Parents' conceptions of intensive group training. The case of cerebral palsy

Disability and Rehabilitation

Volumn 31, Issue 4, 2009, Pages 293-301

  Odman P ^a   Richt, B ^a   Oberg B ^a  

^a LINKÖPING UNIVERSITY   (Sweden)

Author keywords

Cerebral palsy; Conductive education; Intensive group training; Qualitative research; Therapeutics

Indexed keywords

ADOLESCENT; ARTICLE; ATTITUDE TO HEALTH; CEREBRAL PALSY; CHILD; COHORT ANALYSIS; DAILY LIFE ACTIVITY; FEMALE; HUMAN; INTERVIEW; MALE; METHODOLOGY; OCCUPATIONAL THERAPY; PARENT; PATIENT ATTITUDE; PRESCHOOL CHILD;

ACTIVITIES OF DAILY LIVING; ADOLESCENT; CEREBRAL PALSY; CHILD; CHILD, PRESCHOOL; COHORT STUDIES; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; INTERVIEWS AS TOPIC; MALE; OCCUPATIONAL THERAPY; PARENTS; PATIENT ACCEPTANCE OF HEALTH CARE;

EID: 61349202200     PISSN: 09638288     EISSN: 14645165     Source Type: Journal    
DOI: 10.1080/09638280801945709     Document Type: Article

References (37)

