Support for family carers of children and young people with developmental disabilities and challenging behaviour: What stops it being helpful?

Journal of Intellectual Disability Research

Volumn 53, Issue 7, 2009, Pages 644-653

  Wodehouse, G ^a   McGill, Peter ^a  

^a UNIVERSITY OF KENT   (United Kingdom)

Author keywords

Challenging behaviour; Family carers; Intellectual disability

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; BEHAVIOR DISORDER; CAREGIVER BURDEN; CAREGIVER SUPPORT; CHILD; CHILD BEHAVIOR; CLINICAL ARTICLE; CONTROLLED STUDY; DEVELOPMENTAL DISORDER; FAMILY ATTITUDE; FAMILY STUDY; FEMALE; HUMAN; INTELLECTUAL IMPAIRMENT; MALE; MATERNAL ATTITUDE; MOTHER CHILD RELATION; PARENTAL ATTITUDE; PHENOMENOLOGY; SCHOOL CHILD; SEMI STRUCTURED INTERVIEW;

ADOLESCENT; CAREGIVERS; CHILD; CHILD BEHAVIOR DISORDERS; CONSUMER SATISFACTION; COST OF ILLNESS; EDUCATION; EDUCATION OF MENTALLY RETARDED; EDUCATION, SPECIAL; ENGLAND; FEMALE; HEALTH SERVICES ACCESSIBILITY; HUMANS; INTERVIEW, PSYCHOLOGICAL; MALE; MENTAL RETARDATION; NEEDS ASSESSMENT; PATIENT CARE TEAM; QUESTIONNAIRES; RESPITE CARE; SOCIAL SUPPORT; TREATMENT OUTCOME;

EID: 67449137968     PISSN: 09642633     EISSN: 13652788     Source Type: Journal    
DOI: 10.1111/j.1365-2788.2009.01163.x     Document Type: Article

References (21)

1. Allen D. (2000) Negotiating the role of expert carers on an adult hospital ward. Sociology of Health and Illness 22, 149-71.
2. Allen D., Hawkins S. & Cooper V. (2006) Parents' use of physical interventions in the management of their children's severe challenging behaviour. Journal of Applied Research in Intellectual Disabilities 19, 356-63.
3. Beresford B. (1995) Expert Opinion: A National Survey of Parents Caring for a Severely Disabled Child. The Policy Press, Bristol.
4. Department of Health (2007, revised edition) Services for People with Learning Disabilities and Challenging Behaviour or Mental Health Needs: Report of a Project Group. (Chairman: Prof J. L. Mansell). Department of Health, London.
5. Emerson E. (2001, 2nd edn.) Challenging Behaviour: Analysis and Intervention in People with Severe Intellectual Disabilities. Cambridge University Press, Cambridge.
6. HM Treasury/Department for Education and Skills (2007) Aiming High for Disabled Children: Better Support for Families. HMSO, London.
7. Hastings R. P. (2002) Parental stress and behaviour problems of children with developmental disability. Journal of Intellectual and Developmental Disability 27, 149-60.
8. Lucyshyn J. M., Dunlap G. & Albin R. W. (eds.) (2002) Families and Positive Behavior Support: Addressing Problem Behavior in Family Contexts. Baltimore, MD: Paul H Brookes.
9. Kiernan C. & Alborz A. (1996) Persistence and change in the challenging and problem behaviours of young adults with intellectual disability in the family home. Journal of Applied Research in Intellectual Disabilities 9, 181-93.
10. Knox M., Parmenter T. R., Atkinson N. & Yazbeck M. (2000) Family control: The views of families who have a child with intellectual disability. Journal of Applied Research in Intellectual Disabilities 13, 17-28.
11. Limbrick P. (2005) Principles and practice that define the Team-Around-the-Child (TAC) approach and their relationship to accepted good practice. Available at: http://www.icwhatsnew.com/bulletin/articles/ TAC.pdf (retrieved 26/03/2007).
12. McConachie H. (1994) Implications of a model of stress and coping for services to families of young disabled children. Child: Care, Health and Development 20, 37-46.
13. McGill P., Papachristoforou E. & Cooper V. (2006b) Support for family carers of children and young people with developmental disabilities and challenging behaviour. Child: Care, Health and Development 32, 159-65.
14. McGill P., Tennyson A. & Cooper V. (2006a) Parents of children with learning disabilities and challenging behaviour who attend 52-week residential schools: Their perceptions of services received and expectations of the future. British Journal of Social Work 36, 597-616.
15. McIntyre L. L., Blacher J. & Baker B. L. (2002) Behaviour/mental health problems in young adults with intellectual disability: The impact on families. Journal of Intellectual Disability Research 46, 239-49.
16. Mental Health Foundation (1997) Don't Forget Us: Children with Learning Disabilities and Severe Challenging Behaviour. Mental Health Foundation, London.
17. Prezant F. P. & Marshak L. (2006) Helpful actions seen through the eyes of parents of children with disabilities. Disability and Society 21, 31-45.
18. Qureshi (1993) Impact on families: Young adults with learning disability who show challenging behaviour. In: Research to Practice? Implications of Research on the Challenging Behaviour of People with Learning Disabilities (ed. C. Kiernan), pp. 89-116. BILD, Clevedon.
19. Redmond B. & Richardson V. (2003) Just getting on with it: Exploring the service needs of mothers who care for young children with severe/ profound and life-threatening intellectual disability. Journal of Applied Research in Intellectual Disabilities 16, 205-18.
20. Smith J. A., Jarman M. & Osborn M. (1999) Doing interpretative phenomenological analysis. In: Qualitative Health Psychology: Theories and Methods (eds M. Murray & K. Chamberlain), pp. 218-240. Sage, London.
21. Turnbull A. P. & Ruef M. (1996) Family perspectives on problem behaviour. Mental Retardation 34, 280-93.