Barriers and opportunities for recruitment for nonintervention studies on HIV risk: Perspectives of street Drug users

Substance Use and Misuse

Volumn 44, Issue 11, 2009, Pages 1642-1659

  Oransky, Matthew ^a   Fisher, Celia B ^a   Mahadevan, Meena ^a   Singer, Merrill ^b  

^a FORDHAM UNIVERSITY   (United States)

^b UNIVERSITY OF CONNECTICUT   (United States)

Author keywords

Drug use; HIV risk; Monetary incentives; Participant perspectives; Stigma; Trust

Indexed keywords

ADULT; AGED; ARTICLE; CONTROLLED STUDY; ECONOMIC ASPECT; FEMALE; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; INFECTION RISK; INTRAVENOUS DRUG ABUSE; MAJOR CLINICAL STUDY; MALE; MEDICAL INFORMATION; PERSUASIVE COMMUNICATION; PRIORITY JOURNAL; TRUST;

ADULT; AGED; ATTITUDE; CONNECTICUT; DRUG USERS; FEMALE; FOCUS GROUPS; HIV INFECTIONS; HUMANS; MALE; MIDDLE AGED; MOTIVATION; NEW YORK CITY; PATIENT SELECTION; PRIVACY; RISK ASSESSMENT; STEREOTYPING; STREET DRUGS; TRUST; YOUNG ADULT;

EID: 70350289449     PISSN: 10826084     EISSN: 15322491     Source Type: Journal    
DOI: 10.3109/10826080802543671     Document Type: Article

References (49)

