Profile, burden, and quality of life of Israeli stroke survivor caregivers : A longitudinal study

Journal of Neuroscience Nursing

Volumn 41, Issue 2, 2009, Pages 92-105

  Nir, Zohar ^a   Greenberger, Chaya ^a,b   Bachner, Yaacov G ^a  

^a BEN GURION UNIVERSITY OF THE NEGEV   (Israel)

^b JERUSALEM COLLEGE OF TECHNOLOGY   (Israel)

Author keywords

[No Author keywords available]

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; AGED; ANALYSIS OF VARIANCE; ARTICLE; ATTITUDE TO HEALTH; CAREGIVER; COST OF ILLNESS; DEPRESSION; FACTORIAL ANALYSIS; FAMILY; FEMALE; HEALTH STATUS; HUMAN; ISRAEL; LONGITUDINAL STUDY; MALE; MIDDLE AGED; NEEDS ASSESSMENT; NURSING; NURSING ASSESSMENT; NURSING METHODOLOGY RESEARCH; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; QUESTIONNAIRE; SOCIAL SUPPORT; SOCIOECONOMICS; STATISTICAL MODEL; STROKE; SURVIVOR;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; AGED, 80 AND OVER; ANALYSIS OF VARIANCE; ATTITUDE TO HEALTH; CAREGIVERS; COST OF ILLNESS; DEPRESSION; FACTOR ANALYSIS, STATISTICAL; FAMILY; FEMALE; HEALTH STATUS; HUMANS; ISRAEL; LINEAR MODELS; LONGITUDINAL STUDIES; MALE; MIDDLE AGED; NEEDS ASSESSMENT; NURSING ASSESSMENT; NURSING METHODOLOGY RESEARCH; QUALITY OF LIFE; QUESTIONNAIRES; SOCIAL SUPPORT; SOCIOECONOMIC FACTORS; STROKE; SURVIVORS;

EID: 66149126065     PISSN: 08880395     EISSN: None     Source Type: Journal    
DOI: 10.1097/JNN.0b013e318193456b     Document Type: Article

References (99)

