The validity and reliability of scales for the evaluation of end-of-life care in advanced dementia

Alzheimer Disease and Associated Disorders

Volumn 20, Issue 3, 2006, Pages 176-181

  Kiely, Dan K ^a,f   Volicer, Ladislav ^d   Teno, Joan ^e   Jones, Richard N ^a,b   Prigerson, Holly G ^c   Mitchell, Susan L ^a,b  

^a Hebrew SeniorLife Institute for Aging Research   (United States)

^b BETH ISRAEL DEACONESS MEDICAL CENTER   (United States)

^c DANA FARBER CANCER INSTITUTE   (United States)

^d UNIVERSITY OF SOUTH FLORIDA   (United States)

^e BROWN UNIVERSITY   (United States)

^f Hebrew Senior Life   (United States)

Author keywords

Dementia; End of life; Health care proxy; Nursing homes; Palliative care

Indexed keywords

AGED; ARTICLE; COMFORT DURING THE LAST SEVEN DAYS OF LIFE END OF LIFE IN DEMENTIA SCALE; CORRELATION COEFFICIENT; DEMENTIA; DISEASE SEVERITY; EVALUATION; EXPERIMENT; FEMALE; HEALTH CARE QUALITY; HUMAN; INTERNAL CONSISTENCY; MAJOR CLINICAL STUDY; MALE; NURSING HOME PATIENT; OUTCOME ASSESSMENT; PATIENT SATISFACTION; PRIORITY JOURNAL; RATING SCALE; SATISFACTION WITH THE TERMINAL CARE END OF LIFE IN DEMENTIA SCALE; SYMPTOM MANAGEMENT END OF LIFE IN DEMENTIA SCALE; TERMINAL CARE; UNITED STATES; VALIDITY;

ADULT; AGED; AGED, 80 AND OVER; COHORT STUDIES; DEMENTIA; FEMALE; HUMANS; MALE; MIDDLE AGED; PALLIATIVE CARE; PATIENT SATISFACTION; PROXY; QUALITY INDICATORS, HEALTH CARE; REPRODUCIBILITY OF RESULTS; TERMINAL CARE;

EID: 33747499521     PISSN: 08930341     EISSN: None     Source Type: Journal    
DOI: 10.1097/00002093-200607000-00009     Document Type: Article

References (22)

1. SUPPORT. A controlled trial to improve care for seriously ill hospitalized patients. The study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT). The SUPPORT Principal Investigators. JAMA. 1995;274:1591-1598.
2. Hanson LC, Danis M, Garrett J. What is wrong with end-of-life care? Opinions of bereaved family members. J Am Geriatr Soc. 1997;45:1339-1344.
3. Singer PA, Martin DK, Kelner M. Quality end-of-life care: patients' perspectives. JAMA. 1999;281:163-168.
4. Wenger NS, Rosenfeld K. Quality indicators for end-of-life care in vulnerable elders. Ann Intern Med. 2001;135:677-685.
5. Steinhauser KE, Christakis NA, Clipp EC, et al. Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA. 2000;284:2476-2482.
6. Lynn J. Measuring quality of care at the end of life: a statement of principles. J Am Geriatr Soc. 1997;45:526-527.
7. Reisberg B, Ferris SH, de Leon MJ, et al. The Global Deterioration Scale for assessment of primary degenerative dementia. Am J Psychiatry. 1982;139:1136-1139.
8. Mitchell SL, Kiely DK, Hamel MB. Dying with advanced dementia in the nursing home. Arch Intern Med. 2004;164:321-326.
9. Lamberg JL, Person CJ, Kiely DK, et al. Decisions to hospitalize nursing home residents dying with advanced dementia. J Am Geriatr Soc. 2005;53:1396-1401.
10. Kayser-Jones J. The experience of dying: an ethnographic nursing home study. Gerontologist. 2002;42(Spec no 3):11-19.
11. Volicer L, Hurley AC, Blasi ZV. Scales for evaluation of End-of-Life Care in Dementia. Alzheimer Dis Assoc Disord. 2001;15:194-200.
12. Morris JN, Fries BE, Mehr DR, et al. MDS Cognitive Performance Scale. J Gerontol. 1994;49:M174-M182.
13. Morris JN, Murphy K, Nonemaker S. Long Term Care Resident Instrument User's Manual Version 2.0. Baltimore, MD: Health Care Financing Administration; 1995.
14. Volicer L, Hurley AC, Lathi DC, Kowall NW. Measurement of severity in advanced Alzheimer's disease. J Gerontol. 1994;49:M223-M226.
15. Barry MJ, Walker-Corkery E, Chang Y, et al. Measurement of overall and disease-specific health status: does the order of questionnaires make a difference? J Health Serv Res Policy. 1996;1:20-27.
16. Weiner MF, Martin-Cook K, Svetlik DA, et al. The quality of life in late-stage dementia (QUALID) scale. J Am Med Dir Assoc. 2000;1:114-116.
17. Cronbach LJ. Coefficient alpha and the internal structure of tests. Psychometrika. 1951;16:297-334.
18. Nunnally JC, Bernstein IH. Psychmetric Theory. 3rd ed. New York: McGraw-Hill Companies; 1994.
19. SAS. SAS/STAT User's Guide. Version 8. Cary, NC: SAS Institute Inc; 1999.
20. SAS. SAS Language Reference: Dictionary. Version 8. Cary, NC: SAS Institute Inc; 1999.
21. STATA. STATA/SE. 8.2 ed. Texas: College Station; 2003.
22. Mitchell SL, Teno JM, Miller SC, et al. A national study of the location of death for older persons with dementia. J Am Geriatr Soc. 2005;53:299-305.