Primary care research and clinical practice:respiratory disease

Postgraduate Medical Journal

Volumn 85, Issue 1000, 2009, Pages 74-79

  Pinnock, H ^a   Sheikh, A ^a  

^a UNIVERSITY OF EDINBURGH   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; ASTHMA; CLINICAL PRACTICE; CLINICAL RESEARCH; COMPUTER AIDED DESIGN; CONSULTATION; ETHNICITY; GENERAL PRACTICE; HEALTH CARE; HUMAN; MEDICAL RECORD; PATIENT CARE; PRIMARY MEDICAL CARE; RESPIRATORY TRACT DISEASE; SELF CARE; UNITED KINGDOM;

ACUTE DISEASE; ASTHMA; BIOMEDICAL RESEARCH; CHRONIC DISEASE; HUMANS; PATIENT TRANSFER; PRIMARY HEALTH CARE; RESPIRATORY TRACT DISEASES; SELF CARE;

EID: 63449086291     PISSN: 00325473     EISSN: 14690756     Source Type: Journal    
DOI: 10.1136/pgmj.2008.068379     Document Type: Article

References (96)

1. British Thoracic Society. Burden of lung disease. 2nd edn. London: British Thoracic Society, 2006.
2. Smith NM. The 'Needs of people with asthma' survey and initial presentation of the data. Asthma J 2000;5:133-7.
3. Haughney J, Barnes G, Partridge M, et al. The Living & Breathing study: a study of patients' views of asthma and its treatment. Prim Care Respir J 2004;13:28-35.
4. Juniper EF, Chauhan A, Neville E, et al. Clinicians tend to overestimate improvements in asthma control: an unexpected observation. Prim Care Respir J 2004;13:181-1.
5. Skilbeck J, Mott L, Page H, et al. Palliative care in COPD: a needs assessment. Palliative Med 1998;12:245-54.
6. Elkington H, White P, Addington-Hall J, et al. The last year of life of COPD: a qualitative study of symptoms and services. Respir Med 2004;98:439-15.
7. Gore JM, Brophy CJ, Greenstone MA. How well do we care for patients with end stage chronic obstructive pulmonary disease (COPD)? A comparison of palliative care and quality of life in COPD and lung cancer. Thorax 2000;55:1000-6.
8. The Respiratory Alliance. Bridging the gap. 2003. http://www.gpiag.org/news/bridging.php (accessed 27 Jan 2009).
9. Department of Health. Improving chronic disease management. London:Department of Health, 2004.
10. Scottish Intercollegiate Guideline Network. Community management of LRTI. Edinburgh: SIGN, 2002.
11. Levy ML, Stephenson P, Barritt P, et al. The UK General Practice Airways Group (GPIAG): its formation, development, and influence on the management of asthma and other respiratory diseases over the last twenty years. Prim Care Respir J 2007;16:132-9.
12. International Primary Care Respiratory Group. Research needs statement. Aberdeen: IPCRG, 2008. http://www.theipcrg.org/resneeds/resneeds. php (accessed 27 Jan 2009).
13. The British Thoracic Society/Scottish Intercollegiate Guideline Network. British guideline on the management of asthma. Thorax 2008;63(Suppl 4):1-121.
14. Global Initiative for Asthma. Global strategy for asthma management and prevention. GINA, 2007. http://www.ginasthma.org (accessed 27 Jan 2009).
15. Barnes G. Nurse-run asthma clinics in general practice. J Coll Gen Pract 1985;35:447.
16. Charlton I, Charlton G, Broomfield J, et al. Audit of the effect of a nurse run asthma clinic on workload and patient morbidity in a general practice. Br J Gen Pract 1991;41:227-31.
17. Department of Health and the Welsh Office. General practice in the National Health Service: a new contract. London: HMSO, 1989.
18. Jones KP, Mullee MA. Proactive, nurse run asthma care in general practice reduces asthma morbidity: scientific fact or medical assumption? Br J Gen Pract 1995;45:497-9.
19. Fleming DM, Sunderland R, Cross KW, et al. Declining incidence of episodes of asthma: a study of trends in new episodes presenting to general practitioners in the period 1989-98. Thorax 2000;55:657- 61.
20. Price D, Wolfe S. Delivery of asthma care: patient's use of and views on healthcare services, as determined from a nationwide interview survey. Asthma J 2000;5:141-1.
21. Gruffydd-Jones K, Nicholson I, Best L, et al. Why don't patients attend the asthma clinic? Asthma Gen Pract 1999;7:36-8.
22. Nolan D, White P. Symptomatic asthma: attendance and prescribing in general practice. Respir Med 2002;96:102-9.
23. Jones K, Clearly R, Hyland M. Predictive value of a simple asthma morbidity index in a general practice. Br J Gen Pract 1999;49:23-6.
