Rating health and social indicators for use with indigenous communities: A tool for balancing cultural and scientific utility

Social Indicators Research

Volumn 94, Issue 2, 2009, Pages 241-256

  Daniel, Mark ^a,b   Cargo, Margaret ^a,c   Marks, Elisabeth ^b   Paquet, Catherine ^a,b   Simmons, David ^d,e   Williams, Margaret ^d   Rowley, Kevin ^f   O'Dea, Kerin ^f  

^a UNIVERSITY OF SOUTH AUSTRALIA   (Australia)

^b UNIVERSITÉ DE MONTRÉAL   (Canada)

^c MCGILL UNIVERSITY   (Canada)

^d Te Roopu a Iwi o Te Arawa Charitable Trust Inc Private Training Establishment   (New Zealand)

^e CAMBRIDGE UNIVERSITY HOSPITALS NHS FOUNDATION TRUST   (United Kingdom)

^f UNIVERSITY OF MELBOURNE   (Australia)

Author keywords

Community participation; Health status indicators; Indigenous populations; Programme planning; Reliability and validity

Indexed keywords

HEALTH STATUS; INDIGENOUS POPULATION; LOCAL PARTICIPATION; PUBLIC HEALTH; RELIABILITY ANALYSIS; SOCIAL INDICATOR; STAKEHOLDER;

NORTH AMERICA; UNITED STATES;

EID: 70349754554     PISSN: 03038300     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11205-008-9420-7     Document Type: Article

References (56)

