Evaluating access to pediatric cancer care centers of children and adolescents with rare tumors in Italy: The TREP project

Pediatric Blood and Cancer

Volumn 53, Issue 2, 2009, Pages 152-155

  Pastore, Guido ^a,b   De Salvo, Gian Luca ^c   Bisogno, Gianni ^d   Dama, Elisa ^a   Inserra, Alessandro ^e   Cecchetto, Giovanni ^d   Ferrari, Andrea ^f  

^a UNIVERSITY OF TURIN   (Italy)

^b UNIVERSITY OF EASTERN PIEDMONT   (Italy)

^c VENETO INSTITUTE OF ONCOLOGY IOV IRCCS   (Italy)

^d UNIVERSITY OF PADOVA   (Italy)

^e BAMBINO GESÙ CHILDREN S HOSPITAL   (Italy)

^f NATIONAL CANCER INSTITUTE   (Italy)

Author keywords

Adolescents; Childhood malignancies; Epidemiology; Rare pediatric tumors; TREP project

Indexed keywords

ADOLESCENT; ADRENAL CORTEX TUMOR; APPENDIX CARCINOMA; ARTICLE; CANCER CENTER; CANCER DIAGNOSIS; CANCER EPIDEMIOLOGY; CANCER INCIDENCE; CANCER PATIENT; CANCER REGISTRY; CHILD; CHILDHOOD CANCER; CONTROLLED STUDY; DATA BASE; GASTROINTESTINAL CARCINOMA; GROUPS BY AGE; HEALTH CARE ACCESS; HUMAN; KIDNEY CARCINOMA; LUNG BLASTOMA; MAJOR CLINICAL STUDY; MELANOMA; NASOPHARYNX CARCINOMA; OVARY TUMOR; PANCREAS TUMOR; PARAGANGLIOMA; PHEOCHROMOCYTOMA; PRESCHOOL CHILD; PRIORITY JOURNAL; SALIVARY GLAND TUMOR; SCHOOL CHILD; TESTIS TUMOR; THYMUS CANCER; THYROID CARCINOMA; TUMOR CLASSIFICATION; FACTUAL DATABASE; HEALTH CARE DELIVERY; INCIDENCE; INFANT; ITALY; NEOPLASM; NEWBORN; RARE DISEASE; REGISTER; STATISTICS;

ADOLESCENT; CHILD; CHILD, PRESCHOOL; DATABASES, FACTUAL; HEALTH SERVICES ACCESSIBILITY; HUMANS; INCIDENCE; INFANT; INFANT, NEWBORN; ITALY; NEOPLASMS; RARE DISEASES; REGISTRIES;

EID: 67649980522     PISSN: 15455009     EISSN: 15455017     Source Type: Journal    
DOI: 10.1002/pbc.22049     Document Type: Article

References (18)

1. Gurney JG, Bondy ML. Epidemiology of childhood cancer. In: Pizzo PA, Poplack DG, editors. Principles and practice of pediatric oncology, 5th edition. Philadelphia, PA: Lippincott Williams & Wilkins; 2006. pp. 1-13.
2. Ferrari A, Bisogno G, De Salvo GL, et al. The challenge of very rare tumours in childhood: The Italian TREP project. Eur J Cancer 2007;43:654-659. (Pubitemid 46502898)
3. AIRT Working Group. I tumori infantili in Italia. Epidemiol Prev 2008;32:1-112.
4. Percy C, Van Holten V, Muir C, editors. International classification of diseases for oncology, 2nd edition. Geneva: World Health Organization; 1990.
5. Stiller CA, editor. Childhood cancer in Britain: Incidence, survival and mortality. Oxford: Oxford University Press; 2007.
6. Steliarova-Foucher E, Stiller CA, Pukkala E, et al. Thyroid cancer incidence and survival among European children and adolescents (1978-1997): Report from the Automated Childhood Cancer Information System project. Eur J Cancer 2006;42:2150-2169.
7. ACCIS (Automated Childhood Information System), Pass 1.01, Developed by the IARC (Internationala Agency for Research on Cancer), Lyon (F), November 2002, using European ACCIS database updated in November 2002. http://www-dep.iarc.fr/accis.htm.
8. Stiller CA, Desandes E, Danon SE, et al. Cancer incidence and survival in European adolescents (1978-1997). Report from the Automated Childhood Cancer Information System project. Eur J Cancer 2006;42:2006-2018.
9. Silcocks P. Estimating confidence limits on a standardised mortality ratio when the expected number is not error-free. J Epidemiol Community Health 1994;48:313-331. (Pubitemid 24200505)
10. Ferrari A, Dama E, Pession A, et al. Adolescents with cancer in Italy: Entry into the national cooperative pediatric oncology group AIEOP trials. Eur J Cancer 2009;45:328-334.
11. Boissel N, Auclerc MF, Lheritier V, et al. Should adolescents with acute lymphoblastic leukemia be treated as old children or young adults? Comparison of the French FRALLE-93 and LALA-94 trials. J Clin Oncol 2003;21:774-780. (Pubitemid 46606434)
12. de Bont JM, Van Der Holt B, Dekker AW, et al. Significant difference in outcome for adolescents with acute lymphoblastic leukemia treated on pediatric versus adult ALL protocols in The Netherlands. Leukemia 2004;18:2032-2053.
13. Ramanujachar R, Richards S, Hann I, et al. Adolescents with acute lymphoblastic leukaemia: Emerging from the shadow of paediatric and adult treatment protocols. Pediatr Blood Cancer 2006;47:748-756. (Pubitemid 44476750)
14. Paulussen S, Ahrens S, Juergens HF. Cure rates in Ewing tumor patients aged over 15 years are better in pediatric oncology units. Results of GPOH CESS/EICESS studies. Proc Am Soc Clin Oncol 2003;22:816.
15. Ferrari A, Dileo P, Casanova M, et al. Rhabdomyosarcoma in adults. A retrospective analysis of 171 patients treated at a single institution. Cancer 2003;98:571-580.
16. Ferrari A, Bono A, Baldi M, et al. Does melanoma behave differently in younger children than in adults?Aretrospective study of 33 cases of childhood melanoma from a single institution. Pediatrics 2005;115:649-654. (Pubitemid 43373024)
17. Ferrari A, Rognone A, Casanova M, et al. Colorectal carcinoma in children and adolescents: The experience of the Istituto Nazionale Tumori of Milan, Italy. Pediatr Blood Cancer 2008;50:588-593. (Pubitemid 351155830)
18. Ramphal R, Pappo A, Zielenska M, et al. Pediatric renal cell carcinoma: Clinical, pathologic, and molecular abnormalities associated with the members of the MiT Transcrition Factor family. Am J Clin Pathol 2006;126:349-364. (Pubitemid 44338787)