Quality of life of family caregivers of children with autism: The mother's perspective

Autism

Volumn 13, Issue 1, 2009, Pages 81-91

  Shu, Bih Ching ^a  

^a NATIONAL CHENG KUNG UNIVERSITY   (Taiwan)

Author keywords

Autism; Family caregiver; Mother's perspective; Quality of life (QOL)

Indexed keywords

ADULT; ARTICLE; AUTISM; CAREGIVER; CAREGIVER BURDEN; CHRONIC DISEASE; EMOTION; FEMALE; HUMAN; MATERNAL ATTITUDE; MATERNAL STRESS; PHYSICAL PERFORMANCE; PRIORITY JOURNAL; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; RELIGION; SOCIAL ASPECT; TAIWAN;

ADAPTATION, PSYCHOLOGICAL; ADULT; CAREGIVERS; CHILD; CHRONIC DISEASE; COST OF ILLNESS; EMOTIONS; FEMALE; HUMANS; MIDDLE AGED; MODELS, PSYCHOLOGICAL; MOTHER-CHILD RELATIONS; QUALITY OF LIFE; QUESTIONNAIRES; RELIGION AND PSYCHOLOGY; SICK ROLE;

EID: 59649111533     PISSN: 13623613     EISSN: 14617005     Source Type: Journal    
DOI: 10.1177/1362361307098517     Document Type: Article

References (24)

1. Beck, A.T. (1978) The Depression Inventory. Philadelphia, PA: Center for Cognitive Therapy.
2. Beck, A.T., Steer, R.A. & Epstein, N. (1992) 'Self-Concept Dimensions of Clinically Depressed and Anxious Outpatients', Journal of Clinical Psychology 48 (4): 423-32.
3. Blanchard, C.G., Albrecht, T.L., Ruckdeschel, J.C., Grant, C.H. & Hemmel, R.M. (1995) 'The Role of Social Support in Adaptation to Cancer and to Survival', Journal of Psychosocial Oncology 13: 75-95.
4. Garwick, A.W., Kohrman, C., Wolman, C. & Blum, R.W. (1998) 'Families' Recommendations for Improving Services for Children with Chronic Conditions', Archives of Pediatrics & Adolescent Medicine 152: 440-8.
5. Hastings, R.P. & Brown, T. (2002) 'Behavior Problems of Children with Autism, Parental Self-Efficacy, and Mental Health', American Journal on Mental Retardation 107: 222-32.
6. Holmes, N. & Carr, J. (1991) 'The Pattern of Care in Families of Adults with a Mental Handicap: A Comparison between Families of Autistic Adults and Down Syndrome Adults', Journal of Autism and Developmental Disorders 21 (2): 159-76.
7. Jessop, D.J., Riessman, C.K. & Stein, R.E. (1988) 'Chronic Childhood Illness and Maternal Mental Health', Journal of Developmental and Behavioral Pediatrics 9: 147-56.
8. Joreskog, K.G. & Sorbom, D. (1993) LISREL 8: Structural Equation Modeling with the SIMPLIS Command Language. Hillsdale, NJ: Erlbaum.
9. Maslach, C. & Jackson, S.E. (1981) 'The Measurement of Experienced Burnout', Journal of Occupational Behavior 2: 99-113.
10. Rodrigue, J.R., Morgan, S.B. & Geffken, G.R. (1992) 'Psychosocial Adaptation of Fathers of Children with Autism, Down Syndrome, and Normal Development', Journal of Autism and Development Disorder 22 (2): 249-63.
11. Rutter, M. & Schopler, E. (1988) Diagnosis and Assessment in Autism. New York: Plenum.
12. Shu, B.C., Lung, F.W. & Chang, Y.Y. (2000) 'The Mental Health of Mothers with Autistic Children: A Case-Control Study in Southern Taiwan', Kaohsiung Journal of Medical Science 16: 308-14.
13. Shu, B.C., Hsieh, H.C., Hsieh, S.C. & Li, S.M. (2001) 'Toward an Understanding of Mothering: The Care Giving Process of Mothers with Autistic Children', Nursing Research 9: 203-13.
14. Shu, B.C., Lung, F.W. & Huang, C. (2002) 'Mental Health of Primary Family Caregivers with Children with Intellectual Disability Who Receive a Home Care Programme', Journal of Intellectual Disability Research 46: 257-63.
15. Simon, R.W. (1995) 'Gender, Multiple Roles, Role Meaning, and Mental Health', Journal of Health Social Behavior 36 (2): 182-94.
16. Simon, R.W. (1997) 'The Meanings Individuals Attach to Role Identities and Their Implications for Mental Health', Journal of Health Social Behavior 38 (3): 256-74.
17. Sivberg, B. (2002) 'Family System and Coping Behaviors: A Comparison between Parents of Children with Autistic Spectrum Disorders and Parents with Non-Autistic Children', Autism 6 (4): 397-409.
18. Tseng, W.S. (2001) Handbook of Cultural Psychiatry. California: Academic.
19. Vazquez, C., Cervellon, P., Perez-Sales, P., Vidales, D. & Gaborit, M. (2005) 'Positive Emotions in Earthquake Survivors in El Salvador (2001)', Journal of Anxiety Disorder 19: 313-28.
20. Weiss, M.J. (2002) 'Hardiness and Social Support as Predictors of Stress in Mothers of Typical Children, Children with Autism, and Children with Mental Retardation', Autism 6 (1): 115-30.
21. Whitaker, P. (2002) 'Supporting Families of Preschool Children with Autism', Autism 6 (4): 411 - 26.
22. Whoqol Group (1993) Measuring Quality of Life: The Development of the World Health Organization Quality of Life Instrument (WHOQOL). Geneva: WHO.
23. Yao, K.P. (2000) Manual and Development of the WHOQOL-BREF Taiwan Version. Taipei: Group for Development of WHOQOL-BREFT Taiwan Version.
24. Yao, G., Chung, C.W., Yu, C.F. & Wang, J.D. (2002) 'Development and Verification of Validity and of the WHOQOL-BREFT Taiwan Version', Journal of Formosa Medical Association 101: 342 - 51.