1. Andersen, T., & Poppel, B. (2002). Living conditions in the Arctic. Social Indicators Research, 58, 191-216. doi: 10.1023/A:1015787901370.
2. Armitage, A. (1995). Comparing the policy of aboriginal assimilation: Australia, Canada, and New Zealand. Vancouver: UBC Press.
3. Australian Bureau of Statistics, & Australian Institute of Health and Welfare. (2003). The health and welfare of Australia's Aboriginal and Torres Strait Islander peoples, 2003. Canberra: Australian Bureau of Statistics.
4. Baum, F., MacDougall, C., & Smith, D. (2006). Participatory action research. Journal of Epidemiology and Community Health, 60, 854-857. doi: 10.1136/jech.2004.028662.
5. Besleme, K., Maser, E., & Sliverstein, J. (1999). A community indicators case study: Addressing the quality of life in two communities. San Francisco: Redefining Progress.
6. Black, A., & Hughes, P. (2001). The identification and analysis of indicators of community strength and outcomes. Canberra: Department of Family and Community Services, Commonwealth of Australia.
7. Cargo, M., & Mercer, S. (2008). The value and challenges of participatory research in public health: Strengthening its practice. Annual Review of Public Health, 29, 325-350. doi: 10.1146/ annurev.publhealth.29.091307.083824.
8. Cargo, M., Petersen, L., Levesque, L., & Macaulay, A. (2007). Physical activity and perceived wholistic health in indigenous youth. Pimitziwin, 5, 87-109.
9. Cicchetti, D. V. (1994). Guidelines, criteria, and rules of thumb for evaluating normed and standardized assessment instruments in psychology. Psychological Assessment, 6, 284-290. doi: 10.1037/1040-3590.6.4.284.
10. Cunningham, J., & Beneforti, M. (2005). Investigating indicators for measuring the health and social impact of sport and recreation programs in Australian indigenous communities. International Review for the Sociology of Sport, 40, 89-98. doi: 10.1177/1012690205052170.
11. Daniel, M., Green, L. W., Marion, S. A., Gamble, D., Herbert, C. P., et al. (1999). Effectiveness of community-directed diabetes prevention and control in a rural Aboriginal population in British Columbia, Canada. Social Science and Medicine, 48, 815-832. doi: 10.1016/ S0277-9536(98)00403-1.
12. Das, D., Baker, M., & Calder, L. (2006). Tuberculosis epidemiology in New Zealand: 1995-2004. The New Zealand Medical Journal, 119, 2249-2264.
13. Durie, M. (1994). Whaiora: Maori health development. Auckland: Oxford University Press.
14. Dyck, R. F., Klomp, H., Marciniuk, D. D., Tan, L., Stang, M. R., Ward, H. A., et al. (2007). The relationship between diabetes and tuberculosis in Saskatchewan: Comparison of Registered Indians and other Saskatchewan people. Canadian Journal of Public Health. Revue Canadienne de Sante Publique, 98, 55-59.
15. Ellison-Loschmann, L., & Pearce, N. (2006). Improving access to health care among New Zealand's Maori population. American Journal of Public Health, 96, 612-617. doi: 10.2105/AJPH.2005.070680.
16. Fisher, P. A., & Ball, T. J. (2005). Balancing empiricism and local cultural knowledge in the design of prevention research. Journal of Urban Health, 82, iii44-iii55. doi: 10.1093/jurban/jti063.
17. Giles, B. G., & Findlay, C. S. (2004). Diabetes indicators for Aboriginal communities: Final report. Ottawa: Institute of the Environment.
18. Guthrie, J. A., Dore, G. J., McDonald, A. M., & Kaldor, J. M. (2000). HIV and AIDS in aboriginal and Torres Strait Islander Australians: 1992-1998. The National HIV Surveillance Committee. The Medical Journal of Australia, 172, 266-269.
19. Hancock, T., Labonte, R., & Edwards, R. (1999). Indicators that count! Measuring population health at the community level. Canadian Journal of Public Health. Revue Canadienne de Sante Publique, 90(suppl. 1), S22-S26.
20. Health Canada First Nations and Inuit Health Branch. (2003). Statistical profile on the health of First Nations in Canada. Ottawa: Health Canada.
21. Health Research Council of New Zealand. (1998). Guidelines for researchers on health research involving Maori. Auckland: Health Research Council.
22. Institute of Medicine, Committee on the National Quality Report on Health Care Delivery. (2001). Envisioning the national health care quality report. Washington DC: National Academies Press.
23. Karjala, M. K., & Dewhurst, S. M. (2003). Including aboriginal issues in forest planning: A case study in central interior British Columbia, Canada. Landscape and Urban Planning, 64, 1-17. doi: 10.1016/ S0169-2046(02)00196-2.
24. Karjala, M. K., Sherry, E. E., & Dewhurst, S. M. (2004). Critieria and indicators for sustainable forest planning: A framework for recording Aboriginal resource and social values. Forest Policy and Economics, 6, 95-110. doi: 10.1016/S1389-9341(02)00117-X.
25. Kingsley, T. (1999). Building and operating neighborhood indicator systems: A guidebook. Washington DC: The Urban Institute.
26. Kramers, P. G. (2003). The ECHI project: Health indicators for the European community. European Journal of Public Health, 13, 101-106. doi: 10.1093/eurpub/13.suppl_1.101.
27. Maori Health Committee of the Health Research Council of New Zealand. (1998). Guidelines for researchers on health research involving Maori, 1998. Auckland: HRCNZ.
28. Marks, E., Cargo, M. D., & Daniel, M. (2007). Constructing a health and social indicator framework for Indigenous community health research. Social Indicators Research, 82, 93-110. doi: 10.1007/s11205-006-9016-z.
29. Martens, P. J., Sanderson, D., & Jebamani, L. S. (2005). Mortality comparisons of First Nations to all other Manitobans: A provincial population-based look at health inequalities by region and gender. Canadian Journal of Public Health. Revue Canadienne de Sante Publique, 96, S33.
