Demographic characteristics, care, and outcomes for children with oral clefts in three states using participants from the National Birth Defects Prevention Study

Cleft Palate-Craniofacial Journal

Volumn 46, Issue 6, 2009, Pages 575-582

  Damiano, Peter ^a   Tyler, Margaret ^a   Romitti, Paul A ^b,c   Druschel, Charlotte ^d   Austin, April A ^e   Burnett, Whitney ^f   Kizelnik Freilich, Sara ^f   Robbins, James M ^g  

^a UNIVERSITY OF IOWA   (United States)

^b UNIVERSITY OF IOWA   (United States)

^c Iowa Registry for Congenital and Inherited Disorders   (United States)

^d New York State Congenital Malformations Registry   (United States)

^e NEW YORK STATE DEPARTMENT OF HEALTH   (United States)

^f National Foundation for Facial Reconstruction   (United States)

^g UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCES   (United States)

Author keywords

Health status; Oral clefts; Outcomes; Surgery; Treatment

Indexed keywords

ARTICLE; CHILD; CLEFT LIP; CLEFT LIP PALATE; CLEFT PALATE; DISEASE SEVERITY; ESTHETICS; FEMALE; HEALTH CARE NEED; HUMAN; INTERVIEW; LOWEST INCOME GROUP; MAJOR CLINICAL STUDY; MALE; MENTAL HEALTH CARE; OUTCOME ASSESSMENT; PALATOPLASTY; PRESCHOOL CHILD; PRIORITY JOURNAL; SCHOOL CHILD; SPEECH DEVELOPMENT; TELEPHONE; UNITED STATES;

ARKANSAS; CHILD; CHILD, PRESCHOOL; CLEFT LIP; CLEFT PALATE; DEMOGRAPHY; ESTHETICS; FEMALE; HEALTH STATUS; HUMANS; INFANT; INTERVIEWS AS TOPIC; IOWA; MALE; MOTHER-CHILD RELATIONS; MOTHERS; NEW YORK; POPULATION SURVEILLANCE; REGISTRIES; SEVERITY OF ILLNESS INDEX; SOCIOECONOMIC FACTORS; SPEECH DISORDERS; TREATMENT OUTCOME;

EID: 70849120128     PISSN: 10556656     EISSN: 15451569     Source Type: Journal    
DOI: 10.1597/07-237.1     Document Type: Article

References (11)

1. Bethell CD, Read D, Stein RE, Blumberg SJ, Wells N, Newacheck PW. Identifying children with special health care needs: development and evaluation of a short screening instrument. Ambul Pediatr. 2002;2:38-48. (Pubitemid 44133341)
2. Broder HL, Smith FB, Strauss RP. Habilitation of patients with clefts: parent and child ratings of satisfaction with appearance and speech. Cleft Palate Craniofac J. 1992;29:262-267.
3. Broder HL, Smith FB, Strauss RP. Effects of visible and invisible orofacial defects on self-perception and adjustment across developmental eras and gender. Cleft Palate Craniofac J. 1994;31:429-436.
4. Damiano PC, Tyler MC, Romitti PA, Momany ET, Canady JW, Karnell MP, Murray JC. Type of oral cleft and mothers' perceptions of care, health status, and outcomes for preadolescent children. Cleft Palate Craniofac J. 2006;43:715-721. (Pubitemid 44788777)
5. Damiano PC, Tyler MC, Romitti PA, Momany ET, Jones MP, Canady JW, Karnell MP, Murray JC. Health-related quality of life among preadolescent children with oral clefts: the mother's perspective. Pediatrics. 2007;2:e283-e290.
6. Millard T, Richman LC. Different cleft conditions, facial appearance, and speech: relationship to psychological variables. Cleft Palate Craniofac J. 2001;38:68-75. (Pubitemid 32436179)
7. Montagnoli LC, Barbieri MA, Bettiol H, Marques IL, de Souza L. Growth impairment of children with different types of lip and palate clefts in the first 2 years of life: a cross-sectional study. J Pediatr (Rio J). 2005;81:461-465.
8. Scherer NJ, D'Antonio L, Kalbfleisch JH. Early speech and language development in children with velocardiofacial syndrome. Am J Med Genet. 1999;88:714-723.
9. Schuster M, Maier A, Haderlein T, Nkenke E, Wohlleben U, Rosanowski F, Eysholdt U, Noth E. Evaluation of speech intelligibility for children with cleft lip and palate by means of automatic speech recognition. Int J Pediatr Otorhinolaryngol. 2006;70:1741-1747. (Pubitemid 44308441)
10. Snyder LE, Scherer N. The development of symbolic play and language in toddlers with cleft palate. Am J Speech Lang Pathol. 2004;13:66-80. (Pubitemid 38480079)
11. Strauss RP, Broder H, Helms RW. Perceptions of appearance and speech by adolescent patients with cleft lip and palate and by their parents. Cleft Palate J. 1988;25:335-342. (Pubitemid 18273951)