Burden and perceived health status among caregivers of stroke patients

Cerebrovascular Diseases

Volumn 28, Issue 5, 2009, Pages 472-480

  Carod Artal, Francisco Javier ^a   Ferreira Coral, Luciane ^a   Trizotto, Daniele Stieven ^a   Menezes Moreira, Clarissa ^a  

^a SARAH NETWORK OF REHABILITATION HOSPITALS   (Brazil)

Author keywords

Burden; Caregiver; Depression; Health; Stroke; Stroke outcome

Indexed keywords

ADULT; ANXIETY DISORDER; ARTICLE; BRAZIL; CAREGIVER BURDEN; CONTROLLED STUDY; DEPRESSION; DISEASE SEVERITY; FEMALE; HEALTH STATUS; HOSPITAL ANXIETY AND DEPRESSION SCALE; HUMAN; MAJOR CLINICAL STUDY; MALE; MINI MENTAL STATE EXAMINATION; PREVALENCE; PRIORITY JOURNAL; QUALITY OF LIFE; SEX DIFFERENCE; STROKE; STRUCTURED INTERVIEW;

ADULT; AFFECT; AGED; BRAZIL; CAREGIVERS; CHRONIC DISEASE; COST OF ILLNESS; CROSS-SECTIONAL STUDIES; FEMALE; HEALTH STATUS; HUMANS; MALE; MENTAL HEALTH; MIDDLE AGED; PSYCHIATRIC STATUS RATING SCALES; REGRESSION ANALYSIS; SOCIOECONOMIC FACTORS; STROKE;

EID: 70049108370     PISSN: 10159770     EISSN: None     Source Type: Journal    
DOI: 10.1159/000236525     Document Type: Article

References (37)

