The European Prader-Willi Syndrome clinical research database: An aid in the investigation of a rare genetically determined neurodevelopmental disorder

Journal of Intellectual Disability Research

Volumn 53, Issue 6, 2009, Pages 538-547

  Holland, A ^a   Whittington, Joyce ^a   Cohen, O ^b   Curfs, L ^c   Delahaye, F ^b   Dudley, O ^d   Horsthemke, B ^e   Lindgren, A C ^f   Nourissier, C ^g   Sharma, N ^h   Vogels, A ⁱ  

^a UNIVERSITY OF CAMBRIDGE   (United Kingdom)

^b HC Forum   (France)

^c MAASTRICHT UNIVERSITY   (Netherlands)

^d CNRS   (France)

^e UNIVERSITY HOSPITAL ESSEN   (Germany)

^f KAROLINSKA INSTITUTE   (Sweden)

^g PWS Association France   (France)

^h PWS Association (UK)   (United Kingdom)

ⁱ UNIVERSITY OF LEUVEN   (Belgium)

Author keywords

Database; International collaboration; Prader Willi syndrome; Research aid

Indexed keywords

ACCESS TO INFORMATION; ALGORITHM; ARTICLE; CLINICAL RESEARCH; DATA BASE; EUROPE; GENETIC DISORDER; INFORMATION PROCESSING; INFORMATION SYSTEM; INTERNET; MEDICAL INFORMATION; NEUROLOGIC DISEASE; PRADER WILLI SYNDROME;

ADULT; ALGORITHMS; BIOMEDICAL RESEARCH; CHILD; CROSS-CULTURAL COMPARISON; CROSS-SECTIONAL STUDIES; DATA COLLECTION; DATABASES AS TOPIC; EUROPE; EUROPEAN UNION; HUMANS; INTERNET; LONGITUDINAL STUDIES; PHENOTYPE; PRADER-WILLI SYNDROME; SOFTWARE;

EID: 65949114856     PISSN: 09642633     EISSN: 13652788     Source Type: Journal    
DOI: 10.1111/j.1365-2788.2009.01172.x     Document Type: Article

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