Attitudes of family and professional care-givers towards the use of GPS for tracking patients with dementia: An exploratory study

British Journal of Social Work

Volumn 39, Issue 4, 2009, Pages 670-692

  Landau, R ^a,b   Werner, S ^a   Auslander, G K ^a,b   Shoval, N ^a   Heinik, J ^c,d  

^a HEBREW UNIVERSITY OF JERUSALEM   (Israel)

^b University's Institutional Review Board ^*

^c TEL AVIV SOURASKY MEDICAL CENTER   (Israel)

^d TEL AVIV UNIVERSITY   (Israel)

Author keywords

Dementia; Elderly; GPS; Wandering

Indexed keywords

EID: 70349606254     PISSN: 00453102     EISSN: 1468263X     Source Type: Journal    
DOI: 10.1093/bjsw/bcp037     Document Type: Article

References (54)

1. Alisky, J. M. (2006) 'Integrated electronic monitoring systems could revolutionize care for patients with cognitive impairment', Medical Hypotheses, 66(6), pp. 1161-1164
2. Alzheimer's Society UK (2007) 'Alzheimer's Society comments on rights, risks, and restraints, a study investigating restraint in the care of older people', available online at www.alzheimers.org.uk/site/scripts/news-article. php?newsID=238.
3. Bail, K. D. (2003) 'Electronic tagging of people with dementia: Devices may be preferable to locked doors', British Medical Journal, 326, p. 281.
4. Black, K. (2005) 'Advance directive communications practices: Social workers' contributions to the interdisciplinary health care team', Social Work in Health Care, 40(3), pp. 39-55.
5. Bosshard, G., Wettstein, A. and Bar, W. (2003) 'How stable is the attitude of aged people towards life-extending measures? Results of a 3-year follow-up in nursing home residents', Zeitschrift fur Gerontologie und Geriatrie, 36(2), pp. 124-129
6. Cahill, S. (2003) 'Electronic tagging of people with dementia: Technologies may be enabling', British Medical Journal, 326, p. 281.
7. Colombo, M., Vitali, S., Cairati, M., Perelli-Cippo, R., Bessi, O., Gioia, P. and Guaita, A. (2001) 'Wanderers: Features, findings, issues', Archives of Gerontology and Geriatrics, 33, pp. 99-106.
8. Commission for Social Care Inspection (CSCI) (2007) Rights, Risks and Restraints, London, Commission for Social Care Inspection.
9. Counsel and Care (2001) Residents Taking Risks: Minimizing the Use of Restraint, London, Counsel and Care.
10. Defanti, C. A., Tiezzi, A., Gasparini, M., Gasperini, M., Congedo, M., Tiraboschi, P., Tarquini, D., Pucci, E., Porteri, C., Sacco, L., Stefanini, S., Borghi, L., Colombi, L., Marcello, N., Zanetti, O., Causarano, R. and Primavera, A., for the Bioethics and Palliative Care in Neurology Study Group of the Italian Society of Neurology (2007) 'Ethical questions in the treatments of subjects with dementia. Part I. Respecting autonomy: Awareness, competence and behavioural disorders', Neurological Sciences, 28, pp. 216-231
11. Dodds, P. (1994) 'Wandering: A short report on coping strategies adopted by informal carers', International Journal of Geriatric Psychiatry, 9(9), pp. 751-756
12. Essen, A. (2008) 'The two facets of electronic care surveillance: An exploration of the views of older people who live with monitoring devices', Social Science and Medicine, 67(1), pp. 128-136.
13. Fisk, J. D., Beattie, B. L. and Donelly, M. (2007a) 'Ethical considerations for decision making for treatment and research participation', Alzheimer's and Dementia, 3(4), pp. 411-417
14. Fisk, J. D., Beattie, B. L., Donelly, M., Byszewsky, A. and Molnar, F. J. (2007b) 'Disclosure of the diagnosis of dementia', Alzheimer's and Dementia, 3(4), pp. 404-410
15. Georges, J., Jansen, S., Jackson, J., Meyrieux, A., Sadowska, A. and Selmes, M. (2008) 'Alzheimer's disease in real life: The dementia carer's survey', International Journal of Geriatric Psychiatry, 23(5), pp. 546-551
16. Harada, T., Ishizaki, F., Nitta, Y., Nitta, K., Shimohara, A., Tsukue, I., Wu, X. and Cheng, W. (2008) 'Microchips will decrease the burden on the family of elderly people with wandering dementia', International Medical Journal, 15(1), pp. 25-27