1. Adrian,M. (2006).Addiction and sexually transmitted disease (STD), human immunodeficiency virus (HIV), and acquired immune deficiency syndrome (AIDS): their mutual interactions. Substance Use and Misuse, 41:1337-1348.
2. Barratt, M. J., Norman, J. S., Fry, C. L. (2007). Positive and negative aspects of participation in illicit drug research: implications for recruitment and ethical conduct. International Journal of Drug Policy, 18:235-238.
3. Broadhead, R., Fox, K. (1990). Takin' it to the Streets: AIDS outreach as ethnography. Journal of Contemporary Ethnography, 19:322-348.
4. Buchanan, D., Khoshnood, K., Stopka, T., Shaw, S., Santelices, C., Singer, M. (2002). Ethical dilemmas created by the criminalization of status behaviors: case examples from ethnographic field research with injection drug users. Health Education and Behavior, 29:30-42.
5. Charmaz, K. (2008). Reconstructing grounded theory. In P. Alasuutari, L. Bickman, and J. Brannen (Eds.), The Sage handbook of social research methods (pp. 460-478). Thousand Oaks, CA: Sage.
6. Deren, S., Oliver-Velez, D., Finlinson, A., Robles, R., Andia, J., Colon, H. M, et al. (2003). Integrating qualitative and quantitative methods: comparing HIV-related risk behaviors among Puerto Rican drug users in Puerto Rico and New York. Substance Use and Misuse, 38:1-24.
7. Dickert, N., Grady, C. (1999). What's the price of a research subject: Approaches to the payment for research participation. New England Journal of Medicine, 341:198-203.
8. Emanuel, E. J. (2005). Undue inducement: nonsense on stilts? American Journal of Bioethics, 5:9-13.
9. Fairchild, A. L., Bayer, R. (1999). Uses and abuses of Tuskegee. Science, 284:919-921.
10. Festinger, D. S.,Marlowe, D. B., Croft, J. R., Dugosh, K. L.,Mastro, N. K., Lee, P. A., et al. (2005).Do research payments precipitate drug use or coerce participation? Drug and Alcohol Dependence, 78:275-281.
11. Fisher, C. B. (2004). Ethics in drug abuse and related HIV risk research. Applied Developmental Science, 8:90-102.
12. Fisher, C.B., Oransky, M.,Mahadevan,M., Singer, M.,Mirhej, G.,Hodge,G.D. (2008).Marginalized populations and drug addiction research: realism, mistrust, and misconception. IRB: Ethics and Human Research, 30:1-9.
13. Fisher, C. B., Oransky, M., Mahadevan, M., Singer, M., Mirhej, G., and Hodge, G. D. (in press). Do drug abuse researchers have a "duty to protect" third parties from HIV transmission? Moral perspectives of street drug users. In D. Buchanan, C. B. Fisher, and L.Gable (Eds.), Ethical and legal issues in research with high risk populations. Washington DC: APA Books.
14. Fisher, C. B., Ragsdale, K. (2006). A goodness-of-fit ethics for multicultural research. In J. Trimble and C. B. Fisher (Eds.), The handbook of ethical research with ethnocultural populations and communities (pp. 3-26). Thousand Oaks, CA: Sage.
15. Fisher, C. B., Wallace, S. A. (2000). Through the community looking glass: re-evaluating the ethical and policy implications of research on adolescent risk and psychopathology. Ethics and Behavior, 10:99-118.
16. Fitzgerald, J. L., Hamilton, M. H. (1996). The Consequences of Knowing: ethical and legal liabilities in illicit drug research. Social Science and Medicine, 43:1591-1600.
17. Fry, C., Dwyer, R. (2001). For love or money? An exploratory study of why injecting drug users participate in research. Addiction, 96:1319-1325.
18. Fry, C. L., Madden, A., Brogan, D., Loff, B. (2006). Australian resources for ethical participatory processes in publish health research. Journal of Medical Ethics, 32:186.
19. Fry, C., Ritter, A., Baldwin, S., Bowen, K. J., Gardiner, P., Holt, T., et al. (2005). Paying research participants: A study of current practices in Australia. Journal of Medical Ethics, 31:542-547.
20. Glaser, B. G., Strauss, A. L. (1967). The discovery of grounded theory. Chicago, IL: Aldine.
21. Grady, C., Wagman, J., Ssekubugu, R., Wawer, M. J., Serwadda, D., Kiddugavu, M., et al. (2008). Research benefits for hypothetical HIV vaccine trials: the views of Ugandans in the Rakai District. IRB, 30:1-7.
22. Herek, G. M., Glunt, E. K. (1988). An epidemic of stigma: public reactions to AIDS. American Psychologist, 43:886-891.
23. Higgs, P., Moore, D., Aitken, C. (2006). Engagement, reciprocity and advocacy: ethical harm reduction practice in research with injecting drug users. Drug and Alcohol Review, 25:419-423.
24. Jenkins, R. A., Tougsa, K., Markowitz, L. E., Mason, C. J., Jamroentana, V., Brown, A. E., et al. (2000). Willingness to participate in HIV-1 vaccine trials among young Thai men. Sexually Transmitted Infections, 76:386-392.
25. Katz, S. (1997). Secular morality. In A. M. Brand and P. Rozin (Eds.), Morality and health (pp 297-330). London: Routledge.
26. Klitzman, R. (2005). The importance of social, cultural, and economic contexts, and empirical research in examining "undue inducement." American Journal of Bioethics, 5:19-21.
27. Krueger, R. A. (1998). Analyzing and reporting focus group results. Thousand Oaks: Sage.
28. National Institute on Drug Abuse. (2007). Policy on HIV education, counseling, testing, and treatment for research subjects. Retrieved July 11, 2008, from http://grants.nih.gov/grants/guide/notice- files/NOT-DA-07-013.html.
29. National Institute on Drug Abuse. (2007). Drug abuse and risky behaviors: the evolving dynamics of HIV/AIDS. Proceedings of National Institutes of Health (May 8-9), Natcher Conference Center, Bethesda, MD.
30. Nichter, M.,Quintero, G.,Nichter,M., Mock, J., Shakib, S. (2004).Qualitative research: contributions to the study of drug use, drug abuse, and drug use-related interventions. SubstanceUse and Abuse, 39:1907-1969.
31. Ompad, D., Galea, S., Marchall, G., Fuller, C., Weiss, L., Beard, J., et al. (2008). Sampling and recruitment in multilevel studies among marginalized urban populations: the IMPACT studies. Journal of Urban Health, 85:268-280.
32. Plumridge, E.W., Chetwynd, J. (1998) The moral universe of injecting drug users in the era of AIDS: sharing injecting equipment and the protection of moral standing. AIDS Care, 10:723-733.
33. Ritter, A., Fry, C., Swan, A. (2003). The ethics of reimbursing injecting drug users for public health research interviews: what price are we prepared to pay. International Journal of Drug Policy, 14:1-3.
34. Scott, G. (2008). "They got their program, and I got mine": A cautionary tale concerning the ethical implications of using respondent-driven sampling to study injection drug users. International Journal of Drug Policy, 19:42-51.
35. Seddon, T. (2005). Paying drug users to take part in research: justice, human rights and business perspectives on the use of incentive payments. Addiction Research and Theory, 13:101-109.
36. Shaw, V. N. (2005). Research with participants in problem experience: challenges and strategies. Qualitative Health Research, 15:841-854.
37. Sherman, S., Latkin, C. (1999).Aqualitative study of injection drug users' participation in a long-term epidemiological study of HIV. AIDS and Behavior, 3:289-299.
38. Singer, E. N., Van Hoewyk, J., Gebler, T., Raghunathan, T., McGonagle, K. (1999). The effect of incentives on response rates in interviewer-mediated research. Journal of Official Statistics, 15:217-230.
39. Singer, M. (1993). Knowledge for use: Anthropology and community-centered substance abuse research. Social Science and Medicine, 37:15-26.
40. Singer, M. (1999). Studying hidden populations. In J. Schensul,M. LeCompte, T. Robert, E. Cromley, and M. Singer (Eds.), Mapping networks, spatial data and hidden populations: the ethnographer's toolkit (pp. 125-191). Walnut Creek, CA: Altamira Press.
41. Singer, M., Scott, G.,Wilson, S., Easton, D.,Weeks, M. (2001). "War stories": AIDS prevention and the street narratives of drug users. Qualitative Health Research, 11:589-611.
42. Slomka, J., McCurdy, S., Ratliff, E. A., Timpson, S., Williams, M. (2007). Perceptions of financial payment for research participation among African-American drug users in HIV studies. Journal of General Internal Medicine, 22:1403-1409.
43. Smithson, J. (2008). Focus groups. In P. Alasuutari, L. Bickman, and J. Brannen (Eds.), The Sage handbook of social research methods (pp. 357-370). Thousand Oaks, CA: Sage.
44. Stevenson, H. S., DeMoya, D., Boruch, R. F. (1993). Ethical issues and approaches in AIDS research. In D. G. Ostrow and R. C. Kessler (Eds.), Methodological issues in AIDS behavioral research (pp. 19-51). New York: Plenum.
45. Swanson, G. M., Ward, A. J. (1995). Recruiting minorities into clinical trials: toward a participantfriendly system. Journal of the National Cancer Institute, 87:1747-1759.
46. Vernon, I. S. (2007). American Indian women, HIV/AIDS, and health disparity. Substance Use and Misuse, 42:741-752.
47. Watters, J. K., Biernacki, P. (1989). Targeted sampling: options for the study of hidden populations. Social Problems, 36:416-430.
48. Worthington, C., Myers, T. (2002). Desired elements of HIV testing services: test recipient perspectives. AIDS Patient Care and STDs, 16:537-548.
49. Wright, S., Klee, H., Reid, P. (1998). Interviewing illicit drug users: observations from the field. Addiction Research, 6:517-535.