1. Rodríguez T, Malvezzi M, Chatenoud L, Bosetti C, Levi F, Negri E, La Vecchia C: Trends in mortality from coronary heart and cerebrovascular diseases in the Americas: 1970- 2000. Heart 2006; 92: 453-460.
2. Murray CJL, Lopez AD: The Global Burden of Disease: The World Health Organization and the World Bank. Cambridge, Harvard University Press, 1996.
3. Rombough RE, Howse EL, Bagg SD, Bartfay WJ: A comparison of studies on the quality of life of primary caregivers of stroke survivors: a systematic review of the literature. Top Stroke Rehab 2007; 14: 69-79.
4. Carod-Artal FJ, Egido JA, González-Gutiérrez JL, Varela de Seijas E: Perception of longterm overload in care-givers of patients who have survived a stroke. Rev Neurol 1999; 28: 1130-1138.
5. Jönsson AC, Lindgren I, Hallström B, Norrving B, Lindgren A: Determinants of quality of life in stroke survivors and their informal caregivers. Stroke 2005; 36: 803-808.
6. McCullagh E, Brigstocke G, Donaldson N, Kalra L: Determinants of caregiving burden and quality of life in caregivers of stroke patients. Stroke 2005; 36: 2181-2186.
7. Vincent C, Desrosiers J, Landreville P, Demers L, BRAD Group: Burden of caregivers of people with stroke: evolution and predictors. Cerebrovasc Dis 2009; 27: 456-464.
8. Forsberg-Wärleby G, Möller A, Blomstrand C: Spouses of first-ever stroke patients: psychological well-being in the first phase after stroke. Stroke 2001; 32: 1646-1651.
9. Scholte op Reimer WJ, de Haan RJ, Rijnders PT, Limburg M, van den Bos GA: The burden of caregiving in partners of long-term stroke survivors. Stroke 1998; 29: 1605-1611.
10. Martínez-Martín P, Forjaz MJ, Frades-Payo B, Rusiñol AB, Fernández-García JM, Benito- León J, Arillo VC, Barberá MA, Sordo MP, Catalán MJ: Caregiver burden in Parkinson's disease. Mov Disord 2007; 22: 924-931.
11. Foulkes MA, Wolf PA, Price TR, Mohr JP, Hier DB: The Stroke Data Bank: design, methods, and baseline characteristics. Stroke 1988; 19: 547-554.
12. Carod-Artal FJ, Coral LF, Trizotto DS, Moreira CM: The Stroke Impact Scale 3.0: evaluation of acceptability, reliability and validity of the Brazilian version. Stroke 2008; 39: 2477-2484.
13. Zigmond AS, Snaith RP: The hospital anxiety and depression scale. Acta Psychiatr Scand 1983; 67: 361-370.
14. Zarit SH, Reever KE, Bach-Peterson J: Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist 1980; 20: 649-655.
15. The EuroQol Group. EuroQol - a new facility for the measurement of health-related quality of life. Health Policy 1990; 16: 199-208.
16. Brott T, Adams HP Jr, Olinger CP, Marler JR, Barsan WG, Biller J, Spilker J, Holleran J, Eberle R, Hertzberg V: Measurements of acute cerebral infarction: a clinical examination scale. Stroke 1989; 20: 864-870. (Pubitemid 19188240)
17. Mahoney FI, Barthel DW: Functional evaluation: the Barthel Index. Md State Med J 1965; 14: 61-65.
18. Bonita R, Beaglehole R: Modification of Rankin scale: recovery of motor function after stroke. Stroke 1988; 19: 1497-1500.
19. Folstein MF, Folstein SE, McHugh PR: 'Mini- Mental State': a practical method for grading the cognitive state of patients for the clinician. J Psychiat Res 1975; 12: 189-198.
20. Parag V, Hackett ML, Yapa CM, Kerse N, McNaughton H, Feigin VL, Anderson CS: The impact of stroke on unpaid caregivers: results from the Auckland Regional Community Stroke Study, 2002-2003. Cerebrovasc Dis 2008; 25: 548-554.
21. Mackenzie A, Perry L, Lockhart E, Cottee M, Cloud G, Mann H: Family carers of stroke survivors: needs, knowledge, satisfaction and competence in caring. Disabil Rehabil 2007; 29: 111-121.
22. Ilse IB, Feys H, de Wit L, Putman K, de Weerdt W: Stroke caregivers' strain: prevalence and determinants in the first six months after stroke. Disabil Rehabil 2008; 30: 523-530.
23. Wilz G, Kalytta T: Anxiety symptoms in spouses of stroke patients. Cerebrovasc Dis 2008; 25: 311-315.
24. Forsberg-Wärleby G, Möller A, Blomstrand C: Psychological well-being of spouses of stroke patients during the first year after stroke. Clin Rehabil 2004; 18: 430-437. (Pubitemid 38701753)
25. Carlsson GE, Forsberg-Wärleby G, Möller A, Blomstrand C: Comparison of life satisfaction within couples one year after a partner's stroke. J Rehabil Med 2007; 39: 219-224.
26. Blonder LX, Langer SL, Pettigrew LC, Garrity TF: The effects of stroke disability on spousal caregivers. NeuroRehabilitation 2007; 22: 85-92.
27. Morimoto T, Schreiner AS, Asano H: Caregiver burden and health-related quality of life among Japanese stroke caregivers. Age ageing 2003; 32: 218-223.
28. Muraki I, Yamagishi K, Ito Y, Fujieda T, Ishikawa Y, Miyagawa Y, Okada K, Sato S, Kitamura A, Shimamoto T, Tanigawa T, Iso H: Caregiver burden for impaired elderly Japanese with prevalent stroke and dementia under long-term care insurance system. Cerebrovasc Dis 2008; 25: 234-240.
29. Choi-Kwon S, Kim HS, Kwon SU, Kim JS: Factors affecting the burden on caregivers of stroke survivors in South Korea. Arch Phys Med Rehabil 2005; 86: 1043-1048.
30. Berg A, Palomäki H, Lönnqvist J, Lehtihalmes M, Kaste M: Depression among caregivers of stroke survivors. Stroke 2005; 36: 639-643.
31. Dennis M, O'Rourke S, Lewis S, Dharpe M, Warlow C: A quantitative study of the emotional outcome of people caring for stroke survivors. Stroke 1998; 29: 1867-1872.
32. White CL, Lauzon S, Yaffe MJ, Wood-Dauphinee S: Toward a model of quality of life for family caregivers of stroke survivors. Qual Life Res 2004; 13: 625-638.
33. Hung SY, Pickard AS, Witt WP, Lambert BL: Pain and depression in caregivers affected their perception of pain in stroke patients. J Clin Epidemiol 2007; 60: 963-970.
34. Visser-Meily A, Post M, Gorter JW, Berlekom SB, Van Den Bos T, Lindeman E: Rehabilitation of stroke patients needs a family- centered approach. Disabil Rehabil 2006; 28: 1557-1561.
35. Mant J, Carter J, Wade DT, Winner S: Family support for stroke: a randomized controlled trial. Lancet 2000; 356: 808-813. (Pubitemid 30706678)
36. Lui MHL, Ross FM, Thompson DR: Supporting family caregivers in stroke care. A review of the evidence for problem solving. Stroke 2005; 36: 2514-2522.
37. Carod-Artal FJ, Egido JA: Quality of life after stroke: the importance of a good recovery. Cerebrovasc Dis 2009; 27(suppl 1):201-214.