The beginnings of children's palliative care in Africa: Evaluation of a children's palliative care service in Africa

Journal of Palliative Medicine

Volumn 12, Issue 11, 2009, Pages 1015-1021

  Amery, Justin M ^a   Rose, Caroline J ^a   Holmes, Jennie ^a   Nguyen, Jerry ^a   Byarugaba, Charles ^a  

^a Hospice Africa Uganda   (Uganda)

Author keywords

[No Author keywords available]

Indexed keywords

MORPHINE;

AFRICA; ARTICLE; BASIC NEEDS; CHEMOTHERAPY; CROSS-SECTIONAL STUDY; FOLLOW UP; HEALTH CARE COST; HEALTH PROGRAM; HEALTH SERVICE; HOSPITAL PERSONNEL; HUMAN; INTERPERSONAL COMMUNICATION; INTERVIEW; METHODOLOGY; PALLIATIVE THERAPY; PATIENT COMPLIANCE; PATIENT EDUCATION; PATIENT REFERRAL; PRESCRIPTION; QUALITATIVE ANALYSIS; QUANTITATIVE ANALYSIS; RETROSPECTIVE STUDY; SOCIAL SUPPORT;

AFRICA SOUTH OF THE SAHARA; CHILD; CHILD WELFARE; CHILD, PRESCHOOL; CROSS-SECTIONAL STUDIES; HEALTH SERVICES ACCESSIBILITY; HUMANS; INTERVIEWS AS TOPIC; PALLIATIVE CARE; POVERTY; RETROSPECTIVE STUDIES;

EID: 70450172295     PISSN: 10966218     EISSN: None     Source Type: Journal    
DOI: 10.1089/jpm.2009.0125     Document Type: Article

References (37)

