Quality of life in children with acute lymphoblastic leukaemia: A systematic review

European Journal of Oncology Nursing

Volumn 13, Issue 1, 2009, Pages 36-48

  Savage, E ^a   Riordan, A O ^a   Hughes, M ^a  

^a UNIVERSITY COLLEGE CORK   (Ireland)

Author keywords

Acute lymphoblastic leukaemia; Child; Quality of life; Systematic review

Indexed keywords

ACUTE LYMPHOBLASTIC LEUKEMIA; ADAPTIVE BEHAVIOR; ARTICLE; ATTITUDE TO HEALTH; CHILD; CHILD PSYCHOLOGY; CROSS-SECTIONAL STUDY; HEALTH SERVICE; HUMAN; LONGITUDINAL STUDY; METHODOLOGY; NURSING METHODOLOGY RESEARCH; NURSING THEORY; ONCOLOGY NURSING; ORGANIZATION AND MANAGEMENT; PARENT; PROSPECTIVE STUDY; PSYCHOLOGICAL ASPECT; PSYCHOLOGICAL THEORY; QUALITATIVE RESEARCH; QUALITY OF LIFE; RETROSPECTIVE STUDY;

ADAPTATION, PSYCHOLOGICAL; ATTITUDE TO HEALTH; CHILD; CHILD PSYCHOLOGY; CROSS-SECTIONAL STUDIES; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; LONGITUDINAL STUDIES; NURSING METHODOLOGY RESEARCH; NURSING THEORY; ONCOLOGIC NURSING; PARENTS; PRECURSOR CELL LYMPHOBLASTIC LEUKEMIA-LYMPHOMA; PROSPECTIVE STUDIES; PSYCHOLOGICAL THEORY; QUALITATIVE RESEARCH; QUALITY OF LIFE; RESEARCH DESIGN; RETROSPECTIVE STUDIES;

EID: 61449265013     PISSN: 14623889     EISSN: 15322122     Source Type: Journal    
DOI: 10.1016/j.ejon.2008.09.001     Document Type: Article

References (29)

