Caregiver characteristics predict stroke survivor quality of life at 4 months and 1 year

Research in Nursing and Health

Volumn 32, Issue 6, 2009, Pages 592-605

  Jennifer Klinedinst, N ^a   Gebhardt, Mary C ^a   Aycock, Dawn M ^a   Nichols Larsen, Deborah S ^b   Uswatte, Gitendra ^c   Wolf, Steven L ^d   Clark, Patricia C ^a  

^a GEORGIA STATE UNIVERSITY   (United States)

^b OHIO STATE UNIVERSITY   (United States)

^c UNIVERSITY OF ALABAMA AT BIRMINGHAM   (United States)

^d EMORY UNIVERSITY   (United States)

Author keywords

Caregiver; Depression; Quality of life; Stroke

Indexed keywords

ADULT; AFFECT; AGED; ARTICLE; CAREGIVER; DEPRESSION; EMOTION; FAMILY HEALTH; FEMALE; FOLLOW UP; HUMAN; MALE; MIDDLE AGED; NURSING; PREDICTION AND FORECASTING; PROSPECTIVE STUDY; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; QUESTIONNAIRE; REGRESSION ANALYSIS; STROKE; SURVIVOR;

ADULT; AFFECT; AGED; AGED, 80 AND OVER; CAREGIVERS; DEPRESSION; EMOTIONS; FAMILY HEALTH; FEMALE; FOLLOW-UP STUDIES; HUMANS; MALE; MIDDLE AGED; PREDICTIVE VALUE OF TESTS; PROSPECTIVE STUDIES; QUALITY OF LIFE; QUESTIONNAIRES; REGRESSION ANALYSIS; STROKE; SURVIVORS;

EID: 70450206181     PISSN: 01606891     EISSN: 1098240X     Source Type: Journal    
DOI: 10.1002/nur.20348     Document Type: Article

References (62)

