Community-based, consumer-directed services: Differential experiences of people with mild and severe intellectual disabilities

Social Work Research

Volumn 32, Issue 1, 2008, Pages 55-64

  Neely Barnes, Susan L ^a   Marcenko, Maureen O ^b   Weber, Lisa ^c  

^a UNIVERSITY OF TENNESSEE HEALTH SCIENCE CENTER   (United States)

^b UNIVERSITY OF WASHINGTON   (United States)

^c Washington State Division of Developmental Disabilities   (United States)

Author keywords

Community inclusion; Consumer choice; Deinstitutionalization; Developmental disability; Mental retardation

Indexed keywords

EID: 57749142868     PISSN: 10705309     EISSN: None     Source Type: Journal    
DOI: 10.1093/swr/32.1.55     Document Type: Article

References (44)

1. American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders (4th ed., text revision). Washington, DC: Author.
2. Ashbaugh.J. W (2002). Down the garden path of self-determination. Mental Retardation, 40, 416-417.
3. Bambara, L. M. (2004). Fostering choice-making skills: We've come a long way but still have a long way to go. Research and Practice for Persons with Severe Disabilities, 29, 169-171.
4. Baumeister.A.A., & Baumeister.A.A. (2000). Mental retardation: Causes and effects. In M. Hersen & R.T. Ammerman (Eds.), Advanced abnormal child psychology (pp. 327-355). Mahwah, NJ: Lawrence Erlbaum.
5. Braddock, D. L., & Parish, S. L. (2001). An institutional history of disability. In G. L. Albrecht, K. D. Seelman, & M. Bury (Eds.), Handbook of disability studies (pp. ll-68).Thousand Oaks, CA: Sage Publications.
6. Burchard, S. N. (1999). Normalization and residential services: The Vermont Studies. In R.J. Flynn & R.A. Lemay (Eds.), A quarter-century of normalization and social role valorization: Evolution and impact (pp. 241-270). Ottawa: University of Ottawa Press.
7. Cotton, P. D., & Spirrison, C. L. (1991). Mental health needs of the elderly with mental retardation and/or developmental disability. In M. S. Harper (Ed.), Management and care of the elderly (pp. 115-128). Newbury Park, CA: Sage Publications.
8. Coucouvanis, K., Prouty, R., & Lakin, K. C. (2005). Own home and host family options growing rapidly as more than 70% of residential service recipients with id/dd in 2004 live in settings of 6 or fewer. Mental Retardation, 43, 307-309.
9. Danforth, S. (2002). New words for new purposes: A challenge for the AAMR.Mental Retardation, 40, 52-55.
10. Davis, P., & Faw, G. (2002). Residential preferences in person-centered planning. In S. Holburn & P. M. Vietze (Eds.), Person-centered planning: Research, practice, and future directions (pp. 203-221). Baltimore: Paul H. Brookes.
11. Duvdevany, I., Ben-Zur, H., & Ambar, A. (2002). Self-determination and mental retardation: Is there an association with living arrangement and lifestyle satisfaction? Mental Retardation, 40, 379-389.
12. Felce, D.Jones, E., & Lowe, K. (2002).Active support: Planning daily activities and support for people with severe mental retardation. In S. Holburn & P. M. Vietze (Eds.), Person-centered planning: Research, practice, and future directions (pp. 247-269). Baltimore: Paul H. Brookes.
13. Gelb, S. A. (1997).The problem of typological thinking in mental retardation. Mental Retardation, 35, 448-457.
14. Grove, N., Bunning, K., Porter.J., & Olsson, C. (1999). See what I mean: Interpreting the meaning of communication by people with severe and profound intellectual disabilities .Journal of Applied Research in Intellectual Disabilities, 12, 190-203.
15. Hu, L., & Bender, P. M. (1998). Fit indices in covariance structure modeling: Sensitivity to underparameter-ized model misspecification. Psychological Methods, 3, 424-153.
16. Human Services Research Institute. (2001a). Consumer survey: Phase II technical report. Cambridge, MA: Author.
17. Human Services Research Institute. (2001b). Core indicators project: Consumer survey. Cambridge, MA: Author.
18. Human Services Research Institute. (2002). Consumer outcomes: Phase IVfinal report. Cambridge, MA: Author.
19. Jenaro, C.Verdugo, M. A., Caballo, C, Balboni, G., Lachapelle.Y., Otrebski.W, & Schalock, R. L. (2005). Cross-cultural study of person-centered quality of life domains and indicators: A replication.Journal of Intellectual Disability Research, 49, 734-739.
