The outcome in adult life for people with ASD

Autism and Pervasive Developmental Disorders, Second Edition

Volumn , Issue , 2007, Pages 269-306

  Howlin, Patricia ^a  

^a KING'S COLLEGE LONDON   (United Kingdom)

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[No Author keywords available]

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EID: 67649973121     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.1017/CBO9780511544446.010     Document Type: Chapter

References (117)

1. Abramson, R., Wright, H. H., Cuccara, M. L. et al. (1992). Biological liability in families with autism. Journal of the American Academy of Child and Adolescent Psychiatry, 31, 370-371.
2. Alvin, J. and Warwick, A. (1991) Music Therapy for the Autistic Child, 2nd edn. New York: Oxford University Press.
3. Asperger, H. (1944). Autistic psychopathy in childhood. Translated and annotated by U. Frith, ed., in Autism and Asperger Syndrome (1991). Cambridge: Cambridge University Press, 37-92.
4. Ayres, J. A. (1979). Sensory Integration and the Child. Los Angeles: Western Psychology Service.
5. Ballaban-Gil, K., Rapin, I., Tuchman, R., and Shinnar, S. (1996). Longitudinal examination of the behavioral, language, and social changes in a population of adolescents and young adults with autistic disorder. Pediatric Neurology, 15, 217-223.
6. Baron-Cohen, S. (1988). Assessment of violence in a young man with Asperger’s syndrome. Journal of Child Psychology and Psychiatry, 29, 351-360.
7. Baron-Cohen, S., Mortimore, C., Moriarty, J., Izaguirre, J., and Robertson, M. (1999a). Thepreva- lence of Gilles de la Tourette’s syndrome in children and adolescents with autism. Journal of Child Psychology and Psychiatry, 40, 213-218.
8. Baron-Cohen, S., Scahill, V L., Izaguirre, J., and Robertson, M. M. (1999b). The prevalence of Gilles de la Tourette syndrome in children and adolescents with autism: a large scale study. Psychological Medicine, 29, 1151-1159.
9. Bartak, L. and Rutter, M. (1973). Special educational treatment of autistic children: a comparative study I. Design of study and characteristics of units. Journal of Child Psychology and Psychiatry, 14, 161-179.
10. Beadle-Brown, J., Murphy, G., Wing, L., Shah, A., and Holmes, N. (2000). Changes in skills for people with intellectual disability: a follow-up of the Camberwell Cohort. Journal ofIntellectual Disability Research, 44, 12-24.
11. Biklen, D. (1990). Communication unbound: autism and praxis. Harvard Educational Review, 60, 291-315.
12. Billstedt, A., Gillberg, C., and Gillberg, C. I. (2005). Autism after adolescence: population-based 13 to 22-year follow-up study of 120 individuals with autism diagnosed in childhood. Journal of Autism and Developmental Disorders, 35, 351-360.
13. Bolton, P., Pickles, A., Murphy, M., and Rutter, M. (1998). Autism, affective and other psychiatric disorders: patterns of familial aggregation. Psychological Medicine, 28, 385-395.
14. Chesterman, P. and Rutter, S. C. (1994). A case report: Asperger’s syndrome and sexual offending. Journal ofForensic Psychiatry, 4, 555-562.
15. Chung, S. Y., Luk, F. L., and Lee, E. W H. (1990). A follow-up study of infantile autism in Hong Kong. Journal of Autism and Developmental Disorders, 20, 221-232.
16. Clarke, D. J., Littlejohns, C. S., Corbett, J. A., and Joseph, S. (1989). Pervasive developmental disorders and psychoses in adult life. British Journal of Psychiatry, 155, 692-699.
17. Clements, J. and Zarkowska, E. (2000). Behavioural Concerns and Autistic SpectrumDisorders. London: Jessica Kingsley Publishers.
18. Creak, M. (1963). Childhood psychosis: areviewof 100 cases. BritishJournal of Psychiatry, 109, 84-89.
19. DeMyer, M. K., Barton, S., DeMyer, W E. et al. (1973). Prognosis in autism: a follow-up study Journal of Autism and Childhood Schizophrenia, 3, 199-246.
20. Dykens, E., Volkmar, F., and Glick, M. (1991). Thought disorder in high-functioning autistic adults. Journal of Autism and Developmental Disorders, 21, 303-314.