1. Barskova, T., & Wilz, G. (2007). Interdependence of stroke survivors' recovery and their relatives' attitudes and health: A contribution to investigating the causal effects. Disability and Rehabilitation, 29, 1481-1491.
2. Bays, C.L. (2001). Quality of life of stroke survivors: A research synthesis. Journal of Neuroscience Nursing, 33, 310-316.
3. Boaro, N., & Velji, K. (2005). Review: Counselling and education may improve outcomes in caregivers of patients with stroke. Evidence-Based Nursing, 8, 119.
4. Cameron, J.I., Cheung, A.M., Streiner, D.L., Coyte, P.C., & Stewart, D.E. (2006). Stroke survivors' behavioral and psychologic symptoms are associated with informal caregivers' experiences of depression. Archives of Physical Medicine & Rehabilitation, 87, 177-183.
5. Carod-Artal, J., Egido, J.A., Gonzalez, J.L., & Varela de Seijas, E. (2000). Quality of life among stroke survivors evaluated 1 year after stroke: Experience of a stroke unit. Stroke; A Journal of Cerebral Circulation, 31, 2995-3000.
6. Clark, P.C. (2002). Effects of individual and family hardiness on caregiver depression and fatigue. Research in Nursing & Health, 25, 37-48.
7. Clark, P.C., Ashford, S., Burt, R., Aycock, D.M., & Kimble, L.P. (2006). A factor analysis of the revised Piper Fatigue Scale in a caregiver sample. Journal of Nursing Measurement, 14, 71-79.
8. Clark, P.C., Dunbar, S.B., Shields, C.G., Viswanathan, B., Aycock, D.M., & Wolf, S.L. (2004). Influence of stroke survivor characteristics and family conflict surrounding recovery on caregivers' mental and physical health. Nursing Research, 53, 406-413.
9. Duncan, P.W., Bode, R.K., Min Lai, S., & Perera, S. (2003). Rasch analysis of a new stroke-specific outcome scale: The Stroke Impact Scale. Archives of Physical Medicine & Rehabilitation, 84, 950-963.
10. Duncan, P. W., Reker, D. M., Horner, R. D., Samsa, G. P., Hoenig, H., LaClair, B. J., et al. (2002). Performance of a mail-administered version of a stroke-specific outcome measure, the Stroke Impact Scale. Clinical Rehabilitation, 16, 493-505.
11. Duncan, P.W., Wallace, D., Lai, S.M., Johnson, D., Embretson, S., & Laster, L.J. (1999). The stroke impact scale version 2.0. Evaluation of reliability, validity, and sensitivity to change. Stroke; A Journal of Cerebral Circulation, 30, 2131-2140.
12. Epstein, N.B., Baldwin, L.M., & Bishop, D.S. (1983). The McMaster Family Assessment Device. Journal of Marital and Family Therapy, 9, 171-180.
13. Evans, R.L., Bishop, D.S., & Haselkorn, J.K. (1991). Factors predicting satisfactory homecare after stroke. Archives of Physical Medicine & Rehabilitation, 72, 144-147.
14. Evans, R.L., Bishop, D.S., Matlock, A.L., Stranahan, S., Halar, E.M., & Noonan, W.C. (1987). Prestroke family interaction as a predictor of stroke outcome. Archives of Physical Medicine & Rehabilitation, 68, 508-512.
15. Evans, R.L., Matlock, A.L., Bishop, D.S., Stranahan, S., & Pederson, C. (1988). Family intervention after stroke: Does counseling or education help. Stroke; A Journal of Cerebral Circulation, 19, 1243-1249.
16. Field, A.(2005).DiscoveringstatisticsusingSPSS (2nd ed.). London: Sage.
17. Fitzpatrick, R., Davey, C., Buxton, M. J., & Jones, D. R. (1998). Evaluating patient-based outcome measures for use in clinical trials. Health Technology Assessment, 2, 1-74; i-iv.
18. Graff, M.J., Vernooij-Dassen, M.J., Thijssen, M., Dekker, J., Hoefnagels, W.H., & Olderikkert, M.G. (2007). Effects of community occupational therapy on quality of life, mood, and health status in dementia patients and their caregivers: A randomized controlled trial. Journals of Gerontology Series A: Biological Sciences & Medical Sciences, 62A, 1002-1009.
19. Grant, J.S., Weaver, M., Elliott, T.R., Bartolucci, A.A., & Giger, J.N. (2004). Family caregivers of stroke survivors: Characteristics of caregivers at risk for depression. Rehabilitation Psychology, 49, 172-179.
20. Grant, J.S. (1999). Social problem-solving partnerships with family caregivers. Rehabilitation Nursing: The Official Journal of the Association of Rehabilitation Nurses, 24, 254-260.
21. Grant, J.S., Elliott, T.R., Weaver, M., Bartolucci, A.A., & Giger, J.N. (2002). Telephone intervention with family caregivers of stroke survivors after rehabilitation. Stroke; A Journal of Cerebral Circulation, 33, 2060-2065.
22. Hackett, M.L., Duncan, J.R., Anderson, C.S., Broad, J.B., & Bonita, R. (2000). Health-related quality of life among long-term survivors of stroke: Results from the Auckland Stroke Study, 1991-1992. Stroke; A Journal of Cerebral Circulation, 31, 440-447.
