메뉴 건너뛰기




Volumn 18, Issue 2, 2009, Pages 173-184

Professional ambivalence: Accounts of ethical practice in childhood genetic testing

Author keywords

Accounts; Genetic counseling; Genetic testing of children; Judgement; Professional ethics; Rhetorical discourse analysis

Indexed keywords

AMBIVALENCE; ARTICLE; CHARACTER; CHILD ADVOCACY; CHILD PARENT RELATION; FAMILY; GENETIC SCREENING; HEALTH CARE MANAGEMENT; HEALTH PERSONNEL ATTITUDE; HUMAN RELATION; HUMAN RIGHTS; INTERVIEW; MEDICAL DECISION MAKING; MEDICAL ETHICS; MEDICAL RESEARCH; PROFESSIONAL PRACTICE; RESPONSIBILITY; SPEECH;

EID: 62549165132     PISSN: 10597700     EISSN: 15733599     Source Type: Journal    
DOI: 10.1007/s10897-008-9201-0     Document Type: Article
Times cited : (30)

References (35)
  • 1
    • 62549102609 scopus 로고
    • Sage London
    • Antaki, C. (1988). Analyzing everyday explanation: A case book of methods. London: Sage.
    • (1988)
    • Antaki, C.1
  • 2
    • 43049148713 scopus 로고    scopus 로고
    • Managing self responsibility through other-oriented blame: Family accounts of genetic testing
    • M. Arribas-Ayllon S. Sarangi A. Clarke 2008 Managing self responsibility through other-oriented blame: family accounts of genetic testing Social Science & Medicine 66 1521 1532
    • (2008) Social Science & Medicine , vol.66 , pp. 1521-1532
    • Arribas-Ayllon, M.1    Sarangi, S.2    Clarke, A.3
  • 3
    • 39449116878 scopus 로고    scopus 로고
    • Micropolitics of responsibility vis-à-vis autonomy: Parental accounts of childhood genetic testing and (non)disclosure
    • M. Arribas-Ayllon S. Sarangi A. Clarke 2008 Micropolitics of responsibility vis-à-vis autonomy: parental accounts of childhood genetic testing and (non)disclosure Sociology of Health & Illness 30 2 255 271
    • (2008) Sociology of Health & Illness , vol.30 , Issue.2 , pp. 255-271
    • Arribas-Ayllon, M.1    Sarangi, S.2    Clarke, A.3
  • 4
    • 57349196473 scopus 로고    scopus 로고
    • Adolescent carrier testing in practice: The impact of legal rulings and problems with "gillick competence"
    • (online): doi: 10.1007/s10897-008-9192-x
    • Boddington, P. and Gregory, M. (2008) Adolescent carrier testing in practice: the impact of legal rulings and problems with "Gillick competence". Journal of Genetic Counseling, 29 (online): doi: 10.1007/s10897-008-9192-x.
    • (2008) Journal of Genetic Counseling , vol.29
    • Boddington, P.1    Gregory, M.2
  • 5
    • 62549086234 scopus 로고
    • The University of Chicago Press Chicago
    • Bosk, C. (1992). All god's mistakes: Genetic Counseling in a Paediatric Clinic. Chicago: The University of Chicago Press.
    • (1992)
    • Bosk, C.1
  • 7
    • 36349012399 scopus 로고    scopus 로고
    • Attitudes regarding carrier testing in incompetent children: A survey of European clinical geneticists
    • P. Borry T. Goffin H. Nys K. Dierickx 2007 Attitudes regarding carrier testing in incompetent children: a survey of European clinical geneticists European Journal of Human Genetics 15 1211 1217
    • (2007) European Journal of Human Genetics , vol.15 , pp. 1211-1217
    • Borry, P.1    Goffin, T.2    Nys, H.3    Dierickx, K.4
  • 8
    • 0038621620 scopus 로고    scopus 로고
    • A survey of genetic counselors' strategies for addressing ethical and professional challenges in practice
    • M. A. Bower P. McCarthy Veach D. M. Bartels B. S. LeRoy 2002 A survey of genetic counselors' strategies for addressing ethical and professional challenges in practice Journal of Genetic Counseling 11 3 163 186
    • (2002) Journal of Genetic Counseling , vol.11 , Issue.3 , pp. 163-186