1. World Health Organization: Shaping the Future, World Health Report. Geneva: 2003. www.who.int/whr/2003/chapter1/en/index2.html (Last accessed July 15, 2009).
2. Newell ML, Brahmbhatt H, Ghys PD: Child mortality and HIV infection in Africa: A review. AIDS 2004;18(Suppl 2): S27-34.
3. Cancer Research UK: Cancer Worldwide-The global picture. http://info.cancerresearchuk.org/cancerstats/geographic/world (Last accessed July 15, 2009).
4. United Nations: Millennium Development Goals Indicators Database. 2007. http://mdgs.un.org/unsd/mdg/(Last accessed July 15, 2009).
5. Department for International Development (DFID): Child Mortality Factsheet. London: 2006. www.dfid.gov.uk/mdg/childmortalityfactsheet (Last accessed July 15, 2009).
6. World Health Organization: Global health: Today's challenges. In: The World Health Report 2003: Shaping the Future. Geneva: World Health Organization, 2003, pp. 3-22.
7. Clark D, Wright M, Hunt J, Lynch T: Hospice and palliative care development in Africa: A multi-method review of services and experiences. J Pain Symptom Manage 2007;33:698-710.
8. Harding R, Higginson IJ: Palliative care in sub-Saharan Africa. Lancet 2005;365:1971-1977.
9. Marston J: The need for palliative care for children in Africa. Hospice Palliative Care Association of South Africa, August 2006.
10. Marston J, Ngidi N, Garanganga E: Children How, Children Now Symposium [abstract]. Mexico City: August 2, 2008. www.ccaba.org/resources (Last accessed July 15, 2009).
11. ACT and NCHSPS: Palliative Care for Children: Joint Briefing, Number 1, April 2001, National Council for Hospice and Specialist Palliative www.hospice-spc-council.org.uk (Last accessed July 15, 2009).
12. ACT and RCPCH: Guide to the Development of Children's Palliative Care Services: Report of a Joint Working Party of the Association for Children with Life-threatening or Terminal Conditions and their Families and the Royal College of Paediatrics and Child Health. London. 1997; updated 2003.
13. Amery J (ed): Children's Palliative Care in Africa. Oxford: Oxford University Press, 2009.
14. Meiring M, Amery J: End of lfe care. In Amery J (ed): Children's Palliative Care in Africa. Oxford: Oxford University Press, 2009. pp. 327-353.
15. Nolan K: Ethical issues in pediatric pain management. In: Schechter NL, Berde CB, Yaster M (eds): Pain in Infants, Children, and Adolescents. Baltimore: Williams & Wilkins, 1993, pp. 123-132.
16. Schechter NL, Allen DA, Hanson K: Status of pediatric pain control: A comparison of hospital analgesic usage in children and adults. Pediatrics 1986;77:11-15.
17. Hammond D: Unnecessary suffering: Pain and the doctor-patient relationship. Perspect Biol Med 1979;23: 152-160.
18. Mcgrath PJ, Craig KD: Developmental and psychological factors in children's pain. Pediatr Clin North Am 1989;36: 823-836.
19. Schechter NL, Allen D. Physicians' attitudes toward pain in children. J Dev Behav Pediatr 1986;7:350-354
20. Harding R: Palliative care in resource-poor settings: Fallacies and misapprehensions. J Pain Symptom Manage 2008;36: 451-558.
21. Boucher S, Amery J: Play and development. In: Amery J (ed): Children's Palliative Care in Africa. Oxford, Oxford University Press, 2009, pp. 37-78.
22. Uman LS, Chambers CT, Mcgrath PJ, Kisely: Psychological interventions for needle-related procedural pain and distress in children and adolescents. www.Cochrane.Org/Reviews/En/Ab005179.Html. October 18. 2006. (Last accessed July 15, 2009).
23. Reddington C, Cohen J, Baldillo A, Toye M, Smith D, Kneut C, Demaria A, Bertolli J, Hsu HW: Adherence to medication regimens among children with human immunodeficiency virus infection. Pediatr Infect Dis J 2000;19:1148-1153.
24. Steele RG, Grauer D: Adherence to antiretroviral therapy for pediatric HIV infection: Review of the literature and recommendations for research. Clin Child Fam Psychol Rev. 2003;6:17-30.
25. Mills EJ, Nachega JB, Buchan I, Orbinski J, Attaran A, Singh S, Rachlis B, Wu P, Cooper C, Thabane L, Wilson K, Guyatt GH, Bangsberg DR: Adherence to antiretroviral therapy in sub-Saharan Africa and North America: A meta-analysis. JAMA 2006;296:679-690.
26. Mills EJ, Nachega JB, Bangsberg DR, Singh S, Rachlis B, Wu P, Wilson K, Buchan I, Gill CJ, Cooper C: Adherence to HAART: A systematic review of developed and developing nation patient-reported barriers and facilitators. PLoS Med 2006;3:e438.
27. Vreeman RC, Wiehe, SE, Pearce EC, Nyandiko WM: A systematic review of pediatric adherence to antiretroviral therapy in low-and middle-income countries. Pediatr Infect Dis J 2008;27:686-691.
28. Gardiner P, Dvorkin L: Promoting medication adherence in children. Am Fam Physician 2006;74:793-798, 800.
29. Heise L: Violence against women: The missing agenda. In: Koblinsky M, Timyan J, Gay J (eds): The Health of Women: A Global Perspective. Boulder, CO: Westview Press, 1993, pp. 171-195.
30. Wood K, Jewkes R: Violence, rape, and sexual coercion: Everyday love in a South African township. Gend Dev 1997;5:41-46.
31. Odunjinrin O: Wife battering in Nigeria. Int J Gynaecol Obstet 1993;41:159-164.
32. Noble J, Cover J, Yanagishita M: The World's Youth, 1996. Washington, D.C.: Population Reference Bureau, 1996.
33. Wjau W, Radeny S: Sexuality among Adolescents in Kenya. Nairobi: Kenya Association for the Promotion of Adolescent Health, 1995
34. Njovana E, Watts C: Gender violence in Zimbabwe: A need for collaborative action.Reprod Health Matters 1996;7:46-52.
35. Sebunya C: Child abusers face mob justice. AIDS Anal Afr 1996;6:15.
36. Amery J, Lapwood S: A study into the educational needs of children's hospice doctors: A descriptive quantitative and qualitative survey. Palliat Med 2004;18:727-733.
37. Amery J, Rose C, Agupio G, Byarugaba C. A study into the children's palliative care educational needs of health professionals in Uganda. J Pall Med 2009 (accepted for publication subject to revision).