20. Jordan, B., & Dunlap, G. (2001). Construction of adulthood and disability. Mental Retardation, 39, 286-296.
21. Kincaid, D., & Fox, L. (2002). Person-centered planning and positive behavior support. In S. Holburn & P. M. Vietze (Eds.), Person-centered planning: Research, practice, and future directions (pp. 29-49). Baltimore: Paul H. Brookes.
22. Kline, R. B. (1998). Principles and practices of structural equation modeling. New York: Guilford Press.
23. Kosciulek, J. E, & Merz, M. (2001). Structural analysis of the consumer-directed theory of empowerment. Rehabilitation Counseling Bulletin, 44, 209-216.
24. Lakin, K. C, Anderson, L., Prouty, R., & Polister, B. (1999). State institution populations less than one third of 1977, residents older with more impairments. Mental Retardation, 37, 85-86.
25. Little, R.J.A., & Rubin, D. B. (1987). Statistical analysis with missing data. New York: John Wiley & Sons.
26. Mary, N. L. (1998). Social work and the support model of services for people with developmental disabilities. Journal of Social Work Education, 34, 247-260.
27. Maternal and Child Health and Mental Retardation Planning Amendments of 1963, PL. 88-156, 77 Stat. 273.
28. McCutcheon, A. L. (1987). Latent class analysis. Newbury Park, CA: Sage Publications.
29. Muthén, L. K., & Muthén, B. O. (2004). Mplus: Statistical analysis with latent variables user's guide. Los Angeles: Author.
30. Nirje, B. (1972).The right to self-determination. In W. Woifensbeger (Ed.), Normalization:The principle of normalization in human services (pp. 176-193).Toronto: National Institute on Mental Retardation.
31. Nozaki, K., & Mochizuki, A. (1995). Assessing choice making of a person with profound disabilities: A preliminary analysis.Journal of the Association of Persons with Severe Handicaps, 20, 196-201.
32. O'Brien, C. L., & O'Brien.J. (2002).The origins of person-centered planning. In S. Holburn & P. M.Vietze (Eds.), Person-centered planning: Research, practice, and future directions (pp. 3-27). Baltimore: Paul H. Brookes.
33. O'Brien.J. (1994). Down stairs that are never your own: Supporting people with developmental disabilities in their own homes. Mental Retardation, 32, 1-6.
34. Reid, D. H., & Green, C. W (2002). Person-centered planning with people who have severe multiple disabilities:Validated practices and misapplications. In S. Holburn & P. M.Vietze (Eds.), Person-centered planning: Research, practice, and future directions (pp. 183-202). Baltimore: Paul H. Brookes.
35. Rene-Beaulaurier, R. (1998). Empowering people with disabilities: The role of choice. In L. M. Gutierrez, R.J. Parsons, & E. O. Cox (Eds.), Empowerment in social work practice:A sourcebook (pp. 73-84). Pacific Grove: Brooks/Cole.
36. Schalock, R. L., Bonham, G. S., & Marchand, C. B. (2000). Consumer-based quality of life assessment: A path model of perceived satisfaction. Evaluation and Program Planning, 23, 77-87.
37. Smith, J. D. (2002). The myth of mental retardation: Paradigm shifts, disaggregation, and developmental disabilities. Mental Retardation, 40, 62-64.
38. SPSS, Inc. (2004). SPSS 13.0 [Computer software]. Chicago: Author.
39. Stancliffe, R.J. (1995). Assessing opportunities for choice making: A comparison of self and staff reports. American Journal on Mental Retardation, 99, 418-429.
40. Stancliffe, R.J. (2000). Proxy respondents and quality of life. Evaluation and Program Planning, 23, 89-93.
41. Stancliffe, R.J., & Lakin, K. C. (1998). Analysis of expenditures and outcomes of residential alternatives for persons with developmental disabilities American Journal of Mental Retardation, 102, 552-568.
42. Taylor, S.J. (2001).The continuum and current controversies in the USA. Journal of Intellectual & Developmental Disability, 26, 15-33.
43. Wehmeyer, M. L., & Garner, N.W (2003).The impact of personal characteristics of people with intellectual and developmental disability on self-determination and autonomous functioning.Journal of Applied Research in Intellectual Disabilities, 16, 255-265.
44. Wolfensberger, W. (1972). Normalization:The principle of normalization in human services.Toronto: National Institute on Mental Retardation.