Quality of life of children following bone marrow transplantation: Critical review of the research literature

European Journal of Oncology Nursing

Volumn 9, Issue 3, 2005, Pages 218-238

  Tsimicalis, Argerie ^a,b   Stinson, Jennifer ^a,b   Stevens, Bonnie ^a,b  

^a UNIVERSITY OF TORONTO   (Canada)

^b HOSPITAL FOR SICK CHILDREN   (Canada)

Author keywords

Bone marrow transplantation; Child; Quality of life; Systematic review

Indexed keywords

EID: 23844466644     PISSN: 14623889     EISSN: 15322122     Source Type: Journal    
DOI: 10.1016/j.ejon.2004.08.006     Document Type: Article

References (57)

1. N.K. Aaronson B.E. Meyeravitz M. Bard et al. QOL research in oncology: past achievements and future priorities Cancer 67 1991 839-843
2. T.M. Achenbach S.H. McConaughy C.T. Howell Child/adolescent behavioural and emotional problems: Implications of cross-information correlations for situational specificity Psychological Bulletin 101 1987 213-232
3. M.A. Andrykowski Psychosocial factors in bone marrow transplantation: A review and recommendations for research Bone Marrow Transplantation 13 1994 357-375
4. I. Badell L. Igual P. Gomez et al. QOL in young adults having received a BMT during childhood: A GETMON study Bone Marrow Transplantation 21 Suppl. 2 1998 S68-S71
5. S. Bagnulo A.M. Giannini F. Moscatelli L. Stragapede Long-term effects of combined therapy in patients with beta-thalassemia major Pediatrica Medica e Chirurgica 20 1998 33-37 (abstr.)
6. M. Barrera L-A.B. Pringle K. Sumbler F. Saunders QOL and behavioral adjustment after pediatric bone marrow transplantation Bone Marrow Transplantation 26 2000 427-435
7. D.F. Brossart D.L. Clay V.L. Willson Methodological and statistical considerations for threats to internal validity in pediatric outcome data: Response shift in self-report outcomes Journal of Pediatric Psychology 27 2002 97-107
8. A.J. Carr B. Gibson P.G. Robinson Measuring QOL: Is QOL determined by expectation or experience? British Medical Journal 322 2001 1240-1243
9. S. Chiodi S. Spinelli G. Raver A.R. Petti M.T. Van Lint T. Lamparelli F. Gualandi D. Occhini N. Mordini G. Berisso S. Bregante F. Frassoni A. Bacigalupo Quality of life in 244 recipeints of allogeneic bone marrow transplantation British Journal of Haematology 110 2000 614-619
10. D.I. Czyzewski M.J. Mariotto K. Bartholomew S.H. LeCompte M.M. Sockrider Measurement of quality of well being in a child and adolescent cystic fibrosis population Medical Care 32 1994 965-972
11. E. DeMeyer M. Whedon B. Ferell QOL after transplantation In: M.B. Whedon D. Wujcik (Eds.) Blood and Marrow Stem Cell Transplantation: Principles, Practice, and Nursing Insights 1997 Jones and Bartlett Publishers Boston
12. M. Eapen K. Norma C. Ramsay A.C. Mertens L.L. Robins T. DeFor S.M. Davies Late outcomes after bone marrow transplant for aplastic anaemia British Journal of Haematology 111 2000 754-760
13. C. Eiser M.E. Jenney Measuring symptomatic benefit and quality of life in paediatric oncology British Journal of Cancer 73 11 1996 1313-1316
14. C. Eiser R. Morse Quality-of-life measure in chronic diseases of childhood Health Technology Assessment 5 4 2001 1-157
15. D. Feeny W. Furlong R.K. Mulhern R.D. Barr M. Hudson A framework for assessing health-related quality of life among children with cancer International Journal of Cancer 12 1999 2-9
16. B. Ferrell M. Grant G.M. Schmidt et al. The meaning of QOL for bone marrow transplant survivors. Part 1. The impact of bone marrow transplant on QOL Cancer Nursing 15 1992a 153-160
17. B. Ferrell M. Grant G.M. Schmidt et al. The meaning of QOL for bone marrow transplant survivors. Part 2. Improving QOL for bone marrow transplant survivors Cancer Nursing 15 1992b 247-253
