Improving healthcare consumer effectiveness: An Animated, Self-serve, Web-based Research Tool (ANSWER) for people with early rheumatoid arthritis

BMC Medical Informatics and Decision Making

Volumn 9, Issue 1, 2009, Pages

  Li, Linda C ^a,b   Adam, Paul ^c   Townsend, Anne F ^b,d   Stacey, Dawn ^e,f   Lacaille, Diane ^a,b   Cox, Susan ^d   McGowan, Jessie ^e   Tugwell, Peter ^e   Sinclair, Gerri ^g   Ho, Kendall ^a   Backman, Catherine L ^a,b  

^a UNIVERSITY OF BRITISH COLUMBIA   (Canada)

^b ARTHRITIS RESEARCH CENTRE OF CANADA   (Canada)

^c Mary Pack Arthritis Program   (Canada)

^d UNIVERSITY OF BRITISH COLUMBIA   (Canada)

^e UNIVERSITY OF OTTAWA   (Canada)

^f OTTAWA HOSPITAL RESEARCH INSTITUTE   (Canada)

^g Centre for Digital Media   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

DISEASE MODIFYING ANTIRHEUMATIC DRUG; METHOTREXATE;

ARTICLE; CANADA; CONSUMER; DECISION MAKING; DRUG USE; HEALTH CARE DELIVERY; HUMAN; MAJOR CLINICAL STUDY; MEDICAL INFORMATICS; PATIENT EDUCATION; RHEUMATOID ARTHRITIS; ATTITUDE TO HEALTH; COMPUTER INTERFACE; COMPUTER PROGRAM; INTERNET; PILOT STUDY; PROSPECTIVE STUDY; QUESTIONNAIRE; SELF CONCEPT;

ARTHRITIS, RHEUMATOID; BRITISH COLUMBIA; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; INTERNET; PILOT PROJECTS; PROSPECTIVE STUDIES; QUESTIONNAIRES; SELF EFFICACY; SOFTWARE; USER-COMPUTER INTERFACE;

EID: 69549110388     PISSN: None     EISSN: 14726947     Source Type: Journal    
DOI: 10.1186/1472-6947-9-40     Document Type: Article

References (37)

