Children in remission from acute lymphoblastic leukaemia: Mental health, psychosocial adjustment and parental functioning

European Journal of Cancer Care

Volumn 18, Issue 4, 2009, Pages 364-370

  Reinfjell, T ^a   Lofstad, G E ^a   Nordahl, H M ^a   Vikan, A ^a   Diseth, T H ^b  

^a NORWEGIAN UNIVERSITY OF SCIENCE AND TECHNOLOGY   (Norway)

^b OSLO UNIVERSITY HOSPITAL   (Norway)

Author keywords

Children; Mental health; Paediatrics; Parents; Psychosocial adjustment

Indexed keywords

ACUTE LYMPHOBLASTIC LEUKEMIA; ADAPTIVE BEHAVIOR; ADOLESCENT; ADULT; ANXIETY; ARTICLE; CHILD; CROSS-SECTIONAL STUDY; DEPRESSION; FEMALE; HEALTH STATUS; HUMAN; MALE; MENTAL DISEASE; MIDDLE AGED; NORWAY; PARENT; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; REMISSION;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADULT; ANXIETY; CHILD; CROSS-SECTIONAL STUDIES; DEPRESSION; FEMALE; HEALTH STATUS; HUMANS; MALE; MENTAL DISORDERS; MIDDLE AGED; NORWAY; PARENTS; PRECURSOR CELL LYMPHOBLASTIC LEUKEMIA-LYMPHOMA; QUESTIONNAIRES; REMISSION INDUCTION;

EID: 68149158919     PISSN: 09615423     EISSN: 13652354     Source Type: Journal    
DOI: 10.1111/j.1365-2354.2008.00954.x     Document Type: Article

References (35)