1. King, S., Teplicky, R., King, G. and Rosenbaum, P. (2004) Family-centered service for children with cerebral palsy and their families: A review of the literature. Semin Pediatric Neurol, 11:1, pp. 78-86.
2. Rosenbaum, P., King, S., Law, M., King, G. and Evans, J. (1998) Family-centred cervice: A conceptional framework and research review. Phys Occupat Ther Pediatrics, 18, pp. 1-20.
3. Damiano, D. L. (2006) Activity, activity, activity: Rethinking our physical therapy approach to cerebral palsy. Phys Ther, 86, pp. 1534-1540.
4. Helders, P JM, Engelbert, R HH, Custers, J WH, Gorter, J. W., Takken, T. and Van Der Net, J. (2003) Creating and being created: The changing panorama of paediatric rehabilitation. Pediatric Rehabil, 6, pp. 5-12.
5. Ketelaar, M., Vermeer, A., Hart, H., van Petegem-van Beek and Helders, P JM (2001) Effects of a functional therapy program on motor abilities of children with cerebral palsy. Phys Ther, 81, pp. 1534-1545.
6. Law, M., Darrah, J., Pollock, N., King, G., Rosenbaum, P., Russell, D., Palisano, R., Harris, S., Armstrong, R. and Watt, J. (1998) Family-centred functional therapy for children with cerebral palsy. Phys Occupat Ther Pediatrics, 18, pp. 83-102.
7. Darrah, J., Law, M. and Pollock, N. (2001) Family-centered functional therapy - a choice for children with motor dysfunction. Infants Young Children, 13, pp. 79-87.
8. Raina, P., O'Donnell, M., Rosenbaum, P., Brehaut, J., Walter, S. D., Russel, D., Swinton, M. and Wood, E. (2005) The health and well-being of children with Cerebral Palsy. Pediatrics, 115, pp. 626-636.
9. Ekstom-Ahl, L., Johansson, E., Granat, T. and Brogren Carberg, E (2005) Functional therapy for children with cerebral palsy: An ecological approach. Develop Med Child Neurol, 47, pp. 613-619.
10. Reddihough, D. S., King, J., Coleman, G. and Catanese, T. (1998) Efficacy of programmes based on Conductive Education for young children with cerebral palsy. Develop Med Child Neurol, 40, pp. 763-770.
11. Hur, J. J. and Cochrane, R. (1995) Maternal stress and level of satisfaction with treatment for children undergoing conductive education. Int J Spec Educ, 10, pp. 54-62.
12. Bower, E., Michell, D., Burnett, M., Campbell, M. J. and McLellan, D. L. (2001) Randomized controlled trial of physiotherapy in 56 children with cerebral palsy followed for 18 months. Develop Med Child Neurol, 43, pp. 4-15.
13. Wright, F. V., Boschen, K. and Jutai, J. (2005) Exploring the comparative responsiveness of a core set of outcome measures in a school-based conductive education programme. Child Care Health Develop, 31, pp. 291-302.
14. Odman, P., Krevers, B. and Oberg, B. (2007) Parents' perceptions of the quality of two intensive training programmes for children with Cerebral Palsy. Develop Med Child Neurol, 49, pp. 93-100.
15. Catanese, A. A., Coleman, G. J., King, J. A. and Reddighough, D. S. (1995) Evaluation of an early childhood programme based on principles of conductive education: The yooralla project. J Paediatrics Child Health, 31, pp. 418-422.
16. Barnard, A., McCosker, H. and Gerber, R. (1999) Phenomenography: A qualitative research approach for exploring understanding in health care. Qualitative Health Res, 9, pp. 212-226.
17. Dahlgren, L. and Fallsberg, M. (1991) Phenomenography as a qualitative approach in social pharmacy research. J Soc Admin Pharmacy, 8, pp. 10-156.
18. Lymer, U. B. and Richt, B. (2006) Patients' conceptions of quality care and barrier care. J Eval Clin Pract, 12, pp. 682-691.
19. Marton, F. (1996) Cognosco ergo sum-reflections on reflections. Reflections on phenomenography: Toward a methodology?, pp. 163-187. Acta Universitatis Gothoburgensis, Gothenburg
20. Wood, E. and Rosenbaum, P. (2000) The gross motor function classification system for cerebral palsy: A study of reliability and stability over time. Develop Med Child Neurol, 42, pp. 292-296.
21. World Health Organization (WHO) International Classification of Functioning and Health (ICF) - child and youth version. 2004 WHO library cataloguing-in-publication data, Geneva
22. Odman, P. and Oberg, B. (2005) Effectiveness and expectations of intensive training: A comparison between child and youth rehabilitation and conductive education. Disabil Rehabil, 28, pp. 561-565.
23. Odman, P. and Oberg, B. (2005) Effectiveness of intensive training for children with Cerebral Palsy - a comparison between child and youth rehabilitation and conductive education. J Rehabil Med, 37, pp. 1-10.
24. Kvale, S. (1997) Den kvalitativa forskningsintervjun, 1, Studentlitteratur, Lund
25. Starrin, B. and Svensson, P. G. (1994) Kvalitativ metod och vetenskapsteori, Studentlitteratur, Lund
26. King, G., Law, M., King, S. and Rosenbaum, P. (1998) Parents' and service providers' perceptions of the family-centredness of children's rehabiliation services. Phys Occupat Ther Paediatrics, 18, pp. 21-40.
27. Darrah, J., Magil-Evans, J. and Adkins, R. (2002) How well are we doing? Families of adolescents or young adults with cerebral palsy share their perceptions of service delivery. Disabil Rehabil, 24, pp. 542-549.
28. Garwick, A. W., Pattersson, J. M., Bennett, F. C. and Blum, R. W. (1998) Parents' perceptions of helpful vs. unhelpful types of support in managing the care of preadolescents with chronic conditions. Arch Pediatr Adolesc Med, 152, pp. 665-671.
29. Dunst, C. J. and Trivette, C. M. (1996) Empowerment, effective helpgiving practices and family-centered care. Pediatr Nurs, 22, pp. 334-337.
30. Siebes, R. C., Wijnroks, L., Ketelaar, M., van Shie, P EM, Gorter, J. W. and Vermeer, A. (2007) Parent participation in paediatric rehabilitation treatment centres in the Netherlands: A parents' viewpoint. Child: Care Health Dev, 33, pp. 196-205.
31. Hinojosa, J. and Anderson, J. (1991) Mothers' perceptions of home treatment programs for their preschool children with cerebral palsy. Am J Occupat Ther, 45, pp. 273-279.
32. Leiter, V. (2004) Dilemmas in sharing care: Maternal provision of professionally driven therapy for children with disabilities. Soc Sci Med, 58, pp. 837-849.
33. King, G., King, S., Rosenbaum, P. and Goffin, R. (1999) Family-centered caregivning and well-being of parents of children with disabilities: Linking process with outcome. J Pediatric Psychol, 24, pp. 41-53.
34. Law, M., King, G., King, S., Kertoy, M., Hurley, P., Rosenbaum, P., Young, N. and Hanna, S. (2006) Patterns of participation in recreational and leisure activities among children with complex physical disabilities. Develop Med Child Neurol, 48, pp. 337-342.
35. Ekenberg, L. (2000) The meaning of physiotherapy: Experiences of parents of young adults with impairment, in Human Work Sciences, p. 84. Luleå University of technology, Luleå
36. Jansen, L. M., Ketelaar, M. and Vermeer, A. (2003) Parental experience of participation in physical therapy for children with physical disabilities. Develop Med Child Neurol, 45, pp. 58-69.
37. Ekenberg, L. (2001) The meaning of physiotherapy: Experiences of fathers and mothers of young adults with impairment. Adv Physiother, 3, pp. 76-85.