1. Combination therapy with multiple disease-modifying antirheumatic drugs in rheumatoid arthritis: A preventive strategy. T Pincus J O'Dell, Ann Intern Med 1999 131 768 10577301
2. Current treatment paradigms in rheumatoid arthritis. JF Fries, Rheumatology 2000 39 Suppl 1 30 35 11001377
3. Approaches to rheumatoid arthritis in 2000. FA Wollheim, Curr Opin Rheumatol 2001 13 193 201 10.1097/00002281-200105000-00008 11333348 (Pubitemid 32430071)
4. Methotrexate for treating rheumatoid arthritis. ME Suarez-Almazor E Belseck BJ Shea P Tugwell G Wells, Cochrane Database of Systematic Reviews 3 2008 http://www.cochrane.org/reviews/en/ab000957.html
5. Leflunomide for treating rheumatoid arthritis. M Osiri B Shea V Robinson M Suarez-Almazor V Strand P Tugwell G Wells, Cochrane Database of Systematic Reviews 3 2008 CD002047
6. Rheumatoid arthritis. M Suarez-Almazor M Osiri P Emery Ottawa Methods Group, Evidence-based Rheumatology London: BMJ Books, Tugwell P, Shea B, Boers M, Brooks P, Simon LS, Strand V, Wells G, 2003
7. Disease-modifying anti-rheumatic drug use according to the 'sawtooth' treatment strategy improves the functional outcome in rheumatoid arthritis: results of a long-term follow-up study with review of the literature. T Sokka, Rheumatology 2000 39 34 10.1093/rheumatology/39.1.34 10662871
8. Reduction in long-term disability in patients with rheumatoid arthritis by disease-modifying antirheumatic drug-based treatment strategies. JF Fries CA Williams D Morfeld G Singh J Sibley, Arthritis and Rheumatism 1996 39 616 622 10.1002/art.1780390412 8630111 (Pubitemid 26118040)
9. Clinical and radiographic outcomes of rheumatoid arthritis patients not treated with disease-modifying-drugs. M Abu-Shakra R Toker D Flusser G Flusser M Friger S Sukenik D Buskila, Arthritis and Rheumatism 1998 41 1190 1195 10.1002/1529-0131(199807)41:7<1190::AID-ART7>3.0.CO;2-B 9663474
10. Improved functional outcome in patients with early rheumatoid arthritis treated with intramuscular gold: results of a five year prospective study. R Munro R Hampson A McEntegart EA Thomson R Madhok HA Capell, Ann Rheum Dis 1998 57 88 93 10.1136/ard.57.2.88 9613337
11. Consequences of delayed therapy with second-line agents in rheumatoid arthritis: a 3 year followup on the Hydroxychloroquine in Early Rheumatoid Arthritis (HERA) Study. E Tsakonas AA Fitzgerald MA Fitzcharles A Cividino JC Thorne A M'Seffar L Joseph C Bombardier JM Esdaile, The Journal of Rheumatology 2000 27 623 629 10743799
12. The effectiveness of early treatment with second-line antirheumatic drugs. A Randomized, controlled trial. A van der Heide JW Jacobs JW Bijlsma AH Hcurkens C Booma-Frankfort MJ van der Veen HC Haanen DM Hofman, Ann Intern Med 1996 124 699 707 8633829
13. Early versus delayed treatment in patients with recent-onset rheumatoid arthritis: comparison of two cohorts who received different treatment strategies. LR Lard H Visser I Speyer IE vander Horst-Bruinsma AH Zwinderman FC Breedveld JMW Hazes, The American Journal of Medicine 2001 111 446 451 10.1016/S0002-9343(01)00872-5 11690569 (Pubitemid 33016415)
14. Quantitative microfocal radiography detects changes in erosion area in patients with early RA treated with myochrisine. J Buckland-Wright, The Journal of Rheumatology 1993 20 243 247 8474059
15. Patients with rheumatoid arthritis benefit from early 2nd line therapy: 5 year followup of a prospective double blind placebo controlled study. C Egsmose B Lund G Borg H Pettersson E Berg U Brodin L Trang, The Journal of Rheumatology 1995 22 2208 2213 8835550
16. FINnish Rheumatoid Arthritis Combination therapy. T Mottonen P Hannonen M Korpela M Nissila H Kautiainen J Honen L Laasonen O Kaipiainen-Seppanen P Franzen T Helve, Arthritis and Rheumatism 2002 46 894 898 10.1002/art.10135 11953964 (Pubitemid 34303799)
17. Gaps in care for rheumatoid arthritis: a population study. D Lacaille AH Anis DP Guh JM Esdaile, Arthritis Rheum 2005 53 241 248 10.1002/art.21077 15818655 (Pubitemid 40530165)
18. Why are people with rheumatoid arthritis not using DMARDs? Understanding gaps in care. D Lacaille P Rogers, Arthritis Rheum 2007 56 S86
19. Getting a Grip on Arthritis: an educational intervention for the diagnosis and treatment of arthritis in primary care. RH Glazier EM Badley SC Lineker AL Wilkins MJ Bell, J Rheumatol 2005 32 137 142 15630739
