Measuring family outcomes considerations for large-scale data collection in early intervention

Infants and Young Children

Volumn 21, Issue 3, 2008, Pages 194-206

  Bailey, Donald B ^a   Hebbeler, Kathleen ^b   Olmsted, Murrey G ^a   Raspa, Melissa ^a   Bruder, Mary Beth ^c  

^a RTI INTERNATIONAL   (United States)

^b SRI INTERNATIONAL   (United States)

^c UNIVERSITY OF CONNECTICUT   (United States)

Author keywords

Early intervention; Family outcomes; Survey development

Indexed keywords

EID: 67649980821     PISSN: 08963746     EISSN: None     Source Type: Journal    
DOI: 10.1097/01.IYC.0000324549.31822.c3     Document Type: Article

References (34)

1. Alagumalai, S., Curtis, D., & Hungi, N. (Eds.). (2005). Applied Rasch measurement: A book of exemplars. New York: Springer-Kluwer.
2. Allen, R. I., & Petr, C. G. (1996). Toward developing standards and measurements for family-centered practice in family support programs. In G. H. S. Singer, L. E. Powers, & A. L. Olson (Eds.), Redefining family support: Innovations in public-private practice (pp. 57-85). Baltimore, MD: Brookes.
3. Bailey, D. B., Bruder, M. B., Hebbeler, K., Carta, J., DeFosset, M., Greenwood, C., et al. (2006). Recommended outcomes for families of young children with disabilities. Journal of Early Intervention, 28, 227- 251.
4. Bailey, D.B., Hebbeler, K., & Bruder, M. B. (2006). Family Outcomes Scale. Retrieved from www.the-ecocenter. org
5. Bailey, D. B., Hebbeler, K., Scarborough, A., Spiker, D., & Mallik, S. (2004). First experiences with early intervention: A national perspective. Pediatrics, 113, 887-896.
6. Bailey, D. B., Hebbeler, K. M., Spiker, D., Scarborough, A., Mallik, S., & Nelson, L. (2005). 36-Month outcomes for families of children with disabilities participating in early intervention. Pediatrics, 116, 1346- 1352.
7. Biemer, P. P., & Lyberg, L. E. (2003). Introduction to survey quality. New York: John Wiley & Sons.
8. Blue-Banning, M., Summers, J. A., Franklin, H. C., Nelson, L. L., & Beegle, G. (2004). Dimensions of family and professional partnerships: Constructive guidelines for collaboration. Exceptional Children, 70, 167-184.
9. De Boeck, P., & Wilson, M. (Eds.). (2004). Explanatory item response models. A generalized linear and nonlinear approach. New York: Springer-Verlag.
10. DeVellis, R. F. (1991). Scale development: Theory and applications. Newbury Park, CA: Sage.
11. Dillman, D. 2000. Mail and Internet surveys: The tailored design method. New York: John Wiley & Sons.
12. Dunst, C. J. (1985). Rethinking early intervention. Analysis and Intervention in Developmental Disabilities, 5, 165-201.
13. Dunst, C. J., Johanson, C., Trivette, C., & Hamby, C. (1991). Family-oriented early intervention policies and practices: Family-centered or not? Exceptional Children, 58, 115-126.
14. Dunst, C. J., Trivette, C. M., & Deal, A. (1994). Supporting and strengthening families, Vol. 1: Methods, strategies, practices. Cambridge, MA: Brookline Books.
15. Groves, R. M., & Couper, M. P. (1998). A conceptual framework for survey participation. In R. M. Groves & M. P. Couper (Eds.), Nonresponse in household interview surveys (pp. 25-46). New York: John Wiley & Sons.
16. Harbin, G. & Neal, P. (2004). Family Benefits Inventory. Unpublished instrument, University of North Carolina at Chapel Hill, FPG Child Development Institute.
17. Harms, T., Clifford, R. M., & Cryer, D. (1998). Early childhood environment rating scale-revised edition. New York: Teachers College Press.
18. Hatton, D. D., Bailey, D. B., Roberts, J. P., Skinner, M., Mayhew, L., Clark, R. D., et al. (2000). Early intervention services for young boys with fragile X syndrome. Journal of Early Intervention, 23, 235-251.
19. Knottnerus, P. (2002). Sample survey theory. NewYork: Springer-Verlag.
20. Kutner, M., Greenberg, E., Jin, Y., & Paulsen, C. (2006). The health literacy of America's adults: Results from the 2003 national assessment of adult literacy. Washington, DC: National Center for Education Statistics, U.S. Department of Education.
21. McNaughton, D. (1994). Measuring parent satisfaction with early childhood intervention programs: Current practice, problems, and future directions. Topics in Early Childhood Special Education, 14, 26-48.
22. McWilliam, R. A., Lang, L., Vandiviere, P., Angell, R., Collins, L., & Underdown, G. (1995). Satisfaction and struggles: Family perceptions of early intervention services. Journal of Early Intervention, 19, 43-60.
23. Miller, G. A. (1956). The magical number seven, plus or minus two: Some limits on our capacity for processing information. Psychological Review, 63, 81-97.
24. Odom, S. L.,&Wolery, M. (2003). A unified theory of practice in early intervention/early childhood special education: Evidence-based practices. Journal of Special Education, 37, 164-173.
25. Office of Special Education and Rehabilitative Services, 68 Fed. Reg. 44,320 (July 28, 2003).
26. Park, J., Hoffman, L., Marquis, J., Turnbull, A. P., Poston, D., Mannan, H., et al. (2003). Toward assessing family outcomes of service delivery: Validation of a family quality of life survey. Journal of Intellectual Disability Research, 47, 367-384.
27. Thompson, L., Lobb C., Elling, R., Herman, S., Jurkiewicz, T., & Hulleza, C. (1997). Pathways to family empowerment: Effects of family-centered delivery of early intervention services. Exceptional Children, 64, 99- 113.
28. Tourangeau, R., Rips, L. J. & Rasinski, K. A. (2000). The psychology of survey response. New York: Cambridge University Press.
29. Willis, G. B. (1994). Cognitive interviewing and questionnaire design: A training manual (Working paper series No. 7). Washington, DC: Cognitive Methods Staff, Office of Research and Methodology, National Center for Health Statistics, U.S. Department of Health and Human Services.
30. Willis, G. B. (2004). Cognitive interviewing revisited: A useful technique, in theory? In S. Presser, J. Rothgeb, M. P. Couper, J. T. Lessler, E. Martin, J. Martin, et al (Eds.), Methods for testing and evaluating survey questionnaires (pp. 23-44). Hoboken, NJ: John Wiley & Sons.
31. Willis, G. B. (2005). Cognitive interviewing: A tool for improving questionnaire design. Thousand Oaks, CA: Sage Publications.
32. Willis, G. B., Royston, P., & Bercini, D. (1991). The use of verbal report methods in the development of testing of survey questionnaires. Applied Cognitive Psychology, 5, 251-267.
33. Woods, J., Kashinath, S., & Goldstein, H. (2004). Effects of embedding caregiver-implemented teaching strategies in daily routines on children's communication outcomes. Journal of Early Intervention, 26, 175- 193.
34. Yoder, P. J. & Warren, S. F. (2002). Effects of prelinguistic milieu teaching and parent responsivity education on dyads involving children with intellectual disabilities. Journal of Speech, Language, and Hearing Research, 45(6), 1158-1174.