Psychological impact of population-based carrier testing for cystic fibrosis: 3-year follow-up

Lancet

Volumn 347, Issue 9013, 1996, Pages 1443-1446

  Axworthy, David ^a   Brock, David J H ^b   Bobrow, Martin ^c   Marteau, Theresa M ^a  

^a KING'S COLLEGE LONDON   (United Kingdom)

^b UNIVERSITY OF EDINBURGH   (United Kingdom)

^c UNIVERSITY OF CAMBRIDGE   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ANXIETY; ARTICLE; CYSTIC FIBROSIS; FEMALE; FOLLOW UP; HEALTH STATUS; HETEROZYGOTE; HUMAN; MAJOR CLINICAL STUDY; MALE; PATIENT COUNSELING; PRENATAL DIAGNOSIS; PRIORITY JOURNAL; QUESTIONNAIRE; SCREENING; SELF CONCEPT;

EID: 0029898347     PISSN: 01406736     EISSN: None     Source Type: Journal    
DOI: 10.1016/S0140-6736(96)91683-9     Document Type: Article

References (24)

1. Royal College of Physicians. Prenatal diagnosis and genetic screening: community and service implications. London: Royal College of Physicians, 1989.
2. Kerem B, Rommens JM, Buchan JA, et al. Identification of the cystic fibrosis gene: genetic analysis. Science 1989; 245: 1073-80.
3. Riordan JR, Rommens JM, Kerem B, et al. Identification of the cystic fibrosis gene: cloning and characterisation of complimentary DNA. Science 1989; 245: 1066-73.
4. Rommens JM, Iannuzzi MC, Kerem B, et al. Identification of the cystic fibrosis gene: chromosome walking and jumping. Science 1989; 245: 1059-65.
5. Bekker H, Modell M, Dennis G. Uptake of cystic fibrosis carrier testing in primary care: supply push or demand pull? BMJ 1993; 306: 1584-86.
6. Watson EK, Mayall E, Chapple J, Harrington K, Williams C, Williamson R. Screening for carriers of cystic fibrosis through primary health care services. BMJ 1991; 303: 504-07.
7. Mennie M, Compton M, Gilfillan A, et al. Prenatal screening for cystic fibrosis: psychological effects on carriers and their partners. J Med Genet 1993; 30: 543-48.
8. Miedzybrodska Z, Hall M, Mollinson J, et al. Antenatal screening for carriers of cystic fibrosis: randomised trial of stepwise vs couple screening. BMJ 1995; 310: 353-57.
9. Harris H, Scotcher D, Hartley N, Wallace A, Craufurd D, Harris R. Cystic fibrosis carrier testing in early pregnancy by general practitioners. BMJ 1993; 306: 1580-83.
10. Bekker H, Dennis G, Modell M, Bobrow M, Marteau T. The impact of screening for carriers of cystic fibrosis. J Med Genet 1994; 31: 364-68.
11. Watson E, Mayall E, Lamb J, Chapple J, Williamson B. Psychological and social consequences of community carrier screening programme for cystic fibrosis. Lancet 1992; 340: 217-20.
12. Livingstone J, Axton R, Gilfillan A, et al. Antenatal screening for cystic fibrosis: a trial of the couple model. BMJ 1994; 308: 1459-62.
13. Marteau TM, Bekker H. The development of a six-item short-form of the state scale of the Spielberger state-trait anxiety inventory (STAI). Br J Clin Psychol 1992; 31: 301-06.
14. Goldberg D, Williams P. A user's guide to the general health questionnaire. Windsor: NFER-Nelson, 1988.
15. Marteau TM, van Duijn M, Ellis I. Effects of genetic screening on perceptions of health: a pilot study. J Med Genet 1992; 29: 24-26.
16. Ware JE, Sherbourne CD. The MOS 36-item short-form health survey (SF-36): I conceptual framework and item selection. Med Care 1992; 30: 473-83.
17. Mitchell J, Scriver CR, Clow CL, Kaplan F. What young people think and do when the option for cystic fibrosis carrier testing is available. J Med Genet 1993; 30: 538-42.
18. Slovic P. Perception of risk. Science 1987; 236: 280-85.
19. Croyle RT, Jemmot JB. Psychological reactions to risk factor testing. In: Skelton JA, Croyle RT, eds. Mental representation in health and illness. New York: Springer-Verlag, 1991: 85-107.
20. Leventhal H, Nerenz DR, Steele DJ. Illness representations and coping with health threats. In: Baum A, Taylor SE, Singer JE, eds. Handbook of psychology and health, vol 4. Hillsdale: Erlbaum, 1984: 219-52.
21. Roberts L. Cystic fibrosis screening delayed for a while, perhaps forever. Science 1990; 247: 1296-97.
22. Zeesman S, Clow CL, Cartier L, Scriver CR. A private view of heterozygosity: eight-year follow-up study on carriers of the Tay-Sachs gene detected by high school screening in Montreal. Am J Med Genet 1984; 18: 769-78.
23. Report of the genetics research advisory group: a first report to the NHS central research and development committee on the new genetics. London: HM Stationery Office, 1995.
24. The genetics of common diseases: a second report to the NHS central research and development committee on the new genetics. London: HM Stationery Office, 1995.