23. Hybels, C.F., Blazer, D.G., & Pieper, C.F. (2001). Toward a threshold for subthreshold depression: An analysis of correlates of depression by severity of symptoms using data from an elderly community sample. The Gerontologist, 41, 357-365.
24. Jonsson, A. C., Lindgren, I., Hallstrom, B., Norrving, B., & Lindgren, A. (2005). Determinants of quality of life in stroke survivors and their informal caregivers. Stroke; A Journal of Cerebral Circulation, 36, 803-808.
25. King, R.B. (1996). Quality of life after stroke. Stroke; A Journal of Cerebral Circulation, 27, 1467-1472.
26. King, R.B., Carlson, C.E., Shade-Zeldow, Y., Bares, K.K., Roth, E.J., & Heinemann, A.W. (2001). Transition to home care after stroke: Depression, physical health, and adaptive processes in support persons.Research inNursing&Health, 24, 307-323.
27. King, R.B., Hartke, R.J., & Denby, F. (2007). Problem-solving early intervention: A pilot study of stroke caregivers. Rehabilitation Nursing, 32, 68-76.
28. King, R.B., Shade-Zeldow, Y., Carlson, C.E., Feldman, J.L., & Philip, M. (2002). Adaptation to stroke: A longitudinal study of depressive symptoms, physical health, and coping process. Topics in Stroke Rehabilitation, 9, 46-66.
29. Kotila, M., Numminen, H., Waltimo, O., & Kaste, M. (1998). Depression after stroke: Results of the FINNSTROKE Study. Stroke; A Journal of Cerebral Circulation, 29, 368-372.
30. Lai, S.M., Perera, S., Duncan, P.W., & Bode, R. (2003). Physical and social functioning after stroke: Comparison of the Stroke Impact Scale and Short Form-36. Stroke; A Journal of Cerebral Circulation, 34, 488-493.
31. Lai, S.M., Studenski, S., Duncan, P.W., & Perera, S. (2002). Persisting consequences of stroke measured by the Stroke Impact Scale. Stroke; A Journal of Cerebral Circulation, 33, 1840-1844.
32. Larson, J., Franzén-Dahlin, A., Billing, E., von Arbin, M., Murray, V., & Wredling, R. (2008). The impact of gender regarding psychological well-being and general life situation among spouses of stroke patients during the first year after the patients'stroke event: A longitudinal study. International Journal of Nursing Studies, 45, 257-265.
33. Lewis, F.M., Fletcher, K.A., Cochrane, B.B., & Fann, J.R. (2008). Predictors of depressed mood in spouses of women with breast cancer. Journal of Clinical Oncology, 26, 1289-1295.
34. Lui, M.H., Ross, F.M., & Thompson, D.R. (2005). Supporting family caregivers in stroke care: A review of the evidence for problem solving. Stroke; A Journal of Cerebral Circulation, 36, 2514-2522.
35. McHorney, C.A., Ware, J.E., Jr., Lu, J.F., & Sherbourne, C.D. (1994). The MOS 36-item Short-Form Health Survey (SF-36): III. Tests of data quality, scaling assumptions, and reliability across diverse patient groups. Medical Care, 32, 40-66.
36. Miller, I.W., Epstein, N. B., Bishop, D. S., & Keitner, G. I. (1985). The McMaster Family Assessment Device: Reliability and validity. Journal of Marital and Family Therapy, 11, 345-356.
37. Moon, Y.S., Kim, S.J., Kim, H.C., Won, M.H., & Kim, D.H. (2004). Correlates of quality of life after stroke. Journal of the Neurological Sciences, 224, 37-41.
38. Morris, D.M., Uswatte, G., Crago, J.E., Cook, E.W. III, & Taub, E. (2001). The reliability of the Wolf Motor Function Test for assessing upper extremity function after stroke. Archives of Physical Medicine and Rehabilitation, 82, 750-755.
39. Mortimer, J.S., Sephton, S.E., Kimerling, R., Butler, L., Bernstein, A.S., & Spiegel, D. (2005). Chronic stress, depression and immunity in spouses of metastatic breast cancer patients. Clinical Psychologist, 9, 59-63.
40. Nichols-Larsen, D.S., Clark, P.C., Zeringue, A., Greenspan, A., & Blanton, S. (2005). Factors influencing stroke survivors' quality of life during subacute recovery. Stroke; A Journal of Cerebral Circulation, 36, 1480-1484.
41. Palmer, S., & Glass, T.A. (2003). Family function and stroke recovery: A review. Rehabilitation Psychology, 48, 255-265.
42. Piper, B.F., Dibble, S.L., Dodd, M.J., Weiss, M.C., Slaughter, R.E., & Paul, S.M. (1998). The Revised Piper Fatigue Scale: Psychometric evaluation in women with breast cancer. Oncology Nursing Forum, 25, 677-682.
43. Radloff, L.S. (1977). The CES-D Scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1, 385-401.
44. Rosamond, W., Flegal, K., Friday, G., Furie, K., Go, A., Greenlund, K., et al. (2007). Heart disease and stroke statistics-2007 update: A report from the American Heart Association Statistics Committee and Stroke Statistics Subcommittee [Electronic Version]. Circulation, 115, e69-e171. Retrieved February 23, 2007 from http://circ.ahajournals.org/cgi/content/full/CIRCULATIONAHA.106.179918.