1. Adams, C. (2003). Quality of life and stroke caregivers in the immediate discharge period. Applied Nursing Research, 16, 126-130. (Pubitemid 36875937)
2. Anderson, C. S., Linto, J., & Stewart-Wynne, E. G. (1995). A population-based assessment of the impact and burden of caregiving for long-term stroke survivors. Stroke, 26, 843-849.
3. Anderson, C., Rubenach, S., Mhurchu, C. N., Clark, M., Spencer, C., & Windser, A. (2000). Home or hospital for stroke rehabilitation? Results of a randomized controlled trial. 1: Health outcomes at 6 months. Stroke, 26, 843-849.
4. Antonucci, C. T. (1985). Personal characteristics of social support and social behavior. In R. H. Binstok & E. Shanas (Eds.), Handbook of aging and social sciences (2nd ed., pp. 94-128). New York: Van Nostrand Reinhold.
5. Association of Israeli Stroke Survivors. (1990). Retrieved June 1, 2008, from www.stroke.co.il (Hebrew).
6. Baich-Moray, S., Zipkin, A., & Morginstin, B. (1994). Assessment of dependency for long-term care benefits. Jerusalem: National Insurance Institute.
7. Bakas, T., Austin, J. K., Okonkwo, K. F., Lewis, R. R., & Chadwick, L. C. (2002). Needs concerns, strategies, and advice of stroke caregivers the first 6 months after discharge. Journal of Neuroscience Nursing, 34, 242-251.
8. Bakas, T., & Burgener, S. C. (2002). Predictors of emotional distress, general health, and caregiving outcomes in family caregivers of stroke survivors. Topics in Stroke Rehabilitation, 9, 34-35. (Pubitemid 34507504)
9. Ben Yaakov, Y., & Amir, A. (2001). Subjective quality of life conceptualization and measurement in accordance with the World Health Organization. Gerontology, 14, 185-195 (Hebrew).
10. Besser, A., & Priel, B. (2005). Interpersonal relatedness and self-definition in late adulthood depression: Personality predispositions, and protective factors. Social Behavior and Personality, 33, 351-382. (Pubitemid 40912258)
11. Besser, A., & Priel, B. (2007). Perceived social support, malevolent maternal representations, and older adults' depressed mood. Journal of Social and Clinical Psychology, 26, 728-750.
12. Bluvol, A., & Ford-Gilboe, M. (2004). Hope, health work and quality of life in families of stroke survivors. Journal of Advanced Nursing, 48, 322-332. (Pubitemid 39481883)
13. Braithwaite, V. A. (2000). Contextual or general stress outcomes: Making choices through caregiving. Gerontologist, 25, 19-29.
14. Brereton, L., & Nolan, M. (2002). "Seeking": A key activity for new family carers of stroke survivors. Journal of Clinical Nursing, 11, 22-31. (Pubitemid 41749818)
15. Brodsky, J. (2003). The challenges of success: The aging of Israeli society. Jerusalem, Israel: JDC-Brookdale Institute of Aging.
16. Bugge, C., Alexander, H., & Hagen, S. (1999). Stroke patients; informal caregivers. Patient, caregiver, and service factors that affect caregiver strain. Stroke, 30, 1517-1523. (Pubitemid 29379595)
17. Carnwath, T., & Johnson, D. (1987). Psychiatric morbidity among spouses of patients with stroke. British Medical Journal, 294, 409-411. (Pubitemid 17023614)
18. Clark, M. S. (2000). Patient and spouse perceptions of stroke and its rehabilitation. International Journal of Rehabilitation Research, 23, 19-29.
19. Clark, P. C., Dunbar, S. B., Shields, C. G., Viswanahan, B., Aycock, D. M., & Wolf, S. L. (2004). Influence of stroke survivor characteristics and family conflict surrounding recovery on caregivers' mental and physical health. Nursing Research, 53, 406-413.
20. Coombs, U. E. (2007). Spousal caregiving for stroke survivors. Journal of Neuroscience Nursing, 39, 112-119.
21. Cristakis, N. A., & Allison, P. D. (2006). Mortality after the hospitalization of a spouse. New England Journal of Medicine, 354, 719-730.
22. Dennis, M., O'Rourke, S., Lewis, S., Sharpe, M., & Warlow, C. (1998). A quantitative analysis of the emotional outcome of people caring for stroke survivors. Stroke, 29, 1867-1872. (Pubitemid 28399979)
23. Dewey, H. M., Thrift, A. G., Mihalopoulos, C., Carter, R., Macdonell, R. A. L., & McNeil, J. J. (2002). Informal care for stroke survivors: Results from the North East Melbourne Stroke Incidence Study (NEMESIS). Stroke, 33, 1028-1033. (Pubitemid 34293587)
24. Dodds, T. A., Martin, D. P., Stolov, W. C., & Deyo, R. A. (1993). A validation of the functional independence measurement and its performance among rehabilitation inpatients. Archives of Physical Medical Rehabilitation, 74, 531-536. (Pubitemid 23141404)
25. Dorsey, M., & Vaca, K. (1998). The stroke patient and assessment of caregivers needs. Journal of Vascular Nursing, 16, 62-67. (Pubitemid 128654749)