18. M. Fuhrer C. Bender-Gotze W. Ebell et al. Treatment of aplastic anemia-aims and development of the SAA 94 pilot GERMAN Klinische Pediatrie 206 1994 289-295 (Abstract).
19. G.H. Guyatt E.F. Juniper L.E. Griffith D.H. Feeny P.J. Ferry Children and adult perceptions of childhood asthma Pediatrics 99 1997 165-168
20. M. Hagendoorn K.C.A. Sneeuv N.K. Aaranson Changes in physical functioning and quality of life in patients with cancer: Response shift and relative evaluation of one's condition Journal of Clinical Epidemiology 55 2002 176-183
21. S. Harter The perceived competence scale for children Child Development 53 1982 87-97
22. S. Harter Manual for the Self-Perception Profile for Adolescents 1988 University of Denver Colarado
23. D.I. Helder B. Bakker P. de Heer F. van der Veen J.M. Vossen J.M.J.J. Wit A.A. Kaptein Quality of life in adults following bone marrow transplantation during childhood Bone Marrow Transplantation 33 2004 329-336
24. M.J. Hjermstad S. Kaasa QOL in adult cancer patients treated with bone marrow transplantation - a review of the literature European Journal of Cancer 31A 1995 163-173
25. F. Hoodin S. Weber A systematic review of psychosocial factors affecting survival after bone marrow transplantation Psychosomatics 44 3 2003 181-195
26. D.J. Kanabar S. Attard-Montalto V. Saha et al. QOL in survivors of childhood cancer after megatherapy with autologous bone marrow rescue Pediatric Hematology and Oncology 12 1995 29-36
27. D.A. Karnofsky J.H. Burchenal The clinical evaluation of chemotherapeutic agents in cancer In: C.M. MacLeod (Ed.) Evaluation of Chemotherapeutic Agents 1949 Columbia University Press New York
28. S. Kato M. Yabe H. Yabe et al. Allogeneic bone marrow transplantation in childhood leukemia Acta Paediatrica Japonica 33 1991 548-557 (abstr.)
29. M.J. Kupst B. Penati B. Debban B. Camitta D. Pietryga D. Margolis K. Murray J. Casper Cognitive and psychosocial functioning of pediatric hematopoietic stem cell transplant patients: A prospective longitudinal study Bone Marrow Transplantation 30 2002 609-617
30. J.H. Langeveld H.M. Koot M.C.B. Loonen A.A.J.M. Hazebroek-Kampschreur J. Passchier A quality of life instrument for adolescents with chronic headache Cephalalgia 16 1996 183-196
31. L.L. Lansky M.A. List S.B. Lansky et al. Toward the development of a play performance scale for children (PPSC) Cancer 56 suppl. 7 1985 1837-1840
32. R. Levi D. Drotar Critical issues and needs in health-related QOL assessment of children and adolescents with chronic health conditions In: D. Drotar (Ed.) Measuring Health-Related QOL in Children and Adolescents: Implications for Research and Practice 1998 Lawrence Erlbaum Associates Mahwah, NJ
33. S. Matthes-Martin M. Lamche R. Ladenstein et al. Organ toxicity and QOL after allogeneic bone marrow transplantation in pediatric patients: A single centre retrospective analysis Bone Marrow Transplantation 23 1999 1049-1053
34. A. Molassiotis A conceptual model of adaptation to illness and QOL for cancer patients treated with bone marrow transplants Journal of Advanced Nursing 26 1997 572-579
35. L. Nespoli A.P. Verri F. Locatelli et al. The impact of paediatric bone marrow transplantation on QOL Quality of Life Research 4 1995 233-240
36. G. Norman Hi! How are you? Response-shift, implicit theories and differing epistemologies Quality of Life Research 12 2003 239-249
37. S.K. Parsons S.E. Barlow S.L. Levy et al. Health-related QOL in pediatric bone marrow transplant survivors: According to whom? International Journal of Cancer 12 1999a 46-51
38. S.K. Parsons S. Gelber B.F. Cole Y. Ravindranath A. Ogden A.M. Yeager M. Chang J. Shuster H.J. Weinstein R.D. Gelber Quality-adjusted survival after treatment for acute myeloid leukemia in childhood: A Q-TWIST analysis of the Pediatric Oncology Group Study 8821 Journal of Clinical Oncology 17 7 1999b 2144-2152
