'I felt I have grown up as an adult': Caregiving experience of children affected by HIV/AIDS in China

Child: Care, Health and Development

Volumn 35, Issue 4, 2009, Pages 542-550

  Zhang, L ^a   Li, Xiaoming ^a   Kaljee, L ^a   Fang, X ^b   Lin, X ^b   Zhao, G ^c   Zhao, J ^c   Hong, Y ^d  

^a WAYNE STATE UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b BEIJING NORMAL UNIVERSITY   (China)

^c HENAN UNIVERSITY   (China)

^d TEXAS A AND M HEALTH SCIENCE CENTER   (United States)

Author keywords

AIDS; Care giving; Child development; China; Psychological problems; Qualitative research

Indexed keywords

ACQUIRED IMMUNE DEFICIENCY SYNDROME; ADOLESCENT; ARTICLE; CAREGIVER BURDEN; CHILD; CHINA; CULTURAL SENSITIVITY; ELDERLY CARE; EMOTIONAL STABILITY; FAMILY CENTERED CARE; FATIGUE; FEAR; FEMALE; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; INTERVIEW; MALE; PRIORITY JOURNAL; QUALITATIVE ANALYSIS; RURAL AREA; SCHOOL CHILD; SCHOOL STRESS; SIBLING RELATION;

ACQUIRED IMMUNODEFICIENCY SYNDROME; ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; CAREGIVERS; CHILD; CHILD DEVELOPMENT; CHILD OF IMPAIRED PARENTS; CHINA; FAMILY; FATIGUE; FEMALE; HUMANS; MALE; PARENTS; RURAL HEALTH; SELF CARE; STRESS, PSYCHOLOGICAL; STUDENT DROPOUTS;

EID: 67049098649     PISSN: 03051862     EISSN: 13652214     Source Type: Journal    
DOI: 10.1111/j.1365-2214.2009.00973.x     Document Type: Article

References (34)