24. Pearson MG, Bucknall CE, eds. Measuring clinical outcome in asthma: a patient focussed approach. London: Royal College of Physicians, 1999.
25. Kemple T, Rogers C. A mailed personalised self-management plan improves attendance and increases patients' understanding of asthma. Prim Care Respir J 2003;12:110-14.
26. Department of Health. Building on the best: choice, responsiveness and equity in the NHS. London: DoH, 2003.
27. Pinnock H, Bawden R, Proctor S, et al. Accessibility, acceptability and effectiveness of telephone reviews for asthma in primary care: randomised controlled trial. BMJ 2003;326:477-9.
28. Pinnock H, McKenzie L, Price D, et al. Cost effectiveness of telephone or surgery asthma reviews: economic analysis of a randomised controlled trial. Br J Gen Pract 2005;55:119-24.
29. Pinnock H, Madden V, Snellgrove C, et al. Telephone or surgery asthma reviews? Preferences of participants in a primary care randomised controlled trial. Prim Care Respir J 2005;14:42-6.
30. Gruffydd-Jones K, Hollinghurst S, Ward S, et al. Targeted routine asthma care in general using telephone triage. Br J Gen Pract 2005;55:918-23.
31. Campbell M, Fitzpatrick R, Haines A, et al. Framework for design and evaluation of complex interventions to improve health. BMJ 2000;321 :694-6.
32. NHS Confederation, British Medical Association. New GMS Contract 2003:investing in general practice. London: BMA, March 2003.
33. Pinnock H, Adlem L, Gaskin S, et al. Accessibility, clinical effectiveness and practice costs of providing a telephone option for routine asthma reviews: controlled implementation study. Br J Gen Pract 2007;57:714-22.
34. Glasziou P, Irwig L, Mant D. Monitoring in chronic disease: a rational approach. BMJ 2005;330:644-8.
35. Ryan D, Cobern W, Wheeler J, et al. Mobile phone technology in the management of asthma. J Telemed Telecare 2005;11 (Suppl 1):43-6.
36. Cleland J, Caldow J, Ryan D. Attitudes of patients and staff to using mobile phone technology to record and gather asthma data: a qualitative study. J Telemed Telecare 2007;13:85-9.
37. Pinnock H, Slack R, Pagliari C, et al. Professional and patient attitudes to using mobile phone technology to monitor asthma: questionnaire survey. Prim Care RespirJ 2006;15:237-45.
38. Pinnock H, Slack R, Pagliari C, et al. Understanding the potential role of mobile phone based monitoring on asthma self-management: qualitative study. Clin Exp Allergy 2007;3:794-802.
39. Ryan D, Pinnock H, Tarassenko L, et al. Mobile phone based structured intervention to achieve asthma control in patients with uncontrolled persistent asthma: pragmatic randomised controlled trial. Asthma UK. Project ID: 07/047. http://www.asthma.org.uk/researchers/research-database/index.html (accessed 27 Jan 2009).
40. Damiani M, Dixon J. Managing the pressure: emergency hospital admissions in London, 1997-2001. London: King's Fund, 2002.
41. Wilkinson T, Donaldson GC, Hurst JR, et al. Early therapy improves outcomes of exacerbations of chronic obstructive pulmonary disease. Am J Respir Crit Care Med 2004;169:1298-303.
42. Institute for Innovation and Development. Te/ehea/th in Kent: what's behind its success? London: NHS, 2007.
43. Dale J, Connor S, Tolley K. An evaluation of the West Surrey telemedicine monitoring project. Telemed Telecare 2003;9(S):39-41.
44. Casas A, Troosters T, Garcia-Aymerich J, et al. Integrated care prevents hospitilisations for exacerbations in COPD patients. Eur Respir J 2006;28:1-8.
45. de Toledo P, Jimenez S, del Pozo F, et al. Telemedicine experience for chronic care in COPD. IEEE transactions on Information Technol Biomed 2006;10:567-72.
46. Trappenburg JCA, Niesink A, Weert-van Oene GH, et al. Effects of telemonitoring in patients with chronic obstructive pulmonary disease. Telemedicine e-Health 2008;14:138-16.
47. McKinstry B, Pinnock H, Hanley J, et al. Telemetric supported self-monitoring of long-term conditions: telemetric supported self-monitoring of COPD: randomised controlled trial. Chief Scientist Office: NHS Applied Research Programme Grant. 2008. http://www.sehd.scot.nhs.uk/cso/ (accessed 27 Jan 2009).
48. Department of Health. Delivering 21st century IT support for the NHS: national strategic programme. London: Department of Health, 2002.
49. Department of Health. The NHS Plan: a plan for investment, a plan for reform. London: The Stationery Office, 2000.