1. Achenbach T.M. (1991) Manual for the Child Behavior Checklist and 1991 Profile. Department of Psychiatry, University of Vermont, Burlington, VT, USA.
2. Achenbach T.M. Edelbrock C.S. (1991) Manual for the Youth Self Report and Profile. Department of Psychiatry, University of Vermont, Burlington, VT, USA.
3. Apajasalo M., Sintonen H., Siimes M.A., Hovi L., Holmberg C., Boyd H., Mäkelä A. Rautonen J. (1996) Health-related quality of life of adults surviving malignancies in childhood. European Journal of Cancer 32A, 1354 1358.
4. Barakat L.P., Kazak A.E., Meadows A.T., Casey R., Meeske K. Stuber M.L. (1997) Families surviving childhood cancer: a comparison of posttraumatic stress symptoms with families of healthy children. Journal of Pediatric Psychology 6, 843 859.
5. Berg-Nielsen T.S., Vika A. Dahl A.A. (2003) When adolescents disagree with their mothers: CBCL-YSR discrepancies related to maternal depression and adolescent self-esteem. Child Care Health and Development 29, 207 213.
6. Boman K. Bodegård G. (1995) Psychological long-term coping with the experience of disease and treatment in childhood survivors. Acta Pædiatrica 84, 1395 1402.
7. Drotar D. (1997) Relating parent and family functioning to the psychological adjustment of children with chronic health conditions: what have we learned? What do we need to know? Journal of Pediatric Psychology 22, 149 165.
8. Eiser C. (2001a) Long term consequences of surviving childhood cancer. Psycho-Oncology 10, S6 S7.
9. Eiser C. (2001b) Cancer. In : Quality of Life in Child and Adolescent Illness. Concepts, Methods and Findings (eds Koot H.M. Wallander J.L. pp. 267 295. Brunner-Routledge, New York, USA.
10. Eiser C., Hill J.J. Vance Y.H. (2000) Examining the psychological consequences of surviving childhood cancer: systematic review as a research method in pediatric psychology. Journal of Pediatric Psychology 25, 449 460.
11. Eiser C., Eiser R.J. Stride C.B. (2005) Quality of life in children newly diagnosed with cancer and their mothers. Health and Quality of Life Outcomes 3: 29.
12. von Essen L., Enskår K., Kreuger A., Larsson B. Sjøden P.O. (2000) Self -esteem, depression and anxiety among Swedish children and adolescents on and off treatment. Acta Paediatrica 89, 229 236.
13. Gatta G., Capocaccia R., De Angelis R., Stiller C., Coebergh J.W. the EUROCARE Working Group (2003) Cancer survival in European adolescents and young adults. European Journal of Cancer 39, 2600 2610.
14. Goldberg D. Williams P. (1988) A Users Guide to the GHQ. NFER-Nelson, Windsor, UK.
15. Goodman R. (1999) The extended version of the Strengths and Difficulties Questionnaire as a guide to child psychiatric caseness and consequent burden. Journal of Child Psychology and Psychiatry 40, 791 799.
16. Grootenhuis M.A. Last B.F. (1997) Adjustment and coping by parents of children with cancer: a review of the literature. Supportive Care in Cancer 5, 466 484.
17. Gustafsson G., Schmiegelow K., Forestier E., Clausen N., Glomstein A., Jonmundsson G., Mellander L., Makipernaa A., Nygaard R. Saarinen-Pihkala U.M. (2000) Improving outcome through two decades in childhood ALL in the Nordic countries: the impact of high-dose methotrexate in the reduction of CNS irradiation. Nordic Society of Pediatric Haematology and Oncology (NOPHO). Leukemia 12, 2267 2275.
18. Hanson C.L. (2001) Quality of life in families of youths with chronic conditions. In : Quality of Life in Child and Adolescents Illness. Concepts, Methods and Findings (eds Koot H.M. Wallander J.L. pp. 181 204. Brunner-Routledge, New York, USA.
19. Heyerdahl S. (2003) SDQ-Strength and Difficulties Questionnaire: En orientering om et nytt spørreskjema for kartlegging av mental helse hos barn og unge, brukt i UNGHUBRO, OPPHED og TROFINN. Norsk Epidemiologi 13, 127 135.
20. Kazak A.E. (1998) Post-traumatic distress in childhood cancer survivors and their parents. Medical and Pediatric Oncology Suppl 1, 60 68.
21. Kazak A.E., Alderfer M., Rourke M.T., Simms S., Streisand R. Grossman J.R. (2004) Posttraumatic stress disorder (PTSD) and posttraumatic stress symptoms (PTSS) in families of adolescent childhood cancer survivors. Journal of Pediatric Psychology 29, 211 219.
22. Koocher G. O'Malley J. (1981) The Damocles Syndrome. McGraw Hill, New York, USA.
23. Last B.F., Grootenhuis M.A. Eiser C. (2005) International comparison of contributions to psychosocial research on survivors of childhood cancer: past and future considerations. Journal of Pediatric Psychology 30, 99 113.
24. Loeber R., Green S.M., Lahey B.B. Stouthamer-Loeber M. (1990) Optimal informants on childhood disruptive behaviours. Development and Psychopathology 1, 317 337.
25. Mackie E., Hill J., Kondryn H. McNally R. (2000) Adult psychosocial outcomes in long-term survivors of acute lymphoblastic leukaemia and Wilms' tumour: a controlled study. Lancet 355, 1310 1314.
26. Moe P.J., Holen A. Glomstein A. (1997) Long-term survival and quality of life in patients treated with a national ALL protocol 15-20 years earlier: IDM/HDM and late effects? Pediatric Hematology and Oncology 14, 513 524.
27. Mulhern R.K., Wasserman A.L., Friedman A.G. Fairclough D. (1989) Social competence and behavioural adjustment of children who are long-term survivors of cancer. Pediatrics 83, 18 25.
28. Shelby M.D., Nagle R.J., Barnett-Queen L.L., Quattlebaum P.D. Wuori D.F. (1998) Parental reports of psychosocial adjustment and social competence in child survivors of acute lymphocytic leukemia. Childrens Health Care 27, 113 129.
29. Stuber M.L., Meeske K., Barakat L. Kazak A. (1996) Posttrauma symptoms in childhood leukemia survivors and their parents. Psychosomatics 37, 254 261.
30. Taylor E.A. (1986) Attention deficit. In : The Overactive Child. Clinics in Developmental Medicine No. 97 (ed. Taylor E.A. pp. 73 103. Blackwell Scientific Publication, Oxford, UK.
31. Varni J.W. Katz E.R. (1997) Stress, social support and negative affectivity in children with newly diagnosed cancer: a prospective transactional analysis. Psycho-Oncology 6, 267 278.
32. Wallander J.L. Thompson R.J. Jr. (1995) Psychosocial adjustment of children with chronic physical conditions. In : Handbook of Pediatric Psychology, 2nd edn (ed. Roberts M.C. pp. 124 141. Guilford, New York, USA.
33. Wijnberg-Williams B.J., Kamps W.A., Klip E.C. Hoekstra-Weebers J.E.H.M. (2006) Psychological adjustment of parents of pediatric cancer patients revisited: five years later. Psycho-Oncology 15, 1 8.
34. Zebrack B.J. Chesler M.A. (2002) Quality of life in childhood cancer survivors. Psycho-Oncology 11, 132 141.
35. Zeltzer L.K., Chen E., Weiss R., Guo M.D., Robison L.L., Meadows A.T., Mills J.L., Nicholson H.S. Byrne J. (1997) Comparison of psychologic outcome in adult survivors of childhood acute lymphoblastic leukemia versus sibling controls: a cooperative Children's Cancer Group and National Institutes of Health study. Journal of Clinical Oncology 15, 547 556.