26. Evans, R. L., Bishop, D. S., & Ousley, R. T. (1992). Providing care to persons with physical disability. Effect on family caregivers. American Journal of Physical Medicine and Rehabilitation, 71, 140-144.
27. Fischer, C., & Shavit, Y. (1995). National differences in network density: Israel and the United States. Social Networks, 17, 129-145.
28. Fleishman, R. (1996). The quality of care for hypertension in elderly patients. Jerusalem, Israel: JDC-Brookdale Institute of Gerontology and Adult Human Development in Israel.
29. Foley, K. L., Tung, H. J., & Mutran, E. J. (2002). Self gain and self-loss among African American caregivers. Journal of Gerontology Series B: Psychological Sciences and Social Sciences, 57, S14-S25.
30. Forsberg-Warleby, G., Möller, A., & Blomstrand, C. (2004). Psychological well-being of spouses of stroke patients during the first year after stroke. Clinical Rehabilitation, 18, 430-437. (Pubitemid 38701753)
31. Gallagher, T. J., Wagenfeld, M. O., Baro, F., & Haepers, K. (1994). Sense of coherence, coping, and caregiver role overload. Social Science Medicine, 39, 1615-1622. (Pubitemid 24338405)
32. Goode, W. J. (1960). A theory of role strain. American Sociological Review, 25, 483-496.
33. Granger, C. V. (1998). The emerging science of functional assessment: Our tool for outcomes analysis. Archives of Physical and Medical Rehabilitation, 79, 235-240.
34. Granger, C. V., Hamilton, B. B., & Keith, R. A. (1986). Advances in functional assessment for medical rehabilitation. Topics in Geriatric Rehabilitation, 1, 59-74.
35. Grant, J. S., & Davis, L. L. (1997). Living with loss: The stroke family caregiver. Journal of Family Nursing, 3, 36-56.
36. Grant, J., Elliot, T., Giger, J., & Bartolucci, A. (2001). Social problem-solving abilities, social support, and adjustment among family caregivers of individuals with a stroke. Rehabilitation Psychology, 46, 44-57. (Pubitemid 32142631)
37. Grant, J. S., Elliot, T. R., Weaver, M., Glandon, G. L., Raper, J. L., & Giger, J. N. (2006). Social support, social problemsolving abilities and adjustment of family caregivers of stroke survivors. Archives of Physical Medicine and Rehabilitation, 87, 343-350. (Pubitemid 43286942)
38. Grant, J. S., Glandon, G. L., Elliott, T. R., Giger, J. N., & Weaver, M. (2004). Caregiving problems and feeling experienced by family caregivers of stroke survivors the first month after discharge. International Journal of Rehabilitation Research, 27, 105-111.
39. Gräsel, E., Biehler, J., Schmidt, R., & Schupp, W. (2005). Intensification of the transition between inpatient neurological rehabilitation and home care of stroke patients. Controlled trial with follow-up assessment six months after discharge. Clinical Rehabilitation, 19, 725-736.
40. Greenberger, H., & Litwin, H. (2002). Caregiver resources and facilitation of elderly care recipient adherence to health regimens. Canadian Journal on Aging, 22, 395-405.
41. Habib, J., Sundstrom, G., & Windmiller, K. (1993). Understanding the pattern of support for the elderly: A comparison between Israel and Sweden. Journal of Aging and Social Policy, 5, 187-206.
42. Han, B., & Haley, W. E. (1999). Family caregiving for patients with stroke. Review and analysis. Stroke, 30, 1478-1485.
43. Heiss, J. (1981). Social roles. In M. Rosenberg & R. H. Turner (Eds.), Social psychology: Sociological perspectives (pp. 94-129). New York: Basic Books.
44. Hughes, S. L., Giobbie-Hurder, A., Weaver, F. M., Kubal, J. D., & Henderson, S. (1999). Relationship between caregiver burden and health-related quality of life. Gerontologist, 39, 534-545.
45. Israel Medical Association. (2004). Survey of stroke incidence. Retrieved February 15, 2008, from www.stroke.co.il (Hebrew).
46. Jönsson, A. C., Lindgren, I., Hallstrom, B., Norrving, B., & Lindgren, A. (2005). Determinants of quality of life in stroke survivals and their informal caregivers. Stroke, 36, 803-808.
47. Keith, R. H., Granger, C. V., Hamilton, B. B., & Sherwin, F. S. (1987). The Functional Independence Measure: A new tool for rehabilitation. In M. G. Eisenberg & R. C. Grzesiack (Eds.), Advances in clinical behavior (Vol. 1, pp. 6-18). New York: Springer-Verlag.
48. King, R. B., Carlson, C. E., Shade-Zeldow, Y., Bares, K. K., Roth, E. J., & Heinemann, A. W. (2001). Transition to home care after stroke: Depression, physical health, and adaptive processes in support persons. Research Nursing and Health, 24, 307-323.
49. King, R. B., & Shade-Zeldow, Y. (1995). Adaptation to stroke: Comparison of spouses of stroke survivors with and without aphasia. Topics in Stroke Rehabilitation, 2, 20-32.
