Experienced Problems of Young Adults With Cerebral Palsy: Targets for Rehabilitation Care

Archives of Physical Medicine and Rehabilitation

Volumn 90, Issue 11, 2009, Pages 1891-1897

  Nieuwenhuijsen, Channah ^a   Donkervoort, Mireille ^a   Nieuwstraten, Wilbert ^b   Stam, Henk J ^a   Roebroeck, Marij E ^a  

^a ERASMUS MEDICAL CENTER   (Netherlands)

^b Sophia Rehabilitation Centre   (Netherlands)

Author keywords

Activities of daily living; Cerebral palsy; Health transition; Rehabilitation

Indexed keywords

ADULT; ARTICLE; CEREBRAL PALSY; CONTROLLED STUDY; EDUCATION; FEMALE; HUMAN; INTERNATIONAL CLASSIFICATION OF FUNCTIONING, DISABILITY AND HEALTH; LEARNING DISORDER; MAJOR CLINICAL STUDY; MALE; MOTOR PERFORMANCE; REHABILITATION CARE; REHABILITATION CENTER; SELF CARE; SEMI STRUCTURED INTERVIEW;

ACTIVITIES OF DAILY LIVING; ADOLESCENT; CEREBRAL PALSY; CROSS-SECTIONAL STUDIES; DISABILITY EVALUATION; FEMALE; HUMANS; MALE; NETHERLANDS; QUESTIONNAIRES; SELF CARE; YOUNG ADULT;

EID: 70449420078     PISSN: 00039993     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.apmr.2009.06.014     Document Type: Article

References (52)

