The principle of Caveat Emptor: Confidentiality and informed consent as endemic ethical Dilemmas in focus group research

Journal of Bioethical Inquiry

Volumn 6, Issue 1, 2009, Pages 99-108

  Tolich, Martin ^a  

^a UNIVERSITY OF OTAGO   (New Zealand)

Author keywords

Confidentiality; Ethics committees; Focus groups; Informed consent

Indexed keywords

EID: 60449111617     PISSN: 11767529     EISSN: 18724353     Source Type: Journal    
DOI: 10.1007/s11673-008-9124-3     Document Type: Article

References (37)

1. Bauman, Z. 1993. Postmodern ethics. Oxford: Blackwell.
2. Beauchamp, T., and J. Childress. 2001. Principles of biomedical ethics. New York: Oxford University Press.
3. C. Bosk R. De Vries 2004 Bureaucracies of mass deception: Institutional review boards and the ethics of ethnographic research American Academy of Political and Social Science 595 249 263
4. M. Carey 1994 The group effect in focus groups: Planning, implementing and interpreting focus group research J. Morse Critical Issues in Qualitative Research Methods Sage Thousand Oaks, CA 225 241
5. K. Detardo-Bora 2004 Action research in a world of positivist-oriented review Action Research 2 3 237 253
6. W. Duggleby 2005 What about focus group interaction data? Qualitative Health Research 15 6 832 840
7. Ellis, C. 1986. Fisher folk: Two communities on Chesapeake Bay. Lexington: University of Kentucky Press.
8. C. Ellis 1995 Emotional and ethical quagmires in returning to the field Journal of Contemporary Ethnography 24 68 98
9. Farquhar, C. 1999. Are focus groups suitable for 'sensitive' topics? In Developing focus groups research: Politics, theory and practice, eds. R. S. Barbour, and Kitzinger, J. London: Sage.
10. J. Field 2000 Researching lifelong learning through focus groups Journal of Further and Higher Education 24 3 323 335
11. E. Goffman 1952 On cooling out the mark Journal of Interpersonal Relations 15 4 451 463
12. Green, J., and L. Hart. 1999. The impact of context on data? In Developing focus groups research: Politics, theory and practice, eds. Barbour, R. S. and Kitzinger, J. London: Sage.
13. Homan, R. 1991. The ethics of social research. London: Longman.
14. L. Hyden P. Bulow 2003 Who's talking: drawing conclusions from focus groups: some methodological considerations Social Research Methodology 6 4 305 321
15. J. Kahan 2001 Focus groups as a tool for policy analysis Analyses of Social Issues and Public Policy (ASAP) 1 1 129 146
16. J. Kitzinger 1995 Introducing focus groups British Medical Journal 311 299 302
17. Kitzinger, J., and R. Barbour. 1999. Introduction: The challenge and promise of focus groups. In Developing focus groups research: Politics, theory and practice, eds. Barbour, R. S. and Kitzinger J. London: Sage.
18. Kitzinger, J., and C. Farquhar. 1999. The analytical potential of 'sensitive moments' in focus group discussions. In Developing focus groups research: Politics, theory and practice, eds. Barbour, R. S. and Kitzinger, J. London: Sage.
19. J. Knodel 1994 Conducting comparative focus groups research Health Transition Review 4 1 99 104
20. Krueger, R. 1997. Moderating focus groups. Thousand Oaks: Sage.
21. Kvale, S. 1996. Interviews: An introduction to qualitative research interviewing. Thousand Oaks: Sage.
22. Madriz, E. 2000. Focus groups in feminist research. In Handbook of qualitative research, eds. Denzin, N. K. and Lincoln, Y. S. Thousand Oaks: Sage.
23. Morgan, D. 1998. The focus group guidebook: Focus group kit, vol 1. Newbury Park: Sage, CA.
24. D. Morgan 1996 Focus groups Annual Review of Sociology 22 129 152 doi:10.1146/annurev.soc.22.1.129
25. Morgan, D. 1997. Focus groups as qualitative research. Thousand Oaks: Sage.
26. Morgan, D. 1993. Future directions for focus groups. In Successful focus groups: Advancing the state of the art, ed. D. Morgan. Thousand Oaks: Sage.
27. Morgan, D. 1988. Focus groups as qualitative research. Newbury Park: Sage, CA.
28. Myers, G., and P. Macnagthen. 1999. Can focus group be analysed as talk? In Developing focus groups research: Politics, theory and practice, eds. Barbour, R. S. and J. Kitzinger. London: Sage.
29. Rice, P., and D. Ezzy. 2002. Qualitative research methods: A health focus. Melbourne: Oxford University Press.
30. M. Smith 1995 Ethics in focus groups: a few concerns Qualitative Health Research 5 478 486
31. M. Tolich M. Fitzgerald 2006 If ethics committees were designed for ethnography Journal of Empirical Research on Human Research Ethics; JERHRE 1 2
32. M. Tolich 2004 Internal confidentiality: when confidentiality assurances fail relational informants Qualitative Sociology 27 101 106
33. Van den Hoonaard, W. 2002. Some concluding thoughts. In Walking the tightrope: Ethical issues for qualitative researchers, ed. W. Van den Hoonaard. Toronto: University of Toronto Press.
34. Whyte, W.F. 1981. [1943 printing]. Street corner society: The social structure of an Italian slum. Chicago: University of Chicago Press.
35. S. Wilkinson 1998 Focus group methodology: our view International Journal of Social Research Methodology. Theory into Practice 1 181 204
36. Wilkinson, S. 1999. How useful are focus groups in feminist research? In Developing focus groups research: Politics, theory and practice, eds. Barbour, R. S. and J. Kitzinger. London: Sage.
37. Zeller, R. 1993. Focus group research on sensitive topics. In Successful focus groups: Advancing the state of the art, ed. D. Morgan, Thousand Oaks: Sage.