50. King, R. B., Shade-Zeldow, Y., Carlson, C. E., Feldman, J. L., & Philip, M. (2002). Adaptation to stroke: A longitudinal study of depressive symptoms, physical health, and coping process. Topics in Stroke Rehabilitation, 9, 46-66.
51. Ko, J., Ayock, M., & Clark, P. C. (2007). A comparison of working versus nonworking family caregivers of stroke survivors. Journal of Neuroscience Nursing, 39, 217-225.
52. Krause, N. (1994). Stressors in salient social roles and well-being in later life. Journal of Gerontology: Psychological Sciences, 49B, P137-P148.
53. Larson, J., Franzen-Dahlin, A., Billing, E., Murray, V., & von Arbin, M. (2008). The impact of gender regarding psychological well-being and general life situation among spouses of stroke patients during the first year after the patients' stroke event: A longitudinal study. International Journal of Nursing Studies, 45, 257-267.
54. Larson, J., Franzen-Dahlin, A., Billing, E., Murray, V., & Wredling, R. (2005). Spouse's life situation after partner's stroke event: psychometric testing of a questionnaire. Journal of Advanced Nursing, 52, 300-306.
55. Lawler, J., Dowswell, G., Hearn, J., Forster, A., & Young, J. (1999). Recovering from stroke: a qualitative investigation of the role of goal setting in late stroke recovery. Journal of Advanced Nursing, 30, 401-409.
56. Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal and coping. New York: Springer.
57. Lilley S. A., Lincoln, N. B., & Francis, V. M. (2003). A qualitative study of stoke patients' and carers' perceptions of the stroke family support organizer service. Clinical Rehabilitation, 17, 540-547.
58. McCullagh, E., Brigstocke, G., Donaldson, N., & Kalra, L. (2005). Determinants of caregiving burden and quality of life in caregivers of stroke patients. Stroke, 36, 2181-2186.
59. Moore, L., Maiocco, G., Schmidt, S., Guo, L., & Estes, J. (2002). Perspectives of caregivers of stroke survivors: Implications for nursing. Medical Surgical Nursing, 11, 289-295.
60. Morimoto, T., Schreiner, A. S., & Asano, H. (2003). Caregiver burden and health-related quality of life among Japanese stroke caregivers. Age and Aging, 32, 218-223.
61. Murray, J., Young, J., Forster, A., & Ashworth, R. (2003). Developing a primary care based stroke model: The prevalence of longer-term problems experienced by patients and carers. British Journal of General Practice, 53, 803-807.
62. National Stroke Association. (2005). Impact of stroke. Retrieved February 26, 2008, from www.strokeassociation.org/presemterjhtml
63. Neeman Association for Stroke Survivors. (1996). Retrieved June 1, 2008, from www.neeman.org.il
64. Nir, Z., & Galinsky D. (2000). The bio-psychosocial adjustment of disabled elderly, a one-year follow-up. Rehabilitation Nursing, 25, 13-22.
65. Nir, Z., & Weisel-Eichler, A. (2006). Improving knowledge and skills for use of medication by patients after stroke: An evaluation of a nursing intervention. American Journal of Physical Medicine and Rehabilitation, 85, 582-592.
66. Nir, Z., Zolotogorsky Z., & Sugarman, H. (2004). Structured nursing intervention versus routine rehabilitation after stroke. American Journal of Physical Medicine and Rehabilitation, 83, 522-529.
67. O'Connell, B., & Baker, L. (2004). Managing as carers of stroke survivors: Strategies from the field. International Journal of Nursing Practice, 10, 121-126.
68. Olesen, V. (1989). Caregiving: Emerging challenges in the sociology of health and illness. Journal of Health and Social Behavior, 30, 1-10.
69. Ottenbacher, K. J., Hsu, Y., Granger, C. V., & Fiedler, R. C. (1996). The reliability of the functional independence measure: A quantitative review. Archives of Physical Medicine and Rehabilitation, 77, 1226-1232.
70. Pearlin, L., Mullan, J., Semple, S. J., & Skaff, M. M. (1990). Caregiving and the stress process: An overview of concepts and their measures. Gerontologist, 30, 583-584.
71. Power, M., & Kuyken, W. (1996). A draft paper on behalf of the WHOQOL Group. The World Health Organization Quality of Life Assessment (WHOQOL) : Development and general psychometric properties. Social Science & Medicine, 46 (12), 1569-1585.
72. Ring, H. (2001). Functional assessment tools in rehabilitation and geriatric medicine: The case of the Functional Independence Measure (FIM) (Hebrew). Gerontology, 28, 35-51.
73. Rombough, R. E., Howse, E. L., & Barfay, W. J. (2006). Caregiver strain and caregiver burden of primary caregivers of stroke survivors with and without aphasia. Rehabilitation Nursing, 31, 199-209.
74. Schlote, A., Richter, M., Frank, B., & Wallesch, C. W. (2006). A longitudinal study of health-related quality of life of stroke survivors' close relatives. Cerebrovascular Diseases, 22, 137-142.
