The caregiver burden and stroke prognosis

Journal of Neurological Sciences

Volumn 26, Issue 2, 2009, Pages 139-152

  Ozge, Aynur ^a   Ince, Birsen ^b   Somay, Göksel ^c   Erol Çakmak, Sema ^a   Uludüz, Derya ^b   Bulkan, Murat ^c   Taşdelen, Bahar ^a   Kaleaǧasi, Hakan ^a  

^a MERSIN UNIVERSITY SCHOOL OF MEDICINE   (Turkey)

^b ISTANBUL UNIVERSITY   (Turkey)

^c GATA HAYDARPASA TRAINING HOSPITAL   (Turkey)

Author keywords

Anxiety; Caregiver burden; Depression; Prognosis; Stroke

Indexed keywords

ADULT; AGED; ARTICLE; BARTHEL INDEX; BECK ANXIETY INVENTORY; BECK DEPRESSION INVENTORY; CAREGIVER BURDEN; DEMOGRAPHY; FEMALE; FOLLOW UP; GLASGOW COMA SCALE; HUMAN; INSTITUTIONALIZATION; MAJOR CLINICAL STUDY; MALE; PROGNOSIS; PROSPECTIVE STUDY; STROKE; TURKEY (REPUBLIC);

EID: 70449579177     PISSN: 13001817     EISSN: 13021664     Source Type: Journal    
DOI: None     Document Type: Article

References (60)