21. Eisenberg, L. (1956). The autistic child in adolescence. American Journal ofPsychiatry, 112, 607-612.
22. Everall, I. P. and Le Couteur, A. (1990). Fire-setting in an adolescent boy with Asperger’s syndrome. British Journal of Psychiatry, 157, 284-287.
23. Frith, U. (1991). Autism and Asperger Syndrome. Cambridge: Cambridge University Press.
24. Gerland, G. (1997). A Real Person: Life on the Outside. London: Souvenir Press.
25. Ghaziuddin, M., Tsai, L. Y., and Ghaziuddin, N. (1992). Co-morbidity of autistic disorder in children and adolescents. European Journal of Child and Adolescent Psychiatry, 1, 209-213.
26. Ghaziuddin, M., Weidmer-Mikhail, E., and Ghaziuddin, N. (1998). Comorbidity in Asperger syndrome: a preliminary report. Journal of Intellectual Disability Research, 42, 279-283.
27. Gilchrist, A., Green, J., Cox, A., Rutter, M., and Le Couteur A. (2001). Development and current functioning in adolescents with Asperger syndrome: a comparative study. Journal of Child Psychology and Psychiatry, 42, 227-240.
28. Gillberg, C. and Steffenberg, S. (1987). Outcome and prognostic factors in infantile autism and similar conditions: a population-based study of 46 cases followed through puberty Journal of Autism and Developmental Disorders, 17, 272-288.
29. Grandin, T. (1995). The learning style of people with autism: an autobiography In K. A. Quill, ed., Teaching Children with Autism: Strategies to Enhance Communication and Socialization. New York: Delmar, 33-52.
30. Hermelin, B. (2001). Bright Splinters of the Mind. A Personal Story of Research with Autistic Savants. London: Jessica Kingsley Publishers.
31. Holliday Willey, L. (1999). Pretending to be Normal. London: Jessica Kingsley Publishers.
32. Holliday Willey, L. (2001). Asperger Syndrome in the Family. London: Jessica Kingsley Publishers.
33. Howlin, P. (1996). Asperger Syndrome: differential diagnosis and current treatment strategies. Directions in Psychiatry, 16(20), 1-12.
34. Howlin, P. (2003). Outcome in high-functioning adults with autism with and without early language delays: implications for the differentiation between autism and Asperger syndrome. Journal of Autism and Developmental Disorders, 33, 3-13.
35. Howlin, P., Alcock, J., and Burkin, C. (2005). As eight year follow-up of a supported employment service for high ability adults with autism or Asperger Syndrome. Autism, 9, 533-549.
36. Howlin, P., Goode, S., Hutton, J., and Rutter, M. (2004). Adult outcomes for children with autism. Journal A Child Psychology and Psychiatry, 45, 212-229.
37. Hutton, J. (1998). Cognitive Decline and New Problems Arising in Association with Autism. Doctor of Clinical Psychology Thesis, Institute of Psychiatry, University of London.
38. Irlen, H. (1995). Viewing the world through rose-tinted glasses. Communication, 29, 8-9.
39. Isager, T., Mouridsen, S. E., and Rich, B. (1999). Mortality and causes of death in pervasive developmental disorders. Autism: International Journal of Research and Practice, 3,7-16.
40. Kanner, L. (1971). Follow-up study of eleven autistic children originally reported in 1943. Journal of Autism and Childhood Schizophrenia, 1, 119-145.
41. Kanner, L. (1973). Childhood Psychosis: Initial Studies and New Insights. New York: Winston/Wiley
42. Kanner, L. and Eisenberg, L. (1956). Early infantile autism 1943-55. American Journal of Orthopsychiatry, 26, 556-566.
43. Keel, J. H., Mesibov, G., and Woods, A. V (1997). TEACCH-supported employment programme. Journal of Autism and Developmental Disorders, 27, 3-10.
44. Kim, J. A., Szatmari, P., Bryson, S., Streiner, D. L., and Wilson, F. (2000). The prevalence of anxiety and mood problems among children with autism and Asperger syndrome. Autism: International Journal of Research and Practice, 4, 117-132.
45. Klin, A., Volkmar, F. R., and Sparrow, S. S., eds. (2000). Asperger Syndrome. New York: Guildford Press.
46. Kobayashi, R., Murata, T., and Yashinaga, K. (1992). A follow-up study of 201 children with autism in Kyushu and Yamaguchi, Japan. Journal of Autism and Developmental Disorders, 22, 395-411.
