-
1
-
-
0028296884
-
Canadian Study of Health and Aging: Study methods and prevalence of dementia
-
Canadian Study of Health and Aging Working Group
-
Canadian Study of Health and Aging Working Group. Canadian Study of Health and Aging: study methods and prevalence of dementia. CMAJ 1994; 150: 899-913.
-
(1994)
CMAJ
, vol.150
, pp. 899-913
-
-
-
4
-
-
0031460577
-
The perspective of the person with Alzheimer disease: Which outcomes matter in early to middle stages of dementia?
-
Gwyther LP. The perspective of the person with Alzheimer disease: which outcomes matter in early to middle stages of dementia? Alzheimer Dis Assoc Disord 1997; 11(suppl 6): 18-24.
-
(1997)
Alzheimer Dis Assoc Disord
, vol.11
, Issue.SUPPL. 6
, pp. 18-24
-
-
Gwyther, L.P.1
-
6
-
-
0037711357
-
Giving voice to persons living with dementia: The researcher's opportunities and challenges
-
Moore TF, Hollett J. Giving voice to persons living with dementia: the researcher's opportunities and challenges. Nurs Sci Q 2003; 16: 163-67.
-
(2003)
Nurs Sci Q
, vol.16
, pp. 163-167
-
-
Moore, T.F.1
Hollett, J.2
-
7
-
-
84993683831
-
From ritual to relationship: A person-centred approach to consent in qualitative research with older people who have dementia
-
Dewing J. From ritual to relationship: a person-centred approach to consent in qualitative research with older people who have dementia. Dementia 2002; 1: 157-71.
-
(2002)
Dementia
, vol.1
, pp. 157-171
-
-
Dewing, J.1
-
8
-
-
0035495951
-
From silence to voice: Knowledge, values, and beliefs guiding healthcare practices with persons living with dementia
-
Jonas-Simpson C. From silence to voice: knowledge, values, and beliefs guiding healthcare practices with persons living with dementia. Nurs Sci Q 2001; 14: 304-10.
-
(2001)
Nurs Sci Q
, vol.14
, pp. 304-310
-
-
Jonas-Simpson, C.1
-
9
-
-
1842520270
-
The person of voice: Narrative identities in informed consent
-
McCormack B. The person of voice: narrative identities in informed consent. Nurs Philos 2003; 3: 114-19.
-
(2003)
Nurs Philos
, vol.3
, pp. 114-119
-
-
McCormack, B.1
-
10
-
-
42549096089
-
-
Alzheimer Society of Canada, Retrieved 2 September, 2005, from
-
Alzheimer Society of Canada. Alzheimer care ethical guidelines: participation in research. 2004. Retrieved 2 September, 2005, from http://www.alzheimer.ca/english/care/ethics-research.htm
-
(2004)
Alzheimer care ethical guidelines: Participation in research
-
-
-
11
-
-
42549162849
-
Issues of equity in the selection of subjects for experimental research in senile dementia of the Alzheimer's type
-
Melnick VL, Dubler NN eds, Humana
-
Moody HR. Issues of equity in the selection of subjects for experimental research in senile dementia of the Alzheimer's type. In: Melnick VL, Dubler NN eds. Alzheimer's dilemmas and clinical research. Humana, 1985: 83-94.
-
(1985)
Alzheimer's dilemmas and clinical research
, pp. 83-94
-
-
Moody, H.R.1
-
12
-
-
0028851326
-
How do patients with Alzheimer's disease cope with their illness? A clinical experience report
-
Bahro M, Silber E, Sunderland T. How do patients with Alzheimer's disease cope with their illness? A clinical experience report. J Am Geriatr Soc 1995; 43: 41-46.
-
(1995)
J Am Geriatr Soc
, vol.43
, pp. 41-46
-
-
Bahro, M.1
Silber, E.2
Sunderland, T.3
-
13
-
-
0028942148
-
Proposed guidelines for the participation of persons with dementia as research subjects
-
Keyserlingk EW, Glass K, Kogan S, Gauthier S. Proposed guidelines for the participation of persons with dementia as research subjects. Perspect Biol Med 1995; 38: 319-362.
-
(1995)
Perspect Biol Med
, vol.38
, pp. 319-362
-
-
Keyserlingk, E.W.1
Glass, K.2
Kogan, S.3
Gauthier, S.4
-
14
-
-
0037732816
-
Full-spectrum proxy consent for research participation when persons with Alzheimer disease lose decisional capacities: Research ethics and the common good
-
Post SG. Full-spectrum proxy consent for research participation when persons with Alzheimer disease lose decisional capacities: research ethics and the common good. Alzheimer Dis Assoc Disord 2003; 17(suppl 1): S3-S11.