1. Beckung E., and Hagberg G. Neuroimpairments, activity limitations, and participation restrictions in children with cerebral palsy. Dev Med Child Neurol 44 (2002) 309-316
2. Kuban K.C., and Leviton A. Cerebral palsy. N Engl J Med 330 (1994) 188-195
3. Surveillance of Cerebral Palsy in Europe (SCPE). Surveillance of cerebral palsy in Europe: a collaboration of cerebral palsy surveys and registers. Dev Med Child Neurol 42 (2000) 816-824
4. Wichers M.J., van der Schouw Y.T., Moons K.G., Stam H.J., and van Nieuwenhuizen O. Prevalence of cerebral palsy in The Netherlands (1977-1988). Eur J Epidemiol 17 (2001) 527-532
5. Meihuizen-De Regt M.J., de Moor J.M., and Mulders A.M. Handboek kinderrevalidatie. 3rd ed. (2003), Van Gorcum, Assen
6. Bent N., Tennant A., Swift T., Posnett J., Scuffham P., and Chamberlain M.A. Team approach versus ad hoc health services for young people with physical disabilities: a retrospective cohort study. Lancet 360 (2002) 1280-1286
7. Chamberlain M.A., and Kent R.M. The needs of young people with disabilities in transition from paediatric to adult services. Eura Medicophys 41 (2005) 111-123
8. Hilberink S.R., Roebroeck M.E., Nieuwstraten W., Jalink L., Verheijden J.M., and Stam H.J. Health issues in young adults with cerebral palsy: towards a life-span perspective. J Rehabil Med 39 (2007) 605-611
9. Magill-Evans J., Darrah J., Pain K., Adkins R., and Kratochvil M. Are families with adolescents and young adults with cerebral palsy the same as other families?. Dev Med Child Neurol 43 (2001) 466-472
10. White P.H. Resilience in children with disabilities-transition to adulthood. J Rheumatol 23 (1996) 960-962
11. Binks J.A., Barden W.S., Burke T.A., and Young N.L. What do we really know about the transition to adult-centered health care?. A focus on cerebral palsy and spina bifida. Arch Phys Med Rehabil 88 (2007) 1064-1073
12. Chamberlain M.A. Physically handicapped school leavers. Arch Dis Child 69 (1993) 399-402
13. Chamberlain M.A., and Rooney C.M. Young adults with arthritis: meeting their transitional needs. Br J Rheumatol 35 (1996) 84-90
14. Thomas A.P., Bax M.C., and Smyth D.P. The health care of physically handicapped young adults. Z Kinderchir 42 Suppl 1 (1987) 57-59
15. Fiorentino L., Datta D., Gentle S., et al. Transition from school to adult life for physically disabled young people. Arch Dis Child 79 (1998) 306-311
16. Grimby G. Focused multidisciplinary services for young people with disabilities. Lancet 360 (2002) 1264-1265
17. Roebroeck M.E., Donkervoort M., Wiegerink D.J., van Meeteren J., Stam H.J., and Transition Research Group South West Netherlands. Transition into adulthood of young adults with cerebral palsy: limitations in achieving independent life. [abstract]. Dev Med Child Neurol 49 Suppl 111 (2007) 22
18. Buffart LM, van den Berg-Emons HJ, van Mechelen W, et al. Promoting physical activity in an adolescent and a young adult with physical disabilities. Disabil Health J. In press.
19. Nieuwenhuijsen C., van der Laar Y., Donkervoort M., Nieuwstraten W., Roebroeck M.E., Stam H.J., and Transition Research Group South West Netherlands. Unmet needs and health care utilization in young adults with cerebral palsy. Disabil Rehabil 30 (2008) 1254-1262
20. Donkervoort M., Roebroeck M., Wiegerink D.J., van der Heijden-Maessen H., Stam H., and Transition Research Group South West Netherlands. Determinants of functioning of adolescents and young adults with cerebral palsy. Disabil Rehabil 29 (2007) 453-463
21. Donkervoort M., Wiegerink D.J., van Meeteren J., Stam H.J., Roebroeck M.E., and Transition Research Group South West Netherlands. Transition to adulthood: validation of the Rotterdam Transition Profile for young adults with cerebral palsy and normal intelligence. Dev Med Child Neurol 51 (2009) 53-62
22. Andren E., and Grimby G. Dependence and perceived difficulty in activities of daily living in adults with cerebral palsy and spina bifida. Disabil Rehabil 22 (2000) 299-307
23. Andren E., and Grimby G. Dependence in daily activities and life satisfaction in adult subjects with cerebral palsy or spina bifida: a follow-up study. Disabil Rehabil 26 (2004) 528-536
24. Bottos M., Feliciangeli A., Sciuto L., Gericke C., and Vianello A. Functional status of adults with cerebral palsy and implications for treatment of children. Dev Med Child Neurol 43 (2001) 516-528
25. Law M., Baptiste S., McColl M., Opzoomer A., Polatajko H., and Pollock N. The Canadian Occupational Performance Measure: an outcome measure for occupational therapy. Can J Occup Ther 57 (1990) 82-87
26. World Health Organization. International Classification of Functioning, Disability and Health: ICF (2001), World Health Organization, Geneva
27. Cieza A., and Stucki G. Content comparison of health-related quality of life (HRQOL) instruments based on the International Classification of Functioning, Disability and Health (ICF). Qual Life Res 14 (2005) 1225-1237