17. Hertogh, C. (2004) 'Between autonomy and security: Ethical questions un the care of elderly persons with dementia in nursing homes', in Jones, G. M. M. and Miesen, B. M. L. (eds), Care-Giving in Dementia: Research and Applications, Vol.3, Hove, UK, Routledge, pp. 375-390
18. House of Lords Select Committee on Science and Technology (2005) Science and Technology: First Report, London, House of Lords.
19. Hughes, J. C. and Louw, S. J. (2002) 'Electronic tagging of people with dementia who wander: Ethical considerations are possibly more important than practical benefits', British Medical Journal, 325(7369), pp. 847-848
20. Hughes, J. C., Hope, T., Reader, S. and Rice, D. (2002a) 'Dementia and ethics: The views of informal carers', Journal of the Royal Society of Medicine, 95(5), pp. 242-246
21. Hughes, J. C., Hope, T., Savulescu, J. and Ziebland, S. (2002b) 'Caregivers, ethics and dementia: A survey and review of the literature', International Journal of Geriatric Psychiatry, 17(1), pp. 35-40.
22. Keating, D. T., Nayeem, K., Gilmartin, J. J. and O'Keeffe, S. T. (2005) 'Advance directives for truth disclosure', Chest, 128(2), pp. 1037-1039
23. Kibayashi, K. and Shojo, H. (2003) 'Accidental hypothermia in elderly people with Alzheimer's disease', Medicine, Science and the Law, 43(2), pp. 127-131
24. Kim, S. Y. H., Appelbaum, P. S., Jeste, D. V. and Olin, J. T. (2004) 'Proxy and surrogate consent in geriatric neuropsychiatric research: Update and recommendations', American Journal of Psychiatry, 161(5), pp. 797-806.
25. Klein, D. A., Steinberg, M., Galik, E., Steele, C., Sheppard, J. M., Warren, A., Rosenblatt, A. and Lyketsos, C. G. (1999) 'Wandering behaviour in community-residing persons with dementia', International Journal of Geriatric Psychiatry, 14(4), pp. 272-279
26. Lay, C. K. Y. and Arthur, D. G. (2003) 'Wandering behavior in people with dementia', Journal of Advanced Nursing, 44(2), pp. 173-182
27. Logsdon, R. G., Teri, L., McCurry, S. M., Gibbons, L. E., Kukull, W. A. and Larson, E. B. (1998) 'Wandering: A significant problem among community-residing individuals with Alzheimer's disease', Journals of Gerontology-Psychological Sciences and Social Sciences, 53, pp. 294-299
28. Mapp, S. (1994) 'Breaking bounds', Community Care, 2, p. 24.
29. Marr, J. (1989) 'Care of the elderly: Electronic tagging', Nursing Standards, 4(9), p. 54.
30. Maslow, A. (1943) 'A theory of human motivation', Psychological Review, 50(4), pp. 370-396
31. McCreadie, C. and Tinker, A. (2005) 'The acceptability of assistive technology to older people', Ageing and Society, 25, pp. 91-110.
32. McShane, R., Hope, T. and Wilkinson, J. (2004) 'Tracking patients who wander - ethics and technology', Lancet, 343(8908), pp. 1274-11274 (May 1994).
33. McShane, R., Gedling, K., Kenwad, B., Kenward, R., Hope, T. and Jacoby, R. (1998) 'The feasibility of electronic tracking devised in dementia', International Journal of Geriatric Psychiatry, 13, pp. 556-563
34. Miesen, B. (2006) 'Care-giving in dementia: Moving ahead together. Reviews and perspectives', in Miesen, B. M. L. and Jones, G. M. M. (eds), Care-Giving in Dementia: Research and Applications, Vol.4, Hove, UK, Routledge, pp. 409-421
35. Miskelly, F. (2005) 'Electronic tracking of patients with dementia and wandering using mobile phone technology', Age and Ageing, 34(5), pp. 497-499
36. O'Neill, D. J. (2003) 'Electronic tagging of people with dementia: Tagging should be reserved for babies, convicted criminals, and animals', British Medical Journal, 326, p. 281.
37. Papastavrou, E., Kalokerinou, A., Papacostas, S., Tsangari, H. and Sourtzi, P. (2007) 'Caring for a relative with dementia: Family caregiver burden', Journal of Advanced Nursing, 58(5), pp. 446-457