-
(2003)
Alzheimer Dis Assoc Disord
, vol.17
, Issue.SUPPL. 1
-
-
Post, S.G.1
-
15
-
-
27744533414
-
A comparison of three methods of measuring dementia-specific quality of life: Perspectives of residents, staff, and observers
-
Edelman P, Fulton BR, Kuhn D, Chang CH. A comparison of three methods of measuring dementia-specific quality of life: perspectives of residents, staff, and observers. Gerontologist 2005; 45(suppl 1): 27-36.
-
(2005)
Gerontologist
, vol.45
, Issue.SUPPL. 1
, pp. 27-36
-
-
Edelman, P.1
Fulton, B.R.2
Kuhn, D.3
Chang, C.H.4
-
16
-
-
0013565765
-
Assessing quality of life in Alzheimer disease research
-
Lawton MP. Assessing quality of life in Alzheimer disease research. Alzheimer Dis Assoc Disord 1997; 11(suppl 6): 91-99.
-
(1997)
Alzheimer Dis Assoc Disord
, vol.11
, Issue.SUPPL. 6
, pp. 91-99
-
-
Lawton, M.P.1
-
17
-
-
3042801149
-
Special care facility compared to traditional environments for dementia care: A longitudinal study of quality of life
-
Reimer MA, Slaughter S, Donaldson C, Currie G, Eliasziw M. Special care facility compared to traditional environments for dementia care: a longitudinal study of quality of life. J Am Geriatr Soc 2004; 52: 1085-92.
-
(2004)
J Am Geriatr Soc
, vol.52
, pp. 1085-1092
-
-
Reimer, M.A.1
Slaughter, S.2
Donaldson, C.3
Currie, G.4
Eliasziw, M.5
-
18
-
-
0347913070
-
-
Retrieved 25 June, 2005, from
-
Alzheimer's Association. Ethical issues in dementia research. 1997. Retrieved 25 June, 2005, from: http://www.alz.org/AboutUs/ PostionStatements/overview.asp
-
(1997)
Ethical issues in dementia research
-
-
-
19
-
-
0004057024
-
Dementia research: Ethics and policy for the twenty-first century
-
Dresser R. Dementia research: ethics and policy for the twenty-first century. Georgia Law Rev 2001; 35: 661-90.
-
(2001)
Georgia Law Rev
, vol.35
, pp. 661-690
-
-
Dresser, R.1
-
20
-
-
0003641378
-
-
Medical Research Council of Canada, Natural Sciences and Engineering Research Council of Canada and Social Sciences and Humanities Research Council of Canada, Ottawa: Authors
-
Medical Research Council of Canada, Natural Sciences and Engineering Research Council of Canada and Social Sciences and Humanities Research Council of Canada. Tri-council policy statement: ethical conduct for research involving humans. Ottawa: Authors, 2003.
-
(2003)
Tri-council policy statement: Ethical conduct for research involving humans
-
-
-
23
-
-
0034574910
-
The ethical analysis of risk
-
Weijer C. The ethical analysis of risk. J Law Med Ethics 2000; 28: 344-61.
-
(2000)
J Law Med Ethics
, vol.28
, pp. 344-361
-
-
Weijer, C.1
-
24
-
-
0034573353
-
Defining and describing benefit appropriately in clinical trials
-
King MP. Defining and describing benefit appropriately in clinical trials. J Law Med Ethics 2000; 28: 332-43.
-
(2000)
J Law Med Ethics
, vol.28
, pp. 332-343
-
-
King, M.P.1
-
25
-
-
0037971527
-
Consent and refusal in dementia research: Conceptual and practical considerations
-
Cohen-Mansfield J. Consent and refusal in dementia research: conceptual and practical considerations. Alzheimer Dis Assoc Disord 2003; 17(suppl 1): S17-S25.
-
(2003)
Alzheimer Dis Assoc Disord
, vol.17
, Issue.SUPPL. 1
-
-
Cohen-Mansfield, J.1
-
28
-
-
0036238035
-
Informed consent and the capacity for voluntarism
-
Roberts LW. Informed consent and the capacity for voluntarism. Am J Psychiatry 2002; 159: 705-12.