30. Medical Research Council of Canada. Natural Sciences and Engineering Research Council of Canada, & Social Sciences and Humanities Research Council of Canada. (2003). Tri-Council policy statement: ethical conduct for research involving humans. Section 6. Research involving Aboriginal peoples. Ottawa: Public Works and Government Services Canada.
31. Natcher, D. C., & Hickey, C. G. (2002). Putting the community back into community-based resource management: A criteria and indicators approach to sustainability. Human Organization, 61, 350-363.
32. National Health & Medical Research Council. (2003). Values and ethics: Guidelines for ethical conduct in Aboriginal and Torres Strait Islander health research. Canberra: Commonwealth of Australia.
33. Norris, T., & Pittman, M. (2000). The healthy communities movement and the coalition for healthier cities and communities. Public Health Reports, 115, 118-124. doi: 10.1093/phr/115.2.118.
34. ]Ontario Healthy Communities Coalition. (1999). Pathways to a healthy community: An indicators and evaluation tool kit. Toronto: Ontario Healthy Communities Coalition.
35. Pearce, N. (1996). Traditional epidemiology, modern epidemiology, and public health. American Journal of Public Health, 86, 678-683.
36. Popovich, M. G. (1996). Toward results-oriented intergovernmental systems: An historical look at the development of the Oregon Benchmarks. Washington DC: The Alliance for Redesigning Government of the National Academy of Public Administration.
37. Raphael, D., Steinmetz, B., Renwick, R., Rootman, I., Brown, I., Sehdev, H., et al. (1999). The community quality of life project: A health promotion approach to understanding communities. Health Promotion International, 14, 197-210. doi: 10.1093/heapro/14.3.197.
38. Redefining Progress, & Earthday Network. (2002). Sustainability starts in your community: A community indicators guide. Oakland: Redefining Progress.
39. Reed, M. S., & Dougill, A. J. (2002). Participatory selection process for indicators of rangeland condition in the Kalahari. The Geographical Journal, 168, 224-234. doi: 10.1111/1475-4959.00050.
40. Riddell, T. (2005). Heart failure hospitalisations and deaths in New Zealand: Patterns by deprivation and ethnicity. The New Zealand Medical Journal, 118, 1254-1264.
41. Sawicki, D. S., & Flynn, P. (1996). Neighborhood indicators: A review of the literature and an assessment of conceptual and methodological issues. Journal of the American Planning Association. American Planning Association, 62, 165-183. doi: 10.1080/ 01944369608975683.
42. Schnarch, B. (2004). Ownership, control, access, and possession (OCAP) of self-determination applied to research. A critical analysis of contemporary First Nations research and some options for First Nations communities. Journal of Aboriginal Health, 1, 80-95.
43. Smith, L. T. (1999). Decolonizing methodologies: Research and Indigenous peoples. New York: Zed Books.
44. Steering Committee for the Review of Government Service Provision. (2003). Overcoming Indigenous disadvantage: Key indicators, 2003. Canberra: Productivity Commission.
45. Stein, B. (1996). The Oregon Benchmarks experience. In Canadian Council on Social Development (Ed.), Measuring Well-Being: Proceedings from a Symposium on Social Indicators: Final Report. Ottawa: CCSD.
46. Streiner, D. L., & Norman, G. R. (2003). Health measurement scales: a practical guide to their development and use (3rd ed.). Oxford: Oxford University Press.
47. Ten Fingers, K. (2005). Rejecting, revitalizing, and reclaiming: First Nations work to set the direction of research and policy development. Canadian Journal of Public Health. Revue Canadienne de Sante Publique, 96(suppl. 1), S60-S63.
48. Thompson, S. J., & Gifford, S. M. (2000). Trying to keep a balance: the meaning of health and diabetes in an urban Aboriginal community. Social Science and Medicine, 51, 1457-1472. doi: 10.1016/ S0277-9536(00)00046-0.
49. Tyler Norris Associates. Redefining Progress, & Sustainable Seattle. (1997). The community indicators handbook: Measuring progress toward healthy and sustainable communities. Oakland: Redefining Progress.
50. U.S. Environmental Protection Agency. Green communities. Retrieved June 2007, from http://www.epa.gov/greenkit/index.htm.
51. VicHealth Koori Health Research and Community Development Unit. (2000). We don't like research. But in Koori hands it could make a difference. Melbourne: Victoria.
52. Waddell, S. (1995). Lessons from the healthy cities movement for social indicator development. Social Indicators Research, 34, 213-235. doi: 10.1007/BF01079197.
53. Walker, R., Ballard, J., & Taylor, C. (2002). Investigating appropriate evaluation methods and indicators for Indigenous housing programs. Melbourne: Australian Housing and Urban Research Institute.
54. Walker, R., Ballard, J., & Taylor, C. (2003). Developing paradigms and discourses to establish more appropriate evaluation frameworks and indicators for housing programs. Melbourne: Australian Housing and Urban Research Institute.
55. Wilson, K., & Rosenberg, M. W. (2002). Exploring the determinants of health for First Nations peoples in Canada: Can existing frameworks accommodate traditional activities? Social Science and Medicine, 55, 2017-2031. doi: 10.1016/S0277-9536(01)00342-2.
56. Young, T. K., Reading, J., Elias, B., & O'Neil, J. D. (2000). Type 2 diabetes mellitus in Canada's First Nations: Status of an epidemic in progress. Canadian Medical Association Journal, 163, 561-566.