Children as carers: The impact of parental illness and disability on children's caring roles

Journal of Family Therapy

Volumn 21, Issue 3, 1999, Pages 303-320

  Aldridge, Jo ^a   Becker, Saul ^b  

^a LOUGHBOROUGH UNIVERSITY   (United Kingdom)

^b NONE

Author keywords

[No Author keywords available]

Indexed keywords

EID: 0033240923     PISSN: 01634445     EISSN: None     Source Type: Journal    
DOI: 10.1111/1467-6427.00121     Document Type: Article

References (72)

1. Adamson, L., Als, H., Tronick, E. and Brazelton, T.B. (1977) The development of social reciprocity between a sighted infant and her blind parents. Journal of the American Academy of Child Psychiatry, 16: 194-207.
2. Aldridge, J. and Becker, S. (1993) Children who Care: Inside the World of Young Carers. Young Carers Research Group, Loughborough: Loughborough University.
3. Aldridge, J. and Becker, S. (1994) My Child, My Carer: The Parents' Perspective. Young Carers Research Group, Loughborough: Loughborough University.
4. Aldridge, J. and Becker, S. (1996) Disability rights and the denial of young carers: the dangers of zero-sum arguments. Critical Social Policy, 16: 55-76.
5. Aldridge, J. and Becker, S. (1997) Prevention and Intervention: Young Carers and their Families. A Report for the Calouste Gulbenkian Foundation. Young Carers Research Group, Loughborough: Loughborough University.
6. Alzheimer's Association (SA) (1995) My Parent Has Dementia: A Child and Adolescent Perspective. South Australia: Alzheimer's Association.
7. Anthony, E.J. (1970) The impact of mental and physical illness on family life. American Journal of Psychiatry, 127: 138-146.
8. Arnaud, S.H. (1959) Some psychological characteristics of children of multiple sclerotics. Psychosomatic Medicine, 21: 8-22.
9. Barnes, C. (1992) Discrimination, disability benefits and the 1980s. Benefits, 3: 3-7.
10. Beach, D.L. (1994) Family care of Alzheimer victims: an analysis of the adolescent experience. The American Journal of Alzheimer's Care and Related Disorders & Research, January/February: 12-19.
11. Becker, S., Aldridge, J. and Dearden, C. (1998) Young Carers and their Families. Oxford: Blackwell Science.
12. Blackford, K.A. (1988) The children of chronically ill parents. Journal of Psychosocial Nursing, 26: 3: 33-36.
13. Bogdan, R. and Taylor, S. (1989) Relationships with severely disabled people: the social construction of humanness. Social Problems, 36: 135-148.
14. Brisdenen, S. (1986) Independent living and the medical model of disability. Disability, Handicap and Society, 1: 173-178.
15. Buck, F.M. and Hohmann, G.W. (1983) Parental disability and children's adjustment. In E.L. Pan, T.E. Backer and C.L. Vash (eds) Annual Review of Rehabilitation, pp. 203-241. New York: Springer Publishing Co.
16. Castro de la Mata, R., Gingras, G. and Wittkower, E.D. (1960) Impact of sudden, severe disablement of the father upon the family. Canadian Medical Association Journal, 82: 1015-1020.
17. Cogswell, B.E. (1976) Conceptual model of a family as a group: family response to disability. In G.L. Albrecht (ed.) The Sociology of Physical Disability and Rehabilitation. Pittsburg: University of Pittsburg Press.
18. Cytryn, L., McKnew, D.H., Bartko, J.J., Lamour, M. and Hamovitt, J. (1982) Offspring of patients with affective disorders: II. Journal of the American Academy of Child Psychiatry, 21: 389-391.
19. Department of Health (DoH) (1996a) Carers (Recognition and Services) Act 1995: Policy Guidance and Practice Guide. London: Department of Health.
20. Department of Health (DoH) (1996b) Young Carers: Making a Start. London: Department of Health.