-
(2002)
Am J Psychiatry
, vol.159
, pp. 705-712
-
-
Roberts, L.W.1
-
29
-
-
0035003003
-
Addressing the competence of persons with Alzheimer's disease in providing informed consent for participation in research
-
Ki SYH, Caine ED, Currier GW, Leibovici A, Ryan JM. Addressing the competence of persons with Alzheimer's disease in providing informed consent for participation in research. Am J Psychiatry 2002; 158: 712-17.
-
(2002)
Am J Psychiatry
, vol.158
, pp. 712-717
-
-
Ki, S.Y.H.1
Caine, E.D.2
Currier, G.W.3
Leibovici, A.4
Ryan, J.M.5
-
30
-
-
84993660909
-
Opinions regarding who should consent to research on behalf of an older adult suffering from dementia
-
Bravo G, Paquet M, Dubois MF. Opinions regarding who should consent to research on behalf of an older adult suffering from dementia. Dementia 2003; 2: 49-65.
-
(2003)
Dementia
, vol.2
, pp. 49-65
-
-
Bravo, G.1
Paquet, M.2
Dubois, M.F.3
-
31
-
-
0346103694
-
Ethics and politics of research involving subjects with impaired decision-making abilities
-
Scott K, Karlawish J. Ethics and politics of research involving subjects with impaired decision-making abilities. Neurology 2003; 61: 1645-46.
-
(2003)
Neurology
, vol.61
, pp. 1645-1646
-
-
Scott, K.1
Karlawish, J.2
-
32
-
-
42549168002
-
-
Retrieved 21 June, 2004, from
-
Dependent Adults Act 2003. Retrieved 21 June, 2004, from: http://www.qp.gov.ab.ca/documents/Acts/D11.cfm?frm_isbn=0779721500
-
Dependent Adults Act 2003
-
-
-
33
-
-
42549156175
-
-
Retrieved 1 April, 2004, from
-
Personal Directives Act 2003. Retrieved 1 April, 2004, from: http://www.qp.gov.ab.ca/documents/Acts/P06.cfm?frm_isbn=0779721837
-
Personal Directives Act 2003
-
-
-
34
-
-
29344464314
-
Comparison of provincial and territorial legislation governing substitute consent for research
-
Bravo G, Gagnon M, Wildeman S, Marshall DT, Paquet M, Dubois MF. Comparison of provincial and territorial legislation governing substitute consent for research. Can J Aging 2005; 24: 237-50.
-
(2005)
Can J Aging
, vol.24
, pp. 237-250
-
-
Bravo, G.1
Gagnon, M.2
Wildeman, S.3
Marshall, D.T.4
Paquet, M.5
Dubois, M.F.6
-
35
-
-
0031996092
-
Biomedical experimentation involving elderly subjects: The need to balance limited, benevolent protection with recognition of a long history of autonomous decision-making
-
Weisstub DN, Verdun-Jones SN. Biomedical experimentation involving elderly subjects: the need to balance limited, benevolent protection with recognition of a long history of autonomous decision-making. Health Law Can 1998; 18(3): 95-104.
-
(1998)
Health Law Can
, vol.18
, Issue.3
, pp. 95-104
-
-
Weisstub, D.N.1
Verdun-Jones, S.N.2
-
36
-
-
0034922737
-
Advance directives in dementia care: From instructions to instruments
-
Widdershoven GAM, Berghmans R. Advance directives in dementia care: from instructions to instruments. Patient Educ Counsel 2001; 44: 179-86.
-
(2001)
Patient Educ Counsel
, vol.44
, pp. 179-186
-
-
Widdershoven, G.A.M.1
Berghmans, R.2
-
37
-
-
0038647788
-
Surrogate decision-making and related issues
-
Beck C, Shue V. Surrogate decision-making and related issues. Alzheimer Dis Assoc Disord 2003; 17(suppl. 1): S12-S16.
-
(2003)
Alzheimer Dis Assoc Disord
, vol.17
, Issue.SUPPL. 1
-
-
Beck, C.1
Shue, V.2
-
38
-
-
0028676812
-
Missing persons: Legal perceptions of incompetent patients
-
Dresser R. Missing persons: legal perceptions of incompetent patients. Rutgers Law Rev, 1994; 46: 609-719.
-
(1994)
Rutgers Law Rev
, vol.46
, pp. 609-719
-
-
Dresser, R.1
-
39
-
-
0029434998
-
Alzheimer's disease and the 'then' self
-
Post SG. Alzheimer's disease and the 'then' self. Kennedy Inst Ethics J 1995; 5: 307-21.
-
(1995)
Kennedy Inst Ethics J
, vol.5
, pp. 307-321
-
-
Post, S.G.1
-
40
-
-
0031870636
-
Competency and consent in dementia
-
Fellows L. Competency and consent in dementia. J Am Geriatr Soc 1998; 46: 922-26.