    • Bower, M.A.1    McCarthy Veach, P.2    Bartels, D.M.3    Leroy, B.S.4
  • 10
    • 0038491494 scopus 로고    scopus 로고
    • Professional and personal attitudes about access and confidentiality in the genetic testing of children: A pilot study
    • E. Campbell L. F. Ross 2003 Professional and personal attitudes about access and confidentiality in the genetic testing of children: a pilot study Genetic Testing 7 123 130
    • (2003) Genetic Testing , vol.7 , pp. 123-130
    • Campbell, E.1    Ross, L.F.2
  • 11
    • 62549127013 scopus 로고    scopus 로고
    • The right not to know: A challenge for accurate self-assessment
    • R. F. Chadwick 2004 The right not to know: A challenge for accurate self-assessment Philosophy, Psychiatry, & Psychology 11 4 299 301
    • (2004) Philosophy, Psychiatry, & Psychology , vol.11 , Issue.4 , pp. 299-301
    • Chadwick, R.F.1
  • 12
    • 0030348208 scopus 로고    scopus 로고
    • Predictive and carrier testing of children: Professional dilemmas for clinical geneticists
    • A. Chapple C. May P. Campion 1996 Predictive and carrier testing of children: professional dilemmas for clinical geneticists European Journal of Genetics in Society 2 2 28 38
    • (1996) European Journal of Genetics in Society , vol.2 , Issue.2 , pp. 28-38
    • Chapple, A.1    May, C.2    Campion, P.3
  • 13
    • 0027945216 scopus 로고
    • The genetic testing of children (Working Party of the Clinical Genetics Society, UK)
    • A. J. Clarke 1994 The genetic testing of children (Working Party of the Clinical Genetics Society, UK) Journal of Medical Genetics 31 785 797
    • (1994) Journal of Medical Genetics , vol.31 , pp. 785-797
    • Clarke, A.J.1
  • 15
    • 0022504102 scopus 로고
    • Ethics of predictive testing for Huntington's chorea: The need for more information
    • D. I. Craufurd R. Harris 1986 Ethics of predictive testing for Huntington's chorea: the need for more information British Medical Journal 26-293 6541 249 51
    • (1986) British Medical Journal , vol.26-293 , Issue.6541 , pp. 249-51
    • Craufurd, D.I.1    Harris, R.2
  • 16
    • 0031087198 scopus 로고    scopus 로고
    • Genetic dilemmas and the child's right to an open future
    • D. S. Davis 1997 Genetic dilemmas and the child's right to an open future The Hastings Center Report 27 7 15
    • (1997) The Hastings Center Report , vol.27 , pp. 7-15
    • Davis, D.S.1
  • 19
    • 0033181470 scopus 로고    scopus 로고
    • Doing the right thing: Genetic risk and responsibility
    • N. Hallowell 1999 Doing the right thing: genetic risk and responsibility Sociology of Health & Illness 21 597 621
    • (1999) Sociology of Health & Illness , vol.21 , pp. 597-621
    • Hallowell, N.1
  • 22
    • 0025301920 scopus 로고
    • Should we test children for adult genetic diseases?
    • P. S. Harper A. Clarke 1990 Should we test children for adult genetic diseases? Lancet 335 1205 1206
    • (1990) Lancet , vol.335 , pp. 1205-1206
    • Harper, P.S.1    Clarke, A.2
  • 23
    • 0032433461 scopus 로고    scopus 로고
    • The autonomy paradox: Predictive genetic testing and autonomy: Three essential problems
    • A. K. Huibers A. van 't Spijker 1998 The autonomy paradox: predictive genetic testing and autonomy: three essential problems Patient Education and Counseling 35 53 62
    • (1998) Patient Education and Counseling , vol.35 , pp. 53-62
    • Huibers, A.K.1    Van 'T Spijker, A.2
  • 24
    • 0042016041 scopus 로고
    • Charlottesville, VA: Center for Biomedical Ethics and Division of Medical Genetics, University of Virginia
    • Maley, J. A. (1994). An ethicscasebook for genetic counsellors. Charlottesville, VA: Center for Biomedical Ethics and Division of Medical Genetics, University of Virginia.