47. Kugler, B. (1998). The differentiation between autism and Asperger syndrome. Autism:International Journal of Research and Practice, 2, 11-32.
48. Lainhart, J. E. (1999). Psychiatric problems in individuals with autism, their parents and siblings. International Review of Psychiatry, 11, 278-298.
49. Lainhart, J. E. and Folstein, S. E. (1994). Affective disorders in people with autism: a review of published cases. Journal of Autism and Developmental Disorders, 24, 587-601.
50. Larsen, F. W. and Mouridsen, S. E. (1997). The outcome in children with childhood autism and Asperger syndrome originally diagnosed as psychotic. A 30-year follow-up study of subjects hospitalized as children. European Child and Adolescent Psychiatry, 6, 181-190.
51. Lawson, W (1998). Life Behind Glass: A Personal Account of Autistic Spectrum Disorder. Lismore, Australia: Southern Cross University Press.
52. Lawson, W (2002). Understanding and Working with the Spectrum ofAutism: An Insider’s View. London: Jessica Kingsley Publishers.
53. Leekam, S., Libby, S., Wing, L., Gould, J., and Gillberg, C. (2000). Comparison of ICD-10 and Gillberg’s criteria for Asperger syndrome. Autism: International Journal of Research and Practice, 4, 11-28.
54. Lockyer, L. and Rutter, M. (1969). A five to fifteen year follow-up study of infantile psychosis. III. Psychological aspects. British Journal of Psychiatry, 115, 865-882.
55. Lockyer, L. and Rutter, M. (1970). A five to fifteen year follow-up study of infantile psychosis. IV Patterns of cognitive ability British Journal of Social and Clinical Psychology, 9, 152-163.
56. Lord, C. and Bailey, A. (2002). Autism spectrum disorders. In M. Rutter and E. Taylor, eds., Child and Adolescent Psychiatry, 4th edn. Oxford: Blackwell, 636-663.
57. Lord, C. and Schopler, E. (1985). Differences in sex ratios in autism as a function of measured intelligence. Journal of Autism and Development Disorders, 15, 185-193.
58. Lord, C. and Venter, A. (1992). Outcome and follow-up studies of high functioning autistic individuals. In E. Schopler andG. B. Mesibov eds., High Functioning Individuals with Autism. New York: Plenum Press, 187-200.
59. Lotter, B. (1974a). Factors related to outcome in autistic children. Journal of Autism and Childhood Schizophrenia, 4, 263-277.
60. Lotter, B. (1974b). Social adjustment and placement of autistic children in Middlesex: a follow-up study Journal of Autism and Childhood Schizophrenia, 4, 11-32.
61. Lotter, B. (1978). Follow-up studies. In M. Rutter and E. Schopler, eds., Autism: A Reappraisal of Concepts and Treatment. New York: Plenum Press, 475-496.
62. Lotter, V. (1966) Epidemiology of autistic conditions in young children. 1. Prevalence. Social Psychiatry, 1, 124-137.
63. Lovaas, O. I. (1987). Behavioral treatment and normal educational and intellectual functioning in young autistic children. Journal ofConsulting and Clinical Psychology, 55, 3-9.
64. Manjiviona, J. and Prior, M. (1999). Neuropsychological profiles of children with Asperger syndrome and autism. Autism: International Journal of Research and Practice, 3, 327-354.
65. Mawhood, L. M. and Howlin, P. (1999). The outcome of a supported employment scheme for high functioning adults with autism or Asperger syndrome. Autism: International Journal of Research and Practice, 3, 229-253.
66. Mawhood, L., Howlin, P., and Rutter, M. (2000). Autism and developmental receptive language disorder: a follow-up comparison in early adult life. I. Cognitive and language outcomes Journal of Child Psychology and Psychiatry, 41, 547-559.
67. Mawson, D., Grounds, A., and Tantam, D. (1985). Violence in Asperger’s syndrome: a case study British Journal of Psychiatry, 147, 566-569.
68. McEachin, J. J., Smith, T., and Lovaas, O. I. (1993) Long-term outcome for children with autism who received early intensive behavioral treatment. American Journal of Mental Retardation, 97, 359-372.
