The UK Biobank project: Trust and altruism are alive and well. A model for achieving public support for research using personal data

International Journal of Surgery

Volumn 7, Issue 6, 2009, Pages 501-502

  Thornton, Hazel ^a  

^a UNIVERSITY OF LEICESTER   (United Kingdom)

Author keywords

Communication networks; Prospective long term epidemiology; Public collaboration in research; Research tool; Resource building; Trust and reciprocity

Indexed keywords

ALTRUISM; CLINICAL RESEARCH; DATA ANALYSIS; INTERPERSONAL COMMUNICATION; MODEL; PRIORITY JOURNAL; REVIEW; SOCIAL NETWORK; SURGEON; TRUST; UNITED KINGDOM;

ALTRUISM; BIOLOGICAL SPECIMEN BANKS; CONFIDENTIALITY; FEMALE; GREAT BRITAIN; HUMANS; INFORMED CONSENT; MALE; PUBLIC OPINION; RESEARCH; TRUST;

EID: 70849134552     PISSN: 17439191     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.ijsu.2009.09.001     Document Type: Review

References (10)

1. Trehearne A. Counting on big numbers. International Journal of Surgery (2009) 10.1016/j.ijsu.2009.08.001
2. www.ukbiobank.ac.uk/docs/Liverpoolopenstodayrelease.doc
3. UK Biobank Ethic and Governance Council Fourth Meeting 4th June 2005. www.egcukbiobank.org.uk/assets/wtx026854.pdf
4. Marsden J., Bradburn J., Consumers' Advisory group for Clinical trials, and Lynda Jackson Macmillan centre. Patient and clinician collaboration in the design of a national randomised breast cancer trial. Health Expectations 7 1 (2004) 6-17
5. Thornton H., Edwards A., and Elwyn G. Evolving the multiple roles of 'patients' in healthcare research: reflections after involvement in a trial of shared decision-making. Health Expectations 6 3 (2003) 189-197
6. Sigerist H.E. Medicine and human welfare (1941), Yale University Press quoted in Silverman WA "Human Experimentation. A Guided Step into the Unknown". Oxford University Press. 1985. p. 161
7. Rawlins M.D. The Harveian Oration of 2008. De Testimonio. On the evidence for decisions about the use of therapeutic interventions (October 2008), Royal College of Physicians
8. Doll R., and Bradford Hill A. Smoking and carcinoma of the lung. Preliminary report. BMJ 4682 (September 30th 1950) 739-748
9. National Heart, Lung and Blood Institute. Framingham heart study. www.framinghamheartstudy.org/
10. Richmond C. Obituary. Sir Richard Doll. BMJ 331 (2005) 295 10.1136/bmj.331.7511.295 (30 July)