Measuring Patient Treatment Preferences in End-of-Life Care Research: Applications for Advance Care Planning Interventions and Response Shift Research

Journal of Palliative Medicine

Volumn 7, Issue 2, 2004, Pages 233-245

  Schwartz, Carolyn E ^a,b,c,d,g   Merriman, Melanie P ^e   Reed, George W ^c   Hammes, Bernard J ^f  

^a QualityMetric Incorporated   (United States)

^b Health Assessment Lab   (United States)

^c UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL   (United States)

^d DeltaQuest Foundation Inc   (United States)

^e Touchstone Consulting Inc   (United States)

^f GUNDERSEN LUTHERAN MEDICAL CENTER   (United States)

^g NONE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ACCURACY; ADULT; ARTICLE; CLINICAL PRACTICE; CONTROLLED STUDY; CORRELATION ANALYSIS; DEATH; FEASIBILITY STUDY; FEMALE; FOLLOW UP; HEALTH STATUS; HUMAN; LONG TERM CARE; MAJOR CLINICAL STUDY; MALE; MEDICAL RESEARCH; OUTCOMES RESEARCH; PATIENT CARE; RELIABILITY; SAMPLING; SCORING SYSTEM; TREATMENT PLANNING; VALIDATION PROCESS;

DEATH AND EUTHANASIA; EMPIRICAL APPROACH;

ADULT; ADVANCE DIRECTIVES; AGED; CRITICAL ILLNESS; HEMODIALYSIS UNITS, HOSPITAL; HOSPICES; HUMANS; LIFE SUPPORT CARE; MIDDLE AGED; PATIENT SATISFACTION; PSYCHOMETRICS; QUALITY OF LIFE; REHABILITATION CENTERS; SICKNESS IMPACT PROFILE; TERMINAL CARE; UNITED STATES;

EID: 1942478316     PISSN: 10966218     EISSN: None     Source Type: Journal    
DOI: 10.1089/109662104773709350     Document Type: Article

References (38)

