Sexual and reproductive health knowledge in cystic fibrosis female patients and their parents

Journal of Sexual Medicine

Volumn 6, Issue 3, 2009, Pages 770-776

  Korzeniewska, Aleksandra ^a   Grzelewski, Tomasz ^a   Jerzyńska, Joanna ^a   Majak, Paweł ^a   Sołoniewicz, Anna ^a   Stelmach, Włodzimierz ^b   Stelmach, Iwona ^a  

^a N Copernicus Regional Hospital   (Poland)

^b MEDICAL UNIVERSITY OF LODZ   (Poland)

Author keywords

Adolescents; Contraception; Cystic fibrosis; Fertility; Psychosocial issues; Puberty

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; ATTITUDE TO SEXUALITY; CONTRACEPTION; CYSTIC FIBROSIS; EDUCATION PROGRAM; FEMALE; FEMALE FERTILITY; HEALTH BEHAVIOR; HUMAN; MAJOR CLINICAL STUDY; MALE FERTILITY; MEDICAL INFORMATION; PARENT; POLAND; PRIORITY JOURNAL; REPRODUCTIVE HEALTH; SAFE SEX; SEXUAL EDUCATION; SEXUAL HEALTH; SEXUAL INTERCOURSE;

EID: 61549138143     PISSN: 17436095     EISSN: 17436109     Source Type: Journal    
DOI: 10.1111/j.1743-6109.2008.01049.x     Document Type: Article

References (34)

