From data archive to ethical labyrinth

Qualitative Research

Volumn 9, Issue 3, 2009, Pages 285-298

  Carusi, Annamaria ^a   Jirotka, Marina ^a  

^a UNIVERSITY OF OXFORD   (United Kingdom)

Author keywords

Archive; Data; Ethical guidelines; Ethical requirements; Ethics; Qualitative; Social science

Indexed keywords

EID: 69749114794     PISSN: 14687941     EISSN: 17413109     Source Type: Journal    
DOI: 10.1177/1468794109105032     Document Type: Article

References (25)

1. Bakhtin, M.M. (1981 [1930]) The Dialogic Imagination: Four Essays (Michael Holquist, ed., Caryl Emerson and Michael Holquist, trans.). Austin and London: University of Texas Press.
2. Bassett, E. and O'Riordan, K. (2002) Ethics of Internet Research: Contesting the Human Subjects Research Model, Ethics and Information Technology 4(3): 233-47.
3. Borgman, C.L. (2007) Scholarship in the Digital Age: Information, Infrastructure and the Internet. Cambridge, MA: MIT Press.
4. Carlson, S. and Anderson, B. (2007) What are Data? The Many Kinds of Data and their Implications for Data Re-use, Journal of Computer-Mediated Communication 12(2): 635-51.
5. Carusi, A. (2008) Beyond Anonymity: Data as Representation in E-Research Ethics, International Journal of Internet Research Ethics 1(1): 37-65.
6. Corti, L. (2000) Progress and Problems of Preserving and Providing Access to Qualitative Data for Social Research - The International Picture of an Emerging Culture, Forum Qualitative Sozialforschung/Forum: Qualitative Social Research 1(3), URL: http://www.qualitative-research.net/index.php/fqs/article/viewArticle/1019/2197
7. Corti, L., Day, A. and Backhouse, G. (2000) Confidentiality and Informed Consent: Issues for Consideration in the Preservation of and Provision of Access to Qualitative Data Archives, Forum Qualitative Sozialforschung/Forum: Qualitative Social Research 1(3), URL: http://www.qualitative-research.net/fqs-texte/3-00/3-00corti etal etal /etal -e.htm
8. Corti, L., Witzel, A. and Bishop, L. (eds) (2005) Special Issue: Secondary Analysis of Qualitative Data, Forum Qualitative Sozialforschung/Forum: Qualitative Social Research 6(1), URL: http://www.qualitative-research.net/index.php/fqs/issue/view/13.
9. Dickson-Swift, V., James, E.L., Kippen, S. and Liamputtong, P. (2007) Doing Sensitive Research: What Challenges do Qualitative Researchers Face?, Qualitative Research 7(3): 327-53.
10. ESRC Research Ethics Framework, URL (consulted 10 March 2008): http://www.esrc.ac.uk/ESRCInfoCentre/Images/ESRC_Re_Ethics_Frame_tcm6-11291.pdf
11. Gillies, V. and Edwards, R. (2005) Secondary Analysis in Exploring Family and Social Change: Addressing the Issue of Context, Forum Qualitative Sozialforschung/Forum: Qualitative Social Research 6(1), Art. 44 - URL: http://www.qualitative-research.net/fqs-texte/1-05/05-1-44-e.htm
12. Goguen, J. (1997) Toward a Social, Ethical Theory of Information, in Geoffrey C. Bowker, William Turner and Les Gasser (eds) Social Science, Technical Systems and Co-operative Work: Beyond the Great Divide, pp. 27-56. Mahweh, NJ: Lawrence Erlbaum.
13. Heery, R., Duke, M., Day, M., Lyon, L., Hursthouse, M.B., Frey, J.G., Coles, S.J., Gutteridge, C.J. and Carr, L.A. (2004) Integrating Research Data into the Publication Workflow: The eBank UK Experience, in, PV-2004: Ensuring the Long-Term Preservation and Adding Value to the Scientific and Technical Data, ESA/ESRIN, Frascati, Italy, 5 - 7 Oct 2004, p. 8. Frascati, Italy: European Space Agency.
14. Luff, P., Heath, C. and Jirotka, M. (2002) Notes Towards an Applied Ethnography. Working Paper.
15. Kelder, J. (2005) Using Someone Else's Data: Problems, Pragmatics and Provisions, Forum Qualitative Sozialforschung/Forum: Qualitative Social Research 6(1), URL: http://www.qualitative-research.net/index.php/fqs/article/view/501/1079
16. Nespor, J. (2000) Anonymity and Place in Qualitative Inquiry, Qualitative Inquiry 6(2): 546-69.
17. Nissenbaum, H. (1988) Protecting Privacy in an Information Age: The Problem of Privacy in Public, Law and Philosophy 17: 559-96.
18. Nissenbaum, H. (2004) Privacy as Contextual Integrity, Washington Law Review 79: 119-57.
19. O'Neill, O. (2003) Some Limits to Informed Consent, Journal of Medical Ethics 29: 4-7.
20. Parker, M. (2007) Ethnography/ethics Social Science and Medicine 65(11): 2248-59.
21. Parry, O. and Mauthner, N.S. (2004) Whose Data are They Anyway?: Practical, Legal and Ethical Issues in Archiving Qualitative Research Data, Sociology 38: 139-52.
22. Srinivasan, R. (2006) Where Information Society and Community Voice Intersect, The Information Society 22: 355-65.
23. Tavani, H. (1999) Informational Privacy, Data Mining and the Internet. Ethics and Information Technology 1(2): 137-45.
24. Van den Berg, H. (2005) Reanalyzing Qualitative Interviews from Different Angles: The Risk of Decontextualization and Other Problems of Sharing Qualitative Data, Forum Qualitative Sozialforschung/Forum: Qualitative Social Research 6(1), URL: http://www.qualitative-research.net/index.php/fqs/article/view/499/1075
25. White, M. (2002) Representations or People?, Ethics and Information Technology 4(3): 249-66.