Palliative access through care at home: Experiences with an Urban, geriatric home palliative care program

Journal of the American Geriatrics Society

Volumn 57, Issue 10, 2009, Pages 1925-1931

  Holley, Abigail P H ^a   Gorawara Bhat, Rita ^a   Dale, William ^a   Hemmerich, Joshua ^a   Cox Hayley, Deon ^a  

^a UNIVERSITY OF CHICAGO   (United States)

Author keywords

Dementia; End of life; Health care disparities; Home care; Palliative care

Indexed keywords

ARTICLE; CAREGIVER; DEMENTIA; ELDERLY CARE; HEALTH CARE ACCESS; HEALTH PERSONNEL ATTITUDE; HEALTH PROGRAM; HEALTH SERVICE; HOME CARE; HUMAN; MEDICAL RECORD REVIEW; SEMI STRUCTURED INTERVIEW; URBAN POPULATION;

AGED, 80 AND OVER; FEMALE; GERIATRICS; HEALTH SERVICES ACCESSIBILITY; HOME CARE SERVICES; HUMANS; MALE; PALLIATIVE CARE; URBAN POPULATION;

EID: 70350406125     PISSN: 00028614     EISSN: 15325415     Source Type: Journal    
DOI: 10.1111/j.1532-5415.2009.02452.x     Document Type: Article

References (30)

1. U.S. Population Projections 2005 United States Census Bureau [on-line]. Available at Accessed January 27, 2009.
2. Wu S, Green A. Projection of Chronic Illness Prevalence and Cost Inflation. Santa Monica, CA : RAND Health, 2000.
3. Goldstein NE, Morrison RS. The intersection between geriatrics and palliative care: A call for a new research agenda. J Am Geriatr Soc 2005 53 : 1593 1598.
4. Mitchell SL, Kiely DK, Miller SC et al. Hospice care for patients with dementia. J Pain Symptom Manage 2007 34 : 7 16.
5. American Geriatrics Society Panel on Persistent Pain in Older Persons. The management of persistent pain in older persons. J Am Geriatr Soc 2002 50 : S205 S224.
6. Schonwetter R. Palliative medicine coming of age. J Palliat Med 2007 10 : 3 5.
7. Kapo J, Morrison LJ, Liao S. Palliative care for the older adult. J Palliat Med 2007 10 : 185 209.
8. Anderson G, Knickman JR. Changing the chronic care system to meet people's needs. Health Aff Millwood 2001 20 : 146 160.
9. Gruenewald DA, White EJ. The illness experience of older adults near the end of life: A systematic review. Anesthesiol Clin 2006 24 : 163 180.
10. Welch LC, Teno JM, Mor V. End-of-life care in black and white: Race matters for medical care of dying patients and their families. J Am Geriatr Soc 2005 53 : 1145 1153.
11. Kwak J, Haley WE. Current research findings on end-of-life decision making among racially or ethnically diverse groups. Gerontologist 2005 45 : 634 641.
12. Bernabei R, Gambassi G, Lapane K et al. Management of pain in elderly patients with cancer. SAGE Study Group. Systematic Assessment of Geriatric Drug Use via Epidemiology. [Erratum appears in JAMA 1999 Jan 13;281(2):136]. JAMA 1998 279 : 1877 1882.
13. Krakauer EL, Crenner C, Fox K. Barriers to optimum end-of-life care for minority patients. J Am Geriatr Soc 2002 50 : 182 190.
14. Reese DJ, Ahern RE, Nair S et al. Hospice access and use by African Americans: Addressing cultural and institutional barriers through participatory action research. Soc Work 1999 44 : 549 559.
15. Mitchell SL, Teno JM, Miller SC et al. A national study of the location of death for older persons with dementia.[erratum appears in J Am Geriatr Soc 2005 Apr;53:741]. J Am Geriatr Soc 2005 53 : 299 305.
16. Morrison RS, Siu AL. Survival in end-stage dementia following acute illness. [see comment]. JAMA 2000 284 : 47 52.
17. Shega JW, Hougham GW, Stocking CB et al. Patients dying with dementia: Experience at the end of life and impact of hospice care. J Pain Symptom Manage 2008 35 : 499 507.
18. Jordhoy MS, Fayers P, Saltnes T et al. A palliative-care intervention and death at home: A cluster randomised trial. Lancet 2000 356 : 888 893.
19. Milberg A, Strang P, Carlsson M et al. Advanced palliative home care: Next-of-kin's perspective. J Palliat Med 2003 6 : 749 756.
20. Goldschmidt D, Schmidt L, Krasnik A et al. Expectations to and evaluation of a palliative home-care team as seen by patients and carers. Support Care Cancer 2006 14 : 1232 1240.
21. Appelin G, Bertero C. Patients' experiences of palliative care in the home: A phenomenological study of a Swedish sample. Cancer Nurs 2004 27 : 65 70.
22. Peruselli C, Paci E, Franceschi P et al. Outcome evaluation in a home palliative care service. J Pain Symptom Manage 1997 13 : 158 165.
23. Singer Y, Bachner YG, Shvartzman P et al. Home death - the caregivers' experiences. J Pain Symptom Manage 2005 30 : 70 74.
24. Clark D, Ferguson C, Nelson C. Macmillan Carers Schemes in England: Results of a multicentre evaluation. Palliat Med 2000 14 : 129 139.
25. Brumley R, Enguidanos S, Jamison P et al. Increased satisfaction with care and lower costs: Results of a randomized trial of in-home palliative care. J Am Geriatr Soc 2007 55 : 993 1000.
26. Aiken LS, Butner J, Lockhart CA et al. Outcome evaluation of a randomized trial of the PhoenixCare intervention: Program of case management and coordinated care for the seriously chronically ill. J Palliat Med 2006 9 : 111 126.
27. Groth-Juncker A, McCusker J. Where do elderly patients prefer to die? Place of death and patient characteristics of 100 elderly patients under the care of a home health care team. J Am Geriatr Soc 1983 31 : 457 461.
28. Pritchard RS, Fisher ES, Teno JM et al. Influence of patient preferences and local health system characteristics on the place of death. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Risks and Outcomes of Treatment [see comment]. J Am Geriatr Soc 1998 46 : 1242 1250.
29. Baker B. Medicare Clarifies Its Definition of 'Homebound'. ACP Internist 2001. American College of Physicians [on-line]. Available at Accessed February 12, 2009.
30. Sachs GA, Shega JW, Cox-Hayley D. Barriers to excellent end-of-life care for patients with dementia [see comment]. J Gen Intern Med 2004 19 : 1057 1063.