Euthanasia and other end of life decisions and care provided in final three months of life: Nationwide retrospective study in Belgium

BMJ (Online)

Volumn 339, Issue 7717, 2009, Pages 390-

  Van Den Block, Lieve ^a   Deschepper, Reginald ^a   Bilsen, Johan ^a   Bossuyt, Nathalie ^b   Van Casteren, Viviane ^b   Deliens, Luc ^a,c  

^a VRIJE UNIVERSITEIT BRUSSEL   (Belgium)

^b SCIENTIFIC INSTITUTE OF PUBLIC HEALTH   (Belgium)

^c VU UNIVERSITY MEDICAL CENTER   (Netherlands)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; AGED; ARTICLE; BELGIUM; CAUSE OF DEATH; CHILD; DEEP SEDATION; EUTHANASIA; FEMALE; GENDER; GENERAL PRACTITIONER; HEALTH SERVICE; HUMAN; INFORMATION PROCESSING; MAJOR CLINICAL STUDY; MALE; MEDICAL DECISION MAKING; PALLIATIVE THERAPY; PRESCHOOL CHILD; PRIORITY JOURNAL; RETROSPECTIVE STUDY; SCHOOL CHILD; SPIRITUAL CARE; TERMINAL CARE;

ADOLESCENT; ADULT; ADVANCE CARE PLANNING; AGED; AGED, 80 AND OVER; BELGIUM; CHILD; CHILD, PRESCHOOL; DECISION MAKING; DELIVERY OF HEALTH CARE; EUTHANASIA; FAMILY PRACTICE; HUMANS; INFANT; MIDDLE AGED; RETROSPECTIVE STUDIES; TERMINAL CARE; YOUNG ADULT;

EID: 69549120692     PISSN: None     EISSN: 17561833     Source Type: Journal    
DOI: 10.1136/bmj.b2772     Document Type: Article

References (31)