1. Bhatia S. Late effects among survivors of leukaemia during childhood and adolescence. Blood Cells, Molecules and Diseases 31 (2003) 84-92
2. Bhatia S., Jenney M., Wu E., Bogue M., Rockwood T., Feusner J., Friedman D., Robson L., and Kane R. The Minneapolis-Manchester quality of life instrument: reliability and validity of the youth form. The Journal of Pediatrics 145 (2004) 39-46
3. Coebergh J.W.W., Reedijk A.M.J., de Vries E., Martos C., Jakab Z., Steliarova-Foucher E., and Kamps W.A. Leukaemia incidence and survival in children and adolescents in Europe during 1978-1997. Report from the automated childhood cancer information system project. European Journal of Cancer 42 (2006) 2019-2036
4. Cholby-Graham M.F., and Chordas C. The childhood leukemias. Journal of Pediatric Nursing 18 (2003) 87-95
5. Earle E.A., and Eiser C. Children's behaviour following diagnosis of acute lymphoblastic leukemia: a qualitative longitudinal study. Clinical Child Psychology and Psychiatry 12 (2007) 281-293
6. Eiser C., Eiser J.R., and Stride C.B. Quality of life in children newly diagnosed with cancer and their mothers. Health and Quality of Life Outcomes 3 (2005) 385-391
7. Eiser C., and Jenney M. Measuring quality of life. Archives of Disease in Childhood 92 (2007) 348-350
8. Eiser C., and Morse R. Quality of life in chronic diseases of childhood. Health Technology Assessment 5 (2001) 1-157
9. Glaser B., and Strauss A. The Discovery of Grounded Theory: Strategies for Qualitative Research (1967), Weidenfeld and Nicolson, London
10. Hardt J., Buchwald D., Wilks D., Sharpe M., Nix W., and Egle U. Health-related quality of life in patients with chronic fatigue syndrome: an international study. Journal of Psychosomatic Research 51 (2001) 431-434
11. Hicks J., Bartholomew J., Ward-Smith P., and Hutto C.J. Quality of life among childhood leukemia patients. Journal of Pediatric Oncology Nursing 20 (2003) 192-200
12. Hyde M., Wiggins R., Higgs P., and Blane D. A measure of quality of life in early old age: the theory, development and properties of a needs satisfaction model (Casp-19). Aging and Mental Health 7 (2003) 186-194
13. Meeske K., Katz E.R., Palmer S.N., Burwinkle T., and Varni J.W. Parent proxy-reported health related quality of life and fatigue in pediatric patients diagnosed with brain tumours and acute lymphoblastic leukemia. Cancer 101 (2004) 2116-2125
14. Pickard A.S., Topfer L., and Feeny D.H. A structured review of studies on health related quality of life and economic evaluation in pediatric acute lymphoblastic leukemia. Journal of the National Cancer Institute Monographs 33 (2004) 102-125
15. Plasschaert S., Kamps W., Vellenga E., de Vries E., and de Bont E. Prognosis in childhood and adult acute lymphoblastic leukaemia: a question of maturation?. Cancer Treatment Reviews 30 (2004) 37-51
16. Popay J., Rogers A., and Williams G. Rationale and standards for the systematic review of qualitative literature in health services research. Qualitative Health Research 8 (1998) 341-351
17. Register M.E., and Herman J. A middle range theory for generative quality of life for the elderly. Advances in Nursing Science 29 (2006) 340-350
18. Shankar S., Robison L., Jenney M., Rockwood T., Wu E., Feusner J., Friedman D., Kane R., and Bhatia S. Health-related quality of life in young survivors of childhood cancer using the Minneapolis-Manchester quality of life-youth form. Pediatrics 115 (2005) 435-442
19. Schmiegelow K., and Gustafsson G. Acute lymphoblastic leukaemia. In: Voûte P., Barrett A., Stevens M., and Caren H. (Eds). Cancer in Children: Clinical Management (2005), Open University Press, USA 138-170
20. Tsimicalis A., Stinson J., and Stevens B. Quality of life of children following bone marrow transplantation: critical review of the research literature. European Journal of Oncology Nursing 9 (2005) 218-238
21. Vance Y.H., Morse R.C., Jenney M.E., and Eiser C. Issues in measuring quality of life in childhood cancer: measures, proxies and parental mental health. Journal of Child Psychology and Psychiatry 42 (2001) 661-667
22. Varni J., and Burwinkle T. Health related quality of life measurement in pediatric clinical practice: an appraisal and precept for future research and application. Health and Quality of Life Outcomes 3 (2005) 34
23. Varni J., Katz E., Seid M., Quiggins D., and Friedman-Bender A. The pediatric cancer quality of life inventory-32 (PCQL-32) 1. Reliability and validity. Cancer 82 (1998) 1184-1196
24. Varni J., Burwinkle T., Katz E., Meeske K., and Dickinson P. The PedsQL™ in pediatric cancer: reliability and validity of the pediatric quality of life inventory™ generic core scales, multidimensional fatigue scale, and cancer module. Cancer 94 (2002) 2090-2106
25. Viele C. Diagnosis, treatment and nursing care of acute leukemia. Seminars in Oncology Nursing 19 Suppl. (2003) 98-108
26. Walker L., and Avant K. Strategies for Theory Construction in Nursing. third ed. (1995), Prentice Hall, London
27. Wallander J. Theoretical and developmental issues in quality of life for children and adolescents. In: Koot H., and Wallander J. (Eds). Quality of Life in Children and Adolescent Illness: Concepts, Methods and Findings (2001), Routledge, East Sussex 23-48
28. Waters E.B., Wake M.A., Hesketh K.D., Ashley D.M., and Smibert E. Health related quality of life of children with acute lymphoblastic leukemia: comparisons and correlations between parent and clinician reports. International Journal of Cancer 103 (2003) 514-518
29. White-Koning M., Arnaud C., Dickinson H., Thyen U., Beckung E., Fauconnier J., McManus V., Michelsen S., Parkes J., Parkinson K., Schirripa G., and Colver A. Determinants of child-parent agreement in quality-of-life reports: a European study of children with cerebral palsy. Pediatrics 120 (2007) e804-e814