38. Peterson, G. and Wallin, A. (2003) 'Alzheimer disease ethics: Informed consent and related issues in clinical trials: Results of a survey among the members of the research ethics committees in Sweden', International Psychogeriatrics, 15(2), pp. 157-170
39. Quebec User Evaluation of Satisfaction with Assistive Technology (QUEST 2) (2000).
40. Rialle, V., Ollivet, C., Guigui, C. and Herve, C. (2008) 'What do family caregivers of Alzheimer's disease patients desire in smart home technologies?', Methods of Information in Medicine, 47(1), pp. 63-69
41. Robinson, L., Hutchings, D., Corner, L., Beyer, F., Dickinson, H., Vanoli, A., Finch, T, Hughes, J, Ballard, C, May, C and and Bond, J. (2006) 'Wandering in dementia: A systematic literature review of the effectiveness of non-pharmacological interventions to prevent wandering in dementia and evaluation of the ethical implications and acceptability of their use', Health Technology Assessment, 10(26), pp. 1-124.
42. Robinson, L., Hutchings, D., Corner, L., Finch, J., Hughes, J., Brittain, K. and Bond, J. (2007) 'Balancing rights and risks: Conflicting perspectives in the management of wandering in dementia', Health, Risk and Society, 9(4), pp. 389-406.
43. Rolland, Y., Andrieu, S., Cantet, C., Morley, J. E., Thomas, D., Nourhashemi, F. and Vellas, B. (2007) 'Wandering behavior and Alzheimer disease: The REAL.FR prospective study', Alzheimer Disease and Associated Disorders, 21(1), pp. 31-38
44. Rolland, Y., Gillette-Guyonnet, S., Nourhashemi, F., Andrieu, S., Payoux, P., Ousset, P. J. and Vellas, B. (2003) 'Wandering and Alzheimer's disease: Descriptive study. REAL.FR program on Alzheimer's disease and field of care', Revue the Medicine Interne, 24(Suppl. 3), pp. 333S-338S.
45. Scarmeas, N., Brandt, J., Blacker, D., Albert, M., Hadjigeorgiou, G., Dubois, B., Devanand, D., Honig, L. and Stern, Y. (2007) 'Disruptive behavior as a predictor in Alzheimer disease', Archives of Neurology, 64(12), pp. 1755-1761
46. Shoval, N., Auslander, G. K., Freytag, T., Landau, R., Oswald, F., Seidl, U., Wahl, H. W., Werner, S. and Heinik, J. (2008) 'The use of advanced tracking technologies for the analysis of mobility in Alzheimer's disease and related cognitive diseases', BMC Geriatrics, 8(7).
47. Slaughter, S., Cole, D., Jeenings, E. and Reime, M. A. (2007) 'Consent and assent to participate in research from people with dementia', Nursing Ethics, 12(1), pp. 27-40.
48. Stenwall, E., Sandberg, J., Jonhagen, M. E. and Fagerberg, I. (2007) 'Encountering the older confused patient: Professional caregivers' experiences', Scandinavian Journal of Caring Sciences, 21(4), pp. 515-522
49. Sugarman, J., Roter, D., Cain, C., Wallace, R., Scmechel, D. and Weish-Bohmer, K. A. (2007) 'Proxies and consent discussions for dementia research', Journal of the American Geriatrics Society, 55(4), pp. 556-561
50. Thomas, P., Lalloue, F., Preux, P. M., Hazif-Thomas, C., Pariel, S., Inscale, R., Belmin, J. L. and Clement, J. P. (2006) 'Dementia patients caregivers' quality of life: The PIXEL study', International Journal of Geriatric Psychiatry, 21(1), pp. 50-56
51. Welsh, S., Hassiotis, A., O'Mahoney, G. and Deahl, M. (2003) 'Big brother is watching you: The ethical implications of electronic surveillance measures in the elderly with dementia and in adults with learning difficulties', Aging and Mental Health, 7(5), pp. 372-375
52. Wey, S. (2007) 'The ethical use of technology'. Available online at www.atdementia.org.uk (retrieved 18 June 2008).
53. Widdershoven, G. A. M. and Berghmans, R. L. P. (2001) 'Advance directives in dementia care: From instructions to instruments', Patient Education and Counseling, 44(2), pp. 179-186
54. Woolham, J. (2005) Safe at Home: The Effectiveness of Assistive Technology in Supporting the Independence of People with Dementia: The Safe at Home Project, London, Hawker Publications.