21. Department of Health (DoH) (1996c) Young Carers: Something to Think About. Report of Four SSI Workshops, May-July 1995. London: Department of Health.
22. Erlenmeyer-Kimling, L., Cornblatt, B., Friedman, D., Marcuse, Y., Rainer, J.D. and Rutschmann, J. (1980) A prospective study of children of schizophrenic parents. International Journal of Rehabilitation Research, 3: 90-91.
23. Eurostat (1997) Unpublished tabulations provided by Eurostat from the 1994 European Community Household Panel, initial results.
24. Feldman, M.A., Case, L., Towns, F. and Betel, J. (1985) Parental education project I: development and nurturance of children of mentally retarded parents. American Journal of Mental Deficiency, 90: 253-258.
25. Feldman, R.A., Stiffman, A.R. and Jung, K.G. (1987) Children at Risk in the Web of Parental Mental Illness. New Brunswick and London: Rutgers University Press.
26. Frankenburg, F.R., Sloman, L. and Perry, A. (1985) Issues in the therapy of hearing children with deaf parents. Canadian Journal of Psychiatry, 30: 98-102.
27. Germino, B.B. and Funk, S.G. (1993) Impact of a parent's cancer on adult children: role and relationship issues. Seminars in Oncology Nursing, 9: 101-106.
28. Glendinning, C. (1991) Losing ground: social policy and disabled people in Great Britain 1980-1990. Disability, Handicap and Society, 6: 3-17.
29. Gottesman, I. and Shields, J. (1972) Schizophrenia and Genetics: A Twin Study Vantage Point. London and New York: Academic Press.
30. Hatfield, A.B. (1978) Psychological costs of schizophrenia to the family. Social Work, 23: 355-359.
31. Hearn, B. (1997) Putting support and protection into practice. In N. Parton (ed.) Child Protection and Family Support: Tensions, Contradictions and Possibilities, pp. 223-241. London: Routledge.
32. Heslinga, K., Schellen, A. and Verkuyl, A. (1974) Not Made of Stone: The Sexual Problems of Handicapped People. Springfield, Ill.: Charles C. Thomas.
33. Hilbourne, J. (1973) On disabling the normal. British Journal of Social Work, 2: 497-507.
34. Keith, L. and Morris, J. (1995) Easy targets: a disability rights perspective on the 'children as carers' debate. Critical Social Policy, 44/45: 36-57.
35. Lewis, F.M., Ellison, E.S. and Woods, N.F. (1985) The impact of breast cancer on the family. Seminars in Oncology Nursing, 1: 206-213.
36. Lynch, E.W. and Bakley, S. (1989) Serving young children whose parents are mentally retarded. Infants and Young Children, 1: 26-38.
37. Marsh, P. and Crow, G. (1997) Family Group Conferences in Child Welfare. Oxford: Blackwell Science.
38. Martin, J. and White, A. (1988) The Financial Circumstances of Disabled Adults Living in Private Households. London: OPCS/HMSO.
39. Mednick, S.A., Mura, E., Schulsinger, F. and Mednick, B. (1982) Perinatal conditions and infant development in children with schizophrenic parents. Social Biology, 29: 264-275.
40. Morris, J. (1991) Pride Against Prejudice. London: Women's Press.
41. Morris, J. (1993) Independent Lives. Basingstoke: Macmillan.
42. Morris, J. (1997) A response to Aldridge and Becker - disability rights and the denial of young carers: the dangers of zero-sum arguments. Critical Social Policy, 17: 133-135.
43. Office for National Statistics (ONS) (1996) Young Carers and their Families. London: The Stationery Office.
44. Olgas, M. (1974) The relationship between parents' health status and body image of their children. Nursing Research, 23: 319-324.
45. Oliver, M. (1989) Disability and dependency: a creation of industrial societies. In L. Barton (ed.) Disability and Dependency, pp. 50-60. London: Falmer Press.
46. Oliver, M. (1990) The Politics of Disablement. London: Macmillan.
47. Olsen, E. (1970) The impact of serious illness on the family system. Postgraduate Medicine, 47: 169-174.