45. Roth, D.L., Ackerman, M.L., Okonkwo, O.C., & Burgio, L.D. (2008). The four-factor model of depressive symptoms in dementia caregivers: A structural equation model of ethnic differences. Psychology & Aging, 23, 567-576.
46. Salter, K.L., Moses, M.B., Foley, N.C., & Teasell, R.W. (2008). Health-related quality of life after stroke: What are we measuring? International Journal of Rehabilitation Research, 31, 111-117.
47. Schure, L.M., van den Heuvel, E.T., Stewart, R.E., Sanderman, R., de Witte, L.P., & Meyboom-de Jong, B. (2006). Beyond stroke: Description and evaluation of an effective intervention to support family caregivers of stroke patients. Patient Education and Counseling, 62, 46-55.
48. Shields, C.G., King, D.A., & Wynne, L.C. (1995). Interventions with later life families. In: R.H. Mikesell, D.D. Lustermann, & S.H. McDaniel (Eds.), Integrating Family Therapy: Handbook of Family Psychology and Systems Theory (pp. 141-158). Washington, DC: American Psychological Association.
49. Smith, C.E., Pace, K., Kochinda, C., Kleinbeck, S.V., Koehler, J., & Popkess-Vawter, S. (2002). Caregiving effectiveness model evolution to a midrange theory of home care: A process for critique and replication. ANS-Advances in Nursing Science, 25, 50-64.
50. Smith, J., Forster, A., House, A., Knapp, P., Wright, J., & Young, J., (2008) Information provision for stroke patients and their caregivers. Cochrane Database of Systematic Reviews (Online), CD00 1919.
51. Sturm, J. W., Donnan, G.A., Dewey, H. M., Macdonell, R. A., Gilligan, A.K., Srikanth, V., et al. (2004). Quality of life after stroke: The North East Melbourne Stroke Incidence Study (NEMESIS). Stroke; A Journal of Cerebral Circulation, 35, 2340-2345.
52. Suenkeler, I. H., Nowak, M., Misselwitz, B., Kugler, C., Schreiber, W., Oertel, W. H., et al. (2002). Timecourse of health-related quality of life as determined 3, 6 and 12 months after stroke. Relationship to neurological deficit, disability and depression. Journal of Neurology, 249, 1160-1167.
53. Tiegs, T. J., Heesacker, M., Ketterson, T. U., Pekich, D. G., Rittman, M. R., Rosenbek, J. C., et al. (2006). Coping by stroke caregivers: Sex similarities and differences. Topics in Stroke Rehabilitation, 13, 52-62.
54. Visser-Meily, A., Post, M., van de Port, I., van Heugten, C., & van den Bos, T. (2008). Psychosocial functioning of spouses in the chronic phase after stroke: Improvement or deterioration between 1 and 3 years after stroke? Patient Education and Counseling, 73, 153-158.
55. Visser-Meily, A., van Heugten, C., Post, M., Schepers, V., & Lindeman, E. (2005). Intervention studies for caregivers of stroke survivors: A critical review. Patient Education & Counseling, 56, 257-267.
56. White, J. H., Alston, M. K., Marquez, J. L., Sweetapple, A. L., Pollack, M. R., Attia, J., et al. (2007). Community-dwelling stroke survivors: Function is not the whole story with quality of life. Archives of Physical Medicine & Rehabilitation, 88, 1140-1146.
57. World Health Organization Quality of Life Group. (1998). Development of the World Health Organization WHOQOL-BREF quality of life assessment. Psychological Medicine, 28, 551-558.
58. Wilz, G., & Barskova, T. (2007). Evaluation of a cognitive behavioral group intervention program for spouses of stroke patients. Behaviour Research and Therapy, 45, 2508-2517.
59. Winstein, C. J., Miller, J. P., Blanton, S., Taub, E., Uswatte, G., Morris, D., et al. (2003). Methods for a multisite randomized trial to investigate the effect of constraint-induced movement therapy in improving upper extremity function among adults recovering from a cerebrovascular stroke. Neurorehabilitation & Neural Repair, 17, 137-152.
60. Wolf, S. L., Catlin, P. A., Ellis, M., Archer, A. L., Morgan, B., & Piacentino, A. (2001). Assessing Wolf Motor Function Test as outcome measure for research in patients after stroke. Stroke; A Journal of Cerebral Circulation, 32, 1635-1639.
61. Wolf, S. L., Winstein, C. J., Miller, J. P., Taub, E., Uswatte, G., Morris, D., et al. (2006). Effect of constraint-induced movement therapy on upper extremity function 3 to 9 months after stroke: The EXCITE randomized clinical trial. JAMA, 296, 2095-2104.
62. Wolf, S. L., Winstein, C. J., Miller, J. P., Thompson, P. A., Taub, E., Uswatte, G., et al. (2008). Retention of upper limb function in stroke survivors who have received constraint-induced movement therapy: The EXCITE randomised trial. Lancet Neurology, 7, 33-40.