processes that affect patient reported outcomes: applications of response shift to participation measurement. Arch Phys Med Rehabil; in press.
52. Joyce C.R.B., O'Boyle C.A., and McGee H. Individual quality of life: approaches to conceptualisation and assessment (1999), Harwood Academic Publishers, Amsterdam, The Netherlands
53. Ware J.E., Kosinski M., and Keller S.D. SF36 Health Survey physical and mental summary scales: a user's manual (1994), The health Institute, New England Medical Center, Boston, MA
54. Toyone T., Tanaka T., Daisuke K., et al. Patients' expectations and satisfaction in lumbar spine surgery. Spine 30 (2005) 2689-2694
55. Finkelstein JA, Razmjou H, Schwartz CE. Response shift and outcome assessment in orthopedic surgery: is there is a difference between complete vs. partial treatment? J Clin Epidemiol; in press.
56. Nolte S, Elsworth GR, Sinclair AJ, Osborne RH. Stepping on quicksand: a test of measurement invariance fails to support the application of then-test questions as a remedy to response shift bias. J Clin Epidemiol; in press.
57. Ahmed S., Mayo N.E., Corbiere M., et al. Change in quality of life in people with stroke over time: true change or response shift?. Qual Life Res 14 (2005) 611-627
58. Schwartz C.E., Sprangers M.A.G., Carey A., et al. Exploring response shift in longitudinal data. Psychol Health 19 (2004) 51-69
59. Norman G. Hi! How are you? Response shift, implicit theories and differing epistemologies. Qual Life Res 12 (2003) 239-249
60. Oort F.J. Using structural equation modeling to detect response shifts and true change. Qual Life Res 14 (2005) 587-598
61. Embretson S.E., and Reise S.P. Item response theory for psychologists (2000), Lawrence Erlbaum Associates, Mahwah, NJ
62. Zumbo B.D. A handbook on the theory and methods of differential item functioning (DIF): logistic regression modeling as a unitary framework for binary and likert-type (ordinal) item scores (1999), Directorate of Human Resources Research and Evaluation, Department of National Defense, Ottawa, ON
63. Breiman L., Friedman J.H., Olshen R.A., and Stone C.J. Classification and regression trees (1993), Chapman & Hall/CRC, New York
64. Li Y., and Rapkin B. HIV/AIDS patients' quality of life appraisal depends on their personal meaning of quality of life and frame of reference. Qual Life Res (2006)