50. Department of Health. The NHS Improvement P/an: putting peop/e at the heart of pub/ic services. London: The Stationery Office, 2004.
51. Department of Health. Our health, our care, our say: a new direction for community services. London: The Stationery Office, 2006.
52. Lacasse Y, Goldstein R, Lasserson TJ, et a/. Pulmonary rehabilitation for chronic obstructive pulmonary disease. Cochrane Database Syst Rev 2006;(4):CD003793.
53. National Institute for Clinical Excellence. National clinical guideline management of chronic obstructive pulmonary disease in adults in primary and secondary care. Thorax 2004;59(Suppl 1):S1-232.
54. Jones RCM, Copper S, Riley O, et al. A pilot study of pulmonary rehabilitation in primary care. Br J Gen Pract 2002;52:567-8.
55. Backley J, Bloom J, Bott J, et al. A summary of recommendations of the pulmonary rehabilitation in the community: sharing best practice meeting. GPIAG, 2005. www.gpiag.org (accessed 27 Jan 200).
56. Hyland M, Jones R, Hanney K. The Lung Information Needs Questionnaire:development, preliminary validation and findings. Respir Med 2006;100:1807-16.
57. Elkington H, White P, Addington-Hall J, et al. The healthcare needs of chronic obstructive pulmonary disease patients in the last year of life. Pa//iat Med 2005;19:485-91.
58. Seamark DA, Blake SD, Seamark CJ. Living with severe COPD: perceptions of patients and their carers. Palliat Care 2004;18:619-25.
59. Seamark D, Seamark C, Halpin D. Palliative care in chronic obstructive pulmonary disease: a review for clinicians. J R Soc Med 2007;100:225-33.
60. Elkington H, White P, Higgs R, et al. GPs' views of discussions of prognosis in severe COPD. Fam Pract 2001;18:440-4.
61. Mulcahy P, Buetow S, Osman L, et al. GPs' attitudes to discussing prognosis in severe COPD: an Auckland (NZ) to London (UK) comparison. Fam Pract 2005;22:538-40.
62. Pinnock H, Murray S, Worth A, et al. A breath of fresh air: improving care and services for patients living and dying with chronic obstructive pulmonary disease, and their carers. Project ID: CZH 4 320. Chief Scientists Office, 2006.
63. Williams S, Ryan D, Price D, et al. General practitioners with a special clinical interest: a model for improving respiratory disease management. Br J Gen Pract 2002;52:838-43.
64. Gilbert R, Franks G, Watkin S. The proportion of general practitioner referrals to a hospital respiratory medicine clinic suitable to be seen in a GPwSI respiratory clinic. Prim Care Respir J 2005;14:314-19.
65. Pinnock H, Netuveli G, Price D, et al. General practitioners with a special interest in respiratory medicine: national survey of primary care organisations. BMC Hea/th Serv Res 2005;5:40.
66. Moffat M, Sheikh A, Price D, et al. Can a GP be a generalist and a specialist? Stakeholders views on a respiratory general practitioner with a special interest service in the UK. BMC Health Serv Res 2006;6:62.
67. Pinnock H, Huby G, Powell A, et al. The process of planning, development and implementation of a General Practitioner with a Special Interest service in primary care organisations in England and Wales: a comparative prospective case study.Reportfor the National Co-ordinating Centre for NHS Service Delivery and Organisation R&D Programme. London. http://www.sdo.nihr.ac.uk (accessed 27 Jan 2009).
68. Hamilton S, Huby G, Tierney A, et al. Mind the gap between policy imperatives and service provision: a qualitative study of the process of respiratory service development in England and Wales. BMC Health Serv Res 2008;8:248.
69. Lawrenson RA, Coles G, Walton K, et al. Characteristics of practices contributing to the MediPlus database and the implications for its use in epidemiological research. J Inform Prim Care 1998 May:14-18.
70. Thomas M, Cleland J, Price D. Database studies in asthma pharmacoeconomics:uses, limitations and quality markers. Expert Opin Pharmacother 2003;4:351-8.
71. Anandan C, Simpson CR, Fischbacher C, et al. Exploiting the potential of routine data to better understand the disease burden posed by allergic disorders. C in Exp Allergy 2006;36:866-71.
72. Benson K, Hartz AJ. A comparison of observational studies and randomised controlled trials. N Engl J Med 2000;342:1878-86.