1. Elborn JS, Shale DJ, Britton JR. Cystic fibrosis: Current survival and population estimates to the year 2000. Thorax 1991;46:881-5.
2. Sawyer SM. Reproductive health in young people with cystic fibrosis. Curr Opin Pediatr 1995;7:376-80.
3. Sawyer SM, Farrant B, Cerritelli B, Wilson J. A survey of sexual and reproductive health in men with cystic fibrosis: New challenges for adolescent and adult services. Thorax 2000;60:326-30.
4. Hull S, Kass N. Adults with cystic fibrosis and (in)fertility: How has the health care system responded? J Androl 2000;21:809-13.
5. Sawyer SM, Tully MA, Colin AA. Reproductive and sexual health in males with cystic fibrosis: A case for health professional education and training. J Adolesc Health 2001;28:36-40.
6. Pastore L, Owens A, Raymond C. Postpartum sexuality concerns among first-time parents from one U.S. academic hospital. J Sex Med 2007;4:115-23.
7. Erol B, Sanli O, Korkmaz D, Seyhan A, Akman T, Kadioglu A. A cross-sectional study of female sexual function and dysfunction during pregnancy. J Sex Med 2007;4:1381-87.
8. Song SH, Jeon H, Kim SW, Paick JS, Son H. The prevalence and risk factors of female sexual dysfunction in young Korean women: An internet-based survey. J Sex Med 2008;5:1694-701.
9. Hayes RD, Dennerstein L, Bennett CM, Sidat M, Gurrin LC, Fairley CK. Risk factors for female sexual dysfunction in the general population: Exploring factors associated with low sexual function and sexual distress. J Sex Med 2008;5:1681-93.
10. Mulhall J, King R, Glina S, Hvidsten K. Importance of and satisfaction with sex among men and women worldwide: Results of the global better sex survey. J Sex Med 2008;5:788-95.
11. Voorham-van der Zalm PJ, Lycklama àNijeholt GAB, Elzevier HW, Putter H, Pelger RCM. "Diagnostic Investigation of the Pelvic Floor": A helpful tool in the approach in patients with complaints of micturition, defecation, and/or sexual dysfunction. J Sex Med 2008;5:864-71.
12. Goldstein I. Current management strategies of the postmenopausal patient with sexual health problems. J Sex Med2007;4(suppl. 3):235-53.
13. Sawyer S. Reproductive and sexual health. In: Hodson M, Geddes D, eds. Cystic fibrosis. 2nd edition. London: Arnold; 2003: 301-12.
14. Roberts S, Green P. The sexual health of adolescents with cystic fibrosis. J Royal Soc Med 2005;98:7-16.
15. Goss CH, Rubenfeld GD, Otto K, Aitken ML. The effect of pregnancy on survival in women cystic fibrosis. Chest 2003;124:1460-8.
16. Johannesson M. Effects of pregnancy on health: Certain aspects of importance for women with cystic fibrosis. J Cyst Fibrosis 2002;1:9-12.
17. Johannesson M, Carlson M, Brucefors AB, Hjelte, L. Cystic fibrosis through a female perspective: Psychosocial issue and information concerning puberty and motherhood. Patient Educ Couns 1998;34:115-23.
18. Nixon GM, Glazner JA, Martin JM, Sawyer SM. Female sexual health care in cystic fibrosis. Arch Dis Child 2003;88:265-6.
19. Fair A, Griffiths K, Osman LM. Attitudes to fertility issues among adults with cystic fibrosis in Scotland. Thorax 2000;55:672-7.
20. Sawyer SM, Phelan PD, Bowes G. Reproductive health in young women with cystic fibrosis: Knowledge, behavior and attitudes. J Adolesc Health 1995;17:46-50.
21. Sawyer SM, Tully MM, Dovey ME, Colin AA. Reproductive health in males with cystic fibrosis: Knowledge, attitudes and experiences of patients and parents. Pediatr Pulminol 1998;25:226-30.
22. Stepniak-Ziólkiewicz I, Pierzchala W. Cystic fibrosis and pregnancy. Wiad Lek 2002;55:346-50.
23. Korzeniewska A, Smejda K, Skorupa W, Stelmach I. Pregnancy in cystic fibrosis patients-investigational study. Pneumonol Alergol Pol 2005;73:71-5.
24. Edenborough FP. Women with CF and their potential for reproduction. Thorax 2001;56: 649-56.
25. Nowicka W. Ustawa antyaborcyjna w Polsce. Funkcjonowanie, skutki społeczne, postawy i zachowania. Raport - Wrzesień 2000. Available at: http://www.federa.org.pl/publikacje/raporty/aborcja2000 (accessed March 1, 2008).
26. Misiecka E, Trojan M, Durka B, Galica M, Izdebski Z, Lis A. Inicjacja seksualna po polsku. Available at: http://www.tns-global.pl/ archive-report/id/1334 (accessed March 1, 2008).
27. Fitzpatrick SB, Stokes DC, Rosenstein BJ, Terry P, Hubbard VS. Use of oral contraceptives in women with cystic fibrosis. Chest 1984;86:863-7.
28. Orme M, Back DJ. Oral contraceptive steroids-pharmacological issues of interest to the prescribing physician. Adv Contraception 1991;7:325-31.
29. Stead RJ, Grimmer SF, Rogers SM, Back DJ, Orme ML, Hodson ME, Batten JC. Pharmoacokinetics of contraceptive steroids in patients with cystic fibrosis. Thorax 1987;42:59-64.
30. Sawyer SM, Rosier MJ, Phelan PD, Bowes G. The self-image of adolescents with cystic fibrosis. J Adolesc Health 1995;16:204-8.
31. Axworthy D, Brock DJ, Bobrow M, Marteau TM. Psychological impact of population-based carrier testing for cystic fibrosis: Three-year follow-up. UK Cystic Fibrosis Follow-Up Study Group. Lancet 1996;347: 1443-6.
32. Gilljam M, Antoniou M, Shin J, Dupuis A, Corey M, Tullis DE. Pregnancy in cystic fibrosis. Fetal and maternal outcome. Chest 2000;118:85-91.
33. Hames A, Beesley J, Nelson R. Cystic fibrosis: What do patients know, and what else would they like to know? Respir Med 1991;85:389-92.
34. Nolan T, Desmond K, Herlich R, Hardy S. Knowledge of cystic fibrosis in patients and their parents. Pediatrics 1986;77:229-35.