1. Adams HP, Bendixen BH, Kapelle LJ et al. Classification of subtype of acute ischemic stroke: definitions for use in a multicenter clinical trial. Stroke 1993; 24:35-41.
2. Anderson CS, Linto J, Stewart-Wynne EG. A population-based assessment of the impact and burden of caregiving for long-term stroke survivors. Stroke 1995; 26:843-849.
3. Appelros P, Nydevik I, Tere'nt A. Living setting and utilisation of ADL assistance one year after a strokewith special reference to gender differences. Disability and Rehabilitation 2006; 28(1): 43-49.
4. Aström M, Adolfsson R, Asplund K et al. Life before and after stroke. Cerebrovasc Dis 1992; 2:28-34.
5. Beach SR, Schulz R, Yee J et al. Negative and positive health effects of caring for a disabled spouse: longitudinal findings from the caregiver health effects study. Psychol Aging 2000;15:259-271. (Pubitemid 30764173)
6. Beck AT, Epstein N, Brown G et al. An inventory for measuring clinical anxiety: psychometric properties. J Consult Clin Psychol 1988; 56(6):893-897. (Pubitemid 19008360)
7. Beck AT, Ward CH, Mendelson M et al. An inventory for measuring depression. Arch Gen Psychiatry 1961; 4:561-571.
8. Berg A, Palomaki H, Lonnqvist J et al. Depression among caregivers of stroke survivors. Stroke 2005; 36:639-643.
9. Birschel P, Ellul J, Barer D. Progressing stroke: Towards an internationally agreed definition. Cerebrovasc Dis 2004; 17:242-252. (Pubitemid 38529205)
10. Blake H, Lincoln NB, Clarke DD. Caregiver strain in spouses of stroke patients. Clin Rehabil 2003; 17:312-317. (Pubitemid 36519276)
11. Bugge C, Alexander H, Hagen S. Stroke patients' informal caregivers. Patient, caregiver, and service factors that affect caregiver strain. Stroke 1999; 30:1517-1523.
12. Carnwath TCM, Johnson DAW. Psychiatric morbidity among spouses of patients with stroke. BMJ 1987; 294: 409-411. (Pubitemid 17023614)
13. Choi-Kwon S, Kim HS, Kwon SU et al. Factors affecting the burden on caregivers of stroke survivors in South Korea. Arch Phys Med Rehabil 2005; 86:1043-1048. (Pubitemid 40692376)
14. Clark MS, Smith DS. Psychological correlates of outcome following rehabilitation from stroke. Clin Rehabil 1999;13:129-140. (Pubitemid 29171409)
15. Dale L, Gallant M, Kilbride L et al. Stroke caregivers: do they feel prepared? Occup Ther Health Care 1997;11:39-53.
16. Dennis M, O'Rourke S, Lewis S et al. A Quantitative Study of the Emotional Outcome of People Caring for Stroke Survivors. Stroke 1998;29;1867-1872. (Pubitemid 28399979)
17. Draper BM, Poulos CJ, Cole A et al. A comparison of care-givers for elderly stroke and dementia victims. J Am Geriatr Soc 1992; 40:896-901.
18. Evans RL, Hendricks RD, Haselkorn JK et al. The family's role in stroke rehabilitation: a review of the literature. Am J Phys Med Rehabil 1992; 71:135-139.
19. Feldman H, Gauthier S, Hecker J et al. Efficacy of Donepezil on Maintenance of Activities of Daily Living in Patients with Moderate to Severe Alzheimer's Disease and the Effect on Caregiver Burden. J Am Geriatr Soc 2003; 51:737-744. (Pubitemid 36693421)
20. Forsberg-Warleby G, Moller A, Blomstrand C. Psychological well-being of spouses of stroke patients during the first year after stroke. Clin Rehabil 2004;18:430-437. (Pubitemid 38701753)
21. Glass TA, Matchar DB, Belyea M et al. Impact of social support in first stroke. Stroke 1993; 1: 64-70. (Pubitemid 23014384)
22. Grant JS, Elliott TR, Weaver M et al. Social support, social problem-solving abilities, and adjustment of family caregivers of stroke survivors. Arch Phys Med Rehabil 2006; 87:343-350. (Pubitemid 43286942)
23. Grant JS, Elliott TR, Weaver M et al. Telephone intervention with family caregivers of stroke survivors after rehabilitation. Stroke 2002;33(8):2060- 2065. (Pubitemid 34840068)
24. Gresham GE, Phillips TF, Wolf PA et al. Epidemiologic profile of long-term stroke disability: the Framingham study. Arch Phys Med Rehabil 1979; 60:487-491.
25. Han B, Haley WE. Family careging for patients with stroke, review and analysis. Stroke 1999;30:1478-1485.
26. Hankey GJ, Jamrozik K, Broadhurst RJ et al. Long-term disability after first-ever stroke and related prognostic factors in the Perth Community Stroke Study, 1989-1990. Stroke 2002; 33(4):1034-1040.
27. Hatano S. Variability of the diagnosis of stroke by clinical judgement and by a scoring method. Bull World Health Organ 1976; 54(5):533-540. (Pubitemid 8114219)
28. Hillen T, Davies S, Rudd AG et al. Self ratings of health predict functional outcome and recurrence free survival after stroke. J Epidemiol Community Health 2003;57(12):960-966. (Pubitemid 38005427)
29. Hodgson SP, Wood VA, Langton-Hewer R. Identification of stroke carers "at risk": a preliminary study of the predictors of carers' psychological well-being at one year post-stroke. Clin Rehabil 1996;10:337-346.
30. Hunt D, Smith JA. The personal experience of carers of stroke survivors: an interpretative phenomenological analysis. Disability and Rehabilitation 2004; 26:1000-1011. (Pubitemid 39214183)