48. Olsen, R. (1996) Young carers: challenging the facts and politics of research into children and caring. Disability and Society, 11: 41-54.
49. Orvaschel, H., Weissman, M.M. and Kidd, K.K. (1980) Children and depression. Journal of Affective Disorders, 2: 1-16.
50. O'Neill, A.M. (1985) Normal and bright children of mentally retarded parents: the Huck Finn syndrome. Child Psychiatry and Human Development, 15: 255-268.
51. Parker, G. and Olsen, R. (1995) A sideways glance at young carers. In Young Carers: Something to Think About. Papers presented at four SSI workshops May-July 1995, pp. 63-74. London: Department of Health.
52. Pederson, L.M. and Valanis, B.G. (1988) The effects of breast cancer on the family: a review of the literature. Journal of Psychosocial Oncology, 6: 95-118.
53. Power, P.W. (1977) The adolescent's reaction to chronic illness of a parent: some implications for family counseling. International Journal of Family Counseling, 5: 70-78.
54. Raymond, M., Slaby, A. and Lieb, J. (1975) The Healing Alliance. New York: W.W. Norton & Co.
55. Rieder, R.O. (1973) The offspring of schizophrenic parents: a review. Journal of Nervous and Mental Disease, 157: 179-190.
56. Romano, M.D. (1976) Preparing children for parental disability. Social Work in Health Care, 1: 309-315.
57. Rosenberg, S.A. and McTate, G.A. (1982) Intellectually handicapped mothers: problems and prospects. Children Today, 11: 24-26.
58. Sargent, K.L. (1985) Helping children cope with parental mental illness through use of children's literature. Child Welfare, 64: 617-628.
59. Schaff, C. (1993) From dependency to self advocacy: redefining disability. The American Journal of Occupational Therapy, 47: 943-948.
60. Schiff, N.B. and Ventry, I.M. (1976) Communication problems in hearing children of deaf parents. Journal of Speech and Hearing Disorders, 41: 348-358.
61. Schilling, R.F., Schinke, S.P., Blythe, B.J. and Barth, R.P. (1982) Child maltreatment and mentally retarded parents: is there a relationship? Mental Retardation, 20: 201-209.
62. Seagull, E.A. and Scheurer, S.L. (1986) Neglected and abused children of mentally retarded parents. Child Abuse and Neglect, 10: 493-500.
63. Seifer, R., Sameroff, A.J. and Jones, F. (1981) Adaptive behaviour in young children of emotionally disturbed women. Journal of Applied Developmental Psychology, 1: 251-276.
64. Sturges, J.S. (1977) Talking with children about mental illness in the family. Health and Social Work, 2: 88-109.
65. Sturges, J.S. (1978) Children's reactions to mental illness in the family. Social Casework, 59: 530-536.
66. Swain, J., Finklestein, V., French, S. and Oliver, M. (1993) Disabling Barriers, Enabling Environments. Buckingham: Open University Press.
67. Thompson, P., Lavery, J. and Curtice, J. (1990) Short Changed by Disability. London: Disablement Income Group.
68. Torkelson, R., Lynch, R. and Thomas, K. (1994) People with disabilities as victims: changing an ill-advised paradigm. Journal of Rehabilitation, March: 8-15.
69. Tunnard, J. (1997) Mechanisms for empowerment: family group conferences and local family advocacy schemes. In C. Cannan and C. Warren (eds) Social Action with Children and Families: A Community Development Approach to Child and Family Welfare, pp. 162-181. London: Routledge.
70. Walmsley, J. (1993) Contradictions in caring: reciprocity and interdependence. Disability, Handicap and Society, 8: 129-141.
71. Weitz, D. (1994) Everybody must get stoned. Changes: An International Journal of Psychology and Psychotherapy, 12: 50-59.
72. Woods, N.F., Yates, B.C. and Primomo, J. (1989) Supporting families during chronic illness. IMAGE: Journal of Nursing Scholarship, 21: 46-50.