1. Emanuel LL, Emanuel EJ: The Medical Directive. A new comprehensive advance care document. JAMA 1989;261:3288-3293.
2. Emanuel L: The health care directive: learning how to draft advance care documents. J Am Geriatr Soc 1991;39:1221-1228.
3. Emanuel LL, Emanuel EJ: The Medical Directive. © 1995. As reprinted in: Hammes BJ, Briggs L. Respecting Choices™ Advance Care Planning Course Facilitator's Manual. Gundersen Lutheran Medical Foundation, 1999.
4. Emanuel LL, Emanuel EJ: The Medical Directive. © 1995. As reprinted in: Hammes BJ, Briggs L. Respecting Choices™ Advance Care Planning Course Facilitator's Manual. Gundersen Lutheran Medical Foundation, 1999.
5. Kolarik RC, Arnold RM, Fischer GS, Hanusa BH: Advance care planning. J Gen Intern Med 2002;17: 618-624.
6. Houts RM, Smucker WD, Jacobson JA, Ditto PH, Danks JH: Predicting elderly outpatients' life-sustaining treatment preferences over time: The majority rules. Med Decis Making 2002;22:39-52.
7. Coppola KM, Ditto PH, Danks JH, Smucker WD: Accuracy of primary care and hospital-based physicians' predictions of elderly outpatients' treatment preferences with and without advance directives. Arch Intern Med 2001;161:431-440.
8. Ditto PH, Danks JH, Smucker WD, Bookwala J, Coppola KM, Dresser R, Fagerlin A, Gready RM, Houts RM, Lockhart LK, Zyzanski S: Advance directives as acts of communication: A randomized controlled trial. Arch Intern Med 2001;161:421-430.
9. Smucker WD, Houts RM, Danks JH, Ditto PH, Fagerlin A, Coppola KM: Modal preferences predict elderly patients' life-sustaining treatment choices as well as patients' chosen surrogates do. Med Decis Making 2000;20:271-280.
10. Sulmasy DP, Terry PB, Weisman CS, Miller DJ, Stallings RY, Vettese MA, Haller KB: The accuracy of substituted judgments in patients with terminal diagnoses. Ann Intern Med 1998;128:621-629.
11. Fischer GS, Alpert HR, Stoeckle JD, Emanuel LL: Can goals of care be used to predict intervention preferences in an advance directive? Arch Intern Med 1997;57:801-807.
12. Hesse KA: Terminal care of the very old. Changes in the way we die. Arch Intern Med 1995;155:1513-1518.
13. Emanuel LL, Danis M, Pearlman RA, Singer PA: Advance care planning as a process: Structuring the discussions in practice. J Am Geriatr Soc 1995;43:440-446.
14. Emanuel LL, Barry MJ, Emanuel EJ, Stoeckle JD: Advance directives: Can patients' stated treatment choices be used to infer unstated choices? Med Care 1994;32:95-105.
15. Emanuel LL, Emanuel EJ, Stoeckle JD, Hummel LR, Barry MJ: Advance directives. Stability of patients' treatment choices. Arch Intern Med 1994;154:209-217.
16. Reinders M, Singer PA: Which advance directive do patients prefer? J Gen Intern Med 1994;9:49-51.
17. Emanuel LL, Barry MJ, Stoeckle JD, Ettelson LM, Emanuel EJ: Advance directives for medical care - A case for greater use. N Engl J Med 1991;324:889-895.
18. Singer PA, Thiel EC, Naylor CD, Richardson RM, Llewellyn-Thomas H, Goldstein M, Saiphoo C, Uldall PR, Kim D, Mendelssohn DC: Life-sustaining treatment preferences of hemodialysis patients: Implications for advance directives. J Am Soc Nephrol 1995;6:1410-1417.
19. Schwartz CE, Wheeler HB, Hammes B, Basque N, Edmunds J, Reed G, Ma Y, Li L, Tabloski P, Yanko Y, and the UMass End-of-Life Working Group: Early Intervention in Planning End-of-Life Care with Ambulatory Geriatric Patients: Results of a Pilot Trial. Arch Intern Med 2002;162:1611-1618.
20. Sprangers MAG, Schwartz CE: Integrating response shift into health-related quality-of-life research: A theoretical model. Soc Sci Med 1999;48:1507-1515.
21. Schwartz CE, Sprangers MAG: Methodological approaches for assessing response shift in longitudinal quality of life research. Soc Sci Med 1999;48: 1531-1548.
22. O'Boyle CA, McGee H, Browne JP: Measuring response shift using the schedule for evaluation of individual quality of life. In: Schwartz CE and Sprangers MAG (eds): Adaptation to Changing Health: Response Shift in Quality of Life Research. Washington D.C.: American Psychological Association, 2000, pp. 123-136.
23. Lenert LA, Treadwell JR, Schwartz CE: Associations between health status and utilities: Implications for policy. Med Care 1999;37:479-489.
24. Folstein MF: The mini-mental status examination. In: Crook T, Ferris S, Bartus R. (eds): Assessment in Geriatric Psychopharmacology. New Canaan, CT: Mark Powley, 1983, pp. 50-51.
25. Byock IR, Merriman MP: Measuring quality of life for patients with terminal illness: The Missoula-VITAS® quality of life index. Palliat Med 1998;12:231-244.
26. Anderson F, Downing GM, Hill J: Palliative Performance Scale (PPS): A new tool. J Palliat Care 1996; 12:5-11.
27. Cronbach LJ: Coefficient alpha and the internal structure of tests. Psychometrika 1951;16:297-334.
28. Kramer MS, Feinstein AR: Clinical biostatistics LII. The biostatistics of concordance. Clin Pharmacol Ther 1981;29:111-123.
29. Harrell FE. Regression modeling strategies: With applications to linear models, kogistic regression, and survival analysis. New York: Springer-Verlag, 2001, pp. 183-184.
30. McParland E, Likourezos A, Chichin E, Castor T, Paris BEC: Stability of preferences regarding life-sustaining treatment: A two-year prospective study of nursing home residents. Mount Sinai J Med 2003;70:85-92.
31. Cohen J: A power primer. Psychol Bull 1992;112: 155-159.
32. Lipton HL: Do-not-resuscitate decisions in a community hospital. Incidence, implications, and outcomes. JAMA 1986;256:1164-1169.
33. Ware JE: Conceptualization and measurement of health-related quality of life: Comments on an evolving field. Arch Phys Med Rehab 2003;84(4 Suppl 2):543-551.
34. National Hospice and Palliative Care Organization Facts and Figures on Hospice Care, 2001. 〈www.nh-pco.org〉 (Last accessed February 10, 2004).
35. Heeren O, Menon AS, Raskin A, Ruskin P: Religion and end of life treatment preferences among geriatric patients. Int J Geriatr Psychiatry 2001;16:203-208.
36. Hansdottir M, Gruman C, Curry L, Judge JO: Preferences for CPR among the elderly: The influence of attitudes and values. Conn Med 2000;64:625-630.
37. Fins JJ: Commentary: From contract to covenant in advance care planning. J Law Med Ethics 1999;27: 46-51.
38. Schwartz CE, Lennes I, Hammes B, Lapham C, Bottner W, Ma Y: Honing an advance care planning intervention using qualitative analysis: The Living Well Interview. J Palliat Med 2003;6:593-603.