73. Thomas M, Leather D, Price D. High-dose inhaled corticosteroids and add-on therapy use in adults with asthma in the UK in 2003: an observational study. Prim Care Respir J 2006;15:166-72.
74. Drake AJ, Howell RJ, Shield JPH, et al. Symptomatic adrenal insufficiency presenting with hypoglycaemia in asthmatic children with asthma receiving high dose inhaled fluticasone propionate. BMJ 2002;324:1081-3.
75. Thomas M, Turner S, Leather D, et al. High-dose inhaled corticosteroid use in childhood asthma: an observational study of GP prescribing. Br J Gen Pract 2006;56:788-90.
76. Ekins-Daukes S, Simpson CR, Helms P, et al. Burden of corticosteroids in children with asthma in primary care: retrospective observational study. BMJ 2002;324:1374.
77. Walker S, Sheikh A. Self-reported rhinitis is a significant problem for patients with asthma: results from a national (UK) survey. Prim Care Respir J 2005;14:83-7.
78. Yawn BP, Yunginger JW, Wollan PC, et al. Allergic rhinitis in Rochester, Minnesota residents with asthma: frequency and impact on health care charges. J A ergy C in Immunol 1999;103:54-9.
79. Richards S, Thornhill D, Roberts H, et al. How many people think they have hay fever and what they do about it. Br J Gen Pract 1992;42:284-6.
80. Thomas M, Turner S, Leather D, et al. Asthma-related health care resource use among asthmatic children with and without concomitant allergic rhinitis. Pediatrics 2005;115:129-34.
81. Price D, Zhang Q, Kocevar VS, et al. Effect of a concomitant diagnosis of allergic rhinitis on asthma-related health care use by adults. C in Exp A ergy 2005;35:282-7.
82. Bachert C, van Cauwenberge P, Khaltaev N, et al. Allergic rhinitis and its impact on asthma. In collaboration with the World Health Organization. Executive summary of the workshop report. Allergy 2002;57:841-55.
83. Scadding GK, Durham SR, Mirakian R, et al. BSACI guidelines for the management of allergic and non-allergic rhinitis. Clin Exp Allergy 2007;38:19-12.
84. Price DB, Honeybourne D, Little P, et al. Community-acquired pneumonia mortality: a potential link to antibiotic prescribing trends in general practice. Respir Med 2004;98:17-24.
85. Petersen I, Johnson A, Islam A, et al. Protective effect of antibiotics against serious complications of common respiratory tract infections: retrospective cohort study with the UK General Practice Research Database. BMJ 2007;335:982-4.
86. Metlay JP, Kapoor WN, Fine MJ. Does this patient have community acquired pneumonia? Diagnosing pneumonia by history and physical examination. JAMA 1997;278:1440-5.
87. Netuveli G, Hurwitz B, Levy M, et al. Ethnic variations in UK asthma frequency, morbidity, and health-service use: a systematic review and meta-analysis. Lancet 2005;365:312-17.
88. Griffiths C, Foster G, Barnes N, et al. Specialist nurse intervention to reduce unscheduled asthma care in a deprived multiethnic area: the east London randomised control trial for high risk asthma (ELECTRA). BMJ 2004;328:144-7.
89. Moudgil H, Honeybourne D. Differences in asthma management between white European and Indian subcontinent ethnic groups living in socio economically deprived areas in the Birmingham (UK) conurbation. Thorax 1998;53:490-4.
90. Griffiths C, Kaur G, Gantley M, et al. Influences on hospital admission for asthma in south Asian and white adults: qualitative interview study. BMJ 2001;323:962-6.
91. Foster G, Gantley M, Feder G, et al. How do clinical nurse specialists influence primary care management of asthma? A qualitative study. Prim Care Respir J 2005;14:154-60.
92. Griffiths C, Motlib J, Azad A, et al. Randomised controlled trial of a lay-led self-management programme for Bangladeshi patients with chronic disease. Br J Gen Pract 2005;55:831-7.
93. Simpson CR, Sheikh A. Understanding the reasons for poor asthma outcomes in ethnic minorities: welcome progress, but important questions remain. C in Exp Allergy 2007;37:1730-2.
94. Sheikh A, Griffiths C. Tackling ethnic inequalities in asthma. We now need results. Respir Med 2005;99:381-3.
95. Brewin P, Jones A, Kelly M, et al. Is screening for tuberculosis acceptable to immigrants? A qualitative study. J Pub ic Hea th 2006;28:253-60.
96. Griffiths C, Sturdy P, Brewin P, et al. Educational outreach to promote screening for tuberculosis in primary care: a cluster randomised controlled trial. Lancet 2007;369:1528-34.