20. Joint consultation of general practitioner and rheumatologist: does it matter. GJ Schulpen WP Vierhout DM van der Heijde RB Landewe RA Winkens LS van Der, Ann Rheum Dis 2003 62 159 161 10.1136/ard.62.2.159 12525386 (Pubitemid 36135392)
21. Can diagnostic triage by general practitioners or rheumatology nurses improve the positive predictive value of referrals to early arthritis clinics? GJ Gormley WK Steele A Gilliland P Leggett GD Wright AL Bell C Matthews G Meenagh E Wylie R Mulligan, Rheumatology 2003 42 763 768 10.1093/rheumatology/ keg213 12730536 (Pubitemid 37220908)
22. Attributes and skills of an effective musculoskeletal consumer. PS Tugwell AJ Wilson PM Brooks SM Driedger C Gallois AM O'Connor A Qualman N Santesso J Wale GA Wells, J Rheumatol 2005 32 2257 2261 16265713
23. Help-seeking in early rheumatoid arthritis: From onset to early-post diagnosis (Abstract 1259). A Townsend PM Adam SM Cox L Li, Arthritis Rheum 2007 56 S507
24. Development of the effective musculoskeletal consumer scale. E Kristjansson PS Tugwell AJ Wilson PM Brooks SM Driedger C Gallois AM O'Connor A Qualman N Santesso J Wale, J Rheumatol 2007 34 1392 1400 17552066
25. Knowledge translation for effective consumers. PS Tugwell NA Santesso AM O'Connor AJ Wilson Effective Consumer Investigative Group, Physical Therapy 2007 87 1728 1738 17906288
26. Self-management interventions for chronic illness. S Newman L Steed K Mulligan, Lancet 2004 364 1523 1537 10.1016/S0140-6736(04)17277-2 15500899 (Pubitemid 39410420)
27. International Patient Decision Aid Standards (IPDAS) checklist. Ottawa Health Research Institute 2008 http://decisionaid.ohri.ca/methods.html#checklist
28. Developing a quality criteria framework for patient decision aids: online international Delphi consensus process. G Elwyn A O'Connor D Stacey R Volk A Edwards A Coulter R Thomson A Barratt M Barry S Bernstein, BMJ 2006 333 417 10.1136/bmj.38926.629329.AE 16908462 (Pubitemid 44320126)
29. Entertainment education for informed breast cancer treatment decisions in low-literate women: development and initial evaluation of a patient decision aid. ML Jibaja-Weiss, Journal of Cancer Education 2006 21 133 139 10.1207/s15430154jce2103-8 17371175 (Pubitemid 46360655)
30. Optimal dosage and route of administration of methotrexate in rheumatoid arthritis: a systematic review of the literature. K Visser D van der Heijde, Ann Rheum Dis 2009 68 1094 1099 10.1136/ard.2008.092668 19033290
31. Multinational evidence-based recommendations for the use of methotrexate in rheumatic disorders with a focus on rheumatoid arthritis: integrating systematic literature research and expert opinion of a broad international panel of rheumatologists in the 3E Initiative. K Visser W Katchamart E Loza JA Martinez-Lopez C Salliot J Trudeau C Bombardier L Carmona D van der Heijde JW Bijlsma, Ann Rheum Dis 2009 68 1086 1693 10.1136/ard.2008.094474 19033291
32. User Manual - Decisional Conflict Scale. A O'Connor, Ottawa, Ottawa Health Research Institute 2005 http://decisionaid.ohri.ca/docs/develop/User- Manuals/UM-Decisional-Conflict.pdf
33. A decision aid for women considering hormone therapy after menopause: decision support framework and evaluation. AM O'Connor P Tugwell GA Wells T Elmslie E Jolly G Hollingworth R McPherson H Bunn I Graham E Drake, Patient Education and Counseling 1998 33 267 279 10.1016/S0738-3991(98)00026-3 9731164 (Pubitemid 28168092)
34. Development and Evaluation of a Decision Aid About Prenatal Testing for Women of Advanced Maternal Age Author. ER Drake L Engler-Todd AM O'Connor LC Surh H Alasdair, Journal of Genetic Counseling 1999 8 217 233 10.1023/A:1022998415890 (Pubitemid 29382907)
35. Development of an instrument to measure knowledge in individuals with rheumatoid arthritis: the ACREU rheumatoid arthritis knowledge questionnaire. SC Lineker EM Badley EA Hughes MJ Bell, J Rheumatol 1997 24 647 653 9101496
36. Lost in Knowledge Translation: Time for a Map? ID Graham J Logan M Harrison S Straus J Tetroe W Caswell N Robinson, Journal of Continuing Education in the Health Professions 2006 26 13 24 10.1002/chp.47 16557505
37. Alliance for the Canadian Arthritis Program, Arthritis isn't a big deal until you get it. Ask 4 million Canadians. Report from the Summit on Standards for Arthritis Prevention and Care, November 1-2, 2005, Ottawa, Ontario, Canada Toronto, ON: Alliance for the Canadian Arthritis Program 2006