    • (1994) An Ethicscasebook for Genetic Counsellors
    • Maley, J.A.1
  • 25
    • 0035319315 scopus 로고    scopus 로고
    • Ethical and professional challenges posed by patients with genetic concerns: A report of focus group discussions with genetic counselors, physicians, and nurses
    • P. McCarthy Veach D. M. Bartels B. S. LeRoy 2001 Ethical and professional challenges posed by patients with genetic concerns: a report of focus group discussions with genetic counselors, physicians, and nurses Journal of Genetic Counseling 10 2 97 119
    • (2001) Journal of Genetic Counseling , vol.10 , Issue.2 , pp. 97-119
    • McCarthy Veach, P.1    Bartels, D.M.2    Leroy, B.S.3
  • 27
    • 84937307837 scopus 로고
    • 'Well ordinarily i would, but': Reexamining the nature of accounts for problematic events
    • G. H. Morris C. H. White R. Iltis 1994 'Well ordinarily I would, but': reexamining the nature of accounts for problematic events Research on Language and Social Interaction 27 2 123 144
    • (1994) Research on Language and Social Interaction , vol.27 , Issue.2 , pp. 123-144
    • Morris, G.H.1    White, C.H.2    Iltis, R.3
  • 28
    • 0036970245 scopus 로고    scopus 로고
    • What 'most people' do. Exploring the ethical implications of genetic counseling
    • A. Pilnick 2002 What 'most people' do. Exploring the ethical implications of genetic counseling New Genetics & Society 21 339 350
    • (2002) New Genetics & Society , vol.21 , pp. 339-350
    • Pilnick, A.1
  • 29
    • 85010599311 scopus 로고
    • Chromosomes and communication: The discourse of genetic counseling
    • R. Rapp 1988 Chromosomes and communication: the discourse of genetic counseling Medical Anthropology Quarterly 2 144 157
    • (1988) Medical Anthropology Quarterly , vol.2 , pp. 144-157
    • Rapp, R.1
  • 30
    • 20144381633 scopus 로고    scopus 로고
    • Theme-oriented discourse analysis of medical encounters
    • C. Roberts S. Sarangi 2005 Theme-oriented discourse analysis of medical encounters Medical Education 39 632 640
    • (2005) Medical Education , vol.39 , pp. 632-640
    • Roberts, C.1    Sarangi, S.2
  • 31
    • 0036132311 scopus 로고    scopus 로고
    • Constructing an account by contrast in counselling for childhood genetic testing
    • S. Sarangi A. Clarke 2002 Constructing an account by contrast in counselling for childhood genetic testing Social Science & Medicine 54 295 308
    • (2002) Social Science & Medicine , vol.54 , pp. 295-308
    • Sarangi, S.1    Clarke, A.2
  • 33
    • 84970268705 scopus 로고
    • 'K is mentally ill: The anatomy of a factual account'
    • D. Smith 1978 'K is mentally ill: the anatomy of a factual account' Sociology 12 23 53
    • (1978) Sociology , vol.12 , pp. 23-53
    • Smith, D.1
  • 34
    • 0033037381 scopus 로고    scopus 로고
    • Norms and prenorms on prenatal diagnosis: New ways to deal with morality in counseling
    • D. van Berkel C. van der Weele 1999 Norms and prenorms on prenatal diagnosis: new ways to deal with morality in counseling Patient Education and Counseling 37 153 163
    • (1999) Patient Education and Counseling , vol.37 , pp. 153-163
    • Van Berkel, D.1    Van Der Weele, C.2
  • 35
    • 18844470333 scopus 로고    scopus 로고
    • Ethics and practice: Two worlds? the example of genetic counseling
    • K. Wüstner 2003 Ethics and practice: two worlds? The example of genetic counseling New Genetics & Society 22 1 61 87
    • (2003) New Genetics & Society , vol.22 , Issue.1 , pp. 61-87
    • Wüstner, K.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.