69. Mittler, P., Gillies, S., and Jukes, E. (1966). Prognosis in psychotic children: report of a follow-up study. Journal of Mental Deficiency Research, 10, 73-83.
70. Newson, E., Dawson, M., and Everard, T. (1982). The natural history of able autistic people: their management and functioning in a social context. Unpublished report to the Department of Health and Social Security, London. Summary published in four parts in Communication, 19-21 (1984-85).
71. Nordin, V and Gillberg, C. (1998). The long-term course of autistic disorders: update on follow-up studies. Acta Psychiatrica Scandinavica, 97, 99-108.
72. Ozonoff, S., South, M., and Miller, J. N. (2002). DSM-IV defined Asperger syndrome: cognitive, behavioural and early history differentiation from high-functioning autism. Autism Journal of Research and Practice, 4, 29-46.
73. Paradiz, V (2002). Elijah’s Cup: A Family’s Journey into the Community and Culture of High-Functioning Autism and Asperger’s Syndrome. New York: The Free Press.
74. Petty, L. K., Omitz, E. M., Michelman, J. D., and Zimmerman, E. G. (1984). Autistic children who become schizophrenic. Archives of General Psychiatry, 41, 129-135.
75. Piven, J., Arndt, S., Bailey, J., and Andreasen, N. (1996). Regional brain enlargement in autism: a magnetic resonance imaging study Journal of the American Academy of Child and Adolescent Psychiatry, 35, 530-536.
76. Pyles, L. (2002). Hitchhiking Through Asperger Syndrome. London: Jessica Kingsley Publishers.
77. Rimland, B. (1994a). Comparative effects of treatment on child’s behavior (drugs, therapies, schooling, and several non-treatment events). Autism Research Review International, publication 34b.
78. Rimland, B. (1994b). Information pack on drug treatments for autism. Autism Research Review International, Information Pack P6.
79. Ringman, J. M. and Jankovic, J. (2000). Occurrence of tics in Asperger’s syndrome and autistic disorder. Journal of Child Neurology, 15, 394-400.
80. Rumsey, J. M., Rapoport, J. L., and Sceery, W R. (1985). Autistic children as adults: psychiatric social and behavioural outcomes. Journal of the American Academy of Child Psychiatry, 24, 465-473.
81. Rutter, M. (1970). Autistic children: infancy to adulthood. Seminars in Psychiatry, 2, 435-450.
82. Rutter, M. (1972). Childhood schizophreniareconsidered.JournalofAutismandChildhoodSchizophre- nia, 2, 315-337.
83. Rutter, M. and Bartak, L. (1973). Special educational treatment of autistic children: a comparative study II. Follow-up findings and implications for services. Journal of Child Psychology and Psychiatry, 14, 241-270.
84. Rutter, M. and Lockyer, L. (1967). A five to fifteen year follow-up study of infantile psychosis. I. Description of sample. British Journal of Psychiatry, 113, 1169-1182.
85. Rutter, M., Greenfield, D., and Lockyer, L. (1967). A five to fifteen year follow-up study of infantile psychosis. II. Social and behavioural outcome. British Journal of Psychiatry, 113, 1183-1199.
86. Sacks, O. (1993). A neurologist’s notebook: an anthropologist on Mars. New Yorker, December 27, 106-125.
87. Sainsbury, C. (2000). Martian in the Playground: Understanding the School Child with Asperger’s Syndrome. Bristol: Lucky Duck Publishing.
88. Schopler, E., Mesibov, G. B., and Kunce, L. J. (1998). Asperger Syndrome or High Functioning Autism? New York: Plenum.
89. Scragg, P. and Shah, A. (1994). Prevalence of Asperger’s syndrome in a secure hospital. British Journal of Psychiatry, 161, 679-682.
90. Seltzer, M. M., Krauss, M. W, Shattuck, P. T. et al. (2003). The symptoms of autism spectrum disorders in adolescence and adulthood. Journal of Autism and Developmental Disorder, 33, 565-581.
91. Shavelle, R. M., Strauss, D. J., and Pickett, J. (2001). Causes of death in autism. Journal of Autism and Developmental Disorder, 31, 569-576.