28. Schepers V.P., Ketelaar M., van de Port I.G., Visser-Meily J.M., and Lindeman E. Comparing contents of functional outcome measures in stroke rehabilitation using the International Classification of Functioning, Disability and Health. Disabil Rehabil 29 (2007) 221-230
29. Stamm T.A., Cieza A., Machold K.P., Smolen J.S., and Stucki G. Content comparison of occupation-based instruments in adult rheumatology and musculoskeletal rehabilitation based on the International Classification of Functioning, Disability and Health. Arthritis Rheum 51 (2004) 917-924
30. Engelen V., Ketelaar M., and Gorter J.W. Selecting the appropriate outcome in paediatric physical therapy: how individual treatment goals of children with cerebral palsy are reflected in GMFM-88 and PEDI. J Rehabil Med 39 (2007) 225-231
31. Siebes R.C., Ketelaar M., Gorter J.W., et al. Transparency and tuning of rehabilitation care for children with cerebral palsy: a multiple case study in five children with complex needs. Dev Neurorehabil 10 (2007) 193-204
32. Palisano R., Rosenbaum P., Walter S., Russell D., Wood E., and Galuppi B. Development and reliability of a system to classify gross motor function in children with cerebral palsy. Dev Med Child Neurol 39 (1997) 214-223
33. Eliasson A.C., Krumlinde-Sundholm L., Rosblad B., et al. The Manual Ability Classification System (MACS) for children with cerebral palsy: scale development and evidence of validity and reliability. Dev Med Child Neurol 48 (2006) 549-554
34. Jahnsen R., Aamodt G., and Rosenbaum P. Gross Motor Function Classification System used in adults with cerebral palsy: agreement of self-reported versus professional rating. Dev Med Child Neurol 48 (2006) 734-738
35. van Meeteren J., Roebroeck M.E., Celen E., Donkervoort M., Stam H.J., and Transition Research Group South West Netherlands. Functional activities of the upper extremity of young adults with cerebral palsy: a limiting factor for participation?. Disabil Rehabil 30 (2008) 387-395
36. Carswell A., McColl M.A., Baptiste S., Law M., Polatajko H., and Pollock N. The Canadian Occupational Performance Measure: a research and clinical literature review. Can J Occup Ther 71 (2004) 210-222
37. Cup E.H., Scholte o., Reimer W.J., Thijssen M.C., and van Kuyk-Minis M.A. Reliability and validity of the Canadian Occupational Performance Measure in stroke patients. Clin Rehabil 17 (2003) 402-409
38. Dedding C., Cardol M., Eyssen I.C., Dekker J., and Beelen A. Validity of the Canadian Occupational Performance Measure: a client-centred outcome measurement. Clin Rehabil 18 (2004) 660-667
39. Kjeken I., Slatkowsky-Christensen B., Kvien T.K., and Uhlig T. Norwegian version of the Canadian Occupational Performance Measure in patients with hand osteoarthritis: validity, responsiveness, and feasibility. Arthritis Rheum 51 (2004) 709-715
40. Pan A.W., Chung L., and Hsin-Hwei G. Reliability and validity of the Canadian Occupational Performance Measure for clients with psychiatric disorders in Taiwan. Occup Ther Int 10 (2003) 269-277
41. Cieza A., Geyh S., Chatterji S., Kostanjsek N., Ustun B., and Stucki G. ICF linking rules: an update based on lessons learned. J Rehabil Med 37 (2005) 212-218
42. Simeonsson R.J., Scarborough A.A., and Hebbeler K.M. ICF and ICD codes provide a standard language of disability in young children. J Clin Epidemiol 59 (2006) 365-373
43. Cieza A., Brockow T., Ewert T., et al. Linking health-status measurements to the International Classification of Functioning, Disability and Health. J Rehabil Med 34 (2002) 205-210
44. Cohen J. A power primer. Psychol Bull 112 (1992) 155-159
45. Ostensjo S., Carlberg E.B., and Vollestad N.K. Everyday functioning in young children with cerebral palsy: functional skills, caregiver assistance, and modifications of the environment. Dev Med Child Neurol 45 (2003) 603-612
46. Bax M.C., Smyth D.P., and Thomas A.P. Health care of physically handicapped young adults. Br Med J (Clin Res Ed) 296 (1988) 1153-1155
47. Andersson C., and Mattsson E. Adults with cerebral palsy: a survey describing problems, needs, and resources, with special emphasis on locomotion. Dev Med Child Neurol 43 (2001) 76-82
48. Andren E., and Grimby G. Activity limitations in personal, domestic and vocational tasks: a study of adults with inborn and early acquired mobility disorders. Disabil Rehabil 26 (2004) 262-271
49. Thomas A., Bax M., Coombes K., Goldson E., Smyth D., and Whitmore K. The health and social needs of physically handicapped young adults: are they being met by the statutory services?. Dev Med Child Neurol Suppl 50 (1985) 1-20
50. Parmenter T.R., and Knox M. The post-school experiences of young people with a disability. Int J Rehabil Res 14 (1991) 281-291
51. van der Dussen L., Nieuwstraten W., Roebroeck M., and Stam H.J. Functional level of young adults with cerebral palsy. Clin Rehabil 15 (2001) 84-91
52. Verhoef J.A., Miedema H.S., Roebroeck M.E., Floothuis M., and van Schaardenburgh N. Intervention to improve participation in work. Development, evaluation and implementation. Council of Occupational Therapists for the European Countries. Proceedings of 8th European Congress of Occupational Therapy (2008) Hamburg, Germany