75. Scholte op Reimer, W. J., De Haan, R. J., Rijinders, P. T., Limburg, M., & Van den Bos, G. A. (1998). The burden of caregiving in partners of long-term stroke survivors. Stroke, 29, 1605-1611.
76. Schulz, R., Tompkins, C., & Rau, M. A. (1988). Longitudinal study of the psychosocial impact of stroke on primary support persons. Psychological Aging, 3, 131-141.
77. Sheikh, J. I., & Yesavage, J. A. (1986). Geriatric Depression Scale (GDS) : Recent evidence and development of a shorter version. Clinical Gerontologist, 5, 165-173.
78. Shuval, J. T., Fleishman, R., & Shmueli, A. (1982). Informal support for the elderly: Social networks in a Jerusalem neighborhood. Jerusalem, Israel: JDC-Brookdale Institute of Gerontology and Adult Human Development in Israel.
79. Singh, M., & Cameron, J. (2005). Psychosocial aspects of caregiving to stroke patients. Axon, 27, 18-24.
80. Sit, J. W. H., Wong, T. K. S., Clinton, M., Li, S. W., & Fong, Y. M. (2004). Stroke care in the home: the impact of social support on the general health of family caregivers. Journal of Clinical Nursing, 13, 816-824.
81. Ski, C., & O'Connell, B. (2007). Stroke: The increasing complexity of carer needs. Journal of Neuroscience Nursing, 39, 172-179.
82. Smith, L. N., Lawrence, M., Kerr, S. M., Langhorne, P., & Lees, K. R. (2004). Informal carers' experience of caring for stroke survivors. Journal of Advanced Nursing, 46, 235-244.
83. Steiner, V., Pierce, L., Drahuschak, S., Nofziger, E., Buchman, D., & Szirony, T. (2008). Emotional support, physical help, and health of caregivers of stroke survivors. Journal of Neuroscience Nursing, 40, 48-54.
84. Teel, C., Duncan, P., & MinLai, S. (2001). Caregiving experiences after stroke. Nursing Research, 50, 53-60.
85. Thoits, P. (1991). On merging identity theory and stress research. Social Psychology Quarterly, 54, 101-112.
86. Tooth, L., McKenna, K., Barnett, A., Prescott, C., & Murphy, S. (2005). Caregiver burden, time spent caring and health status in the first 12 months following stroke. Brain Injury, 19, 936-974.
87. Van den Heuval, E., Witte, L., Sanderman, R., & Meyboom-de Jong, B. (2001). Risk factors burn-out in caregivers of stroke patients, and possibilities for interventions. Clinical Rehabilitation, 15, 669-677.
88. Vanetzian, E., & Corrigan, B. A. (1995). A comparison of educational wants of family caregivers of patients with stroke. Rehabilitation Nursing, 20, 149-154.
89. Van Exel, N. J. A., Koopmanschap, M. A., Van den Berg, B., Brouwer, W. B. F., & Van den Bos, G. A. M. (2005). Burden of informal caregiving for stroke patients: Identification of caregivers at risk of adverse health effect. Cerebrovascular Diseases, 19, 11-17.
90. Van Puymbroeck, M., & Rittman, M. R. (2005). Quality of life predictors for caregivers at 1 and 6 months post stroke: Results of path analyses. Journal of Rehabilitation Research and Development, 42, 747-760.
91. Wade, D. T., Legh-Smith, J., & Hewer, R. L. (1986). Effects of living with and looking after survivors of a stroke. British Medical Journal, 293, 418-420.
92. White, C. L., Mayo, N., Hanley, J. A., & Wood-Dauphinee, S. (2003). Evaluation of the caregiving experience in the initial 2 years following stroke. Research in Nursing and Health, 26, 177-189.
93. White, C. L., Poissant, L., Cote-Leblanc, G., & Wood-Dauphine, S. (2006). Long-term caregiving after stroke: The impact on caregivers' QOL. Journal of Neuroscience Nursing, 38, 354-360.
94. World Health Organization. (2008). The atlas of heart disease and stroke. Retrieved February 20, 2008, from www.who.int/cardiovascular-disease/en/cvd- atlas-15-burden-stroke.pdf
95. World Health Organization Quality of Life Group. (1995). The World Health Organization Quality of Life Assessment position paper. Social Science & Medicine, 41, 1403-1409.
96. Wright, L. K., Hickey, J. V., Buckwalter, K. C., & Clipp, E. C. (1995). Human development in the context of aging and chronic illness: The role of attachment in Alzheimer's disease and stroke. International Journal of Aging and Human Development, 41, 133-150.
97. Wright, L. K., Hickey, J. V., Buckwalter, K. C., Hendrix, S. A., & Kelechi, T. (1999). Emotional health of spouse caregivers of persons with Alzheimer's disease and stroke. Journal of Advanced Nursing, 30, 552-563.
98. Wyller, T. B., Thommessen, B., Sødring, K. M., Sveen, U., Pettersen, A. M., Bauts-Holter, E., & Laake, K. (2003). Emotional well-being of close relatives to stroke survivors. Clinical Rehabilitation, 17, 410-417.
99. Zalsman, G., Aizenberg, D., Sigler, M., Nahshoni, E., & Weisman, A. (1998). Geriatric Depression Scale-Short Form: Validity and reliability of Hebrew version. Clinical Gerontologist, 18, 3-9.