92. Slater-Walker, G. and Slater-Walker, C. (2002). An Asperger Marriage. London: Jessica Kingsley Publishers.
93. Smalley, S., McCracken, J., and Tanguay, P. (1995). Autism, affective disorders, and social phobia. American Journal of Medical Genetics (Neuropsychiatric Genetics), 60, 19-26.
94. Smith, M. D., Belcher, R. G., andJuhrs, P. D. (1995). A Guide to Successful Employment for Individuals with Autism. Baltimore: Paul H. Brookes.
95. Stehli, A. (1992). The Sound of a Miracle: A Child’s Triumph over Autism. New York, USA: Doubleday
96. Sturmey, P. (1998). Classification and diagnosis of psychiatric disorders in persons with developmental disabilities. Journal of Developmental and Physical Disabilities, 10, 317-330.
97. Sverd, J., Montero, G., and Gurevich, N. (1993). Brief report: case for an association between Tourette’s syndrome, autistic disorder and schizophrenia-like disorder. Journal of Autism and Developmental Disorders, 23, 407-414.
98. Szatmari, P. (2000). Perspectives on the classification of Asperger syndrome. In A. Klin, F. R. Volkmar, and S. S. Sparrow, eds., Asperger Syndrome. New York: Guilford Press, 403-417.
99. Szatmari, P., Bartolucci, G., Bremner, R. S., Bond, S., and Rich, S. (1989a). A follow-up study of high-functioning autistic children. Journal ofAutism and Developmental Disorders, 19, 213-226.
100. Szatmari, P., Bartolucci, G., and Bremner, R. S. (1989b). Asperger’s syndrome and autism: A comparison of early history and outcome. Developmental Medicine and Child Neurology, 31, 709-720.
101. Szatmari, P., Archer, L., Fisman, S., Streiner, D. L., and Wilson, F. (1995). Asperger’s syndrome and autism: Differences in behaviour, cognition, and adaptive functioning. Journal ofthe American Academy of Child and Adolescent Psychiatry, 34, 1662-1671.
102. Tantam, D. (1991). Asperger’s syndrome in adulthood. InU. Frith, ed., Autism and Asperger Syndrome. Cambridge: Cambridge University Press, 147-183.
103. Tantam, D. (2000). Psychological disorder in adolescents and adults with Asperger Syndrome. Autism, 4, 47-62.
104. US Bureau of Justice Statistics (1987). Adolescents (Fall 1989). Princeton, NJ: The Robert Wood Johnson Foundation.
105. Venter, A., Lord, C., and Schopler, E. (1992). Afollow-up study of high-functioning autistic children. Journal of Child Psychology and Psychiatry, 33, 489-507.
106. Volkmar, F. R. andCohen, D.J. (1991). Comorbid association of autism and schizophrenia. American Journal of Psychiatry, 148, 1705-1707.
107. Von Knorring, A.-L. and Hagglof, B. (1993). Autism in northern Sweden: a population-based follow-up study: psychopathology. European Child and Adolescent Psychiatry, 2, 91-97.
108. Welch, M. (1988). Holding Time. London: Century Hutchinson.
109. Williams, D. (1992). Nobody Nowhere. London: Corgi Books.
110. Williams, D. (1994). Somebody Somewhere. London: Corgi Books.
111. Wing, L. (1981). Asperger’s syndrome: a clinical account. Psychological Medicine, 11, 115-129.
112. Wing, L. andGould, J. (1978). Systematic recording ofbehaviors andskills of retarded andpsychotic children. Journal ofAutism and Childhood Schizophrenia, 8, 79-97.
113. Wing, L. and Shah, A. (2000). Catatonia in autistic spectrum disorders. British Journal of Psychiatry, 176, 357-362.
114. Wolff, S. (1991). Schizoid personality in childhood and adult life. 1. The vagaries of diagnostic labelling. British Journal of Psychiatry, 159, 615-620.
115. Wolff, S. and Chick, J. (1980). Schizoid personality in childhood: a controlled follow-up study. Psychological Medicine, 10, 85-100.
116. Wolff, S. and McGuire, R. J. (1995). Schizoid personality in girls: a follow-up study. What are the links with Asperger’s syndrome? Journal of Child Psychology and Psychiatry, 36, 793-818.
117. Wozniak, J., Biederman, J., Faraone, S. V et al. (1997). Mania in children with pervasive developmental disorder revisited. Journal of the American Academy of Child and Adolescent Psychiatry, 36, 1552-1559.