1. Aldridge, J. (2006) The experiences of children living with and caring for parents with mental illness. Child Abuse Review, 15, 79-88.
2. Aldridge, J. & Becker, S. (1999) Children as carers: The impact of parental illness and disability on children's caring roles. Journal of Family Therapy, 21, 303-320.
3. Beach, D. L. (1994) Family care of Alzheimer victims: An analysis of the adolescent experience. American Journal of Alzheimer's Disease and Other Dementias, 9, 12-19.
4. Becker, S. (2000) Young carers. In: The Blackwell Encyclopedia of Social Work (ed. M. Davies), p. 378. Blackwell, Oxford, UK.
5. Becker, S. (2007) Global perspectives on children's unpaid caregiving in the family. Global Social Policy, 7, 23-50.
6. Bor, R., Millert, R. & Goldrnan, E. (1993) HIV/AIDS and the family: a review of research in the first decade. Journal of Family Therapy, 15, 187-204.
7. Brown, M. A. (1997) Knowledge generation for the HIV-affected family. Journal of Nursing Scholarship, 29, 269-274.
8. Chan, K., Yang, Y., Zhang, K. & Reidpath, D. (2007) Disentangling the stigma of HIV/AIDS from the stigmas of drugs use, commercial sex and commercial blood donation - a factorial survey of medical students in China. BMC Public Health, 7, 280-291.
9. Chou, K. R. (2000) Caregiver burden: A concept analysis. Journal of Pediatric Nursing, 15, 398-407.
10. Cohen, J. (2004) An unsafe practice turned blood donors into victims. Science, 304, 1438-1439.
11. Cooklin, A. (2006) Children as carers of parents with mental illness. Psychiatry, 5, 32-35.
12. Corbin, J. M. & Strauss, A. (1990) Grounded theory research: procedures, canons, and evaluative criteria. Qualitative Sociology, 13, 3-21.
13. Deng, R., Li, J., Sringernyuang, L. & Zhang, K. (2007) Drug abuse, HIV/AIDS and stigmatisation in a Dai community in Yunnan, China. Social Science & Medicine, 64, 1560-1571.
14. Foster, G., Makufa, C., Drew, R., Kambeu, S. & Saurombe, K. (1996) Supporting children in need through a community-based orphan visiting programme. AIDS Care, 8, 389-404.
15. Gates, M. F. & Lackey, N. R. (1998) Youngsters caring for adults with cancer. Journal of Nursing Scholarship, 30, 11-15.
16. Hirst, M. (2005) Carer distress: A prospective, population-based study. Social Science & Medicine, 61, 697-708.
17. Jacobson, S. & Wood, F. G. (2004) Contributions of children to the care of adults with diabetes. The Diabetes Educator, 30, 820-826.
18. Keigher, S., Zabler, B., Robinson, N., Fernandez, A. & Stevens, P. (2005) Young caregivers of mothers with HIV: Need for supports. Children and Youth Services Review, 27, 881-904.
19. Knodel, J. & Im-em, W. (2004) The economic consequences for parents of losing an adult child to AIDS: Evidence from Thailand. Social Science & Medicine, 59, 987-1001.
20. Knodel, J., Watkins, S. & VanLandingham, M. (2003) AIDS and older persons: An international perspective. Journal of Acquired Immune Deficiency Syndromes, 33, S153-S165.
21. Lackey, N. R. & Gates, M. F. (2001) Adults' recollections of their experiences as young caregivers of family members with chronic physical illnesses. Journal of Advanced Nursing, 34, 320-328.
22. Li, L., Wu, S., Wu, Z., Sun, S., Cui, H. & Jia, M. (2006) Understanding family support for people living with HIV/AIDS in Yunnan, China. AIDS and Behavior, 10, 509-517.
23. Li, X., Naar-King, S., Barnett, D., Stanton, B., Fang, X. & Thurston, C. (2008) A developmental psychopathology framework of the psychosocial needs of children orphaned by HIV. The Journal of the Association of Nurses in AIDS Care, 19, 147-157.
24. Li, X., Fang, X., Stanton, B., Zhao, G., Lin, X., Zhao, J., Zhang, L., Hong, Y. & Chen, X. (2009) Psychometric evaluation of the Trauma Symptoms Checklist for Children (TSCC) among children affected by HIV/ AIDS in China. AIDS Care, 21, 261-270.
25. Limpanichkul, Y. & Magilvy, K. (2004) Managing caregiving at home: Thai caregivers living in the United States. Journal of Cultural Diversity, 11, 18-24.
26. Madhavan, S. (2004) Fosterage patterns in the age of AIDS: Continuity and change. Social Science & Medicine, 58, 1443-1454.
27. Muhr, T., Friese, S. & Consulting, Q. (2004) User's Manual for ATLAS.ti 5.0. Scientific Software Development, Berlin, Germany. Available at: http://www.atlasti.com/downloads/atlman.pdf
28. Pakenham, K. I., Dadds, M. R. & Lennon, H. V. (2002) The efficacy of a psychosocial intervention for HIV/AIDS caregiving dyads and individual caregivers: A controlled treatment outcome study. AIDS Care, 14, 731-750.
29. Robson, E. (2000) Invisible carers: Young people in Zimbabwe's home-based healthcare. Area, 32, 59-69.
30. Subgranon, R. & Lund, D. A. (2000) Maintaining caregiving at home: A culturally sensitive grounded theory of providing care in Thailand. Journal of Transcultural Nursing, 11, 166-173.
31. Woodring, L., Cancelli, A., Ponterotto, J. & Keitel, M. (2005) A qualitative investigation of adolescents' experiences with parental HIV/ AIDS. American Journal of Orthopsychiatry, 75, 658-675.
32. Zhang, L., Li, X., Mao, R., Stanton, B., Zhao, Q., Wang, B. & Mathur, A. (2008) Stigmatizing attitudes towards people living with HIV/ AIDS among college students in China: Implications for HIV/AIDS education and prevention. Health Education, 108, 130-144.
33. Zhao, G., Li, X., Fang, X., Zhao, J., Yang, H. & Stanton, B. (2007) Care arrangement, grief, and psychological problems among children orphaned by AIDS in China. AIDS Care, 19, 1075-1082.
34. Zhao, G., Li, X., Kaljee, L., Zhang, L., Stanton, B., Fang, X., Zhao, J., Lin, D. & Lin, X. (2009) Psycho-social consequences for children experiencing parental loss due to HIV/AIDS in Central China. AIDS Care (in press).