31. Jones AL, Charlesworth JF, Hendra TJ. Patient mood and carer strain during stroke rehabilitation in the community following early hospital discharge. Disabil Rehabil 2000; 22(11):490-494.
32. Jonsson AC, Lindgren I, Hallstrom B et al. Determinants of quality of life in stroke survivors and their informal caregivers. Stroke 2005; 36:803-808. (Pubitemid 40490629)
33. Kalra L, Evans A, Perez I et al. Training carers of stroke patients: randomised controlled trial. BMJ 2004; 328:1099-1101. (Pubitemid 38608437)
34. Kramer BJ. Gain in the caregiving experience: where are we? What next? Gerontologist 1997;37:218-232.
35. Louiea SWS, Liub PKK, Manc DWK. The effectiveness of a stroke education group on persons with stroke and their caregivers. International Journal of Rehabilitation Research 2006; 29:123-129. (Pubitemid 44309732)
36. Lyden P, Brott T, Tilley B et al. Improved reliability of the NIH Stroke Scale using video training. NINDS TPA Stroke Study Group. Stroke 1994; 25:2220-2226. (Pubitemid 24338379)
37. Mahoney FI, Barthel DW. Functional evaluation: Barthel Index. Md Med J 1965; 14:61-65.
38. Mant J, Carter C, Wade DT et al. Family support for stroke: a randomised controlled trial. Lancet 2000;356:808-813. (Pubitemid 30706678)
39. McCullagh E, Brigstocke G, Donaldson N et al. Determinants of caregiving burden and quality of life in caregivers of stroke patients. Stroke 2005;36(10):2181-2186. (Pubitemid 41429242)
40. Ross S, Morris RG. Psychological adjustment of the spouses of aphasic stroke patients. Int J Rehabil Res 1988; 11:383-386. (Pubitemid 20020300)
41. Scholte op Reimer WJM, Haan de RJ, Rijnders PT et al. The burden of caregiving in partners of long-term stroke survivors. Stroke 1998; 29: 1605-1611.
42. Schulz R, Tompkins CA, Rau MT. A longitudinal study of psychosocial impact of stroke on primary support persons. Psychol Aging 1988; 3: 131-141.
43. Smith LN, Norrie J, Kerr SM et al. Impact and influences on caregiver outcomes at one year post-stroke. Cerebrovasc Dis 2004;18:145-153. (Pubitemid 39077851)
44. Stephenson C, Wilson S, Gladman JR. Patient and carer satisfaction in geriatric day hospitals. Disability and Rehabilitation 1995; 17:252-255.
45. Stewart MJ, Doble S, Hart G et al. Peer visitor support for family caregivers of seniors with stroke. Can J Nurs Res 1998;30:87-117. (Pubitemid 128471296)
46. Sturm JW, Osborne RH, Dewey HM et al. Brief comprehensive quality of life assessment after stroke: the assessment of quality of life instrument in the North East Melbourne Stroke Incidence Study (NEMESIS). Stroke 2002; 33(12):2888-2894. (Pubitemid 35462862)
47. Sturm JW, Dewey HM, Donnan GA et al. Handicap after stroke: how does it relate to disability, perception of recovery, and stroke subtype?: The North East Melbourne Stroke Incidence Study (NEMESIS). Stroke 2002; 33(3):762-768.
48. Teel C, Duncan P, Lai SM. Caregiving experiences after stroke. Nurs Res 2001; 50:53-60.
49. Thrift AG, Dewey HM, Macdonell RA et al. Incidence of the major stroke subtypes: initial findings from the North East Melbourne stroke incidence study (NEMESIS). Stroke 2001; 32(8):1732-1738. (Pubitemid 32772199)
50. Thommessen B, Wyller TB, Bautz-Holter E et al. Acute phase predictors of subsequent psychosocial burden in carers of elderly stroke patients. Cerebrovasc Dis 2001; 11:201-206. (Pubitemid 32304632)
51. Tsouna-Hadjis E, Vemnos KN, Zakopoulos N et al. First stroke recovery process: the role of family social support. Arch Phys Med Rehabil 2000;81:881-887. (Pubitemid 30460801)
52. Van Exel NJ, Koopmanschap MA, Van den Berg B et al. Burden of informal caregiving for stroke patients. Identification of caregivers at risk of adverse health effects. Cerebrovasc Dis 2005; 19:11-17.
53. Van Exel NJ, Brouwer WB, Van den Berg B et al. What really matters: an inquiry into the relative importance of dimensions of informal caregiver burden. Clin Rehabil 2004; 18: 683-693.
54. Van Heugten C, Visser-Meily A, Post M et al. Care for carers of stroke patients: evidence-based clinical practice guidelines. J Rehabil Med 2006;38(3):153-158. (Pubitemid 43731147)
55. Visser-Meily JMA, Post MWM, Schepers VPM et al. Spouses' quality of life one year after stroke; prediction at the start of clinical rehabilitation. Cerebrovasc Dis 2005; 20:443-448.
56. Visser-Meily JMA, Marcel WM, Schepers VPM et al. Spouses' satisfaction with caregiver support in stroke rehabilitation. Scand J Caring Sci 2005; 19; 310-316
57. Wade DT, Langton-Hewer R. Functional abilities after stroke: measurement, natural history and prognosis. J Neurol Neurosurg Psychiatr 1987; 50:177-182.
58. Wade DT, Legh-Smith J, Langton Hewer R. Effects of living with and looking after survivors of a stroke. BMJ 1986; 293:418-420. (Pubitemid 16039219)
59. Weimar C, Roth M, Willig V et al. Development and validation of a prognostic model to predict recovery following intracerebral hemorrhage. J Neurol 2006;253(6):788-793. (Pubitemid 43980151)
60. Weimar C, Ho TW, Katsarava Z et al. German Stroke Study Collaboration. Improving patient selection for clinical acute stroke trials. Cerebrovasc Dis 2006; 21(5-6):386-392.