-
(1998)
J Am Geriatr Soc
, vol.46
, pp. 922-926
-
-
Fellows, L.1
-
42
-
-
0141921941
-
Obtaining informed consent for participation from cognitively impaired adults
-
Hunter K, Jensen L. Obtaining informed consent for participation from cognitively impaired adults. J Wound Ostomy Continence Nurs 2003; 30: 241-14.
-
(2003)
J Wound Ostomy Continence Nurs
, vol.30
, pp. 241-314
-
-
Hunter, K.1
Jensen, L.2
-
43
-
-
0031697086
-
Informed consent for research on human subjects with dementia
-
American Geriatrics Society Ethics Committee
-
American Geriatrics Society Ethics Committee. Informed consent for research on human subjects with dementia. J Am Geriatr Soc 1998; 46: 1308-10.
-
(1998)
J Am Geriatr Soc
, vol.46
, pp. 1308-1310
-
-
-
44
-
-
0032851849
-
Consensus statement: Alzheimer's disease international and international working group for harmonization of dementia drug guidelines for research involving human subjects with dementia
-
Brodaty H, Dresser R, Eisner M et al. Consensus statement: Alzheimer's disease international and international working group for harmonization of dementia drug guidelines for research involving human subjects with dementia. Alzheimer Dis Assoc Disord 1999; 13: 71-79.
-
(1999)
Alzheimer Dis Assoc Disord
, vol.13
, pp. 71-79
-
-
Brodaty, H.1
Dresser, R.2
Eisner, M.3
-
45
-
-
0034007298
-
Research involving persons with cognitive impairments: Results of a survey of Alzheimer disease research centers in the United States
-
Cahill M, Wichman A. Research involving persons with cognitive impairments: results of a survey of Alzheimer disease research centers in the United States. Alzheimer Dis Assoc Disord 2000; 14: 20-27.
-
(2000)
Alzheimer Dis Assoc Disord
, vol.14
, pp. 20-27
-
-
Cahill, M.1
Wichman, A.2
-
46
-
-
0004177253
-
-
Retrieved 18 February, 2005, from
-
World Medical Association. Declaration of Helsinki. 2004. Retrieved 18 February, 2005, from: http://www.wma.net/e/policy/b3.htm
-
(2004)
Declaration of Helsinki
-
-
-
47
-
-
0029079593
-
Ethical issues in research with dementia patients
-
Berghmans R, ter Meulen R. Ethical issues in research with dementia patients. Int J Geriatr Psychiatry 1995; 10: 647-51.
-
(1995)
Int J Geriatr Psychiatry
, vol.10
, pp. 647-651
-
-
Berghmans, R.1
ter Meulen, R.2
-
48
-
-
0033289384
-
-
Baylis F. IRBs: protecting the well-being of subject-participants with mental disorders that may affect decision-making capacity. Account Res 1999; 7: 183-99.
-
Baylis F. IRBs: protecting the well-being of subject-participants with mental disorders that may affect decision-making capacity. Account Res 1999; 7: 183-99.
-
-
-
-
49
-
-
1242306984
-
Ethics reporting in publications about research with Alzheimer's disease patients
-
Stocking C, Hougham G, Baron A, Sachs G. Ethics reporting in publications about research with Alzheimer's disease patients. J Am Geriatr Soc 2004; 52: 305-10.
-
(2004)
J Am Geriatr Soc
, vol.52
, pp. 305-310
-
-
Stocking, C.1
Hougham, G.2
Baron, A.3
Sachs, G.4
-
50
-
-
0037633228
-
Sociocultural limits in informed consent in dementia research
-
Guerrero M, Heller PL. Sociocultural limits in informed consent in dementia research. Alzheimer Dis Assoc Disord 2003; 17(suppl): S26-S30.
-
(2003)
Alzheimer Dis Assoc Disord
, vol.17
, Issue.SUPPL.
-
-
Guerrero, M.1
Heller, P.L.2
-
51
-
-
0019967975
-
The global deterioration scale for assessment of primary degenerative dementia
-
Reisberg B, Ferris SH, De Leon MJ, Crook T. The global deterioration scale for assessment of primary degenerative dementia. Am J Psychiatry 1982; 139: 1136-39.
-
(1982)
Am J Psychiatry
, vol.139
, pp. 1136-1139
-
-
Reisberg, B.1
Ferris, S.H.2
De Leon, M.J.3
Crook, T.4
|