39. B. Pfefferbaum M.M. Lindamood F.M. Wiley Stages in pediatric bone marrow transplantation Pediatrics 61 1978 625-628
40. S. Phipps R.K. Mulhern Family cohesion and expressiveness promote resilience to the stress of pediatric bone marrow transplant: A preliminary report Journal of Developmental & Behavioral Pediatrics 16 1995 257-263
41. S. Phipps P.S. Hinds S. Channell G. Bell Measurement of behavioural, affective, and somatic responses to pediatric bone marrow transplantation: Development of the BASES scale Journal of Pediatric Oncology Nursing 11 1994 109-117
42. S. Phipps M. Dunavant D. Jayawardene D. Srivastiva Assessment of health-related QOL in acute in-patient settings: Use of the BASES instrument in children undergoing bone marrow transplantation International Journal of Cancer 12 Suppl 1999 18-24
43. S. Phipps M. Dunavant P.A. Garvie S. Lensing S.N. Rai Acute health-related QOL in children undergoing stem cell transplant: I. Descriptive outcomes Bone Marrow Transplantation 29 5 2002a 425-434
44. S. Phipps M. Dunavant S. Lensing S.N. Rai Acute health-related QOL in children undergoing stem cell transplant: II. Medical and demographic determinants Bone Marrow Transplantation 29 5 2002b 435-442
45. J. Sanders K. Sullivan R. Witherspoon C. Doney C. Anasetti P. Beatty F.B. Pertersen Long term effects and QOL in children and adults after marrow transplantation Bone Marrow Transplantation 4 Suppl 4 1989 27-29
46. G.M. Schmidt J.C. Niland S.J. Forman et al. Extended follow-up in 212 long-term allogeneic bone marrow transplant survivors: Issues of QOL Transplantation 55 1993 551-557
47. M.A.G. Sprangers C.E. Schwartz Integrating response shift into health-related quality of life research: A theoretical model Social Science & Medicine 48 11 1999 1507-1515
48. C.V. Strand S.A. Russell WHO/ILAR taskforce on QOL Journal of Rheumatology 24 1997 1630-1633
49. M.A. Testa D.C. Simonson Assessment of QOL outcomes New England Journal of Medicine 334 1996 835-840
50. C. Uderzo E. Biagi A. Rovelli et al. Bone marrow transplantation for childhood hemetological disorders: A global pediatric approach in a twelve-year single center experience Pediatrica Medica e Chirurgica 21 2000 157-163 (abstr.)
51. J.W. Varni Y. Setoguchi Screening for behavioral and emotional problems in children and adolescents with congenital or acquired limb deficiencies American Journal of Diseases of Children 146 1992 103-107
52. J.W. Varni E.R. Katz R. Colegrove M. Dolgin Adjustment of children with newly diagnosed cancer: Cross informant variance Journal of Psychosocial Oncology 13 1995 23-38
53. J.W. Varni E.R. Katz M. Seid D.J.L. Quiggins A. Friedman-Bender C.M. Castro The pediatric cancer quality of life inventory (PCQL), I: instrument development, descriptive statistics, and cross-informant variance Journal of Behavioral Medicine 21 1998 179-204
54. J.W. Varni T.M. Burwinkle E.R. Katz K. Meeske P. Dickinson The PedsQL in pediatric cancer. Reliability, and validity of the pediatric quality of life inventory generic core scale, multidimensional fatigue scale, and cancer module Cancer 94 2002 2090-2106
55. E. Waters Assessing QOL In: V.A. Moyer E.J. Elliott R.J. Davis R. Gilbert T. Klassen S. Logan C. Mellis K. Williams (Eds.) Evidence Based Pediatrics and Child Health 2000 British Medical Journal Books London
56. World Health Organization, Division of Mental Health Measurement of QOL in Children 1993 World Health Organization Geneva
57. U. Yusuf H.A. Frangoul T.A. Gooley A.E. Woolfrey P.A. Carpenter R.G. Andrews H.J. Deeg F.R. Appelbaum C. Anasetti R. Storb J.E. Sanders Allogenic bone marrow transplantation in children with myelodysplastic syndrome or juvenile myelomonocytic leukemia: The Seattle experience Bone Marrow Transplantation 33 2004 805-814