Being the lifeline: The parent experience of caring for a child with neuromuscular disease on home mechanical ventilation

Neuromuscular Disorders

Volumn 18, Issue 12, 2008, Pages 983-988

  Mah, Jean K ^a   Thannhauser, Jennifer E ^a   McNeil, Deborah A ^a,b   Dewey, Deborah ^a,c  

^a UNIVERSITY OF CALGARY   (Canada)

^b Decision Support Research Team   (Canada)

^c ALBERTA CHILDREN'S HOSPITAL   (Canada)

Author keywords

Child; Family centered care; Home mechanical ventilation; Neuromuscular disease; Parent experience; Phenomenology

Indexed keywords

ADULT; ARTICLE; ARTIFICIAL VENTILATION; CAREGIVER; CHILD CARE; COMMUNITY; DECISION MAKING; FAMILY; FEMALE; HEALTH CARE DELIVERY; HEALTH CARE PERSONNEL; HEALTH SERVICE; HOME CARE; HUMAN; MALE; NEUROMUSCULAR DISEASE; PARENT; PRIORITY JOURNAL; QUALITY OF LIFE; SEMI STRUCTURED INTERVIEW;

ADOLESCENT; ATTITUDE TO HEALTH; CHILD; CHILD, PRESCHOOL; EMPATHY; FEMALE; HOME CARE SERVICES; HUMANS; INTERVIEWS AS TOPIC; MALE; NEUROMUSCULAR DISEASES; PARENT-CHILD RELATIONS; PARENTS; QUALITY OF LIFE; RESPIRATION, ARTIFICIAL;

EID: 56949103746     PISSN: 09608966     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.nmd.2008.09.001     Document Type: Article

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