1. Deliens L, Mortier F, Bilsen J, Cosyns M, Vander Stichele R, Vanoverloop J, et al. End-of-life decisions in medical practice in Flanders, Belgium: a nationwide survey. Lancet 2000 25;356:1806-1811
2. Van der Heide A, Deliens L, Faisst K, Nilstun T, Norup M, Paci E, et al. End-of-life decision-making in six European countries: descriptive study. Lancet 2003;362:345-350 (Pubitemid 36945056)
3. Van den Block L, Bilsen J, Deschepper R, Van Der Kelen G, Bernheim JL, Deliens L. End-of-life decisions among cancer patients compared with noncancer patients in Flanders, Belgium. J Clin Oncol 2006;24:2842-2848 (Pubitemid 46630584)
4. Seale C. National survey of end-of-life decisions made by UK medical practitioners. Palliat Med 2006;20:3-10. (Pubitemid 43224655)
5. Kuhse H, Singer P, Baume P, Clark M, Rickard M. End-of-life decisions in Australian medical practice. Med J Aust 1997;166:191-196 (Pubitemid 27091208)
6. Meier DE, Emmons CA, Wallenstein S, Quill T, Morrison RS, Cassel CK. A national survey of physician-assisted suicide and euthanasia in the United States. N Engl J Med 1998;338:1193-1201 (Pubitemid 28180749)
7. Miccinesi G, Rietjens JA, Deliens L, Paci E, Bosshard G, Nilstun T, et al. Continuous deep sedation: physicians' experiences in six European countries. J Pain Symptom Manage 2006;31:122-129 (Pubitemid 43243665)
8. Hermsen MA, Ten Have HA. Euthanasia in palliative care journals. J Pain Symptom Manage 2002;23:517-525
9. Quill TE, Dresser R, Brock DW. The rule of double effect - a critique of its role in end-of-life decision making. N Engl J Med 1997;337:1768-1771 (Pubitemid 27527778)
10. Seale C, Addington-Hall J. Euthanasia: the role of good care. Soc Sci Med 1995;40:581-587
11. Emanuel EJ, Fairclough D, Clarridge BC, Blum D, Bruera E, Penley WC, et al. Attitudes and practices of U.S. oncologists regarding euthanasia and physician-assisted suicide. Ann Intern Med 2000;133:527-532 (Pubitemid 30745332)
12. WHO. National cancer control programmes: policies and managerial guidelines. Geneva: World Health Organization, 2002.
13. Materstvedt LJ, Clark D, Ellershaw J, Forde R, Gravgaard AM, Muller-Busch HC, et al. Euthanasia and physician-assisted suicide: a view from an EAPC ethics task force. Palliat Med 2003;17:97-101. (Pubitemid 36432539)
14. Onwuteaka-Philipsen BD, Fisher S, Cartwright C, Deliens L, Miccinesi G, Norup M, et al. End-of-life decision making in Europe and Australia: a physician survey. Arch Intern Med 2006;166:921-929
15. Hinkka H, Kosunen E, Metsanoja R, Lammi UK, Kellokumpu-Lehtinen P. Factors affecting physicians' decisions to forgo life-sustaining treatments in terminal care. J Med Ethics 2002;28:109-114 (Pubitemid 34414028)
16. Meier DE, Emmons CA, Litke A, Wallenstein S, Morrison RS. Characteristics of patients requesting and receiving physician-assisted death. Arch Intern Med 2003;163:1537-1542 (Pubitemid 36835097)
17. Quill TE. Legal regulation of physician-assisted death - the latest report cards. N Engl J Med 2007;356:1911-1913
18. Wet betreffende euthanasie 28 mei 2002 [Law concerning euthanasia May 28, 2002], Number Bill 2002009590, Brussels, Belgium, Belgisch Staatsblad 22 juni 2002 [Belgian official collection of the laws June 22, 2002], (2002).
19. Wet betreffende palliative zorg 14 juni 2002 [Law concerning palliative care Belgium June 14, 2002] (in Dutch), Number Bill 002022868, Brussels, Belgium, Belgisch Staatsblad 26 oktober 2002 [Belgian official collection of the laws October 26, 2002], (2002).
20. Clark D, ten Have H, Janssens R. Common threads? Palliative care service developments in seven European countries. Palliat Med 2000;14:479-490
21. Federale evaluatiecel palliatieve zorg [Federal evaluation cel palliative care]. Evaluatierapport Palliatieve Zorg: overzicht van de uitbouw van de palliatieve zorg in België [Evaluation of Palliative Care: overview of palliative care services in Belgium]. 2005.
22. Bayingana K, Demarest S, Gisle L, Hesse E, Miermans PJ, Tafforeau J, et al. Health survey interview, Belgium 2004. Brussels, Belgium: Scientific Institute of Public Health Belgium, Department of Epidemiology; 2006. (Report No D/2006/2505/4, IPH/EPI REPORTS No 2006-035.)
23. Lobet MP, Stroobant A, Mertens R, Van Casteren V, Walckiers D, Masuy-Stroobant G, et al. Tool for validation of the network of sentinel general practitioners in the Belgian health care system. Int J Epidemiol 1987;16:612-618 (Pubitemid 18033139)
24. Van den Block L, Van Casteren V, Deschepper R, Bossuyt N, Drieskens K, Bauwens S, et al. Nationwide monitoring of end-of-life care via the Sentinel Network of General Practitioners in Belgium: the research protocol of the SENTI-MELC study. BMC Palliat Care 2007 8;6:6.
25. Boffin N, Bossuyt N, Van Casteren V. Current characteristics and evolution of the Sentinel General Practitioners: data gathered in 2005 [Huidige kenmerken en evolutie van de peilartsen en hun praktijk. Gegevens verzameld in 2005]. Brussels, Belgium: Scientific Institute of Public Health Belgium; Unit of Epidemiology, 2007. (Report No: IPH/EPI REPORTS No 2007-013.) www.iph.fgov.be/epidemio/epinl/medvnl/profil-05.pdf
26. Van den Block L, Deschepper R, Drieskens K, Bauwens S, Bilsen J, Bossuyt N, et al. Hospitalisations at the end of life: using a sentinel surveillance network to study hospital use and associated patient, disease and healthcare factors. BMC Health Serv Res 2007;7:69. (Pubitemid 46849116)
27. Van den Block L, Deschepper R, Bilsen J, Van Casteren V, Deliens L. Transitions between care settings at the end of life in belgium. JAMA 2007;298:1638-1639 (Pubitemid 47606671)
28. Van den Block L, Deschepper R, Bossuyt N, Drieskens K, Bauwens S, Van Casteren V, et al. Care for patients in the last months of life: the Belgian sentinel network monitoring end-of-life care study. Arch Intern Med 2008;168:1747-1754
29. Steinhauser KE, Christakis NA, Clipp EC, McNeilly M, McIntyre L, Tulsky JA. Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA 2000;284:2476-2482 (Pubitemid 30839885)
30. Jansen-van der Weide MC, Onwuteaka-Philipsen BD, van der WG. Granted, undecided, withdrawn, and refused requests for euthanasia and physician-assisted suicide. Arch Intern Med 2005;165:1698-1704
31. Bernheim JL, Deschepper R, Distelmans W, Mullie A, Bilsen J, Deliens L. Development of palliative care and legalisation of euthanasia: antagonism or synergy? BMJ 2008;336:864-867