Methods for developing useful estimates of the costs associated with birth defects

Birth Defects Research Part A - Clinical and Molecular Teratology

Volumn 85, Issue 11, 2009, Pages 920-924

  Case, Amy P ^a   Canfield, Mark A ^a  

^a TEXAS DEPARTMENT OF STATE HEALTH SERVICES   (United States)

Author keywords

Birth defects; Cost; Disability; Economics; Services; Spina bifida

Indexed keywords

ADULT; ARTICLE; BIRTH DEFECT; CHILD; COHORT ANALYSIS; CONTROLLED STUDY; COST BENEFIT ANALYSIS; COST OF ILLNESS; EMPLOYER; HEALTH CARE COST; HEALTH INSURANCE; HEALTH PROGRAM; HUMAN; INFANT; LIFESPAN; LIVE BIRTH; MAJOR CLINICAL STUDY; MEDICAL CARE; ORGANIZATION AND MANAGEMENT; PRESCHOOL CHILD; PREVALENCE; PRIORITY JOURNAL; PUBLISHING; REGISTER; SCHOOL CHILD; SPINA BIFIDA; UNITED STATES;

CONGENITAL ABNORMALITIES; COST OF ILLNESS; HUMANS; PREVALENCE; REGISTRIES; SPINAL DYSRAPHISM; TEXAS;

EID: 71049186921     PISSN: 15420752     EISSN: 15420760     Source Type: Journal    
DOI: 10.1002/bdra.20637     Document Type: Article

References (18)

1. Agency for Healthcare Research and Quality. 2008. Healthcare Cost and Utilization Project (HCUP). Available at: http://hcupnet.ahrq.gov/ HCUPnet.jsp. Accessed December 7, 2008.
2. Beers N, Kemeny A, Sherritt L, Palfrey J. 2003. Variations in state-level definitions: children with special health care needs. Public Health Rep 118:434-447. (Pubitemid 37059478)
3. Bol K, Collins J, Kirby R. 2006. Survival of infants with neural tube defects in the presence of folic acid fortification. Pediatrics 117:803-813. (Pubitemid 46063223)
4. Canfield M, Honein M, Yuskiv N, et al. 2006. National estimates and race/ethnic-specific variation of selected birth defects in the United States, 1999-2001. Birth Defects Res A Clin Mol Teratol 76: 747-756. (Pubitemid 44777830)
5. Grosse S, Ouyang L, Collins J, et al. 2008. Economic evaluation of a neural tube defect recurrence-prevention program. Am J Prev Med 35:572-577.
6. Kaiser Family Foundation. 2008. State health facts. Available at: http:// www.statehealthfacts.kff.org/. Accessed December 7, 2008.
7. Kuhlthau K, Ferris T, Beal A, et al. 2001. Who cares for Medicaid-enrolled children with chronic conditions? Pediatrics 108:906-912.
8. Ouyang L, Grosse S, Armour B, Waitzman N. 2007. Health care expenditures of children and adults with spina bifida in a privately insured U.S. population. Birth Defects Res A Clin Mol Teratol 79:552-558. (Pubitemid 47068191)
9. Parrish T, Harr J, Anthony J, et al. 2003. State special education finance systems, 1999-2000: Part I. Palo Alto, CA: Center for Special Education Finance.
10. Petrini JR, Hamner HC, Flores AL, Mulinare J, Prue C. 2008. Use of supplements containing folic acid among women of childbearing age- United States, 2007. MMWR: Morbidity & Mortality Weekly Report, 57, 5-8.
11. Semansky R, Koyanagi C. 2004. The TEFRA Medicaid eligibility option for children with severe disabilities: a national study. J Behav Health Serv Res 31:334-342. (Pubitemid 39655080)
12. Shattuck P, Parish S. 2008. Financial burden in families of children with special health care needs: variability among states. Pediatrics 122:13-18.
13. Texas Department of State Health Services. 2006. Texas birth defects monitor 12:2. Austin, TX: Texas Department of State Health Services.
14. Texas Department of State Health Services. 2007. Texas birth defects registry report of birth defects among 1999-2004 deliveries. Austin, TX: Texas Department of State Health Services. Available at: www.dshs.state.tx.us/ birthdefects/data/reports.shtm. Accessed December 10, 2008.
15. Texas Department of State Health Services. 2008. Pregnancy outcome distribution for selected birth defects, Texas birth defects registry report of birth defects among 1999-2005 deliveries Available at: www.dshs. state.tx.us/birthdefects/data/reports.shtm.AccessedDecember 10, 2008.
16. Tilford JM, Grosse SD, Goodman AC, Li K. 2009. Labor market productivity costs for caregivers of children with spina bifida: a populationbased analysis. Med Decis Making 29:23-32.
17. Waitzman N, Romano P, Grosse S. 2004. The half-life of cost-of-illness estimates: the case of spina bifida. Working Paper Series, Department of Economics, University of Utah 2004-07. Salt Lake City, UT: University of Utah, Department of Economics.
18. Waitzman N, Scheffler R, Romano P. 1996. The cost of birth defects: estimates of the value of prevention. Lanham, MD: University Press of America.